ECAN provides great exceptional work and support for patients and relatives - outstanding and awesome
Professor Björn Brücher
I found ECAN when my 55 year old husband was diagnosed with stage 4 Esophageal Cancer 4 years ago. We had little to no knowledge or facts of this deadly cancer and ECAN became a credible, caring resource of up to date information, directing us to articles, research, therapies and testing that we could bring to our providers in Western New York to discuss. Jim sadly passed away in 2015 and ECAN has become even more important in my life as I feel a responsibility to share ECAN’s tireless message that heartburn can cause cancer and the immediate need for funding, research, earlier and non invasive screenings and treatment is so desperately needed - and ECAN is dedicated to this mission. Their campaign to mandate warnings on acid reflux medications will save lives. Their lobbying and influence to increase Esophageal Cancer funding will save lives. Their collaboration with oncologists and providers, sharing the story of our loved ones will save lives. The President and board of directors of ECAN represent the voice of those who lost their battle to this fast growing, under funded relentless cancer and speak for those diagnosed everyday. I donate to and support ECAN. I share their message of education and prevention to help others understand the risks of Esophageal Cancer. They make it easy through their social media campaigns. ECAN is a wonderful non profit that I will be eternally grateful for.
ECAN is an amazing organization that supports patients with education and resources, and fights to secure funding for research for esophageal cancer.
ECAN is an outstanding organization focused on raising awareness of esophageal cancer. The organization goes above and beyond most patient action networks and provides a mutlitude of excellent resourses for patients, families, and health care professionals to battle this deadly disease
The Esophageal Cancer Action Network, is a leading source for information and support for people diagnosed with esophageal cancer. As an esophageal cancer survivor; I volunteer with a cancer awareness and assistance group in my community. ECAN has provided us with information and awareness supplies on several occasions. We use these materials at informational presentations and local health fairs to increase knowledge about the risks, early warning signs, and treatment options for esophageal Cancer.
Has accomplished much and saved lives on minimum resources. Could accomplish much more with more support.
I became aware of ECAN in 2010 when a loved one was diagnosed with Esophageal Cancer. Over time I've seen ECAN grow and I've been amazed at how much they have done with little resources. I'm proud to have joined the the Board of Directors in 2016 and amazed at the passion that every member of ECAN has in the fight against EC. ECAN is an incredible organization and certainly a worthwhile organization to donate to.
Great charity that advocates for a rare cancer that needs more attention. They have done a lot to raise awareness with the little money they have.
It was an amazing opportunity for me to get involved with ECAN. I think they are doing a phenomenal job in spreading awareness about esophageal cancer. As a clinician who spends most of his time taking care of patients with esophageal cancer, I wholeheartedly support ECAN’s mission and look forward to working with them!
When my husband was first diagnosed with esophageal cancer, ECAN came to me and helped me through everything -- they anticipated my questions and guided me through every step of the way. They were also with me after he passed away and have continued to show me support throughout the last 6 years. It is my honor to work with them as much as I can.
ECAN has provided posters and pamphlets for my auto business every year for several years now. I put them in our service waiting area. Having those posters there has really gotten me out of my comfort zone and encouraged me to talk to people about my experiences with my husband’s GERD and his cancer. I feel like it opens people up to ask questions and talk about their own symptoms with me so I can guide them to seek help. ECAN is always a great online resource for these customers who want extra information. I know we’ve saved lives through these private conversations that all started with a simple poster. I’ve had lots of customers who’ve come back to thank me for talking to them about it, because they’ve sought treatment. Truth is I never would have talked to anyone if I didn’t have great resources from ECAN.
ECAN, and in particular Mindy, has pioneered thought leadership about the risks of heartburn turning into esophageal cancer. ECAN educates through events, a stellar website, networking with related industry professionals (physicians, hospitals, cancer centers, device and pharma companies). ECAN shines a light on how heartburn is not just managed with OTC medications, but should be a red flag for sufferers and their families, despite many in the GI community suggesting it is very low risk. Yet ECAN works hard to save lives by making every life matter. I'm a medical device professional, a Barrett's esophagus patient, and a committed partner to supporting ECAN.
Appreciate how genuine and generous this group is! Truly creates an environment of support, education and advocacy.
This organization is truly committed to raising awareness and keeping its members abreast of the latest developments in treatment options. This is extremely important to me as a survivor of this terrible cancer.
ECAN is passionate. Works hard to support all patients with education, resources, and the fight to secure funding.
Dedicated to increasing awareness about the signs and symptoms of esophageal cancer, providing patient resources, and funding for advocacy, ECAN is shining a light on a growing disease to help detect and improve patient outcome. ECAN takes on big initiatives with a modest budgets and is making a difference.
As a four year survivor I joined the board to end this horrific Deadly Cancer.
I could not of gotten thru my cancer without ECAN. Every charity should learn from them. They treat you like your the only one. The most trusting charity around 100%.
ECAN provides information, support, and a listening ear for families who have a loved one afflicted with esophageal cancer. They are dedicated to raising awareness of this awful disease.
I first heard of ECAN when my 65 yo husband, Tom, was diagnosed with esophageal cancer in 2010. He survived just two more years. The saddest part of this is that Tom had suffered for years and years with GERD. It was treated with prescriptions and over the counter medication and other recommendations such as no late meals and keep the head of the bed raised. He was not referred to a gastroenterologist until he had great difficulty swallowing. He went through radiation, chemo, and multiple surgeries and suffered greatly.
ECAN works to educate physicians and other caretakers. ECAN provided us with so much information during the process. They have guides for patients and facts about esophageal cancer. They have a Facebook page that distributes information on research and treatments as they are published. They have worked hard with the FDA to get over the counter medications to carry a warning of heartburn can cause cancer
After Tom’s death I started a small monthly donation in his memory. I also support ECAN by distributing literature every April to many businesses with which I associate. April is support esophageal cancer month. I'm relatively certain my friends and family are very aware of this disease. I continue to tell Tom’s story as a two time cancer survivor myself. I join ACS’s Relay for Life and our daughter’s sorority donates in her father’s memory at every local Relay forLife. It is a wonderful educational organization.
I make a monthly donation to this organization in memory of my husband. He was diagnosed with Esophageal cancer in 2010. He had radiation, chemo and surgery, but the cancer took his life in 2012. We were married for 46 years. Just today, (3-4-17) our daughter, with tears in her eyes said I wish Dad was still here, I have so much to tell him. I get the word out as often as I can with brochures and social media, in the hopes that another person's life can be saved.