I first heard of ECAN when my 65 yo husband, Tom, was diagnosed with esophageal cancer in 2010. He survived just two more years. The saddest part of this is that Tom had suffered for years and years with GERD. It was treated with prescriptions and over the counter medication and other recommendations such as no late meals and keep the head of the bed raised. He was not referred to a gastroenterologist until he had great difficulty swallowing. He went through radiation, chemo, and multiple surgeries and suffered greatly.
ECAN works to educate physicians and other caretakers. ECAN provided us with so much information during the process. They have guides for patients and facts about esophageal cancer. They have a Facebook page that distributes information on research and treatments as they are published. They have worked hard with the FDA to get over the counter medications to carry a warning of heartburn can cause cancer
After Tom’s death I started a small monthly donation in his memory. I also support ECAN by distributing literature every April to many businesses with which I associate. April is support esophageal cancer month. I'm relatively certain my friends and family are very aware of this disease. I continue to tell Tom’s story as a two time cancer survivor myself. I join ACS’s Relay for Life and our daughter’s sorority donates in her father’s memory at every local Relay forLife. It is a wonderful educational organization.
I make a monthly donation to this organization in memory of my husband. He was diagnosed with Esophageal cancer in 2010. He had radiation, chemo and surgery, but the cancer took his life in 2012. We were married for 46 years. Just today, (3-4-17) our daughter, with tears in her eyes said I wish Dad was still here, I have so much to tell him. I get the word out as often as I can with brochures and social media, in the hopes that another person's life can be saved.
I started at ECAN on August 1, 2016. In that time I've been amazed at how dedicated our volunteers are. I've learned so much in such a small amount of time and am so very lucky to be a part of this organization! Mindy works 24/7 to bring awareness to this awful disease. I may only be part time but my heart is in it full time and am so blessed to work with Mindy. Spread the word: Heartburn Can Cause Cancer!!!
ECAN punches way above it's weight! Such a small organization, with such a small staff, and yet it's been able to accomplish so much. For example, it was able to get esophageal cancer (EC) included in the national genome mapping project, despite initially being turned down. More generally, by raising awareness of the link between GERD/heartburn and EC, and encouraging people to get scoped (an endoscopy) it has literally saved dozens, hundreds, many even thousands of lives. Practically, and more specifically, it has put out a patient guide to help people have an educated conversation with their primary care doctor about EC, especially if they're experiencing GERD/heartburn, so that they just don't leave the doctor's office with a prescription for drugs but are sent to be scoped (if justified). All with one full-time employee and at most 2-3 part-time staff. Go ECAN!
I am a proud ECAN Volunteer and would like to share that the Esophageal Cancer Action Network, Inc. (ECAN) has proven to be a very important part of my Esophageal Cancer journey. I was blessed to meet Mindy Mintz Mordecai, CEO and founder of ECAN in September 2012, just eight months after I was diagnosed with stage IV Esophageal Cancer. After completing successful chemotherapy, I was looking for ways to give back and I found ECAN. With the help of ECAN, I was able to host an amazing Awareness Event/5K called "Paint the Town Periwinkle" in April 2013. The main event was held in Athens, TN and branched out around the world. Working with ECAN has allowed me the ability to create EC Awareness and give hope to others for several years now. I have attended ECAN events each year and I cannot praise Mindy enough for all she does for ECAN - a truly great nonprofit. ECAN is very important to the advocacy, awareness and research of Esophageal Cancer - they are the voice for many - together wECAN make a difference!
- Stacy Alexander
This group is getting the word out. Heartburn can lead to cancer of the esophagus. They are saving lives.
My husband is the patient. ECAN has been Very kind to me, and offered any help I may need.
ECAN saves lives! ECAN continues to meet its mission of raising awareness of early signs of esophageal cancer both among the general population and physicians, supporting medical research, and connecting patients, family and phycians with each other. The tireless efforts of Mindy Mintz Mordecai who has taken her pain and loss and combined it with her talents and passion has sustained ECAN for years. It has taken a local effort nationwide. She takes her passion and sparks the passion of others.
My dad didn't know that the persistent heartburn he had would lead to Esophageal Cancer and eventually his death. I don't want other families to lose someone they love, especially just for lack of knowledge. This is why I support ECAN. Their primary mission is to make people with heartburn aware of the risk for Esophageal Cancer. With a small but very passionate staff, they accomplish many amazing things. They organize events to raise awareness, they provide fliers, posters, and other material (physical and electronic) to help supporters spread the information, and they support those with EC and their families with a community of support and information among many other things. I have been very impressed with the efficiency and passion of this group and its supporters.
ECAN provides life-saving information to the general public and wonderful support to those who have been diagnosed with esophageal cancer.
Life is Fragile handle with Care. Its about the moments, and having people who care.
When my healthy husband got suddenly sick and was told he had Esophageal Cancer, there was no real group to turn to, and less then 10% of the people survive, the web was full of scary and hopeless information. Now after many battles ECAN has been formed. This small non-profit group , against all odds have made a rare cancer group. "give up" is not in their vocabulary. Now when you wonder what can heart burn lead to, or what is EC you can turn to ECAN for some answers. let's just say "they get it" its about surviving.
Dedicated to increasing awareness about the signs and symptoms of esophageal cancer, providing patient resources, and funding for advocacy, ECAN is shining a light on a growing disease to help detect and improve patient outcome. ECAN takes on big initiatives with a modest budgets and is making a difference.
ECAN strives tirelessly to meets its mission. Esophageal cancer is a relatively uncommon cancer but its effects are devastating on those diagnosed and their families. Early recognition of heartburn symptoms has the potential to prevent this cancer, yet so many just live with heartburn and do not seek medical attention. ECAN wants to change that by increasing awareness of the link between heartburn and cancer. ECAN is also a valuable resource to those with the disease, their families, and health care providers for information about this cancer.
I support this group because I never want another person to die of this horrible cancer (as my husband did). They make it their mission to disseminate information to folks that have been diagnosed, they sponsor research and give hope to all.
When my husband of 20+ years was diagnosed with esophageal cancer in 2008 we were devastated. ECAN offered a multitude of support, information, and guidance. After my husbands passing in 2010 we decided to honor him and help others by fundraising and donating to ECAN. This organization works tirelessly to honor those lost to this horrible disease, educate others if the facts, and raise awareness and funds to support EC research.
With my husband being a survivor of esophageal cancer we wanted to GIVE BACK! To date we have organized three events in our township with ECAN'S assistance! Together we are raising awareness to this beast!
SPREAD the word... hold an event... save a life!!! THANK YOU ECAN for always being there for US!
When I lost one of my best friends to Esophageal Cancer, it seemed so unfair. He was one of those rare guys who took good care of his health. He was a runner. He was rail thin. Except for the occasional glass of Merlot, he didn't drink. He didn't smoke. Although he was a creative chef, he avoided sugar and fat. Yet, his chronic heartburn had burned the tissue lining his throat, eventually evolving into cancer. Who would have thought something as commonplace as heartburn could lead to cancer?
The Esophageal Cancer Action Network (ECAN) was created shortly after the death of my friend with the goal of spreading the word that heartburn can cause cancer. Since its creation, ECAN has gotten Esophageal Cancer as one of the cancers being investigated under the genome research project. More than two dozen states have passed resolutions recognizing April as Esophageal Cancer Awareness Month. ECAN produced the first-ever Patient Guide designed to provide information to EC patients and their families as they struggle with this deadly diagnosis. In short, ECAN is making a real difference in the lives of those afflicted with a terrible disease. It deserves our support.
When my husband was diagnosed with esophageal cancer in 2011, the people from ECAN were with me every step of the way -- from helping me comprehend his diagnosis to assisting me in running fundraisers to raise awareness to actually sitting down & listening to me and holding my hand when I needed it most. They are all caring people who have been through exactly what I've been through --- they UNDERSTAND.
I could not of gotten thru my cancer without ECAN. Every charity should learn from them. They treat you like your the only one. The most trusting charity around 100%.