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2017 Top-Rated Nonprofit

Epilepsy Services Foundation, Inc.

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Nonprofit Overview

Causes: Epilepsy, Health, Health Care, Public Health

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida, including children, teens, young adults and their families. The office is located in Tampa, FL.

Results: ESF trained over 58 volunteers to be mentors who can provide education and support to other parents and families affected by epilepsy. ESF provided 25 camp scholarships for children and teens to participate in a medically-supervised camp, Camp Boggy Creek. ESF provided 20 scholarships for families to attend one of three Epilepsy Family Retreat Weekends. ESF provided 3 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 5 scholarships for persons affected by epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.

Target demographics: Persons affected by epilepsy, primarily children, teens, young adults & their families

Direct beneficiaries per year: 800-1,000 persons

Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando counties.

Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer

Community Stories

103 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

Great organization that puts families first. We have been involved with ESF for over 8 yrs and have met some amazing people and have made life long friends that we can always rely on for support with needed. ESF and Tom Orth's knowledge and support of those living with epilepsy is above and beyond. Thank you for all you have done for our family and all you continue to do for others and the community.

Previous Stories
1

Board Member

Rating: 5

I stumbled upon the Epilepsy Services Foundation when I was looking for a walk to participate in when my son was newly diagnosed with epilepsy. That day of the walk was the first time I felt someone truly listened and was interested in our story. ESF made such an impact on my entire family that we have been a part of the organization since. We have volunteered and participated in many functions. My son and I both spoke on Epilepsy Education Day for ESF last year and recently participated in the Meet and Greet program. I am honored to be apart of such an amazing organization that not only helps those affected with epilepsy but helps the entire family. Every time I talk to the Executive Director Tom Orth I learn something new, he is knowledgeable and passionate about helping others. ESF has many programs that can help everyone in the family. I am forever thankful for the help and support they have given my son and my family.

Volunteer

Rating: 5

The Epilepsy Services Foundation continues to give hope to patients, families, and caregivers year after year. I have had the honor to work with the foundation for almost 6 years and I continue to be humbled by the unselfish volunteers, board members, and physicians that strive to meet the needs of the ESF community. Epilepsy Services Foundation provides an unmet need to individuals with Epilepsy and their families through education, sponsorships, and many community events that support these individuals.

Volunteer

Rating: 5

My wife and I went to our first epilepsy event through this foundation and were extremely impressed.This foundation provides a great deal for the community. Anyone that has a relationship with someone that has epilepsy is able to network with others and provide guidance as well as understanding. Through events the foundation hosts you are able to learn about first hand experiences from families, feedback from doctors, and upcoming changes that may be coming to Florida. It's been an honor to volunteer with the foundation and watch it grow. Without the foundation it's easy to feel like you are in a vacuum.

Board Member

Rating: 5

I found this organization when I first moved to Tampa, FL and I so desperately needed a support system as I was dealing with the difficulties of having epilepsy. Not only have I received support, but I've been able to give back to others dealing with the effects of epilepsy through volunteering. This organization truly cares about the well-being of those with epilepsy and those who are affected by it (including parents, siblings, friends, etc.) They provide so much hope in what can be very difficult and trying times. Not only do they provide support, they also provide educational programs to help those affected by epilepsy take control of the disorder. My experience with the Epilepsy Services Foundation, Inc. has been nothing short of life-changing.

Professional with expertise in this field

Rating: 5

I have personally seen the amazing work of ESF in action over the last 8 years in the greater Tampa Bay Area. This organization is solid. Whether it is holding counseling sessions for teenagers challenged with seizures, running successful fundraisers to send kids to camp, or working with local providers counseling and supporting families affected by Epilepsy, this organization is stellar. On many occasions I have referred friends and family to ESF for support and the feedback I have recieved has always been one of gratitude and true appreciation. I have attended several of ESF’s community events where several area Neurologists and Epilepstologists have also attended - which is huge- as physicians see the true benefit and positive influence this organization has on patients and families challenged with Epilespy. To have practitioners take time out of their extremely busy schedules to attend these meetings - really says a lot for this orangization. It is with the highest regard that I fully endorse this non-profit organization, Epilepsy Services Foundation, Inc. - Laura Howard- Neurology “Epilepsy” Representative in the pharmaceutical industry.

Imari J Woods I.

Volunteer

Rating: 5

I have the opportunity to work with this foundation and see the dedication that is put forth towards helping those with epilepsy. They not only provide a fun outlet for children with epilepsy through their events, like walks and poster board competitions. But they also provide resources to the parents and those who interact with someone that has epilepsy on a day to day basis. This foundation focuses on the entire experience of a child who has epilepsy. They recently will be handing out fuzzy-little bears to hand out to newly diagnosed kids and teens.

Volunteer

Rating: 5

I have been working with this charity for something around 5 years, and they never cease to amaze me. The workers, board, and volunteers are all amazing people who do anything and everything they can to help those who come to them. Whether for events, advice, or even just support, the people at ESF put their all into making sure those who come to them are taken care of and supported in every way they possibly can. It's an amazing organization, and one I'm proud to have worked with for such a long time.

Donor

Rating: 5

I have been working with the ESF team over five years now, primarily on an annual fundraiser, Septembeerfest, held at my place of business, Southern Brewing & Winemaking. The individuals who represent this organization are extremely passionate about bettering the lives of people with epilepsy! Their passion is reflected in their every action and is contagious to those they touch. They win the hearts and commitment of numerous dedicated volunteers and businesses who donate their time and goods to Septembeerfest.....and, I believe it's their passion that draws the crowds to the event! Out of my 25 plus years of volunteering for various non-profit organizations, the volunteers and staff of ESF are the most dedicated, hard working and reliable group I've ever worked with. I hope to see this event continue on for years to come!

Client Served

Rating: 5

Epilepsy Services Foundation has played a very important role for my daughter. Through ESF my daughter has met wonderful young adults that like her, have epilepsy. She so enjoys when they all get together whether it's bowling, a bar-b-que at someone's home or one of the many wonderful events sponsored by ESF. I am so greatful for Epilepsy Services Foundation and all they do for those with epilepsy of all ages.

Client Served

Rating: 5

My son was diagnosed with nocturnal epilepsy. This was scary and confusing for me and my child. I did not know of any doctors who were good and would help me through this situation. But, when we found the Epilepsy foundation, the families who were already involved helped us find good doctors, and the foundation gave me and my son the support and knowledge that we needed to approach this diagnosis.

General Member of the Public

Rating: 5

Tom is amazing to work with! He is kind, compassionate, and a genuinely nice person. I can't say enough good things about him and this organization.

General Member of the Public

Rating: 5

This organization is great. They look out for their people and they help us when we're in need . Tom is a great founder and he really makes sure that he knows who is involved in what and he doesn't just see us as a number . He really truly cares for us .

Client Served

Rating: 5

My daughter (young adult) is a fairly new diagnosis with seizures. When I learned of an opportunity to volunteer w/ a Camp for kids w/ Epilepsy and called in, I was surprised Tom himself answered the phone! He was very kind, helpful, offered suggestions and warmly invited us to join the Tampa support group as well as a newer diagnosed info group - it was educational! Tom has been very supportive, genuine and truly cares about these young adults :) My goal was to get my daughter involved with young adults dealing with similar things who also operated on a higher level with college and employment - we've been pleased with the short time we've been involved and look forward to future gatherings!

Volunteer

Rating: 5

Began working as a volunteer to help raise funds for the Epilepsy Foundation this year as part of a professional association. Had no idea of the extent of the need or services offered through this worthy organization. What is particularly enjoyable is the culture of service and how thankful the Foundations is for even the smallest effort on their behalf.

General Member of the Public

Rating: 5

My experience with ESF has been an incredible journey so far. We live in Orlando where there is not a whole lot of Epilepsy-support resources as there are in Tampa, so we really appreciated being accepted at ESF-Tampa the way that we have been. Tom Orth has provided us with a wealth of information to be able to help our 14-year-old as much as possible. We have attended fundraisers, seminars and will be attending the Family Retreat at the end of April that we are so looking forward to, and have Tom and Sande Van Hook to thank for all their help in offering up these options for us, and our family. Thank you !

General Member of the Public

Rating: 5

Wonderful organization. I've seen first hand all the help it's provided to a close friend who lost her son to epilepsy.

General Member of the Public

Rating: 5

I've had the opportunity to observe Epilepsy Services Foundation as a part of their partnership with the Tampa local of the National Association of Insurance and Financial Advisors (NAIFA-Tampa) through our joint efforts together on a golf tournament.

Epilepsy Services Foundation provides a tremendous value and service to those suffering from Epilepsy or are a family member caring for those with Epilepsy. The work they do makes it easier for this group to have one week where they can be "normal." Epilepsy is becoming more and more common, and for an organization like Epilepsy Services Foundation their work is needed throughout our community.

Thank you to Epilepsy Services Foundation for making our community a better place!!

Volunteer

Rating: 5

Everyone at the foundation is so nice and friendly. They have done an amazing job at bringing awareness to epilepsy and ways to help!

1

Professional with expertise in this field

Rating: 5

This organization has been the grass roots foundation for the greater Tampa Bay area for many years. They have keep the light on for many of our people stricken with epilepsy, as a guild post for both information and outreach. Tom all to well understands the complex implications of both health and social economic struggles that this group of people contend with on a daily basis.
Brian Harper R.EEG.T

Professional with expertise in this field

Rating: 5

The ESF has a genuine focus of serving patients and families in the community. I have a personal friend who's daughter has been able to attend Camp Boggy Creek and it has been a blessing to her and the family. This organization offers resources and events that are greatly needed and make an impact for many people. The ESF is a place where many can go to find help, encouragement and a sense of community.