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2017 Top-Rated Nonprofit

Epilepsy Services Foundation, Inc.

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Nonprofit Overview

Causes: Epilepsy, Health, Health Care, Public Health

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida, including children, teens, young adults and their families. The office is located in Tampa, FL.

Results: ESF trained over 58 volunteers to be mentors who can provide education and support to other parents and families affected by epilepsy. ESF provided 25 camp scholarships for children and teens to participate in a medically-supervised camp, Camp Boggy Creek. ESF provided 20 scholarships for families to attend one of three Epilepsy Family Retreat Weekends. ESF provided 3 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 5 scholarships for persons affected by epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.

Target demographics: Persons affected by epilepsy, primarily children, teens, young adults & their families

Direct beneficiaries per year: 800-1,000 persons

Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando counties.

Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer

Community Stories

96 Stories from Volunteers, Donors & Supporters

Donor

Rating: 5

I have been working with the ESF team over five years now, primarily on an annual fundraiser, Septembeerfest, held at my place of business, Southern Brewing & Winemaking. The individuals who represent this organization are extremely passionate about bettering the lives of people with epilepsy! Their passion is reflected in their every action and is contagious to those they touch. They win the hearts and commitment of numerous dedicated volunteers and businesses who donate their time and goods to Septembeerfest.....and, I believe it's their passion that draws the crowds to the event! Out of my 25 plus years of volunteering for various non-profit organizations, the volunteers and staff of ESF are the most dedicated, hard working and reliable group I've ever worked with. I hope to see this event continue on for years to come!

Client Served

Rating: 5

Epilepsy Services Foundation has played a very important role for my daughter. Through ESF my daughter has met wonderful young adults that like her, have epilepsy. She so enjoys when they all get together whether it's bowling, a bar-b-que at someone's home or one of the many wonderful events sponsored by ESF. I am so greatful for Epilepsy Services Foundation and all they do for those with epilepsy of all ages.

Client Served

Rating: 5

My son was diagnosed with nocturnal epilepsy. This was scary and confusing for me and my child. I did not know of any doctors who were good and would help me through this situation. But, when we found the Epilepsy foundation, the families who were already involved helped us find good doctors, and the foundation gave me and my son the support and knowledge that we needed to approach this diagnosis.

General Member of the Public

Rating: 5

Tom is amazing to work with! He is kind, compassionate, and a genuinely nice person. I can't say enough good things about him and this organization.

General Member of the Public

Rating: 5

This organization is great. They look out for their people and they help us when we're in need . Tom is a great founder and he really makes sure that he knows who is involved in what and he doesn't just see us as a number . He really truly cares for us .

Client Served

Rating: 5

My daughter (young adult) is a fairly new diagnosis with seizures. When I learned of an opportunity to volunteer w/ a Camp for kids w/ Epilepsy and called in, I was surprised Tom himself answered the phone! He was very kind, helpful, offered suggestions and warmly invited us to join the Tampa support group as well as a newer diagnosed info group - it was educational! Tom has been very supportive, genuine and truly cares about these young adults :) My goal was to get my daughter involved with young adults dealing with similar things who also operated on a higher level with college and employment - we've been pleased with the short time we've been involved and look forward to future gatherings!

Volunteer

Rating: 5

Began working as a volunteer to help raise funds for the Epilepsy Foundation this year as part of a professional association. Had no idea of the extent of the need or services offered through this worthy organization. What is particularly enjoyable is the culture of service and how thankful the Foundations is for even the smallest effort on their behalf.

General Member of the Public

Rating: 5

My experience with ESF has been an incredible journey so far. We live in Orlando where there is not a whole lot of Epilepsy-support resources as there are in Tampa, so we really appreciated being accepted at ESF-Tampa the way that we have been. Tom Orth has provided us with a wealth of information to be able to help our 14-year-old as much as possible. We have attended fundraisers, seminars and will be attending the Family Retreat at the end of April that we are so looking forward to, and have Tom and Sande Van Hook to thank for all their help in offering up these options for us, and our family. Thank you !

General Member of the Public

Rating: 5

Wonderful organization. I've seen first hand all the help it's provided to a close friend who lost her son to epilepsy.

General Member of the Public

Rating: 5

I've had the opportunity to observe Epilepsy Services Foundation as a part of their partnership with the Tampa local of the National Association of Insurance and Financial Advisors (NAIFA-Tampa) through our joint efforts together on a golf tournament.

Epilepsy Services Foundation provides a tremendous value and service to those suffering from Epilepsy or are a family member caring for those with Epilepsy. The work they do makes it easier for this group to have one week where they can be "normal." Epilepsy is becoming more and more common, and for an organization like Epilepsy Services Foundation their work is needed throughout our community.

Thank you to Epilepsy Services Foundation for making our community a better place!!

Volunteer

Rating: 5

Everyone at the foundation is so nice and friendly. They have done an amazing job at bringing awareness to epilepsy and ways to help!

1

Professional with expertise in this field

Rating: 5

This organization has been the grass roots foundation for the greater Tampa Bay area for many years. They have keep the light on for many of our people stricken with epilepsy, as a guild post for both information and outreach. Tom all to well understands the complex implications of both health and social economic struggles that this group of people contend with on a daily basis.
Brian Harper R.EEG.T

Professional with expertise in this field

Rating: 5

The ESF has a genuine focus of serving patients and families in the community. I have a personal friend who's daughter has been able to attend Camp Boggy Creek and it has been a blessing to her and the family. This organization offers resources and events that are greatly needed and make an impact for many people. The ESF is a place where many can go to find help, encouragement and a sense of community.

Volunteer

Rating: 5

Years ago I had the opportunity to attend a day long session at Camp Boggy Creek with Tom Orth of the Epilepsy Services Foundation. This camp allows children that may otherwise be considered different from other kids to feel "normal". Each week there is a different group of kids to come to the camp. We obviously were able to observe the week when kids with Epilepsy were there. The staff was amazing, there were doctors and nurses on site the entire time, but the most noticeable thing at the camp were the smile on every one of the children's faces.

I have helped Tom with many events throughout the years. When I had a chance to see the end results of all our hard work, it made everything worth while. Epilepsy Services Foundation is EXTREMELY well run and always keeps the mission of helping kids and their families impacted by Epilepsy at the forefront. Kudos to Tom Orth and Epilepsy Services Foundation!

Professional with expertise in this field

Rating: 5

I have worked with ESF since 2012 as hospital liaison between families with children who are diagnosed with epilepsy and volunteer/mentors who represent the HOPE program. I have attended educational in service programs and social activities as well, and continue to be impressed with the community outreach ESF provides. It continues to be a privilege and a pleasure to work with this great organization.

General Member of the Public

Rating: 5

I cannot speak highly enough about this organization and the services its Board, Executive Director, volunteers, and supporters provide for the community and, particularly, persons effected by epilepsy and their loved ones. ESF's dedication to educating and growing awareness in the community about the challenges of epilepsy is unmatched. The love and outreach ESF's members give to individuals who deal with epilepsy, and the support shown to their families, is constant. ESF's programs and fundraising activities have bettered so many lives. I am a former board member and volunteer, and now just a fan. I feel blessed and grateful to have been involved in such a laudable non-profit organization.

Previous Stories
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Volunteer

Rating: 5

I have never worked with a more caring and dedicated group of people who desire only to help individuals affected by epilepsy, whether directly or indirectly through their loved ones. My participation with ESF began by virtue of the fact that my employer, Fowler White Boggs P.A., has been a long time sponsor and supporter of this organization. However, even if I did not have professional ties to ESF, I would gladly volunteer to assist this non-profit, which is comprised of giving and selfless individuals who make this world a better place on a daily basis. Unlike well-known national non-profit organizations, ESF is striving to expand through grass root connections and local/regional awareness with the ultimate goal of providing a wider range of support, assistance, and educational services. In my brief time volunteering with ESF, I have seen the efforts of its volunteers deeply touch the lives of children and adults who are affected one way or the other by epilepsy. Dedicating my time to this organization has been nothing but a pleasure. Please support our cause!

General Member of the Public

Rating: 5

This is a fantastic organization that serves to raise awareness about epilepsy, assist those affected by epilepsy, and simply rallies the entire community together. All the members in this association are so passionate for this cause, it's inspiring! Great work, keep it up!

-Matt C.

General Member of the Public

Rating: 5

It was a great experience. Everyone seemed really happy to be there, the ceremony didn't take up much time, and along with the scholarships, the epilepsy services foundation even payed for our dinners. Several people showed up dressed professionally. I don't have any complaints. It was a great ceremony.

Client Served

Rating: 5

This is a great organization that has helped our son with epilepsy in so many ways over the years. When he was a young child, they took him to Lightning and Bucs games, they sponsored him to go to summer camp and family weekends at Boggy Creek. This year he will be attending college, and he was awarded a scholarship through ESF.

Client Served

Rating: 5

Growing up with a brother who has been diagnosed with Epilepsy for the last 18 years, I have come to know Tom Orth and the work that they do at the Epilepsy Service Foundation. They have helped so many children, teens, and young adults strive. The Epilepsy Service Foundation portrays a positive impact by promoting awareness through newsletters and Easter day 1mile and 5Ks runs. My brother has gone to Camp Boggy Creek, where families don't have to worry about leaving their kids because there is an around the clock care for them. In addition, it allowed my brother to be around kids with a similar diagnosis, so he was able to interact with others without judgment. Tom Orth has made a positive impact to those not only diagnosed with Epilepsy, but also their families. Recently, I was awarded a Beacon of Hope Scholarship to use towards College in order to become a Doctor. Tom Orth and the Volunteers at the Epilepsy Service Foundation have made a lasting impact on my family’s life.