FD NOW has a wonderful blog! Really enjoyed reading about all the different perspectives. Keep up the good work! https://fdnow.org/blog/
We loved attending the NY Gala in person in the past and we're happy FD NOW moved forward with a NY virtual gala this year despite the pandemic!
I came across the FD NOW website when I was researching tyramine. Thank you for all the wonderful information. Your Tyramine free food list sorted by, "Safe", "Caution" and "Avoid" has been so helpful in reducing my tyramine intake.
Long time donor. Continuing to give to this worthy cause as their amazing researchers at Fordham University, keep developing new treatments. Nice to see my donations at work!
Thank you FD NOW for raising funds to support research to discover treatments for those with Familial Dysautonomia. The list of treatments your researchers have already discovered is remarkable. Keep up the great work!
Great group! Great mission! Great researchers! Great progress!
I just participated in an online campaign. What a wonderful organization. Still able to raise significant funds to help all those with FD. Kudos to you FD NOW and all the work you have done for our kids.
Thank goodness for FD NOW and their researchers at Fordham University - Dr.'s Berish Rubin and Sylvia Anderson! These researchers are making serious treatment advancements for all those with FD!
I've been attending the FD NOW NY Dinner event for over 10 years. I look forward to hear the updates from the researchers. It always amazes me how much they accomplish each year to help those with FD.
I have been participating in the FD NOW online auction for years. They always have a wonderful selection of items in all price ranges. In addition to winning a cool item I know that I am really helping the cause.
I enjoy volunteering for FD NOW. I know that every dollar raised goes to research. Their researchers treatment discoveries have made a positive impact on the lives of those with FD. Truly remarkable!
FD Now made my son's life much happier. Without the support of their medical team he would have been on tons of medicine that he didn't need.
Proceeds of FDNow go straight to research to improve the lives of those with Familial Dysautonomia. There have already been research breakthroughs that helped my brother and many others that suffer from this chronic disease. I am grateful for this organization's hard work and dedication to improving my brother's quality of life. Thanks for all you do!
What amazes me about FD Now is how they raise money that all goes DIRECTLY to research that saves lives. The research staff and Foundation members are so devoted to their cause - helping children grow into productive and happy adults able to share their personal gifts with the world. Bravo!
FD NOW puts the NOW in treatments for those with FD. I have been supporting FD NOW for years as they keep delivering treatments to the FD community that are proven to work!
Always on the cutting edge of research! Their treatment breakthroughs have dramatically improved the lives of those with FD.
I have volunteered for FD NOW for many years.
They're always so appreciative. They always have
smiles on their faces and a positive attitude. It's a
pleasure to volunteer for FD NOW.
Have donated regularly for several years-- have a family member afflicted with FD. I love that they always keep you abreast of new developments both on the website and in annual mailing. Their events are great too
FD Now is the most dedicated and passionate foundation I have ever worked with! You will not find a more focused group of people who genuinely want to help kids and their families living with FD!
This organization is run with heart and compassion two key assests missing in today's world! Truly one of the organizations I stand behind these days!
Fabulous! Committed! Empowering! Parent -driven with passion. This is one of our favorite places to give as we know our dollars will be well-spent for something we care about.
FD Now is an organization run by people whose children suffer from FD. They are honest, extremely hardworking and110% dedicated to finding a cure.
FD NOW is an extremely powerful, determined, and focused organization. Familial Dusautonomia (FD) is an ugly disease that progresses over time. Our children don't have the time to wait years for treatments. They need them NOW. FD NOW understands this urgency and supports a research program that aims to help our children immediately, before it's too late!
FD Now works directly with doctors on the cutting edge of finding a cure for the disease. I love that my donations are going directly to fund research that helps kids who suffer from this condition.
Kudos to the FD NOW researchers! Since 2000, Dr. Berish Rubin and Dr. Sylvia Anderson have solely dedicated themselves to the FD community, discovering many safe treatments for the 300 children that battle daily with the ravages of Familial Dysautonomia. Not only have you provided a better life for my son Andrew (young adult with FD), but you have given him a FUTURE.
Review from Guidestar