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Esophageal Cancer Action Network, Inc. (ECAN)

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Nonprofit Overview

Causes: Cancer, Digestive Diseases & Disorders, Health

Mission: Esophageal Cancer Action Network's mission is to >SAVE LIVES by raising awareness about the link between Heartburn and Cancer > promoting early detection > supporting progress in medical innovation for the prevention, early detection, treatment and cure of Esophageal Cancer and > linking patients and families to compassionate support. Every 36 minutes, an American dies of Esophageal Cancer. ECAN is dedicated to fighting Esophageal Cancer, the fastest increasing cancer diagnosis in the U.S. Esophageal Cancer can be treated successfully if it's detected early. But usually it isn't. That's one of the reasons we founded ECAN. We want people who have persistent heartburn to know that they are at risk for this deadly disease. And we want those who decide how federal research dollars are spent to focus more attention on finding much more effective tools to discover and fight Esophageal Cancer.

Programs: Ecan's mission is to save lives by increasing awareness about the link between heartburn and cancer, promoting early detection, supporting medical innovation to prevent, detect, treat and cure esophageal cancer and link patients and families to compassionate support. This national non-profit organization, based in baltimore, is led by a board of directors of top physicians, business leaders, and families that have been touched by esophageal cancer. History: ecan was founded in 2009 by mindy mintz mordecai and an impressive group of dedicated professionals after she lost the father of her two young daughters, and her husband of 14 years, to esophageal cancer. Angry and frustrated because she believes that her husband and thousands more like him might never have died had they been aware of the link between heartburn and cancer, mordecai is determined to prevent others from suffering the pain esophageal cancer has caused her family. Accomplishments: over the past 6 years, ecan has made significant strides in the fight against esophageal cancer. Among ecan's successes:critical research: ecan successfully advocated with the national cancer institute to change course and include esophageal cancer in its genome mapping project known as the the cancer genome atlas (tcga). Mindy mintz mordecai is also a member of the national cancer institute's esophagogastric task force of the gastrointestinal steering committee as a patient advocate representative and the nci patient advocate steering committee. The focus of the task force is to improve the clinical research that impacts esophageal and gastric cancer patients. A guide for patients: with input from physicians around the country, ecan developed an innovative guide for patients providing comprehensive and clear information about the link between heartburn and cancer. The guide is designed to help patients advocate for their own health care and is available as a free download from the ecan website in both english and spanish. Esophageal cancer awareness month: esophageal cancer awareness month: ecan led the effort to have april designated as esophageal cancer awareness month in states throughout the united states. With ecan's support over the past 5 years, more than 150 gubernatorial declarations of ec awareness month have been achieved throughout the country and in some other nations, as well. April is now observed as ec awareness month by companies, organizations and governments across the nation - and the world. Legendary partnership: ecan has partnered with the estate of film icon humphrey bogart whose life was cut short in 1957 by esophageal cancer. In may 2013, the 3,000 guests of the first annual humphrey bogart film festival in key largo, florida witnessed the launch of screenings for screenings. In movie trailers produced by ecan and presented before each film, bogart's son stephen encourages those at risk for esophageal cancer to "get checked. " those trailers can now be seen at a variety of events, including the annual humphrey bogart film festival in key largo, florida. Events that make a difference: in april 2014, ecan presented the first esophageal cancer awareness event in professional sports at the staples center when the l. A. Clippers took on the dallas mavericks. Later that month, ecan sponsored the first esophageal cancer awareness race ever held in new york city; more than 1,000 attended the two day festival that included a 5k, 10k and half marathon. In april 2012, ecan hosted the first gala ever held in the u. S. To focus on esophageal cancer advocacy. Former california congresswoman and under secretary of state ellen o. Tauscher moved the crowd of nearly 300 with her story of survival of stage iii esophageal cancer. In 2013, the cancer dancer gala attracted a larger audience and raised more than $110,000 in support of ecan's life-saving mission. In 2014, the cancer dancer gala went hollywood with more than 300 guests and remarks by ecan spokesman stephen bogart. The fun night celebrated ecan's success as it approached its fifth anniversary. Seriously funny: in 2015, ecan launched its no laughing matter campaign - a public awareness effort that uses humor to help folks understand that reflux disease is a serious condition that should not be taken lightly. The highlight of the campaign was an evening with jeff foxworthy in arlington, virginia in april that brought a new audience to our message and entertained our supporters with a fantastic evening of fun and laughter. Leading up to the foxworthy event, ecan hosted competitions in comedy clubs throughout the us where comedians competed for the chance to be the opening act for jeff foxworthy. The winner of the competition, andy huggins of houston, performed a hilarious set before jeff foxworthy took the stage. Reaching for the sky: ecan took awareness to new heights in 2015 with its stories to save lives event in los angeles. More than 40 brave participants rappelled down 24 stories of the hilton universal city hotel on behalf of someone who has faced esophageal cancer. Two rappellers were ec survivors and a third is a patient currently battling esophageal cancer. This fun and moving day delivered a strong message about the importance of early detection and taking reflux disease seriously. Ecan sponsors and supports multiple fundraising and awareness raising events around the country including walks, runs, bike rides, golf tournaments, dinners, library outreach, speaking events, art shows and more. Ecan volunteers have hosted more than 60 events to raise awareness in cities and towns across the united states since 2010.

Community Stories

77 Stories from Volunteers, Donors & Supporters

Donor

Rating: 5

This organization is near answer dear to my heart. They provide wonderful support to esophageal cancer patients and their families. We have helped with a number of fundraisers and events and love the awareness they are bringing to this terrible disease. Mindy Mordecai is a pleasure to work with.

Board Member

Rating: 5

I came in contact with ECAN in the early summer of 2018 right after I was diagnosed with Esophageal Cancer.
The experience has been nothing short of wonderful.
Mindy helped guide me thru treatment (immunotherapy /chemo / radiation / surgery) at a very difficult time is my life, and continues to do so to this day.
I have offered my support at ECAN in any way that may be needed.
I have donated to ECAN and will continue to do so.
I was asked to join the Board of Directors, and was honored to be voted in unanimously.
ECAN's mission is one that I hold dearly, for I don't want to see anyone go thru what I have since June of 2018. Esophageal cancer can be prevented, and I will continue to get that word out.
Mindy is passionate about ECAN, I've never seen such dedication to an organization in my life.

Jen Dudyk S.

Volunteer

Rating: 5

ECAN provided my family support, education and a chance to connect with other families, caregivers, patients and survivors. ECAN's works to save lives with education and advocacy for access to federal research dollars.

Client Served

Rating: 5

ECAN has been so amazing in resources, educating in latest treatments, as well spreads awareness and educates how Acid Reflux and GERD can lead to cancer. They also do many things to fight for funding which will help bring a cure to so many people. This is desperately needed due to EC being one of fastest growing cancers in US. This safe space brings patients, doctors caregivers, friends and family together to support each other through the many ups and downs with this terrible battle. My son at 25 years old was diagnosed as Stage 4 EC with mets to liver April 1, 2020. We were left with very little hope until my daughter found this group. I was shown so many brave warriors that have made it very far that were in same battle as us. This was the first rays of hope that my eyes and soul were to see that there are survivors. Over the past 7 months this group has been helpful beyond words. Mindy is a amazing soul that I can't say enough words of gratitude or speak high enough to the knowledge resources and inspiration she leaves you with.

Client Served

Rating: 5

Absolutely phenomenal! Amazing people, that truly care! They help shine light on the situation during extremely dark and scary times. I don’t know where my family would be without them.

General Member of the Public

Rating: 5

I lost my mom 5 years ago, November 1, 2015. Since I lost her I’ve wanted to help raise awareness and along my search I found ECAN. They’ve been amazing with helping educate myself, family and friends about this deadly cancer! I keep thinking if we had known more about this cancer before my mom got sick, maybe she would still be here. Everyone at ECAN has been super friendly and helpful.

Client Served

Rating: 5

Once my Dad was diagnosed with Esophageal Cancer my family was looking for more information and answers. We came across ECAN and they provided a lot of resources and support. We felt heard and understood by them. ECAN continues to provide as much information on this disease as they can. Early detection is key and they continue to advocate for all of us. We are forever grateful for them and will continue to help in the fight against Esophageal Cancer!

Client Served

Rating: 5

ECAN, you have truly been a godsend to me and my family. I just wished I would have found you sooner! My sweet and beautiful mama passed from EC in April of 2019, since then you have allowed me to make it a point to educate others. To help me realize we are our own biggest advocate. Thank you ECAN for giving me the knowledge needed to confidently educate others that think heartburn is nothing to be concerned about. That not being able to swallow is nothing to be concerned about. That being in pain is nothing to be concerned about. I have helped 3 people get detected early. I realize that isn’t a large number, but those are
3 lives that may not be here today if I wouldn’t have had the confidence and data to push them to get checked, to be their own advocate. If only I had this information when my mom was ill and was misdiagnosed for two years, my story might be different. Thank you for all that you selflessly do to build awareness.

Donor

Rating: 5

ECAN is the only organization that advocates for current and future EC patients and connects patients with a support network and medical treatment if needed. I'm not sure how lonely, hopeless, and unsupported I would feel living with this rare and deadly cancer if it weren't for Mindy and all the Board Members working so hard to raise funds/awareness and update us on treatment options/detection. They've made a huge difference in getting national cancer research dollars to cover EC. I'm a 7 year survivor/thriver. When I was first diagnosed things looked really grim for us but so much progress has been made in the last few years and I know ECAN had a lot to do with this. I'm very impressed with how much they have done in such a short time.

Kimberlee Lindemeyer R.

Client Served

Rating: 5

ECAN has been a link for our family to honor our husband, father and grandfather by staying active in the fight against esophageal cancer. They are an advocate and fighter for those effected. Our family feels connected and part of the fight with ECAN.

Steve O.1

Volunteer

Rating: 5

I am an 8 year survivor offstage three adenocarcinoma esophageal cancer. Dx 8 August 2012. Pre treatment, surgery and post chemo completed by April 2013. Part of a cancer hospital survivorship program to reach out to new patients. No other associations. I found ECAN on the net and shared my story. Forward to Nov or Dec of 2014. Announcement made by ECAN regarding fundcraiser/ awareness event. Rappelling off Hilton Hotel, Hollywood, Ca. Told ECAN I would be honored to raise funds but wouldn't be able to make the trip. Mindy Mintz Mordecai replied "you raise the funds Steve, we'll send you on the trip". 49 people rapelled. 46 were family or friends of patients. Two of us were survivors and one was a patient in treatment. I was the long term survivor at a bit over two years. The event was an incredibly well orchestrated and successful beacon of light. I was treated like a King and the 360' drop from the roof was incredible. This organization is a remarkable lighthouse in the world of really nasty cancer.

Steve O'Grady

Cyndi C.1

Donor

Rating: 5

I met Mindy when our husbands had EC. I loved her courage in bringing EC to the forefront, a disease that was hardly known about, and love all the research that is being done by ECAN. I wear the bracelet every day and so does my son. This is a disease that needs to be considered like lung, breast, colon, as it is terminal and very few survive very long after diagnosis. Mindy's foundation is doing amazing work. Thank you, ECAN.
Cyndi

Donor

Rating: 5

Mindy has been so supportive through my husband s journey suffering from Esophageal Cancer. ECAN is our only hope to raise money for funds

General Member of the Public

Rating: 5

ECAN provides relevant content to educate people on research, treatments,etc. related to esophageal cancer. They are extremely responsive to messages through their Facebook page, and have provided me with information to find doctors in my area who are implementing state of the art procedures I have discovered on their site. I am so thankful that I found them, as their resources have been extremely helpful to me!

Client Served

Rating: 5

I'm writing a review for ECAN. I have had esophageal cancer twice and told my story for others to give them a little hope. I am a survivor of 13 years and hope to continue for my more years.

Client Served

Rating: 5

I was diagnosed with EC in March 2019. It was very scary as my dad died from this disease in 2019. The continual support from Mindy Mintz Mordecai, someone who I have never even met, has been so encouraging and such a comfort! I have had so many setbacks and struggles, but am cancer-free and recovering! EC is an awful disease, unlike any other I have witnessed, but thanks to people like Mindy, there are people working to bring awareness to this awful disease.

Chris C.9

Donor

Rating: 5

This has been awesome. When my dad passed away Mindy was there every step of the way helping us get the word out. They're doing an awesome job and this is a cancer that can't be ignored.

Maureen Y.

General Member of the Public

Rating: 5

My husband was diagnosed with esophageal cancer 8 years ago and we had no idea what we were in for. Our daughter Megan researched and found ECAN. We were thrilled to have accurate and current information at hand. We were told esophageal cancer was a cancer that smokers and drinkers got - but my husband never smoked and only occasionally had a drink. Through ECAN we found out people who had acid reflux could develop cancer and my husband had constant acid reflux. My husband lost his battle with esophageal cancer 18 months ago, but I continue to post ECAN updates on Facebook to help spread the word.

Maggie N.3

General Member of the Public

Rating: 5

I am a 14 yr stage 4 survivor, I appreciate all that ECAN has done over these years. I only wish a nonprofit existed back in 1998 when I went to a GI doctor with bad heartburn, was told I had GERDS take tums dont worry about. The research was there doctors didn't know. I was stage 3 when diagnosed.
Thank You Keith Solsbury

Amy S.9

General Member of the Public

Rating: 5

My dad fought esophageal cancer for 13 brutal months and ECAN was with us every step of the way. They do incredible and much needed work advocating for research for this horrific cancer and also provide a great deal of support to families who are dealing with esophageal cancer. I’m very grateful to ECAN!

Loren Moss M.

General Member of the Public

Rating: 5

My husband has inoperable stage 4 Esophageal Cancer. ECAN has been a great support for us ever since my husband's diagnosis. They go out of their way to send customized info to us, without our even having to ask! From suggesting trials, to telling us about new treatments, they always respond right away and are on top of everything relating to the disease. Their one-on-one personalized support has helped us deal with the tremendous fear that comes with this horrible cancer. ECAN hosts many events to raise awareness for this cancer. I was delighted to learn that because of ECAN's persistent efforts, they were able to get EC recognized for the multi-million dollar Dept. of Defense Cancer Research Program earlier this year! That is huge! I can't speak highly enough about this organization. It is very reassuring to know that ECAN works hard every day to help shed light on this disease, and to support finding new treatments and hopefully a cure. I really appreciate having them in our corner. They are a valuable and necessary organization to have combatting this little-known, but fast increasing cancer! Thank you for all you do ECAN!

Elizabeth Ruskin S.

General Member of the Public

Rating: 5

Mine is a family deeply affected by esophageal cancer. ECAN has been a greatly appreciated contribution to our ability to understand the nature of this rare cancer. The knowledge is very valuable but difficult to understand without the help of ECAN

Kelly Weber A.

Client Served

Rating: 5

ECAN came into our lives unexpectedly when my husband was diagnosed with stage 4 esophageal cancer at age 42. We didn’t know where to turn and how to handle this disease and then I found ECAN. They were an amazing support during his treatment and provided education, resources, and comfort during such a difficult time. I can not thank them enough for all they did for us and continue to do for advocacy.

General Member of the Public

Rating: 5

ECAN continues to provide excellent service. Their Heartburn Awareness campaign on line allows me to share vital information to all of my family and friends! SO IMPORTANT! At the same time they keep me abreast of all the latest science surrounding GERD(Heartburn) and Esophageal Cancer! Thank you ECAN for all you do for our community!

General Member of the Public

Rating: 5

HI, my name is, Jason Lee Carmona. over five years ago, I was diagnosed with Esophageal Cancer. I have had very little support from the medical community, however, ECANN and Mindy Muntz Mordichi, have been ablsulotey one hundred percent supportive on our fight "Together" to CURE ALL CANCERS! I am honored and very appreciative to Mindy and the Entire Ecann Family! I know one day "we" will have our victory and celebrate a new life, without the horrible disease, that has been named, "Cancer"!

General Member of the Public

Rating: 5

I have followed ECAN since the beginning. I have reached out many times to ECAN in assistance with writing my governor to declare April Esophageal Cancer Awareness month and they did in CT. Each year I received pamphlets and wrist bands to give out at events. EC stripped my life of everything we should have known and the Awareness was not there. Is why I appreciate ECAN from the bottom of my heart. Thank you

Margarette Pope F.

General Member of the Public

Rating: 5

I am an Esophageal Cancer survivor. I became engaged with this organization many years ago. I have not only found it to be knowledgeable with great articles, resources and others that I can interact with but I have been able to share my experiences. I belong to many support and awareness groups and I must confess that I find this group to be the best for me.

Volunteer

Rating: 5

ECAN is a great Non profit. It's founder Mindy works non stop to get the word out the "Heartburn can cause cancer" . She is working on legislation to get that slogan put on acid reflux medication. Ecan is making a difference in peoples lives. go to ECAN.org and see some of the great work they do.

Jennifer G.6

Client Served

Rating: 5

I found ECAN as I was googling information on Esophageal Cancer. My then forty-seven-year-old husband had just gotten this devastating diagnosis after months of medical misdiagnosis. I was stunned and confused. I joined and have been contacted personally by several people on the board. They have always been supportive and have been an incredible source of information. My husband now has brain mets, and again, I have been personally contacted and have had studies and resources shared with me. Doctors don't do this. ECAN is the reason that eventually we will have a cure for this awful disease.

Volunteer

Rating: 5

ECAN has truly made a difference for EC patients and their families. Helping to secure research funding, fighting for correct labeling on heartburn medications, raising awareness about the real dangers of long term heartburn and the condition called Barrett’s Esophagus. I am thankful for their dedication and only wish my father had lived to be a part of it.

Donor

Rating: 5

This is a great foundation! Mindy is dedicated at doing her best to raise money for awareness and funding for research. She organizes events well. She is helpful and supportive. She truly understands the cancer because she has dealt with it with her husband. I'm glad I found ECAN!

Nancy W.2

General Member of the Public

Rating: 5

If you or someone you love has Esophageal cancer ECAN is the place to go for information and support. They will direct you to the place where you can get all kinds of info and support. It's founder and leader started ECAN after losing her husband to this horrendous disease. With a lot of info from ECAN I have been able as a 15 year survivor of EC to share that info and my own experience to help newly diagnosed navigate the world they now are in. Mindy's selfless dedication to ECAN and the awesome group of people she has put together will always be a big part of my continued quest to help others.

Professional with expertise in this field

Rating: 5

Mindy and the team at ECAN are very aggressive at pushing for awareness at the local, state and national level for esophageal cancer. ECAN is not just about awareness/education. Sure, they do that, too. They are mostly about ACTION...not just passively learning about the disease, but lobbying for change, getting involved, reaching out, helping others. ECAN is the best kind of advocacy and nonprofit because they are so well networked at making things happen to stamp out the disease.

Kaitlin N.1

Professional with expertise in this field

Rating: 5

ECAN has been instrumental in alerting people to the severe consequences that daily heartburn can come with. I have given several of my friends and family ECAN's materials and it prompted them to get scoped. One had Barrett's Esophagus and had no idea. ECAN could have very well saved his life!

Professional with expertise in this field

Rating: 5

ECAN provides great exceptional work and support for patients and relatives - outstanding and awesome

Professor Björn Brücher

Lindarose

Donor

Rating: 5

I found ECAN when my 55 year old husband was diagnosed with stage 4 Esophageal Cancer 4 years ago. We had little to no knowledge or facts of this deadly cancer and ECAN became a credible, caring resource of up to date information, directing us to articles, research, therapies and testing that we could bring to our providers in Western New York to discuss. Jim sadly passed away in 2015 and ECAN has become even more important in my life as I feel a responsibility to share ECAN’s tireless message that heartburn can cause cancer and the immediate need for funding, research, earlier and non invasive screenings and treatment is so desperately needed - and ECAN is dedicated to this mission. Their campaign to mandate warnings on acid reflux medications will save lives. Their lobbying and influence to increase Esophageal Cancer funding will save lives. Their collaboration with oncologists and providers, sharing the story of our loved ones will save lives. The President and board of directors of ECAN represent the voice of those who lost their battle to this fast growing, under funded relentless cancer and speak for those diagnosed everyday. I donate to and support ECAN. I share their message of education and prevention to help others understand the risks of Esophageal Cancer. They make it easy through their social media campaigns. ECAN is a wonderful non profit that I will be eternally grateful for.

Donor

Rating: 5

So grateful to this group for helping bring more awareness to Esophageal cancer

Donor

Rating: 5

ECAN is an amazing organization that supports patients with education and resources, and fights to secure funding for research for esophageal cancer.

Board Member

Rating: 5

ECAN is an outstanding organization focused on raising awareness of esophageal cancer. The organization goes above and beyond most patient action networks and provides a mutlitude of excellent resourses for patients, families, and health care professionals to battle this deadly disease

Donor

Rating: 5

The Esophageal Cancer Action Network, is a leading source for information and support for people diagnosed with esophageal cancer. As an esophageal cancer survivor; I volunteer with a cancer awareness and assistance group in my community. ECAN has provided us with information and awareness supplies on several occasions. We use these materials at informational presentations and local health fairs to increase knowledge about the risks, early warning signs, and treatment options for esophageal Cancer.

Board Member

Rating: 5

Has accomplished much and saved lives on minimum resources. Could accomplish much more with more support.

Board Member

Rating: 5

I became aware of ECAN in 2010 when a loved one was diagnosed with Esophageal Cancer. Over time I've seen ECAN grow and I've been amazed at how much they have done with little resources. I'm proud to have joined the the Board of Directors in 2016 and amazed at the passion that every member of ECAN has in the fight against EC. ECAN is an incredible organization and certainly a worthwhile organization to donate to.

General Member of the Public

Rating: 5

Great charity that advocates for a rare cancer that needs more attention. They have done a lot to raise awareness with the little money they have.

Ashley R.5

Donor

Rating: 5

My father passed away form esophageal cancer 8 years ago. ECAN has helped me through a great support network as well as a way to help fight back against this terrible disease and educate others about the risks of heartburn.

Board Member

Rating: 5

It was an amazing opportunity for me to get involved with ECAN. I think they are doing a phenomenal job in spreading awareness about esophageal cancer. As a clinician who spends most of his time taking care of patients with esophageal cancer, I wholeheartedly support ECAN’s mission and look forward to working with them!

General Member of the Public

Rating: 5

When my husband was first diagnosed with esophageal cancer, ECAN came to me and helped me through everything -- they anticipated my questions and guided me through every step of the way. They were also with me after he passed away and have continued to show me support throughout the last 6 years. It is my honor to work with them as much as I can.

Nola C.

Client Served

Rating: 5

ECAN has provided posters and pamphlets for my auto business every year for several years now. I put them in our service waiting area. Having those posters there has really gotten me out of my comfort zone and encouraged me to talk to people about my experiences with my husband’s GERD and his cancer. I feel like it opens people up to ask questions and talk about their own symptoms with me so I can guide them to seek help. ECAN is always a great online resource for these customers who want extra information. I know we’ve saved lives through these private conversations that all started with a simple poster. I’ve had lots of customers who’ve come back to thank me for talking to them about it, because they’ve sought treatment. Truth is I never would have talked to anyone if I didn’t have great resources from ECAN.

Professional with expertise in this field

Rating: 5

ECAN, and in particular Mindy, has pioneered thought leadership about the risks of heartburn turning into esophageal cancer. ECAN educates through events, a stellar website, networking with related industry professionals (physicians, hospitals, cancer centers, device and pharma companies). ECAN shines a light on how heartburn is not just managed with OTC medications, but should be a red flag for sufferers and their families, despite many in the GI community suggesting it is very low risk. Yet ECAN works hard to save lives by making every life matter. I'm a medical device professional, a Barrett's esophagus patient, and a committed partner to supporting ECAN.

Catherine M.2

Donor

Rating: 5

Appreciate how genuine and generous this group is! Truly creates an environment of support, education and advocacy.

Jedd J.

General Member of the Public

Rating: 5

This organization is truly committed to raising awareness and keeping its members abreast of the latest developments in treatment options. This is extremely important to me as a survivor of this terrible cancer.

Board Member

Rating: 5

ECAN is passionate. Works hard to support all patients with education, resources, and the fight to secure funding.

Previous Stories

Board Member

Rating: 4

Dedicated to increasing awareness about the signs and symptoms of esophageal cancer, providing patient resources, and funding for advocacy, ECAN is shining a light on a growing disease to help detect and improve patient outcome. ECAN takes on big initiatives with a modest budgets and is making a difference.

1 Michele91

Board Member

Rating: 5

As a four year survivor I joined the board to end this horrific Deadly Cancer.

Previous Stories
1

Client Served

Rating: 5

I could not of gotten thru my cancer without ECAN. Every charity should learn from them. They treat you like your the only one. The most trusting charity around 100%.

General Member of the Public

Rating: 5

ECAN provides information, support, and a listening ear for families who have a loved one afflicted with esophageal cancer. They are dedicated to raising awareness of this awful disease.

Donor

Rating: 5

I first heard of ECAN when my 65 yo husband, Tom, was diagnosed with esophageal cancer in 2010. He survived just two more years. The saddest part of this is that Tom had suffered for years and years with GERD. It was treated with prescriptions and over the counter medication and other recommendations such as no late meals and keep the head of the bed raised. He was not referred to a gastroenterologist until he had great difficulty swallowing. He went through radiation, chemo, and multiple surgeries and suffered greatly.

ECAN works to educate physicians and other caretakers. ECAN provided us with so much information during the process. They have guides for patients and facts about esophageal cancer. They have a Facebook page that distributes information on research and treatments as they are published. They have worked hard with the FDA to get over the counter medications to carry a warning of heartburn can cause cancer

After Tom’s death I started a small monthly donation in his memory. I also support ECAN by distributing literature every April to many businesses with which I associate. April is support esophageal cancer month. I'm relatively certain my friends and family are very aware of this disease. I continue to tell Tom’s story as a two time cancer survivor myself. I join ACS’s Relay for Life and our daughter’s sorority donates in her father’s memory at every local Relay forLife. It is a wonderful educational organization.

Previous Stories

Donor

Rating: 5

I make a monthly donation to this organization in memory of my husband. He was diagnosed with Esophageal cancer in 2010. He had radiation, chemo and surgery, but the cancer took his life in 2012. We were married for 46 years. Just today, (3-4-17) our daughter, with tears in her eyes said I wish Dad was still here, I have so much to tell him. I get the word out as often as I can with brochures and social media, in the hopes that another person's life can be saved.

General Member of the Public

Rating: 5

I started at ECAN on August 1, 2016. In that time I've been amazed at how dedicated our volunteers are. I've learned so much in such a small amount of time and am so very lucky to be a part of this organization! Mindy works 24/7 to bring awareness to this awful disease. I may only be part time but my heart is in it full time and am so blessed to work with Mindy. Spread the word: Heartburn Can Cause Cancer!!!

4

Volunteer

Rating: 5

ECAN punches way above it's weight! Such a small organization, with such a small staff, and yet it's been able to accomplish so much. For example, it was able to get esophageal cancer (EC) included in the national genome mapping project, despite initially being turned down. More generally, by raising awareness of the link between GERD/heartburn and EC, and encouraging people to get scoped (an endoscopy) it has literally saved dozens, hundreds, many even thousands of lives. Practically, and more specifically, it has put out a patient guide to help people have an educated conversation with their primary care doctor about EC, especially if they're experiencing GERD/heartburn, so that they just don't leave the doctor's office with a prescription for drugs but are sent to be scoped (if justified). All with one full-time employee and at most 2-3 part-time staff. Go ECAN!

alexcrew

Volunteer

Rating: 5

I am a proud ECAN Volunteer and would like to share that the Esophageal Cancer Action Network, Inc. (ECAN) has proven to be a very important part of my Esophageal Cancer journey. I was blessed to meet Mindy Mintz Mordecai, CEO and founder of ECAN in September 2012, just eight months after I was diagnosed with stage IV Esophageal Cancer. After completing successful chemotherapy, I was looking for ways to give back and I found ECAN. With the help of ECAN, I was able to host an amazing Awareness Event/5K called "Paint the Town Periwinkle" in April 2013. The main event was held in Athens, TN and branched out around the world. Working with ECAN has allowed me the ability to create EC Awareness and give hope to others for several years now. I have attended ECAN events each year and I cannot praise Mindy enough for all she does for ECAN - a truly great nonprofit. ECAN is very important to the advocacy, awareness and research of Esophageal Cancer - they are the voice for many - together wECAN make a difference!
- Stacy Alexander

Ted_12

Volunteer

Rating: 5

Good site to educate yourself on esophageal cancer and good support system from others.

Client Served

Rating: 5

This group is getting the word out. Heartburn can lead to cancer of the esophagus. They are saving lives.
My husband is the patient. ECAN has been Very kind to me, and offered any help I may need.

Volunteer

Rating: 5

ECAN saves lives! ECAN continues to meet its mission of raising awareness of early signs of esophageal cancer both among the general population and physicians, supporting medical research, and connecting patients, family and phycians with each other. The tireless efforts of Mindy Mintz Mordecai who has taken her pain and loss and combined it with her talents and passion has sustained ECAN for years. It has taken a local effort nationwide. She takes her passion and sparks the passion of others.

M Neal O.

Volunteer

Rating: 5

My dad didn't know that the persistent heartburn he had would lead to Esophageal Cancer and eventually his death. I don't want other families to lose someone they love, especially just for lack of knowledge. This is why I support ECAN. Their primary mission is to make people with heartburn aware of the risk for Esophageal Cancer. With a small but very passionate staff, they accomplish many amazing things. They organize events to raise awareness, they provide fliers, posters, and other material (physical and electronic) to help supporters spread the information, and they support those with EC and their families with a community of support and information among many other things. I have been very impressed with the efficiency and passion of this group and its supporters.

Lisa541

General Member of the Public

Rating: 5

ECAN provides life-saving information to the general public and wonderful support to those who have been diagnosed with esophageal cancer.

Former staff

Rating: 5

ECAN has supported so many people with esophageal cancer in my community. I am excited and encouraged by the work they do nationally to help patients and families. Additionally, their commitment to, and support for research, has an international impact.

Client Served

Rating: 5

Life is Fragile handle with Care. Its about the moments, and having people who care.
When my healthy husband got suddenly sick and was told he had Esophageal Cancer, there was no real group to turn to, and less then 10% of the people survive, the web was full of scary and hopeless information. Now after many battles ECAN has been formed. This small non-profit group , against all odds have made a rare cancer group. "give up" is not in their vocabulary. Now when you wonder what can heart burn lead to, or what is EC you can turn to ECAN for some answers. let's just say "they get it" its about surviving.