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Familial Dysautonomia Now Foundation

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases Research, Health, Nerve, Muscle & Bone Diseases

Mission: To discover new treatments and cures for patients with FD.

Direct beneficiaries per year: hundreds of children and adults suffering from Familial Dysautonomia

Programs: funding the groundbreaking research conducted by Dr. Berish Rubin and Dr. Sylvia Anderson at the Laboratory for Familial Dysautonomia, located at Fordham University, NY, USA

Community Stories

18 Stories from Volunteers, Donors & Supporters

Donor

Rating: 5

The results that come from FD NOW are amazing. I love that my donations are REALLY helping those with FD!

Volunteer

Rating: 5

I enjoy volunteering for FD NOW. I know that every dollar raised goes to research. Their researchers treatment discoveries have made a positive impact on the lives of those with FD. Truly remarkable!

Carol Uchin A.

Volunteer

Rating: 5

FD Now made my son's life much happier. Without the support of their medical team he would have been on tons of medicine that he didn't need.

Emily S.9

Volunteer

Rating: 5

Proceeds of FDNow go straight to research to improve the lives of those with Familial Dysautonomia. There have already been research breakthroughs that helped my brother and many others that suffer from this chronic disease. I am grateful for this organization's hard work and dedication to improving my brother's quality of life. Thanks for all you do!

Pat Sherman W.

Board Member

Rating: 5

What amazes me about FD Now is how they raise money that all goes DIRECTLY to research that saves lives. The research staff and Foundation members are so devoted to their cause - helping children grow into productive and happy adults able to share their personal gifts with the world. Bravo!

Donor

Rating: 5

FD NOW puts the NOW in treatments for those with FD. I have been supporting FD NOW for years as they keep delivering treatments to the FD community that are proven to work!

Donor

Rating: 5

Just saw this great video about FD NOW's amazing work!

1

Donor

Rating: 5

Always on the cutting edge of research! Their treatment breakthroughs have dramatically improved the lives of those with FD.

1

Volunteer

Rating: 5

I have volunteered for FD NOW for many years.
They're always so appreciative. They always have
smiles on their faces and a positive attitude. It's a
pleasure to volunteer for FD NOW.

Donor

Rating: 5

As an FD NOW donor, I have always been
impressed with how quickly my donor dollar
translate to actual treatments. I know several
people with FD whose lives have been
significantly improved due to these treatments.

Donor

Rating: 5

Have donated regularly for several years-- have a family member afflicted with FD. I love that they always keep you abreast of new developments both on the website and in annual mailing. Their events are great too

Volunteer

Rating: 5

FD Now is the most dedicated and passionate foundation I have ever worked with! You will not find a more focused group of people who genuinely want to help kids and their families living with FD!

Professional with expertise in this field

Rating: 5

This organization is run with heart and compassion two key assests missing in today's world! Truly one of the organizations I stand behind these days!

Donor

Rating: 5

Fabulous! Committed! Empowering! Parent -driven with passion. This is one of our favorite places to give as we know our dollars will be well-spent for something we care about.

Donor

Rating: 5

FD Now is an organization run by people whose children suffer from FD. They are honest, extremely hardworking and110% dedicated to finding a cure.

General Member of the Public

Rating: 5

FD NOW is an extremely powerful, determined, and focused organization. Familial Dusautonomia (FD) is an ugly disease that progresses over time. Our children don't have the time to wait years for treatments. They need them NOW. FD NOW understands this urgency and supports a research program that aims to help our children immediately, before it's too late!

Advisor

Rating: 5

FD Now works directly with doctors on the cutting edge of finding a cure for the disease. I love that my donations are going directly to fund research that helps kids who suffer from this condition.

FD Mom

Board Member

Rating: 5

Kudos to the FD NOW researchers! Since 2000, Dr. Berish Rubin and Dr. Sylvia Anderson have solely dedicated themselves to the FD community, discovering many safe treatments for the 300 children that battle daily with the ravages of Familial Dysautonomia. Not only have you provided a better life for my son Andrew (young adult with FD), but you have given him a FUTURE.

Review from Guidestar