It is difficult to put into words what a family who has a child with epilepsy goes through each day and each week. Each family has a story to tell. Each family story has similarities, and each has its unique experiences. I have personally witnessed the families and their children who were transformed from being completely dependent into becoming an interdependent teen or young adult.
The Epilepsy Services Foundation is a benchmark organization for the way it assists families to better understand their son or daughter's epilepsy and the struggles the families face. The Foundation's staff and volunteers share an insight that too many people take for granted. That insight is that no family needs to face alone the anxieties, guilt, and bouts of hopelessness that so many families experience. The Foundation provides the kinds of help a family needs to cope with the challenges they face. Getting that kind of help for a family is the key to the children blossoming into mature and thriving young persons.
This is an organization every family with a child, teen, or young adult should go to for compassionate service.
The Epilepsy Services Foundation is an organization I am willing to contribute to. The have a very small staff and a large number of volunteers who are dedicated to the children and families needing help. The staff and volunteers go out to the community to provide education and awareness programs about epilepsy. They mentor volunteers and encourage them to meet with the newly diagnosed children with epilepsy and their families to give them support and to provide information about epilepsy. They also do fundraising for a number of programs, one of which is the camp program that sends kids with epilepsy to a camp that cares for the needs of kids with a chronic condition. The camp is Camp Boggy Creek.
My daughter was diagnosed in 2015 with temporal lobe Epilepsy. I had no idea what a roller coaster ride we were in for. We felt so alone and so isolated but we learned about ESF from one of my daughters nurses and it changed our life. Suddenly we weren't alone and we were given such helpful information and we were able to engage with other families dealing with the same issues that we were. ESF has been a blessing in our lives. We couldn't have faced this diagnosis without them.
ESF has been an amazing resource for my family. We owe so much of the progress my son has made and the care he has received to the people we have met in and through this organization. I can't say enough nice things about them!!
ESF has been a blessing in our lives as it has been a constant source of support and encouragement for our family as we navigate the challenges of living with epilepsy for the last 2 years. ESF has kind, knowledgeable and resourceful staff, who go above and beyond to serve the community and it’s clients. Our family regularly attends parent support and training meetings which are very insightful and provide a space for personal support. ESF events for families are a great opportunity to interact with other ESF families and provide a space for empowerment. We look forward to working with ESF for many years!
The Epilepsy Services Foundation is an excellent non-profit organization.
This organization works closely with families who may have a family member with epilepsy. The fundraisers that they sponsor are phenomenal. Anyone on the Board is readily available to give support whether through a meeting or by phone. This organization goes above and beyond with their members
ESF has been a blessing for our family. If it hasn’t been for the foundation support, love and care we would have been at a lost when our daughter was diagnosed with epilepsy. They provided us many resources that guides us through our challenges in dealing with seizures. Their parents support zoom meetings have been so beneficial for us as we go through the many challenges that came with seizures and epilepsy. ESF events like the annual charity walk, meet and greet and the family weekend getaway retreat helped our family find comfort that we are not alone. The volunteers, staff and board members made us feel like families. Tom and Kathie have been so amazing. I can’t thank the foundation enough for all the support they have given us.
I have been a board member and volunteer for 3 years and this organization is one of a kind, being hands on in providing services to those in our local community.
AWESOME FOUNDATION, EMPLOYEES & FAMILIES. LOVE EVERYTHING THEY DO FOR MY FAMILY & BEYOND. KEEP UP THE EXCELLENT JOB. GOD BLESS ALL !!!!
Since hearing about Elilepsy Services Foundation (ESF), the team behind this nonprofit had continued to impress me with their commitment and motivation to support especially children, teens and young adults. Kathie is an exceptional Executive Director and her years of experience go a long way to helping this organization achieve all it does. As a newer member of the board of directors, I’m excited to assist this great team in the months ahead
Our daughter Brittany has had epilepsy since she was ten years old. I met Tom when I was looking for help. Best day of our life. They help with Camp Boggy Creek, doctors, school.
let us volunteer and help others. Made life time friends.
The ESF team has been a blessing to our family! We have 2 children with epilepsy. Everyone at ESF is so supportive and they have provided information and tools to or family for the past 8 years. Middle school was the most difficult, but ESF was there to help us through. Tom and the staff are like an extended family, always there when we need them. I can't say enough about this vital non-profit!
There are so many ways this Foundation helps our community. They are so helpful for children, teens, and young adults and their families that are dealing with the challenges of epilepsy. I have been a volunteer at the agency for 20 years and have loved meeting and helping the families learn about their seizures. And I love working with the fundraisers that help raise funds to cover education, scholarships, special camps, and to help with medical costs when possible. Epilepsy truly is challenging and the neurologists and epileptologists in this area are very generous with their time to help educate our families.
I have been a volunteer at ESF for almost 20 years. During that time I have watched many families receive education, college scholarships, family camping weekends and Boggy Creek camper weeks, and many other benefits. The education is not only for dealing with seizures but also dealing with schools and stigmas. I have seen tragedies happen in families and the ESF community has rallied around those families. And I have seen miracles happen when the right physician and treatments have changed lives. Thank you for all the volunteers and members of ESF! Yes, I am proud to be part of the team!
I have volunteered at different events for many years. I have enjoyed my time with other volunteers. The focus has always been on the children, teens and young adults and their families. That is what drew me to participate as a volunteer. When I leave an event, I feel like I have done something important.
It's gratifying to be able to help persons in need, to hear the stories of individuals and families and know that they are being served.
I highly recommend the Epilepsy Services Foundation to any person who wants to make a difference.
I have been a volunteer for several years. I have found the Foundation to be an organization that is dedicated to listening, engaging and serving the families of children, teens & young adults with epilepsy. I have found the staff to be sensitive to the families' needs: answering phone calls, returning calls within a day, texting and e-mailing. They also reach out to families using social media.
As a volunteer, I have been impressed with the ways they invite people to help them with the different fundraising activities. The goal is to create awareness about epilepsy. They use the events to raise funds to support the services they offer.
I am most grateful to be part of the organization and look forward to continuing as a volunteer.
Super Awesome & Nice People that Make a Difference in Your Family. They go out of there way to resolve any situation of Your Family. Very Appreciated by All ESF Board of Directors, Employees & Volunteers. GOD BLESS ALWAYS !!!
Super Nice People willing to Help Your Family in any Way or Form. They try the best way to make any situation go better and have a nice & good ending. We are Super Appreciated for ESF Employees, Staff & Board of Directors for Everything They Do so Kind & Professional that You feel like they are part of Your Family. THANKS FOR EVERYTHING. Take Care. GOD BLESS ALWAYS !!!!
Great organization that puts FAMILIES FIRST. We have been involved with ESF for almos 2 years and have met some amazing people and have made life long friends that we can always rely on for support with needed. ESF and Tom Orth's knowledge and support of those living with epilepsy is above and beyond. The different Events that We had went had been Super Nice and had Enjoy all of them.Thank you for all you have done for our family and all you continue to do for others and the community. GOD BLESS !!!!
I have been dealing with non profit neurology accounts for over 15 years, everyone with Epilepsy Service Foundation is extremely passionate with what they do and how can they help the patients and caregivers. They have so many resources at their fingertips to help in a variety of ways.
And this foundation is rare because it deals mainly with children and young adults with epilepsy.
Please take advantage of Epilepsy Service Foundation with all the knowledge, experience, and resources.
We have been working with the Epilepsy Services Foundation for around 8 months and the foundation has changed our lives! ESF has provided our family with outstanding support and guidance as we navigate through an epilepsy diagnosis, treatment options and managing the challenges with education and a better quality of life. Our 17 year old daughter started having seizures 4 years ago and the journey of finding answers and appropriate treatment has been a very challenging one. She not only has epilepsy but also suffers from depression and anxiety. Through the ESF, our daughter has joined a group of teens who provide support and a safe place to share their experiences as persons living with epilepsy and their journey towards a seizure free life! She feels empowered to inspire and help others with epilepsy. As parents, we have joined a parent support group with members from all over the state of Florida and we share our experiences, valuable information and provide mutual support in raising children diagnosed with this medical condition. Our family has been blessed by the ESF and we encourage anyone in need of support and guidance to reach out the ESF! Through the ESF we can work together to raise awareness about epilepsy, educate our community on how to provide first aid for seizures which affect 3.4 million people in the US. and promote the need to further research for epilepsy.
Like my daughter says: I have epilepsy, but epilepsy doesn’t have me!”
We did not understand how epilepsy would have impacted our family until our young daughter was diagnosed with it. The Epilepsy Services Foundation has been a valuable resource for our family with the support from Tom Orth who has kept in touch after a few years from the first day we have met him at the local children's hospital in Tampa. Although he has retired, he still remains active in the community and continues to provide us with support. We have been recently in touch with Lou Garcia who also has been helpful with assisting us in the process of obtaining a needed remote 23 hour EEG monitoring for our daughter. We recommend anybody who has epilepsy or a loved one with the condition to seek assistance with an experienced neurologist and to give the Epilepsy Services Foundation the opportunity to provide support and guidance to those in need. We did not know how important it is to have additional resources and guidance with managing epilepsy until we have discovered the professional services that the Epilepsy Foundation has provided for us. It was to our surprise that our daughter was one of the recent winners for a scholarship award from a poster contest that she had created on her own. If the information was not provided to us by Tom, we would not have known that there was a contest at all. He has also stayed in touch with us over the past few years to see how our daughter has been doing with her condition and how we have been during the entire process from the day we met him at the hospital and through the pandemic. The Epilepsy Services Foundation should continue to employ such valuable members to serve those dealing with epilepsy. We are happy that we have this organization to turn to for guidance and support. Epilepsy is such a complex disorder and it is very nice to know that we can turn to this organization for additional support should there be any doubt about the care for managing the condition.
Epilepsy Services Foundation has been there for us any time we needed help or had questions. They have always been happy to help us with any request. Earlier this year, they took a group of kids including my son to watch our local professional hockey team practice, which was such a treat. They host fantastic fundraisers all year and sponsor scholarships for college, one of which my son won this year. We are very thankful!
The Epilepsy Services Foundation, Inc was founded in 1973. Their mission has always been to provide support, updates and education with the latest resources of new and upcoming medical treatments. They have always provided such tender care, group interactions, a children's camp and provide scholarships to students striving to achieve their goals and dreams of a better future. ESF provides hope to families, children as well as adults who have been affected with complex conditions in epilepsy. This Foundation is filled with selfless, magnificent individuals who truly care about all of us. Their tireless efforts have been an inspiration and an example of unconditional love and devotion to countless people who have undoubtedly had their lives touched an improved by ESF. I personally have received the honor of winning two scholarships that has greatly helped me through my education process. Now that I have made it to grad school I plan on giving back to this wonderful Foundation and pay it forward. ESF has made an indelible mark in my life and my education. I encourage anyone who has the means to give to kindly help this Foundation continue with their mission for future generations to come. Kind regards, Tiffany Cooper
This organization has been such a blessing to me! As a recipient of their scholarship, I felt so supported and encouraged by the individuals that made this possible for me. During the COVID-19 pandemic, I expanded my involvement with them and helped begin weekly zoom meetings for teens affected by epilepsy. The group of teens that we have had logging on to each zoom meeting has become quite close and it seems like we all become more and more comfortable each week. I've gotten much more out of this experience than I could have anticipated and have been inspired by how open the other teens are to talking about all the challenges they have had to overcome. This organization has created a remarkably supportive community for people affected by epilepsy, which is a condition that is not well understood by most people and therefore can make people feel very alone when they are first diagnosed. I am so grateful for the support that this nonprofit has provided me with and can't wait to see all the amazing things they continue to do!
This organization has helped our family in so many ways and we are so Thankful to have them.
About three and half years ago when our daughter Bailey was 4 she experienced her first seizure out of no where. It was late my husband was deployed and my oldest daughter Rhy was upstairs preparing for bed. Bailey fell asleep on the couch but woke up getting sick about 30 minutes after she fell asleep. I thought it was a stomach virus and was walking her to bathroom only to find I couldn’t understand her and her eyes shot to the side and she dropped. I grabbed her and she just started seizing. Making weird breathing sounds. This was a moment I will never be able to forget. It was terrifying. I was on the phone with 911 they sent a ambulance. In the mean time I was trying to find someone to take my oldest Rhylee because they wouldn’t let her on the ambulance. Had to call my husband and let him know aswell. We were rushed to St. Joseph’s Children’s running hot because they were having a hard time getting her out of the seizure. They said it lasted 20 minutes and after all the testing/ being admitted she was diagnosed with Tonic Clonic seizures and Panayiotopoulos syndrome. We were lost. This cake out of no where. Epilesy Services Foundation stepped up to the plate and helped us with resources and understanding all the testing, medicine options and connecting us with families like ours. They helped us not fee alone. We have enjoyed info sessions, family days out and the yearly walk. In May of 2018 Bailey ended up having a focal seizure at school and so once again we were confused on where this came from. Epilesy Services Foundation stepped up to the plate and served our family greatly. This organization is instrumental in the community. We love them and would be where we are today in this crazy journey with out them.
Our journey started on November 15, 2018 when our then 4 1/2 year old son was diagnosed with epilepsy. His preschool had to call 911. This day was terrifying and we had no idea what we were about to embark on. I remember leaving the doctor's office trembling, scared, and lost. I am a social worker so I knew there had to be an agency that could help us. I found ESF and they have helped support us since the day we contacted them. It means everything to us to know other families who are experiencing what we are and an agency that helps connect us together. ESF also provides information, support, advocacy and knowledge. We have participated in events and the awareness walk. This agency is critical for families. This I can not say that enough. We so appreciate all they have done and what we can do in the future to give back. Continued awareness, advocacy, and services are needed for families who have a child diagnosed with epilepsy. Thank you to all at ESF!
After my son was diagnosed with Epilepsy when he was just 6 months old, I was searching for a local organization that supported parents and children who live with Epilepsy. That’s when I found ESF! Since then I have found a community of parents and kids who have been through similar experiences as my family has. It was definitely a relief to know if I needed an ear or support in anyway I knew where to turn. Now I volunteer with them for the annual epilepsy walk each year.
My journey with ESF started at one of the most challenging times in my life. In 2006 I was twenty-two years of age, I had my whole life mapped out for success, and had been sworn in as an officer with the Tampa Police Department. Then one day the physician who determined our medical clearance for the pension determined he could not clear me medically for duty. The reason; because I am epileptic. Soon after the Tampa Police Department fired me due to my epilepsy. Today this would have never have happened, accommodations would have been made according to the requirements of the American Disabilities Act, but back then there was little protection and or support for those facing employment discrimination due to epilepsy. The range of emotions I suffered ranged from anguish, shame, despair, loneliness and hopelessness. Despite having been living with epilepsy since the age of ten, I often kept it a secret from even those closest to me, I pretended I was “normal” and unaffected by the repercussions of the consequences of being epileptic. This of course was a lie, I had always suffered from a lack of confidence, feelings of inadequacy, and just always feeling different. This unplanned life changing event brought me face to face with my deepest fear. Epilepsy. One of the side effects of growing up epileptic and feeling the way described above is that you grow to become resilient and you learn to preserve. Thus, it did not take me long to decide I needed to embrace this thing I so adamantly avoided my entire youth and learn to not just live with epilepsy but lead with epilepsy. It was then that I discovered ESF and met Tom Orth. I immediately jumped into volunteering, fundraising, and exploring for opportunities to spread awareness and educate. Every step of the way ESF and Tom were there to support, encourage, and educate me on how best to advocate for those with epilepsy and their family members. I eventually became a teacher and used my platform as an educator to provide Tom and other members of ESF an opportunity to enter into the classrooms and educate students and teachers. In addition, although I knew my profession as a law enforcement officer had ended, I found a way to practice in the field of law enforcement helping and fighting for others who like me had been discriminated against. I started law school at Stetson College of Law and attended the Part-Time Program while teaching full time. This, again, afforded another opportunity for me to advocate and educate as a law student and once again Tom was there with all of ESF’s resources to help me in my endeavors. While attending law school ESF supported me as well by awarding me the 2010 and 2011 Richard Gunderman Beacon of Hope Scholarship. This award was an honor and helped me financial with my student loans. In 2013 I graduated from law school and was hired at the State Attorney’s Office as an Assistant State Attorney. Today, thirteen years after meeting Tom and becoming involved with ESF I continue to volunteer, educate, and advocate as a newly appointed Board Member. Because of ESF I have been able to rise above my disability and have discovered abilities I never knew I could possess. Prior to ESF I cowered at the idea of speaking publicly about my condition. Today I openly and perhaps most importantly proudly discuss the difficulties and adversities I have had to overcome.
My story starts when I was diagnosed with Juvenile Myoclonic Epilepsy at the age of eight. Luckily for me my condition was so minor that even my closest friends were not aware that I had epilepsy; epilepsy in a way became my dark secret in life. I led a very normal active life. I began my college career with the intention of becoming a lawyer, but subsequently determined that my passion at that time lied in a career in law enforcement. I applied for a very competitive scholarship with the Tampa Police Department. After a year-long background screening process that involved numerous psychological, fitness, and academic testing I eagerly accepted TPD’s scholarship offer. I had graduated from the police academy third in my class academically. A week after getting sworn in, I received a phone call from the doctor informing me that he would not be able to approve me medically fit to receive the pension. Consequently I lost my job. My worst nightmare had come true in the worst possible way. The doctor said that my condition was a “disability” and the department said that they would not be able to make any accommodations for me. I had never been called disabled before or treated in such a way, and now I was losing my job over my so called “disability”. Looking back I now realize that this was a turning point in my life. Before, I never considered myself an epileptic, but I was now forced to realize that I was. I was angry and realized that I shouldn’t be ashamed to have epilepsy and that I needed to fight back not just for myself, but for others with epilepsy that either had or will eventually be discriminated against as I was. This experience had given me a new perspective on life and illuminated a new career path in law. This was when I became involved with the Epilepsy Services Foundation. For six years now I have volunteered and have committed myself to this Foundation, but this foundation has helped me more emotionally, psychologically, and philosophically than I can ever return. I will be graduating from Stetson University Of Law in December and will continue to volunteer, support, and promote those that have epilepsy. I'm a living example; I'm epileptic and yes I can!
This is my daughter's story. She has Lennox Gastau Syndrome. Since she met Tom Orth and ESF, we feel like we are with the right people. They are always helping us with doctors and giving us whatever information we need to help us understand my daughter's condition.
They have been more than helpful, they make us feel like family. They are always looking for ways to get the families together so we can share our experiences as caregivers of kids with epilepsy.
I'm very happy that they are involved in our lives. Thank you. Mayra & Dianeliz
A year ago my 8 year old was diagnosed with epilepsy. We were thrown into a world we knew nothing about. My son was scared and felt different than other kids. As a parent I was also scared because I knew this diagnosis would give me anxiety. After his diagnosis I researched epilepsy groups in my area and Epilepsy Services Foundation, ESF, came up on a search. ESF was so helpful in providing us support, advice and resources to navigate through his diagnosis. ESF does such a great job by making my son go from feeling different and alone to being part of group of special kids who are just like him. They have held so many great events where my son has been able to connect with kids that have similar stories. I have also been able to connect with parents who have provided some great advice and suggestions to us. I cannot thank ESF enough to all the support this past year!
Words cannot describe the amount of ACTION that this foundation has taken to drastically improve the lives of those impacted by Epilepsy. It is truly one thing to talk the talk... but this organization does more.
Individuals, families, children, adults... anyone who has epilepsy on their mind... is at the center of everything that the Epilepsy Services Foundation does. They support by providing education about the disease, networking events that allow for friendships to be made, nights out promoting fun and bonding, holiday gatherings, hospital visits... and the easiest thing... is a smiling face that understands what you're going through. This foundation gives people an opportunity to share trials and triumphs, ask questions that receive answers, and be a part of an irreplaceable community.
Thank you for being so selfless in your everyday actions.
I am a 25-year donor and current board member. ESF gives children with seizure disorders the chance to just be kids. That is, we provide experiences that many children with seizure disorders either can’t or won’t enjoy on their own because of their medical condition. Imagine a child never having the opportunity to have their picture taken with Santa because of the fear of having a seizure. Our Christmas party brings Santa to them in a comfortable environment. Imagine being a young adult recently discovered to have seizures and having no peers to speak with. Our support groups and events allow these children to interact with other children who can relate and provide encouragement and comfort. Imagine being in your teens and never having ridden a horse, done a ropes course or had a sleepover with friends. Our week at Camp Boggy Creek allows children with seizure disorders to do these and many other things. I can only imagine the joy, pride and sense of accomplishment that this experience provides.
We help parents, too. The diagnosis of or ongoing treatment for epilepsy is an uncertain and frightening time. We provide resources and referrals to help them navigate their treatment options. Family weekends and special gatherings provide parents with an opportunity to share their hopes and fears with other parents in similar situations.
Please help us continue our efforts to provide seizure-affected families the chance to lessen their fears, better manage their disorder, and allow their children to feel normal, accepted, and just be one of the kids.
The Epilepsy Service Foundation provides a caring and supporting environment for patients and families going through this condition. They provide a network for patients with newly diagnose epilepsy so they know they are not are not alone through this process. The events that the E SF sponsor bring joy and happiness, and serve as bonding experiences for its participants. I am proud to serve as a member of the Professional Advisory Board and will continue to do so in order to provide expert advice to families need.
Epilepsy Services Foundation has been a big part of our life over the past few years. We have a sixteen year old daughter who has had epilepsy since the age of two. Over the years we have had the opportunity, through the foundation, to meet other families with similar struggles, get information from local doctors and learn about new medications.
We have also had many entertainment opportunities such as tickets to football games, the circus and ice skating shows.
Our biggest blessing has come from having the opportunity to send our daughter to Camp Boggy Creek the last six years. It is the highlight of her year and has been made possible only through the foundation. We will forever be thankful for her time there at the camp.
The Epilepsy Services Foundation has been a light to our family during some difficult times. The staff and volunteers work tirelessly for families like mine and can't thank them enough for all that they do.
The Epilepsy Services Foundation here in Tampa has been a lifesaver for our family. Once we met Tom, our problems dealing with our son Brandon's epilepsy became much easier to solve. We had been struggling almost 17 years alone, and the older Brandon got, the tougher the challenges. Also, at the Retreat we met many others with similar problems and was able to offer our experiences , helping them. Tom is a great and knowledgeable man.
What is there left to be said that has not been said already about the Epilepsy Services Foundation? My first volunteering event was last year at the Brewery and I was so impressed with not only its member's but the amount of people that came out to support them. That says a lot about what they are doing, and as a result, I was hooked! I have been to other fundraisers where even though it is a good cause, the turn outs were not so great. It is very easy to see why as Mr. Orth and his team demonstrate such love and compassion in what they do to the point that it is infectious. I am so proud to be a part and encourage others to do so as well as one will come away with a sense of purpose, empowerment and accomplishment due to the immense gratitude from all that are there from the kids to the adults, one can see that so much love and care is poured into each and every one of their participants, staff and volunteers. Thank You for allowing me to be part of your efforts in helping those affected with epilepsy.
Great organization that puts families first. We have been involved with ESF for over 8 yrs and have met some amazing people and have made life long friends that we can always rely on for support with needed. ESF and Tom Orth's knowledge and support of those living with epilepsy is above and beyond. Thank you for all you have done for our family and all you continue to do for others and the community.
I stumbled upon the Epilepsy Services Foundation when I was looking for a walk to participate in when my son was newly diagnosed with epilepsy. That day of the walk was the first time I felt someone truly listened and was interested in our story. ESF made such an impact on my entire family that we have been a part of the organization since. We have volunteered and participated in many functions. My son and I both spoke on Epilepsy Education Day for ESF last year and recently participated in the Meet and Greet program. I am honored to be apart of such an amazing organization that not only helps those affected with epilepsy but helps the entire family. Every time I talk to the Executive Director Tom Orth I learn something new, he is knowledgeable and passionate about helping others. ESF has many programs that can help everyone in the family. I am forever thankful for the help and support they have given my son and my family.
The Epilepsy Services Foundation continues to give hope to patients, families, and caregivers year after year. I have had the honor to work with the foundation for almost 6 years and I continue to be humbled by the unselfish volunteers, board members, and physicians that strive to meet the needs of the ESF community. Epilepsy Services Foundation provides an unmet need to individuals with Epilepsy and their families through education, sponsorships, and many community events that support these individuals.
My wife and I went to our first epilepsy event through this foundation and were extremely impressed.This foundation provides a great deal for the community. Anyone that has a relationship with someone that has epilepsy is able to network with others and provide guidance as well as understanding. Through events the foundation hosts you are able to learn about first hand experiences from families, feedback from doctors, and upcoming changes that may be coming to Florida. It's been an honor to volunteer with the foundation and watch it grow. Without the foundation it's easy to feel like you are in a vacuum.
I found this organization when I first moved to Tampa, FL and I so desperately needed a support system as I was dealing with the difficulties of having epilepsy. Not only have I received support, but I've been able to give back to others dealing with the effects of epilepsy through volunteering. This organization truly cares about the well-being of those with epilepsy and those who are affected by it (including parents, siblings, friends, etc.) They provide so much hope in what can be very difficult and trying times. Not only do they provide support, they also provide educational programs to help those affected by epilepsy take control of the disorder. My experience with the Epilepsy Services Foundation, Inc. has been nothing short of life-changing.
I have personally seen the amazing work of ESF in action over the last 8 years in the greater Tampa Bay Area. This organization is solid. Whether it is holding counseling sessions for teenagers challenged with seizures, running successful fundraisers to send kids to camp, or working with local providers counseling and supporting families affected by Epilepsy, this organization is stellar. On many occasions I have referred friends and family to ESF for support and the feedback I have recieved has always been one of gratitude and true appreciation. I have attended several of ESF’s community events where several area Neurologists and Epilepstologists have also attended - which is huge- as physicians see the true benefit and positive influence this organization has on patients and families challenged with Epilespy. To have practitioners take time out of their extremely busy schedules to attend these meetings - really says a lot for this orangization. It is with the highest regard that I fully endorse this non-profit organization, Epilepsy Services Foundation, Inc. - Laura Howard- Neurology “Epilepsy” Representative in the pharmaceutical industry.
I have the opportunity to work with this foundation and see the dedication that is put forth towards helping those with epilepsy. They not only provide a fun outlet for children with epilepsy through their events, like walks and poster board competitions. But they also provide resources to the parents and those who interact with someone that has epilepsy on a day to day basis. This foundation focuses on the entire experience of a child who has epilepsy. They recently will be handing out fuzzy-little bears to hand out to newly diagnosed kids and teens.
I have been working with this charity for something around 5 years, and they never cease to amaze me. The workers, board, and volunteers are all amazing people who do anything and everything they can to help those who come to them. Whether for events, advice, or even just support, the people at ESF put their all into making sure those who come to them are taken care of and supported in every way they possibly can. It's an amazing organization, and one I'm proud to have worked with for such a long time.
I have been working with the ESF team over five years now, primarily on an annual fundraiser, Septembeerfest, held at my place of business, Southern Brewing & Winemaking. The individuals who represent this organization are extremely passionate about bettering the lives of people with epilepsy! Their passion is reflected in their every action and is contagious to those they touch. They win the hearts and commitment of numerous dedicated volunteers and businesses who donate their time and goods to Septembeerfest.....and, I believe it's their passion that draws the crowds to the event! Out of my 25 plus years of volunteering for various non-profit organizations, the volunteers and staff of ESF are the most dedicated, hard working and reliable group I've ever worked with. I hope to see this event continue on for years to come!
Epilepsy Services Foundation has played a very important role for my daughter. Through ESF my daughter has met wonderful young adults that like her, have epilepsy. She so enjoys when they all get together whether it's bowling, a bar-b-que at someone's home or one of the many wonderful events sponsored by ESF. I am so greatful for Epilepsy Services Foundation and all they do for those with epilepsy of all ages.
My son was diagnosed with nocturnal epilepsy. This was scary and confusing for me and my child. I did not know of any doctors who were good and would help me through this situation. But, when we found the Epilepsy foundation, the families who were already involved helped us find good doctors, and the foundation gave me and my son the support and knowledge that we needed to approach this diagnosis.
Tom is amazing to work with! He is kind, compassionate, and a genuinely nice person. I can't say enough good things about him and this organization.
This organization is great. They look out for their people and they help us when we're in need . Tom is a great founder and he really makes sure that he knows who is involved in what and he doesn't just see us as a number . He really truly cares for us .
My daughter (young adult) is a fairly new diagnosis with seizures. When I learned of an opportunity to volunteer w/ a Camp for kids w/ Epilepsy and called in, I was surprised Tom himself answered the phone! He was very kind, helpful, offered suggestions and warmly invited us to join the Tampa support group as well as a newer diagnosed info group - it was educational! Tom has been very supportive, genuine and truly cares about these young adults :) My goal was to get my daughter involved with young adults dealing with similar things who also operated on a higher level with college and employment - we've been pleased with the short time we've been involved and look forward to future gatherings!
Began working as a volunteer to help raise funds for the Epilepsy Foundation this year as part of a professional association. Had no idea of the extent of the need or services offered through this worthy organization. What is particularly enjoyable is the culture of service and how thankful the Foundations is for even the smallest effort on their behalf.
My experience with ESF has been an incredible journey so far. We live in Orlando where there is not a whole lot of Epilepsy-support resources as there are in Tampa, so we really appreciated being accepted at ESF-Tampa the way that we have been. Tom Orth has provided us with a wealth of information to be able to help our 14-year-old as much as possible. We have attended fundraisers, seminars and will be attending the Family Retreat at the end of April that we are so looking forward to, and have Tom and Sande Van Hook to thank for all their help in offering up these options for us, and our family. Thank you !
Wonderful organization. I've seen first hand all the help it's provided to a close friend who lost her son to epilepsy.
I've had the opportunity to observe Epilepsy Services Foundation as a part of their partnership with the Tampa local of the National Association of Insurance and Financial Advisors (NAIFA-Tampa) through our joint efforts together on a golf tournament.
Epilepsy Services Foundation provides a tremendous value and service to those suffering from Epilepsy or are a family member caring for those with Epilepsy. The work they do makes it easier for this group to have one week where they can be "normal." Epilepsy is becoming more and more common, and for an organization like Epilepsy Services Foundation their work is needed throughout our community.
Thank you to Epilepsy Services Foundation for making our community a better place!!
Everyone at the foundation is so nice and friendly. They have done an amazing job at bringing awareness to epilepsy and ways to help!
This organization has been the grass roots foundation for the greater Tampa Bay area for many years. They have keep the light on for many of our people stricken with epilepsy, as a guild post for both information and outreach. Tom all to well understands the complex implications of both health and social economic struggles that this group of people contend with on a daily basis.
Brian Harper R.EEG.T
The ESF has a genuine focus of serving patients and families in the community. I have a personal friend who's daughter has been able to attend Camp Boggy Creek and it has been a blessing to her and the family. This organization offers resources and events that are greatly needed and make an impact for many people. The ESF is a place where many can go to find help, encouragement and a sense of community.
Years ago I had the opportunity to attend a day long session at Camp Boggy Creek with Tom Orth of the Epilepsy Services Foundation. This camp allows children that may otherwise be considered different from other kids to feel "normal". Each week there is a different group of kids to come to the camp. We obviously were able to observe the week when kids with Epilepsy were there. The staff was amazing, there were doctors and nurses on site the entire time, but the most noticeable thing at the camp were the smile on every one of the children's faces.
I have helped Tom with many events throughout the years. When I had a chance to see the end results of all our hard work, it made everything worth while. Epilepsy Services Foundation is EXTREMELY well run and always keeps the mission of helping kids and their families impacted by Epilepsy at the forefront. Kudos to Tom Orth and Epilepsy Services Foundation!
I have worked with ESF since 2012 as hospital liaison between families with children who are diagnosed with epilepsy and volunteer/mentors who represent the HOPE program. I have attended educational in service programs and social activities as well, and continue to be impressed with the community outreach ESF provides. It continues to be a privilege and a pleasure to work with this great organization.
I cannot speak highly enough about this organization and the services its Board, Executive Director, volunteers, and supporters provide for the community and, particularly, persons effected by epilepsy and their loved ones. ESF's dedication to educating and growing awareness in the community about the challenges of epilepsy is unmatched. The love and outreach ESF's members give to individuals who deal with epilepsy, and the support shown to their families, is constant. ESF's programs and fundraising activities have bettered so many lives. I am a former board member and volunteer, and now just a fan. I feel blessed and grateful to have been involved in such a laudable non-profit organization.
I have never worked with a more caring and dedicated group of people who desire only to help individuals affected by epilepsy, whether directly or indirectly through their loved ones. My participation with ESF began by virtue of the fact that my employer, Fowler White Boggs P.A., has been a long time sponsor and supporter of this organization. However, even if I did not have professional ties to ESF, I would gladly volunteer to assist this non-profit, which is comprised of giving and selfless individuals who make this world a better place on a daily basis. Unlike well-known national non-profit organizations, ESF is striving to expand through grass root connections and local/regional awareness with the ultimate goal of providing a wider range of support, assistance, and educational services. In my brief time volunteering with ESF, I have seen the efforts of its volunteers deeply touch the lives of children and adults who are affected one way or the other by epilepsy. Dedicating my time to this organization has been nothing but a pleasure. Please support our cause!
This is a fantastic organization that serves to raise awareness about epilepsy, assist those affected by epilepsy, and simply rallies the entire community together. All the members in this association are so passionate for this cause, it's inspiring! Great work, keep it up!
It was a great experience. Everyone seemed really happy to be there, the ceremony didn't take up much time, and along with the scholarships, the epilepsy services foundation even payed for our dinners. Several people showed up dressed professionally. I don't have any complaints. It was a great ceremony.
This is a great organization that has helped our son with epilepsy in so many ways over the years. When he was a young child, they took him to Lightning and Bucs games, they sponsored him to go to summer camp and family weekends at Boggy Creek. This year he will be attending college, and he was awarded a scholarship through ESF.
Growing up with a brother who has been diagnosed with Epilepsy for the last 18 years, I have come to know Tom Orth and the work that they do at the Epilepsy Service Foundation. They have helped so many children, teens, and young adults strive. The Epilepsy Service Foundation portrays a positive impact by promoting awareness through newsletters and Easter day 1mile and 5Ks runs. My brother has gone to Camp Boggy Creek, where families don't have to worry about leaving their kids because there is an around the clock care for them. In addition, it allowed my brother to be around kids with a similar diagnosis, so he was able to interact with others without judgment. Tom Orth has made a positive impact to those not only diagnosed with Epilepsy, but also their families. Recently, I was awarded a Beacon of Hope Scholarship to use towards College in order to become a Doctor. Tom Orth and the Volunteers at the Epilepsy Service Foundation have made a lasting impact on my family’s life.
The Epilepsy Services Foundation is one that truly loves and works for epileptics and their families everywhere. They sacrifice on a consistent basis so that people like myself, who has been diagnosed with epilepsy for the past 17 years, can have a chance at a normal life. Most recently, I was awarded a $250 scholarship. Being someone who lives on a fixed income with one child and one on the way, this not only makes a difference for me, but also for all the people I intend to help as a future physician's assistant. Epilepsy is still so very unaware among he public and therefore does not see the same donations that other charities see, but they are more than deserving. Please do all you can to help.
ESF is a fantastic service organization. Their work, scholarships, social events, counseling and friendship has given my son with epilepsy newfound hope, friendship, and education. They are a bright spot in an otherwise traumatic experience. Keep up the good work.
Daniel Roberts, Wimauma, FL.
ESF is truly a great organization, and I'm proud to be involved. The volunteers are passionate about their work, and Tom Orth is an all-star in running the organization. We have great projects, such as sending kids with epilepsy to Camp Boggy Creek and organizing meet-and-greets for those affected by epilepsy. ESF has not only raised awareness of epilepsy, but improved the lives of those who suffer with it. It doesn't hurt either that we have really fun fundraising events (I'm partial to the annual golf tournament and beer tasting events). I can't speak highly enough of ESF.