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Esophageal Cancer Awareness Association Inc

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Nonprofit Overview

Causes: Health, Patient & Family Support

Mission: ECAA is the first step in battling Esophageal Cancer Esophageal Cancer is a devastating and aggressive disease, but it can be beaten. The Esophageal Cancer Awareness Association (ECAA) is dedicated to helping patients, caregivers, survivors, family members, and anyone at-risk of the disease. Our site offers easy-to-read information on Esophageal Cancer (EC) – descriptions of the disease, its diagnosis, staging, treatments, and other factors. Our goal is to create a community of survivors, patients, and caregivers that together can provide support and information while also increasing awareness of the disease. If you have any questions, we are eager to offer any help we can. We are the only not-forprofit where there is no $$ for salaries or overhead. 100% of your donation goes back into our community. We are truly a not for profit.

Programs: Research grant to john hopkins university $16400, merchandise on website, telephone costs and webhosting, cost to be included in nccn brochure, creating survivor videos for website $22,275

Community Stories

14 Stories from Volunteers, Donors & Supporters

5 Stephanie189

General Member of the Public

Rating: 5

This organization helped me mentally prepare and deal with the effects of being diagnosed, treated, and living with esophageal cancer. I am now a 3 years+ survivor.

1 Karen Page K.

Board Member

Rating: 5

ECAA was there to support me through my EC diagnosis, treatment and surgery and thereafter. This organization manned by all volunteers is simply amazing. They truly care about people and work so hard to raise awareness. I was blessed and honored when asked to join the Board. I now see from the Board perspective how much need there is for support and awareness. This disease is devastating, but ECAA provides much needed support and raises much needed awareness to help people and families, This organization goes above and beyond and I’m very proud to be associated with ECAA.

Previous Stories
1

Board Member

Rating: 5

My name is Karen Kent and I was diagnosed with EC eight years ago. My doctors told me about ECAA and put me in contact with a board member. ECAA was so supportive and truly helped me and my family get through one of the most difficult times we've ever experienced. All of this by an entire volunteer board of directors and volunteers. I decided it was so important to give back, to help others, to raise awareness and provide support. ECAA was the one and only nonprofit organization with all volunteers that, in my opinion, raised awareness and support for patients and caregivers with the purest of hearts and intentions. I'm proud to be a board member of such an amazing organization.

1 Ellen DeEtte T.

General Member of the Public

Rating: 5

My husband was diagnosed with EC last July. We felt overwhelmed and lost with all of the information we received from the doctors. Many of the medical terms and procedures were new to us. We found this organization through FB. We are so grateful we did. The members have been a constant source of information and emotional support 24 hours a day which helps us during this difficult and challenging time in our lives. We feel blessed to have found this organization and it's members who give up hope, strength and comfort by sharing their experiences.

Board Member

Rating: 5

ECAA is an all volunteer organization I began assisting after my husband passed away. I only wish it had been available to me when he was going through it. We try very hard to raise awareness, support caregivers, patients and survivors as well as donate to a well investegated research project yearly. Having dealt with this cancer with a loved one, it is our goal to help all involved, and strive for early detection.

Previous Stories
3

Board Member

Rating: 5

This charity is all volunteers who help raise awareness, contact and communicate with patients and survivors as well as donate to research.

1

Client Served

Rating: 5

I am a three year post operation warrior with esphogeal cancer and have depended on this page to get information from people in the same boat as i Am in. My wife and i were out to dinner one night before a concert and i didn’t feel well after eating my salad and went to the bathroom and had a violent eruption of vomiting. I cleaned up and convinced my wife to find someone else to go to the concert with. She dropped me off at home and once again had violent vomiting and when she came in to see if i was alright she saw what looked like wet coffee grinds and declared that that was not normal so we went to the ER and three days later i was told that I had Esphogeal Cancer and I was in total shock and denial. My daughter works for a gastroenterologist and his partner did the scope and recognized my name. By the end of the week all of my dr appointments were set up. He had to pull in lots of favors but got it done. Dr. Brenner was a godsend and is in touch with me all the time. My daughter had never worked for a dr before but i guess God placed her inthe place she needed to be to be my spokesman. There were many times insureance company tried to deny certain test and she would fight them and demanded pier to pier consultations to get them approved. She knew the system and was on them like bulldogs attacking for me. I must say at 65 years old the past three years were the hardest i have ever had. It seems like i have had every side effect of every chemo that i have been given. On two occasions i was declared (NED) no evidence of disease and both times within the next few months the disease came back. All i could think was come on bring it on and we would change chemo protocol and start the fight over. About a year ago we found a clinical trial that used a combination of immunotherapy and Chemotherapy. A whole new set of side effects. My last blood test showed my thyroid numbers were elevated and immunotherapy has been put on hold until numbers come down. This is a beast we have to fight everyday. But NEVER GIVE UP!!!

1 Kelly A.6

General Member of the Public

Rating: 5

In our area we do not have a nurse navigator. This EC site has served as one for our family. My family and I have been able to learn so much from the wonderful people on this site! Dealing with this cancer has been so difficult. We are so happy to have the mentors and support found here!!❤️

1 Darby K.

General Member of the Public

Rating: 5

I found this amazing association when my father was diagnosed with esophageal cancer. I was desperate for answers and support. I found so much more, I found a family. People who had never met, but we all had one thing in common. I cannot express how grateful I am for this nonprofit association. Education and awareness not only supports patients, families, caregivers and friends, but it offers support from others that know what you are going through. After my dad passing at 63 years old April 24th 2019, I know how important it is to spread the word of awareness. My heart has been touched by the kindness we offer each other. Getting the word out of this deviating disease, may save lives.
I’m thankful to have found Esophageal Cancer Awareness Association Inc.

2

Board Member

Rating: 5

I was diagnosed w/EC over 22 yrs ago and one of the founding members of this great organization. Together, we have brought awareness to EC issues...including causes. We also answer [non-medical advice] questions thru a variety of avenues. Some folks contact us just to have somebody to talk to and have dealt w/EC personally. And we do a great job of that as well. 22 yrs ago...resources on EC were almost impossible to find. Today...the ECAA IS THE PLACE TO GO .

1

Client Served

Rating: 5

This is my go to site for information and support as my husband deals with Stage IV esophageal cancer. I have learned so much from fellow caregivers and have hopefully been able to offer support to other people dealing with this beast.

3

Board Member

Rating: 5

5 yrs ago I was diagnosed with stage 3 EC. I was looking for support and thankfully found this group. It’s a wonderful supportive group and I am one of the members of the all volunteer EC Board to help raise awareness.

5 Christopher M H.

Board Member

Rating: 5

They have supported me from the start. The only not for-profit organization that I know of with no paid salaries.