ECAN has truly made a difference for EC patients and their families. Helping to secure research funding, fighting for correct labeling on heartburn medications, raising awareness about the real dangers of long term heartburn and the condition called Barrett’s Esophagus. I am thankful for their dedication and only wish my father had lived to be a part of it.
This is a great foundation! Mindy is dedicated at doing her best to raise money for awareness and funding for research. She organizes events well. She is helpful and supportive. She truly understands the cancer because she has dealt with it with her husband. I'm glad I found ECAN!
If you or someone you love has Esophageal cancer ECAN is the place to go for information and support. They will direct you to the place where you can get all kinds of info and support. It's founder and leader started ECAN after losing her husband to this horrendous disease. With a lot of info from ECAN I have been able as a 15 year survivor of EC to share that info and my own experience to help newly diagnosed navigate the world they now are in. Mindy's selfless dedication to ECAN and the awesome group of people she has put together will always be a big part of my continued quest to help others.
Mindy and the team at ECAN are very aggressive at pushing for awareness at the local, state and national level for esophageal cancer. ECAN is not just about awareness/education. Sure, they do that, too. They are mostly about ACTION...not just passively learning about the disease, but lobbying for change, getting involved, reaching out, helping others. ECAN is the best kind of advocacy and nonprofit because they are so well networked at making things happen to stamp out the disease.
ECAN has been instrumental in alerting people to the severe consequences that daily heartburn can come with. I have given several of my friends and family ECAN's materials and it prompted them to get scoped. One had Barrett's Esophagus and had no idea. ECAN could have very well saved his life!
ECAN provides great exceptional work and support for patients and relatives - outstanding and awesome
Professor Björn Brücher
I found ECAN when my 55 year old husband was diagnosed with stage 4 Esophageal Cancer 4 years ago. We had little to no knowledge or facts of this deadly cancer and ECAN became a credible, caring resource of up to date information, directing us to articles, research, therapies and testing that we could bring to our providers in Western New York to discuss. Jim sadly passed away in 2015 and ECAN has become even more important in my life as I feel a responsibility to share ECAN’s tireless message that heartburn can cause cancer and the immediate need for funding, research, earlier and non invasive screenings and treatment is so desperately needed - and ECAN is dedicated to this mission. Their campaign to mandate warnings on acid reflux medications will save lives. Their lobbying and influence to increase Esophageal Cancer funding will save lives. Their collaboration with oncologists and providers, sharing the story of our loved ones will save lives. The President and board of directors of ECAN represent the voice of those who lost their battle to this fast growing, under funded relentless cancer and speak for those diagnosed everyday. I donate to and support ECAN. I share their message of education and prevention to help others understand the risks of Esophageal Cancer. They make it easy through their social media campaigns. ECAN is a wonderful non profit that I will be eternally grateful for.
ECAN is an amazing organization that supports patients with education and resources, and fights to secure funding for research for esophageal cancer.
The Esophageal Cancer Action Network, is a leading source for information and support for people diagnosed with esophageal cancer. As an esophageal cancer survivor; I volunteer with a cancer awareness and assistance group in my community. ECAN has provided us with information and awareness supplies on several occasions. We use these materials at informational presentations and local health fairs to increase knowledge about the risks, early warning signs, and treatment options for esophageal Cancer.
Has accomplished much and saved lives on minimum resources. Could accomplish much more with more support.
I became aware of ECAN in 2010 when a loved one was diagnosed with Esophageal Cancer. Over time I've seen ECAN grow and I've been amazed at how much they have done with little resources. I'm proud to have joined the the Board of Directors in 2016 and amazed at the passion that every member of ECAN has in the fight against EC. ECAN is an incredible organization and certainly a worthwhile organization to donate to.
Great charity that advocates for a rare cancer that needs more attention. They have done a lot to raise awareness with the little money they have.
My father passed away form esophageal cancer 8 years ago. ECAN has helped me through a great support network as well as a way to help fight back against this terrible disease and educate others about the risks of heartburn.
It was an amazing opportunity for me to get involved with ECAN. I think they are doing a phenomenal job in spreading awareness about esophageal cancer. As a clinician who spends most of his time taking care of patients with esophageal cancer, I wholeheartedly support ECAN’s mission and look forward to working with them!
When my husband was first diagnosed with esophageal cancer, ECAN came to me and helped me through everything -- they anticipated my questions and guided me through every step of the way. They were also with me after he passed away and have continued to show me support throughout the last 6 years. It is my honor to work with them as much as I can.
ECAN has provided posters and pamphlets for my auto business every year for several years now. I put them in our service waiting area. Having those posters there has really gotten me out of my comfort zone and encouraged me to talk to people about my experiences with my husband’s GERD and his cancer. I feel like it opens people up to ask questions and talk about their own symptoms with me so I can guide them to seek help. ECAN is always a great online resource for these customers who want extra information. I know we’ve saved lives through these private conversations that all started with a simple poster. I’ve had lots of customers who’ve come back to thank me for talking to them about it, because they’ve sought treatment. Truth is I never would have talked to anyone if I didn’t have great resources from ECAN.
ECAN, and in particular Mindy, has pioneered thought leadership about the risks of heartburn turning into esophageal cancer. ECAN educates through events, a stellar website, networking with related industry professionals (physicians, hospitals, cancer centers, device and pharma companies). ECAN shines a light on how heartburn is not just managed with OTC medications, but should be a red flag for sufferers and their families, despite many in the GI community suggesting it is very low risk. Yet ECAN works hard to save lives by making every life matter. I'm a medical device professional, a Barrett's esophagus patient, and a committed partner to supporting ECAN.