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Faces The National Craniofacial Association

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Nonprofit Overview

Causes: Health

Mission: Faces: the national craniofacial association serves children and adults throughout the united states with severe craniofacial deformities resulting from birth defects, injuries, or disease by providing financial assistance, information and support networks, and public awareness and education concerning specific craniofacial disorders.

Programs: Faces provided financial assistance for expenses incurred while traveling away from home to a craniofacial center for reconstructive surgery. This assistance is offered on the basis of financial and medical need and includes transportation, lodging, parking, food, and toll fees for a child and one accompanying parent (total: approximately $47,000. 00). Faces provides yearly information and updates to every hospital in the united states with a labor and delivery unit. Each packet outlines the services that faces can provide to new parents whose babies are born with craniofacial anomalies and includes information that can be given to these new parents before they leave the hospital. Faces touched the lives of approximately 27,000 people during this past year by providing lay-friendly information and support for rare craniofacial birth defects. Faces maintains current information on locations of specialized craniofacial medical centers, on specific craniofacial anomalies, as well as information on support networks and other resources as they are developed. Faces also provides a quarterly newsletter that includes information on craniofacial disorders and current research and clinical trials. Faces staff and volunteers were able to make a number of presentations to communities throughout the southeast in an effort to teach the general public more about craniofacial conditions and those who have them. The staff regularly participates in forums at universities with special education majors and speech pathology students. Additionally, the staff was invited to advocate on behalf of children with craniofacial birth defects to genetic researchers at the national institutes of health.

Community Stories

3 Stories from Volunteers, Donors & Supporters

HippyChicKim

Board Member

Rating: 5

I met FACES almost 20 years ago, while creating a brochure for them. During the process of designing the brochure, I researched people with facial disfigurement and read their stories. My heart connected instantly.

I ride a motorcycle and have ridden in a lot of charity rides. At the same time I was learning about FACES I was also searching for "my" charity that I would feel good about supporting. A non-profit who didn't have a fancy office so that I knew that what I was giving was going to really help someone and not line someone's pockets.

When I walked into the FACES office the very first time, I knew I had found "My" charity. The office was itty bitty and in an old brick building that had seen its better days. The furniture was scarred and worn, but two bright shiny faces welcomed me. Just two people to help children and adults across the United States and around the world... They needed me!

Soon after the visit to the office, I was asked to help FACES start a motorcycle ride in Chattanooga, TN. We did - FACES Ride 4 Smiles, which was a huge success in not only helping to raise funds for FACES, but bringing awareness to facial differences whether it's from birth, disease, or accident and the challenges they face. After the first Ride 4 Smiles, I was invited onto the FACES Board and served over 7 years which I loved. When the communications director position came open in 2012 I was thrilled to officially join the FACES Team!

Fast forward to 2020, I am now president of FACES and feel like FACES is my family . FACES is still small with only two full-time staff, one part-time assistant, and one FACES Camp Counselor, but we’re changing lives and making a difference!

Rena R.

Volunteer

Rating: 5

The FACES community is like none other and the work that they do is incredibly important and so valued by our Craniofacial families! When you’re with FACES you’re home.

3 Emylee C.

General Member of the Public

Rating: 5

FACES does amazing work! As a mother who has a daughter with a Craniofacial condition, this organization means so much! Keep up the good work!