Epilepsy Services Foundation, Inc.

I discovered ESF through an invitation to participate in the annual Epilepsy Walk. As someone who was previously was diagnosed with Epilepsy, I was fortunate enough to grow out of my condition but I realize that my experience is not a universal one. I recently joined ESF's board members and after simple speaking with Kathie Michael and others previously on the board, it becomes quite apparent of the dedication and genuine want to help others. Whether it's through financial assistance, awareness for the cause, or providing resources to families, ESF is truly an inspirational non-profit to work with.

I am a newly hired employee for the Epilepsy Services Foundation, and I am so grateful to work for an organization that is committed to carrying out their mission to serve the community. Our organization provides invaluable services, resources, and referrals for our community members impacted by epilepsy and seizure disorders. What I love most about the team and organization is the sense of community that is both rare and essential for nonprofit organizations who provide direct services and support.

The Epilepsy Services Foundation offers a wealth of resources that cater to every need. Whether you’re seeking educational training and materials, support groups, or practical tools for managing epilepsy in daily life, we are here to support you through this journey.

What truly sets the organization apart is our unwavering advocacy for those affected by epilepsy and seizure disorders. We work tirelessly to raise awareness, influence policy, and create a more inclusive society for individuals living with these disorders.

We are a small but mighty staff. Our Executive Director and Board Members are genuinely compassionate and knowledgeable about epilepsy and seizure disorders and lead with a vision and mission to advance causes surrounding these disorders. Since I joined the organization in August, the team has been supportive in lending a listening ear and offering me guidance tailored to each unique situation I encounter as the new Program Coordinator.

I wholeheartedly recommend the Epilepsy Services Foundation not because I am now employed for the organization but because I believe in the work we do for our community.

so very helpful. answer all my questions, listened and offered options

They are so wonderful! Have help me with great information for my daughter. Great support groups, teachings and being heard. When I didn’t know how or where to get information to help my daughter they help me find places to call. They are really there for you and your family.

This program has done so much for me when it comes to self esteem and feeling like I belong. It made me feel like I had the support of people that actually understand what I’m going through which means so much to me. I’m so proud to have been chosen to represent this program in such a way and I thank the organization for this award which will help me greatly when it comes to paying for college. I cant say Thank you enough!

As a person with Epilepsy having just moved to Tampa, it felt good to have a group that I can go to for support

I was diagnosed with Epilepsy 10 years ago and the Epilepsy Services Foundation has been very helpful and supportive for myself and my family over the years. Everyone that I have met who is part of the foundation has been encouraging and continuously uplifting whenever I am feeling alone and segregated because of this disorder.
Thank you Epilepsy Services Foundation for everything!!

Epilepsy Services Foundation is such an amazing resource for families navigating an epilepsy diagnosis. Our family has learned so much from ESF while also building connections and friendships. We are so incredibly grateful to have found ESF.

Our son recently returned from his 2nd year at Camp Boggy Creek, thanks to the support of ESF. Campers are offered a unique opportunity to just be kids, experience sleep away camp in a medically safe environment, and make lifetime friends with other campers walking the same journey. Each year, he returns more confident and eager to go back as soon as possible. He even hopes to be a counselor some day.

We can't say enough about ESF, it's families, volunteers, staff and supporters. Thank you for doing what you do!

Excellent resource provider for families with epilepsy. When our daughter was initially diagnosed with a seizure condition, Epilepsy Services Foundation has provided us valuable tools and support. 6 years later and we still have been in touch with the organization. The previous president Tom Orth and current executive director Kathie Michael has grown to be part of our daughter's journey and made us feel welcomed. This year in 2024 was the first time she attended the epilepsy camp. We were pleased with the care that was provided with all the staff members to include the counselors. There are other functions available for both families and the children such as christmas lunches, the outdoor walks and trips to facilities such as the local zoo and aquarium.

The staff and leadership go above and beyond to ensure everyone is welcome and supported, and they're continually building on the community they've brought together. I'm honored to be part of all the good work they do for people with epilepsy.

Epilepsy Services Foundation (ESF) is the one place where we know our daughter can be herself. The staff is so welcoming even when we don't get to see each other often.
Our family is so thankful for the opportunity to meet others walking the same path we do. Amazing family feeling every single time! Thank you ESF!!

I cannot say enough positive things about the Epilepsy Services Foundation. Their commitment to supporting individuals and families affected by epilepsy is truly remarkable.

From the moment I reached out to them, I was met with warmth and professionalism. The staff members are not only knowledgeable about epilepsy but also incredibly compassionate. The Foundation's educational programs are top-notch, offering essential information about epilepsy management, treatment options, and lifestyle adjustments. They also host support groups that create a sense of community and understanding among those facing epilepsy.

What stands out most about this organization is their dedication to raising epilepsy awareness and advocating for individuals living with this condition. They work tirelessly to reduce stigma and promote inclusivity, making a meaningful impact in the lives of those they serve.

I have positive experiences with this organization. The staff is very approachable and helpful. They run a parent support group that not only provides support, but will also hosts speakers that talk to the group about Epilepsy related topics. They consistently respond to emails and offer community resources. This is a great organization.

Esf has been so welcoming and helpful from the first moment I reached out. They have welcome not only my son with epilepsy but our whole family. We have enjoyed the family event were we got to know other families and their stories and the fact we weren’t alone during all of this which help a lot. The parent meeting have been very helpful from having different speakers to just being able to talk to our parents going thru the same thing and in a non judgmental environment.

One positive thing that has come out of my son having epilepsy has been finding this group.

I have been able to join my sister and my family at baseball games and other activities that have helped her have a better quality of life.

Being a member of the Epilepsy Foundation is the best because they provide many opportunities for members with epilepsy and their families. As a sibling of someone diagnosed with epilepsy, they gave me a grant to help pay for my college tuition. This is very important since I can afford to pay for my education.

I literally do not know what we would have done all these years if it had not been for our Epilepsy Services Foundation Family. With “family” being the key word in that statement. My daughter Chrissy received her or should I say our diagnosis of Intractable Complex Partial Seizures over 20 years ago. I say “our” because it is something that affects the entire family. For Chrissy the diagnosis came in a time of her life when she was becoming and independent young woman, about to move out on her own and had already started taking college classes. Having 30-40 seizures a month took that all away from her. Desperate to find support and to be honest, to find out that she was not alone she did a google search. She had much love and support from her family, but it was not the same as knowing others that were going through the same as her. That is how she found ESF, and we have all been family ever since. She joined the Young Adults Groups and she quickly fit in. Being a little older than most in the group was not a deal breaker as she was able to be more like a mentor or big sister might be a better word for the group. It is with tear filled eyes that I write this as it was not only life changing for her, but for our whole entire family. There is that word again, family. We were filled with so much love, compassion, and information that helped us to gain the knowledge that we needed to go about this journey with a helping hand of ESF every step of the way. First with Tom and know with Kathie as our marvelous leaders. We love everything that they all represent. Not another moment lost is the motto and those are wonderful words to live by. We are also excited to pay it forward and love volunteering on the committee that organizes the Pinellas County walk for epilepsy that is held annually. Although these walks do bring in much needed donations, it has never been about that, but more so about getting the word out there. Encouraging conversations about epilepsy and educating our communities, empowering others with the knowledge needed should they come upon someone having a seizure and making sure the teachers etc. know what to do as it is not a matter of if, but when a student will have one in front of them. Talking to students so they know not to be afraid when a classmate has a seizure. I could go on and on of the great importance this organization is to the counties it provides service to. The money raised also goes for scholarships to kiddos and their families to go to Camp Boggy Creek which is a camp for kids of different medical needs with times set aside for kiddos with epilepsy. Talk about getting the opportunity to be around others going through what you are, this is it for sure. It is truly unexplainable the good that our ESF family does daily. I think is says a lot about an organization when so many of us, and there are many, that have relied on them all these years are now stepping up and volunteering for something that we truly believe in. We will be family for life.

This nonprofit has been a wonderful resource for my family and me with the monthly zooms. Also, my family and some friends were able to become seizure certified in person, which I found very helpful. The attention I receive from them is very personal and I feel like they really know me and are very friendly and helpful.

I was diagnosed with epilepsy when I was 13 and I found ESF shortly after my diagnosis. They are very supportive and considerate of everyone. I have been to several of their events and I enjoy volunteering at them.

Super Awesome Team of Loving & Caring People that Exceed All Spectations All Around They Do with Disable Kids, Youth, Teenagers, Young Adults & NON So Young Adults . My Family had Been a Member for 10 Years & THEY Had Gone Above & Beyond Since Day 1. GOD BLESS ALWAYS ESF of TAMPA.

Epilepsy Services has been an incredible resource for our family. My 16 year old daughter has epilepsy and we have benefitted from everything from support groups to seizure training. Our entire family recently participated in seizure training which was professional and extremely helpful for us all. We are thankful for this wonderful organization and the connections we have made there. Thank you!

My daughter was diagnosed at the age of 16 with epilepsy and we were beside ourselves and felt alone. After my daughter had her last seizure in July, I reached out to ESF and received a reply the same day. Since then, I’ve been able to obtain the support and resources that us as a family needed. I’ve met an amazing group of parents and I know that I’m not alone. I look forward to continuing the journey with the help of ESF.

This support group has been amazing to my family. My 3 year old daughter was recently diagnosed with epilepsy after a huge scare putting her in the hospital ICU on a ventilator for 4 days. A friend of ours recommended this support group and the day we got out of the hospital i filled out the online form. Within a hour, Cassie had called and emailed me. She gave us so much information in such a calm and understanding manor which was great after getting out of the hectic hospital with no answers. Cassie gave me more resources and information in 15 mins then we ever did in the 4 days we spent in the hospital. We came home confused with no where to turn and lots of questions and Cassie helped with that. We then struggled to find a Neurologist that would take our daughter before her medication would run out. Cassie not only found us a great Neurologist, she got us scheduled for the same week as well. Our daughter is doing much better now with her new doses of medication. She has gotten to ride a horse like she has always wanted to do and she has started gymnastics. Cassie has continued to check on our family and provide us with more resources and education on epilepsy. This support group has been amazing and I continue to rave to my friends and family about how amazing it has been. Thank you for everything you guys have done to help my family manage our new life style.

Hi I’m a parent of a young boy who has had seizure from the age of 2months, he is now 10yrs old. One Dr appoint my Dr ask me do you use your Epilepsy for support ?? I ask what is that , so I went home and looked it up, and I’m so glad I did..!! I called and a wonderful lady on the other end of the phone was very helpful for me and my son. ( Her name was Ms. Cassie) Ms. Cassie has helped me in many avenues I had no idea was out there for help for my son and me. Zoom meetings What are they ?? I’m so glad she has invited us to attend them, it help to learn there are others out there going through the same situation as my Dom an me!!Im hoping to stay in the loop with the Epilepsy Foundation for a long time to come.. Also Ms. Cassie has put me in contact with others for my help with situations I didn’t know what I was going to do!!! Thank you Ms, Cassie for being such a loving and caring person on the other end of our journey!! And I hope to met you in person soon.. Thank you Epilepsy Foundation.

I can’t say enough wonderful things about this organization! They have helped with information for resources after my son’s epilepsy diagnosis. But more than that they have given us a community filled with support. As a parent watching your child deal with a diagnosis like this, knowing you have other parents walking through similar situations with you can make such a huge difference! It truly has meant so much!

My son was diagnosed with epilepsy at the age of 9 and ESF helped make this transition easier by providing in school education for his class. ESF truly supports the epilepsy community and works to increase public education and awareness. Thank you for your support ESF!

Finding ESF and being among others who are also served by ESF has been a blessing in my life. There is an environment where you can feel so comfortable and be able to talk freely about who you are and in ways you need help and everyone LISTENS. ESF is a nonprofit that CARES. I felt so welcomed my first experience with the foundation and every experience since, I feel they really care about getting to know you. Epilepsy Services Foundation has made quite a meaningful impact on my entire family and we continue to take comfort in their support.

ESF has helped me do so many things. This organization has been a constant support in my life as a person living with epilepsy. Volunteering for this organization has given me the opportunity to serve others like myself, feel empowered and feel accepted. Thank you ESF!

I have been employed by ESF for over 20 years - I am a donor of record - and a volunteer since 2000. I have personally seen the wonderful works of this non-profit and am very proud of them! The scholarship program has been a big help to many college students. The camp scholarships have helped many young ones be able to attend camps that are set up for persons with special needs so that the parents know that their child will be cared for at all times. The education programs have helped the families and the community understand seizures and epilepsy. Thank you Epilepsy Services Foundation for all that you do!

It is difficult to put into words what a family who has a child with epilepsy goes through each day and each week. Each family has a story to tell. Each family story has similarities, and each has its unique experiences. I have personally witnessed the families and their children who were transformed from being completely dependent into becoming an interdependent teen or young adult.

The Epilepsy Services Foundation is a benchmark organization for the way it assists families to better understand their son or daughter's epilepsy and the struggles the families face. The Foundation's staff and volunteers share an insight that too many people take for granted. That insight is that no family needs to face alone the anxieties, guilt, and bouts of hopelessness that so many families experience. The Foundation provides the kinds of help a family needs to cope with the challenges they face. Getting that kind of help for a family is the key to the children blossoming into mature and thriving young persons.

This is an organization every family with a child, teen, or young adult should go to for compassionate service.

My daughter was diagnosed in 2015 with temporal lobe Epilepsy. I had no idea what a roller coaster ride we were in for. We felt so alone and so isolated but we learned about ESF from one of my daughters nurses and it changed our life. Suddenly we weren't alone and we were given such helpful information and we were able to engage with other families dealing with the same issues that we were. ESF has been a blessing in our lives. We couldn't have faced this diagnosis without them.

ESF has been an amazing resource for my family. We owe so much of the progress my son has made and the care he has received to the people we have met in and through this organization. I can't say enough nice things about them!!

ESF has been a blessing in our lives as it has been a constant source of support and encouragement for our family as we navigate the challenges of living with epilepsy for the last 2 years. ESF has kind, knowledgeable and resourceful staff, who go above and beyond to serve the community and it’s clients. Our family regularly attends parent support and training meetings which are very insightful and provide a space for personal support. ESF events for families are a great opportunity to interact with other ESF families and provide a space for empowerment. We look forward to working with ESF for many years!

I have been a board member and volunteer for 3 years and this organization is one of a kind, being hands on in providing services to those in our local community.

AWESOME FOUNDATION, EMPLOYEES & FAMILIES. LOVE EVERYTHING THEY DO FOR MY FAMILY & BEYOND. KEEP UP THE EXCELLENT JOB. GOD BLESS ALL !!!!

Since hearing about Elilepsy Services Foundation (ESF), the team behind this nonprofit had continued to impress me with their commitment and motivation to support especially children, teens and young adults. Kathie is an exceptional Executive Director and her years of experience go a long way to helping this organization achieve all it does. As a newer member of the board of directors, I’m excited to assist this great team in the months ahead

The ESF team has been a blessing to our family! We have 2 children with epilepsy. Everyone at ESF is so supportive and they have provided information and tools to or family for the past 8 years. Middle school was the most difficult, but ESF was there to help us through. Tom and the staff are like an extended family, always there when we need them. I can't say enough about this vital non-profit!

I have volunteered at different events for many years. I have enjoyed my time with other volunteers. The focus has always been on the children, teens and young adults and their families. That is what drew me to participate as a volunteer. When I leave an event, I feel like I have done something important.
It's gratifying to be able to help persons in need, to hear the stories of individuals and families and know that they are being served.
I highly recommend the Epilepsy Services Foundation to any person who wants to make a difference.

I have been a volunteer for several years. I have found the Foundation to be an organization that is dedicated to listening, engaging and serving the families of children, teens & young adults with epilepsy. I have found the staff to be sensitive to the families' needs: answering phone calls, returning calls within a day, texting and e-mailing. They also reach out to families using social media.
As a volunteer, I have been impressed with the ways they invite people to help them with the different fundraising activities. The goal is to create awareness about epilepsy. They use the events to raise funds to support the services they offer.
I am most grateful to be part of the organization and look forward to continuing as a volunteer.

Super Awesome & Nice People that Make a Difference in Your Family. They go out of there way to resolve any situation of Your Family. Very Appreciated by All ESF Board of Directors, Employees & Volunteers. GOD BLESS ALWAYS !!!

I have been dealing with non profit neurology accounts for over 15 years, everyone with Epilepsy Service Foundation is extremely passionate with what they do and how can they help the patients and caregivers. They have so many resources at their fingertips to help in a variety of ways.

And this foundation is rare because it deals mainly with children and young adults with epilepsy.

Please take advantage of Epilepsy Service Foundation with all the knowledge, experience, and resources.

The Epilepsy Services Foundation, Inc was founded in 1973. Their mission has always been to provide support, updates and education with the latest resources of new and upcoming medical treatments. They have always provided such tender care, group interactions, a children's camp and provide scholarships to students striving to achieve their goals and dreams of a better future. ESF provides hope to families, children as well as adults who have been affected with complex conditions in epilepsy. This Foundation is filled with selfless, magnificent individuals who truly care about all of us. Their tireless efforts have been an inspiration and an example of unconditional love and devotion to countless people who have undoubtedly had their lives touched an improved by ESF. I personally have received the honor of winning two scholarships that has greatly helped me through my education process. Now that I have made it to grad school I plan on giving back to this wonderful Foundation and pay it forward. ESF has made an indelible mark in my life and my education. I encourage anyone who has the means to give to kindly help this Foundation continue with their mission for future generations to come. Kind regards, Tiffany Cooper

This organization has been such a blessing to me! As a recipient of their scholarship, I felt so supported and encouraged by the individuals that made this possible for me. During the COVID-19 pandemic, I expanded my involvement with them and helped begin weekly zoom meetings for teens affected by epilepsy. The group of teens that we have had logging on to each zoom meeting has become quite close and it seems like we all become more and more comfortable each week. I've gotten much more out of this experience than I could have anticipated and have been inspired by how open the other teens are to talking about all the challenges they have had to overcome. This organization has created a remarkably supportive community for people affected by epilepsy, which is a condition that is not well understood by most people and therefore can make people feel very alone when they are first diagnosed. I am so grateful for the support that this nonprofit has provided me with and can't wait to see all the amazing things they continue to do!

Our journey started on November 15, 2018 when our then 4 1/2 year old son was diagnosed with epilepsy. His preschool had to call 911. This day was terrifying and we had no idea what we were about to embark on. I remember leaving the doctor's office trembling, scared, and lost. I am a social worker so I knew there had to be an agency that could help us. I found ESF and they have helped support us since the day we contacted them. It means everything to us to know other families who are experiencing what we are and an agency that helps connect us together. ESF also provides information, support, advocacy and knowledge. We have participated in events and the awareness walk. This agency is critical for families. This I can not say that enough. We so appreciate all they have done and what we can do in the future to give back. Continued awareness, advocacy, and services are needed for families who have a child diagnosed with epilepsy. Thank you to all at ESF!

After my son was diagnosed with Epilepsy when he was just 6 months old, I was searching for a local organization that supported parents and children who live with Epilepsy. That’s when I found ESF! Since then I have found a community of parents and kids who have been through similar experiences as my family has. It was definitely a relief to know if I needed an ear or support in anyway I knew where to turn. Now I volunteer with them for the annual epilepsy walk each year.

My journey with ESF started at one of the most challenging times in my life. In 2006 I was twenty-two years of age, I had my whole life mapped out for success, and had been sworn in as an officer with the Tampa Police Department. Then one day the physician who determined our medical clearance for the pension determined he could not clear me medically for duty. The reason; because I am epileptic. Soon after the Tampa Police Department fired me due to my epilepsy. Today this would have never have happened, accommodations would have been made according to the requirements of the American Disabilities Act, but back then there was little protection and or support for those facing employment discrimination due to epilepsy. The range of emotions I suffered ranged from anguish, shame, despair, loneliness and hopelessness. Despite having been living with epilepsy since the age of ten, I often kept it a secret from even those closest to me, I pretended I was “normal” and unaffected by the repercussions of the consequences of being epileptic. This of course was a lie, I had always suffered from a lack of confidence, feelings of inadequacy, and just always feeling different. This unplanned life changing event brought me face to face with my deepest fear. Epilepsy. One of the side effects of growing up epileptic and feeling the way described above is that you grow to become resilient and you learn to preserve. Thus, it did not take me long to decide I needed to embrace this thing I so adamantly avoided my entire youth and learn to not just live with epilepsy but lead with epilepsy. It was then that I discovered ESF and met Tom Orth. I immediately jumped into volunteering, fundraising, and exploring for opportunities to spread awareness and educate. Every step of the way ESF and Tom were there to support, encourage, and educate me on how best to advocate for those with epilepsy and their family members. I eventually became a teacher and used my platform as an educator to provide Tom and other members of ESF an opportunity to enter into the classrooms and educate students and teachers. In addition, although I knew my profession as a law enforcement officer had ended, I found a way to practice in the field of law enforcement helping and fighting for others who like me had been discriminated against. I started law school at Stetson College of Law and attended the Part-Time Program while teaching full time. This, again, afforded another opportunity for me to advocate and educate as a law student and once again Tom was there with all of ESF’s resources to help me in my endeavors. While attending law school ESF supported me as well by awarding me the 2010 and 2011 Richard Gunderman Beacon of Hope Scholarship. This award was an honor and helped me financial with my student loans. In 2013 I graduated from law school and was hired at the State Attorney’s Office as an Assistant State Attorney. Today, thirteen years after meeting Tom and becoming involved with ESF I continue to volunteer, educate, and advocate as a newly appointed Board Member. Because of ESF I have been able to rise above my disability and have discovered abilities I never knew I could possess. Prior to ESF I cowered at the idea of speaking publicly about my condition. Today I openly and perhaps most importantly proudly discuss the difficulties and adversities I have had to overcome.

This is my daughter's story. She has Lennox Gastau Syndrome. Since she met Tom Orth and ESF, we feel like we are with the right people. They are always helping us with doctors and giving us whatever information we need to help us understand my daughter's condition.
They have been more than helpful, they make us feel like family. They are always looking for ways to get the families together so we can share our experiences as caregivers of kids with epilepsy.
I'm very happy that they are involved in our lives. Thank you. Mayra & Dianeliz

A year ago my 8 year old was diagnosed with epilepsy. We were thrown into a world we knew nothing about. My son was scared and felt different than other kids. As a parent I was also scared because I knew this diagnosis would give me anxiety. After his diagnosis I researched epilepsy groups in my area and Epilepsy Services Foundation, ESF, came up on a search. ESF was so helpful in providing us support, advice and resources to navigate through his diagnosis. ESF does such a great job by making my son go from feeling different and alone to being part of group of special kids who are just like him. They have held so many great events where my son has been able to connect with kids that have similar stories. I have also been able to connect with parents who have provided some great advice and suggestions to us. I cannot thank ESF enough to all the support this past year!

Words cannot describe the amount of ACTION that this foundation has taken to drastically improve the lives of those impacted by Epilepsy. It is truly one thing to talk the talk... but this organization does more.
Individuals, families, children, adults... anyone who has epilepsy on their mind... is at the center of everything that the Epilepsy Services Foundation does. They support by providing education about the disease, networking events that allow for friendships to be made, nights out promoting fun and bonding, holiday gatherings, hospital visits... and the easiest thing... is a smiling face that understands what you're going through. This foundation gives people an opportunity to share trials and triumphs, ask questions that receive answers, and be a part of an irreplaceable community.
Thank you for being so selfless in your everyday actions.

I am a 25-year donor and current board member. ESF gives children with seizure disorders the chance to just be kids. That is, we provide experiences that many children with seizure disorders either can’t or won’t enjoy on their own because of their medical condition. Imagine a child never having the opportunity to have their picture taken with Santa because of the fear of having a seizure. Our Christmas party brings Santa to them in a comfortable environment. Imagine being a young adult recently discovered to have seizures and having no peers to speak with. Our support groups and events allow these children to interact with other children who can relate and provide encouragement and comfort. Imagine being in your teens and never having ridden a horse, done a ropes course or had a sleepover with friends. Our week at Camp Boggy Creek allows children with seizure disorders to do these and many other things. I can only imagine the joy, pride and sense of accomplishment that this experience provides.
We help parents, too. The diagnosis of or ongoing treatment for epilepsy is an uncertain and frightening time. We provide resources and referrals to help them navigate their treatment options. Family weekends and special gatherings provide parents with an opportunity to share their hopes and fears with other parents in similar situations.
Please help us continue our efforts to provide seizure-affected families the chance to lessen their fears, better manage their disorder, and allow their children to feel normal, accepted, and just be one of the kids.

The Epilepsy Service Foundation provides a caring and supporting environment for patients and families going through this condition. They provide a network for patients with newly diagnose epilepsy so they know they are not are not alone through this process. The events that the E SF sponsor bring joy and happiness, and serve as bonding experiences for its participants. I am proud to serve as a member of the Professional Advisory Board and will continue to do so in order to provide expert advice to families need.

Epilepsy Services Foundation has been a big part of our life over the past few years. We have a sixteen year old daughter who has had epilepsy since the age of two. Over the years we have had the opportunity, through the foundation, to meet other families with similar struggles, get information from local doctors and learn about new medications.
We have also had many entertainment opportunities such as tickets to football games, the circus and ice skating shows.
Our biggest blessing has come from having the opportunity to send our daughter to Camp Boggy Creek the last six years. It is the highlight of her year and has been made possible only through the foundation. We will forever be thankful for her time there at the camp.
The Epilepsy Services Foundation has been a light to our family during some difficult times. The staff and volunteers work tirelessly for families like mine and can't thank them enough for all that they do.

What is there left to be said that has not been said already about the Epilepsy Services Foundation? My first volunteering event was last year at the Brewery and I was so impressed with not only its member's but the amount of people that came out to support them. That says a lot about what they are doing, and as a result, I was hooked! I have been to other fundraisers where even though it is a good cause, the turn outs were not so great. It is very easy to see why as Mr. Orth and his team demonstrate such love and compassion in what they do to the point that it is infectious. I am so proud to be a part and encourage others to do so as well as one will come away with a sense of purpose, empowerment and accomplishment due to the immense gratitude from all that are there from the kids to the adults, one can see that so much love and care is poured into each and every one of their participants, staff and volunteers. Thank You for allowing me to be part of your efforts in helping those affected with epilepsy.

Great organization that puts families first. We have been involved with ESF for over 8 yrs and have met some amazing people and have made life long friends that we can always rely on for support with needed. ESF and Tom Orth's knowledge and support of those living with epilepsy is above and beyond. Thank you for all you have done for our family and all you continue to do for others and the community.

The Epilepsy Services Foundation continues to give hope to patients, families, and caregivers year after year. I have had the honor to work with the foundation for almost 6 years and I continue to be humbled by the unselfish volunteers, board members, and physicians that strive to meet the needs of the ESF community. Epilepsy Services Foundation provides an unmet need to individuals with Epilepsy and their families through education, sponsorships, and many community events that support these individuals.

My wife and I went to our first epilepsy event through this foundation and were extremely impressed.This foundation provides a great deal for the community. Anyone that has a relationship with someone that has epilepsy is able to network with others and provide guidance as well as understanding. Through events the foundation hosts you are able to learn about first hand experiences from families, feedback from doctors, and upcoming changes that may be coming to Florida. It's been an honor to volunteer with the foundation and watch it grow. Without the foundation it's easy to feel like you are in a vacuum.

I found this organization when I first moved to Tampa, FL and I so desperately needed a support system as I was dealing with the difficulties of having epilepsy. Not only have I received support, but I've been able to give back to others dealing with the effects of epilepsy through volunteering. This organization truly cares about the well-being of those with epilepsy and those who are affected by it (including parents, siblings, friends, etc.) They provide so much hope in what can be very difficult and trying times. Not only do they provide support, they also provide educational programs to help those affected by epilepsy take control of the disorder. My experience with the Epilepsy Services Foundation, Inc. has been nothing short of life-changing.

I have personally seen the amazing work of ESF in action over the last 8 years in the greater Tampa Bay Area. This organization is solid. Whether it is holding counseling sessions for teenagers challenged with seizures, running successful fundraisers to send kids to camp, or working with local providers counseling and supporting families affected by Epilepsy, this organization is stellar. On many occasions I have referred friends and family to ESF for support and the feedback I have recieved has always been one of gratitude and true appreciation. I have attended several of ESF’s community events where several area Neurologists and Epilepstologists have also attended - which is huge- as physicians see the true benefit and positive influence this organization has on patients and families challenged with Epilespy. To have practitioners take time out of their extremely busy schedules to attend these meetings - really says a lot for this orangization. It is with the highest regard that I fully endorse this non-profit organization, Epilepsy Services Foundation, Inc. - Laura Howard- Neurology “Epilepsy” Representative in the pharmaceutical industry.

I have the opportunity to work with this foundation and see the dedication that is put forth towards helping those with epilepsy. They not only provide a fun outlet for children with epilepsy through their events, like walks and poster board competitions. But they also provide resources to the parents and those who interact with someone that has epilepsy on a day to day basis. This foundation focuses on the entire experience of a child who has epilepsy. They recently will be handing out fuzzy-little bears to hand out to newly diagnosed kids and teens.

I have been working with this charity for something around 5 years, and they never cease to amaze me. The workers, board, and volunteers are all amazing people who do anything and everything they can to help those who come to them. Whether for events, advice, or even just support, the people at ESF put their all into making sure those who come to them are taken care of and supported in every way they possibly can. It's an amazing organization, and one I'm proud to have worked with for such a long time.

I have been working with the ESF team over five years now, primarily on an annual fundraiser, Septembeerfest, held at my place of business, Southern Brewing & Winemaking. The individuals who represent this organization are extremely passionate about bettering the lives of people with epilepsy! Their passion is reflected in their every action and is contagious to those they touch. They win the hearts and commitment of numerous dedicated volunteers and businesses who donate their time and goods to Septembeerfest.....and, I believe it's their passion that draws the crowds to the event! Out of my 25 plus years of volunteering for various non-profit organizations, the volunteers and staff of ESF are the most dedicated, hard working and reliable group I've ever worked with. I hope to see this event continue on for years to come!

Epilepsy Services Foundation has played a very important role for my daughter. Through ESF my daughter has met wonderful young adults that like her, have epilepsy. She so enjoys when they all get together whether it's bowling, a bar-b-que at someone's home or one of the many wonderful events sponsored by ESF. I am so greatful for Epilepsy Services Foundation and all they do for those with epilepsy of all ages.

My son was diagnosed with nocturnal epilepsy. This was scary and confusing for me and my child. I did not know of any doctors who were good and would help me through this situation. But, when we found the Epilepsy foundation, the families who were already involved helped us find good doctors, and the foundation gave me and my son the support and knowledge that we needed to approach this diagnosis.

Tom is amazing to work with! He is kind, compassionate, and a genuinely nice person. I can't say enough good things about him and this organization.

This organization is great. They look out for their people and they help us when we're in need . Tom is a great founder and he really makes sure that he knows who is involved in what and he doesn't just see us as a number . He really truly cares for us .

My daughter (young adult) is a fairly new diagnosis with seizures. When I learned of an opportunity to volunteer w/ a Camp for kids w/ Epilepsy and called in, I was surprised Tom himself answered the phone! He was very kind, helpful, offered suggestions and warmly invited us to join the Tampa support group as well as a newer diagnosed info group - it was educational! Tom has been very supportive, genuine and truly cares about these young adults :) My goal was to get my daughter involved with young adults dealing with similar things who also operated on a higher level with college and employment - we've been pleased with the short time we've been involved and look forward to future gatherings!

Began working as a volunteer to help raise funds for the Epilepsy Foundation this year as part of a professional association. Had no idea of the extent of the need or services offered through this worthy organization. What is particularly enjoyable is the culture of service and how thankful the Foundations is for even the smallest effort on their behalf.

Wonderful organization. I've seen first hand all the help it's provided to a close friend who lost her son to epilepsy.

I've had the opportunity to observe Epilepsy Services Foundation as a part of their partnership with the Tampa local of the National Association of Insurance and Financial Advisors (NAIFA-Tampa) through our joint efforts together on a golf tournament.

Epilepsy Services Foundation provides a tremendous value and service to those suffering from Epilepsy or are a family member caring for those with Epilepsy. The work they do makes it easier for this group to have one week where they can be "normal." Epilepsy is becoming more and more common, and for an organization like Epilepsy Services Foundation their work is needed throughout our community.

Thank you to Epilepsy Services Foundation for making our community a better place!!

Everyone at the foundation is so nice and friendly. They have done an amazing job at bringing awareness to epilepsy and ways to help!

This organization has been the grass roots foundation for the greater Tampa Bay area for many years. They have keep the light on for many of our people stricken with epilepsy, as a guild post for both information and outreach. Tom all to well understands the complex implications of both health and social economic struggles that this group of people contend with on a daily basis.
Brian Harper R.EEG.T

The ESF has a genuine focus of serving patients and families in the community. I have a personal friend who's daughter has been able to attend Camp Boggy Creek and it has been a blessing to her and the family. This organization offers resources and events that are greatly needed and make an impact for many people. The ESF is a place where many can go to find help, encouragement and a sense of community.

Years ago I had the opportunity to attend a day long session at Camp Boggy Creek with Tom Orth of the Epilepsy Services Foundation. This camp allows children that may otherwise be considered different from other kids to feel "normal". Each week there is a different group of kids to come to the camp. We obviously were able to observe the week when kids with Epilepsy were there. The staff was amazing, there were doctors and nurses on site the entire time, but the most noticeable thing at the camp were the smile on every one of the children's faces.

I have helped Tom with many events throughout the years. When I had a chance to see the end results of all our hard work, it made everything worth while. Epilepsy Services Foundation is EXTREMELY well run and always keeps the mission of helping kids and their families impacted by Epilepsy at the forefront. Kudos to Tom Orth and Epilepsy Services Foundation!

I have worked with ESF since 2012 as hospital liaison between families with children who are diagnosed with epilepsy and volunteer/mentors who represent the HOPE program. I have attended educational in service programs and social activities as well, and continue to be impressed with the community outreach ESF provides. It continues to be a privilege and a pleasure to work with this great organization.

I cannot speak highly enough about this organization and the services its Board, Executive Director, volunteers, and supporters provide for the community and, particularly, persons effected by epilepsy and their loved ones. ESF's dedication to educating and growing awareness in the community about the challenges of epilepsy is unmatched. The love and outreach ESF's members give to individuals who deal with epilepsy, and the support shown to their families, is constant. ESF's programs and fundraising activities have bettered so many lives. I am a former board member and volunteer, and now just a fan. I feel blessed and grateful to have been involved in such a laudable non-profit organization.

This is a fantastic organization that serves to raise awareness about epilepsy, assist those affected by epilepsy, and simply rallies the entire community together. All the members in this association are so passionate for this cause, it's inspiring! Great work, keep it up!

-Matt C.

It was a great experience. Everyone seemed really happy to be there, the ceremony didn't take up much time, and along with the scholarships, the epilepsy services foundation even payed for our dinners. Several people showed up dressed professionally. I don't have any complaints. It was a great ceremony.

This is a great organization that has helped our son with epilepsy in so many ways over the years. When he was a young child, they took him to Lightning and Bucs games, they sponsored him to go to summer camp and family weekends at Boggy Creek. This year he will be attending college, and he was awarded a scholarship through ESF.

Growing up with a brother who has been diagnosed with Epilepsy for the last 18 years, I have come to know Tom Orth and the work that they do at the Epilepsy Service Foundation. They have helped so many children, teens, and young adults strive. The Epilepsy Service Foundation portrays a positive impact by promoting awareness through newsletters and Easter day 1mile and 5Ks runs. My brother has gone to Camp Boggy Creek, where families don't have to worry about leaving their kids because there is an around the clock care for them. In addition, it allowed my brother to be around kids with a similar diagnosis, so he was able to interact with others without judgment. Tom Orth has made a positive impact to those not only diagnosed with Epilepsy, but also their families. Recently, I was awarded a Beacon of Hope Scholarship to use towards College in order to become a Doctor. Tom Orth and the Volunteers at the Epilepsy Service Foundation have made a lasting impact on my family’s life.

The Epilepsy Services Foundation is one that truly loves and works for epileptics and their families everywhere. They sacrifice on a consistent basis so that people like myself, who has been diagnosed with epilepsy for the past 17 years, can have a chance at a normal life. Most recently, I was awarded a $250 scholarship. Being someone who lives on a fixed income with one child and one on the way, this not only makes a difference for me, but also for all the people I intend to help as a future physician's assistant. Epilepsy is still so very unaware among he public and therefore does not see the same donations that other charities see, but they are more than deserving. Please do all you can to help.

ESF is a fantastic service organization. Their work, scholarships, social events, counseling and friendship has given my son with epilepsy newfound hope, friendship, and education. They are a bright spot in an otherwise traumatic experience. Keep up the good work.

Daniel Roberts, Wimauma, FL.

ESF is truly a great organization, and I'm proud to be involved. The volunteers are passionate about their work, and Tom Orth is an all-star in running the organization. We have great projects, such as sending kids with epilepsy to Camp Boggy Creek and organizing meet-and-greets for those affected by epilepsy. ESF has not only raised awareness of epilepsy, but improved the lives of those who suffer with it. It doesn't hurt either that we have really fun fundraising events (I'm partial to the annual golf tournament and beer tasting events). I can't speak highly enough of ESF.

I was referred to esf by another parent and I am so happy with the resource. I explained my son, 23, needed to find a support group. He said he knew there was a need and a year later, we have a group of 12 that keeps growing. We have met so many wonderful, supportive people through esf!

The individuals who run the Epilepsy Services Foundation in Tampa go the extra mile for patients and families dealing with all aspects of Epilepsy. They continue to educate past the initial diagnosis of the disease to help families try to live normal lives. Their work in the community, from fundraising to collaboration with healthcare professionals, shows their commitment to patients and families. It has been an honor to work with ESF and to be part of their mission.

The Epilepsy Services Foundation does not only help individuals that are dealing with Epilepsy but they go the extra mile to help educate any individual that is interested in Epilepsy. I have been volunteering with the Epilepsy Services Foundation for several months now, and Tom and every other employee and member of this Foundation work to make it the best it can be.

I have been a volunteer at ESF for almost two years. I have watch them help family's with meet and greet groups. They provide a education program and help with medical test. Most of all they give the family's hope.

my daughter has epilepsy. We go to the family meet and greet and we love all the information. They are super compassioned. Tom who runs it is just a lovely man. They help us with the school system for a IEP for my daughter.

I just love ESF . They have help us with meeting other family's. They have paid for my daughter to go to camp boggy creek. They can answer questions better then the doctor. They are always just a phone call away. They have family outings. They do a epilepsy education day.

My husband has been living with epilepsy for 20 years. ESF does a wonderful job of bringing awareness and support to the epilepsy community of the Tampa Bay area. Tom and his staff are amazing. They truly care about the people they serve and they continue to bring joy to so many families. We are honored to volunteer at ESF events and help support them in any way we can. We are blessed to have ESF in Tampa.

I can begin to tell you how hard it is to believe that someone one in your family has epilepsy and really not even know what it is amongst all the other tragedies that are out there. Until my wife and I got the number of the ESF foundation of Tampa Bay and our granddaughter lives in Missouri, but Tom Orth, Sandy VanHook have been the wealth of knowledge and support anyone could have. They have provided us with more info and ideas and just general knowledge that has helps us help our kids help our granddaughter, we can say enough about them. They are always will to do whatever, even if its just to listen.

Jeff Burke

My Granddaughter was recently diagnosed with Epilepsy and I contact Tom @ ESF and he and his staff have given me so much of their time to help me understand what my son is facing and what my granddaughter is up against. They have been sounding board, they even met with my son & his family while they were visiting and gave them so much information that not even there doctor had shared with them.

My 10 year old son was diagnosed this summer with epilepsy. Fortunately my family had done volunteer work with ESF over the past years and knew who to reach out to. We knew we had a family thru them and the support we would need to help us get through this. It helps to know that we are not alone. Knowing that we have trusted friends, families and the many wonderful people that volunteer at ESF here for us has made this transition of living with epilepsy so much easier for our son and the rest of our family. Being a part of this organization is such a blessing.

My son was diagnosed at 14 with seizures and from the outset, the support we have had from the ESF has been incredible. They are not only a source of information but we really feel they care, and go above and beyond my expectations. It is so reassuring to know that there is an organization out there that can guide, support, and help us not only as a family, but as individuals too.

I work collaboratively with this organization to help provide free retreat weekends to the families ESF serves. They are very attentive to their clients needs and really listen. What a wonderful organization. I look forward to working with them in the future.

My son was diagnosed with epilepsy at birth he started having seizures 7 hours after he was born he is now 3 years old. This is such an amazing group of people who go above and beyond for other.

I was an epilepsy patient at the time about two or three years ago. I didn't know I had epilepsy until my mom saw one happen. For some reason my neurologist didn't suggest this foundation until a year or two into the process. After we found this opportunity it worked out well, it helped pay for eeg's either in the hospital, at the doctor;s office or at home. It helped me determine what type of seizure i had. My seizures were so small that nobody noticed them until my mom saw me had one.

Best charity I've ever known. They actually provide services like health care. Other local charities seem to just provide information.

The epilepsy foundation has made a huge impact on my family. Four years ago I lost my brother who had epilepsy and because of this wonderful foundation we are able to send children who have epilepsy to camp every summer in my brothers' name. Tom Orth has been in contact with my mom since the beginning. He helped my parents get through so much. We appreciate everything he has done for my whole family.

Since 2005, it has been my profound pleasure to be involved with Tom Orth and the Epilepsy Services Foundation in Tampa, FL. With Tom's help 24/7, I was able to take my son, Joseph McElroy, to the best doctors. Tom always made himself available to attend these appointments with us. My son passed away on September 4, 2010, but the best part of his life was being introduced to Camp Boggy Creek through Tom. Joseph attended Camp Boggy Creek for two summers through the Epilepsy Services Foundation and all this was done at no charge to us. No words can describe all that Tom and the Epilepsy Services Foundation did for Joseph and my family. Tom still remains in contact with us and we are forever grateful. Tom and the Foundation have superbly exceeded our expectations and are truly worthy of remaining on the Nonprofits 2014 Top-Rated List.

Sincerely,

Roseanne Marchesiello-Prusher

I wanted to get involved in awarness for Epilepsy in the local communnity. I researched and came across Epilepsy Service Foundation (ESF) and met Tom Orth. I was very impressed on the great job he has done organizing the events for ESF. I was able to volunteer at the Golfing for Kids Classic on May 9th, 2014 .... I was very impressed on what a great turnout and had so much fun ! I recently attended ESF SeptemBEERfest......another great event !I believe that there should be more awarness of Epilepsy and so does my company..... When I found out that ESF also helps fund scholarships to send 25 kids to Camp Boggy Creek ,,,,, I was more excited to get involved. If you do not know about Camp Boggy Creek ,,,, it is a AMAZING camp that kids can be kids !!! I was so impressed !!!!! I look forward to working with Tom and the ESF .... next few events count me in ! Lets Walk Together for Epilepsy Saturday March 7th 2015 in Lakeland & Seminole. Also on March 28th, 2015 at USF Track and field in Tampa, Fl. Count me in as a volunteer for all future events !!! Thanks Tom for all your help !!!

I learned about ESF last year when my daughter was diagnosed with epilepsy. Tom Orth and the other families have served as an excellent resource for me and my family with regard to finding a doctor or just basic questions regarding my daughter's seizures and her care. My experience with this organization has been so positive and comforting, especially for my daughter. I am certainly looking forward to being a more active participant with all the events they have planned, as well as to one day serve as a resource for other families. I can honestly say that when I walked out of my first support group meeting with my daughter, I felt as though a huge weight had been lifted off my shoulders. It was extremely emotional for me and the outpouring of care and sincere concern that I felt from the other families present was overwhelming. I now know I have an additional support system and am so happy to have found ESF.

I cannot say enough for the Epilepsy Services Foundation I am involved in. I decided to get involved in the foundation after being referred to Tom Orth through my neurologists. After battling epilepsy all through out my teen years and even through college I decided I wanted to help and get involved. It wasn't until I had epilepsy surgery that I was cured. It really is a disease that needs more attention and education. It is hard to know what your options are and to deal with living on a day to day basis when so many people know so little about the disease. The Epilepsy Services Foundation is truely dedicated to educating and spreading awareness. We have a wonderful team of volunteers that are living with or know someone who has epilepsy and want to help others with the disease. Everyone is truely motivated and this is a 100% honest foundation. I have no question everyone who is involved is in it for the right reasons!

My family and I have been involved with ESF over the last few years, as they had renamed their camp scholarship in honor of my brother Joseph, who passed away in 2010 from a silent seizure. Since then, we hold a fundrasier each January to raise money and help send children with epilepsy to camp. Working with Tom Orth, director of ESF is a wonderful, easy, stress free experience. He truly cares about the success of our event, and makes so much effort to keep in contact with my family and I. We are so grateful to Tom and the members of ESF for supporting a cause that is so dear to us.

I have volunteered and known the organization for many years. I have been at the HARE Racing Experience many times. It is always a pleasure to work with Tom and be at these events. Everything is so organized and well planned out. They are very passionate about everything they do and are extremely committed to doing their best for everyone affected by epilepsy.

I found out about the Epilepsy Services Foundation due to their SeptemBEERfest fundraising event and expressed interest in getting involved. They were very receptive and made it easy to get involved. Since then, I have seen first hand how many lives this foundation touches and how it helps our community. The people that work with this foundation are nothing but helpful, kind and generous. It has been such a joy to work with the Epilepsy Services Foundation and see how they aid those persons affected by epilepsy.

I am a new volunteer with the Epilepsy Services Foundation; however, I have had experience with them before through the support and care provided to my younger brother. As a new volunteer, with the exposure to their services through my brother's epilepsy, I can say that The Epilepsy Services Foundation is a wonderful organization aimed at providing care, support, and resources. I wish I had known of this organization sooner, at least for my brother, so that we could have found the support for him earlier, but I'm glad we found the ESF. Members of the ESF display qualities longed for among professional medical providers-- compassion, above all, patience, open-mindedness, and a sense of reassuring calm and hope. Training with them has been most enlightening, and I cannot wait to volunteer more with the organization.

My experience with the Epilepsy Services Foundation has been one of enlightenment and fulfillment. It was wonderful to witness a group of people from all walks of life coming together, raising awareness for a cause that some have been personally touched by and others have no personal attachment. That is the true meaning of community. Not only is the Epilepsy Services Foundation 100% non-profit but the time and the energy that is taken out of member's and participant's personal lives leaves me in awe. Nothing is done for personal gain or accolades but rather the intrensic joy that is received from the change that occurs in helping someone not equipped with things that you and I take for granted on a daily basis. The most impressive and beautiful thing about this change is that it does not come from pity and over-coddling, which can often be more of a hinderance than a long-term asset, but rather in the form of information via awareness. The awareness that they are not alone and that there are medicines and programs available that can help. The efforts of the Epilepsy Services Foundation has given those effected by any form of epilepsy a feeling of importance and a place in the world.

I am a volunteer, I also serve on the Executive Boards, and 3 other committees with this organization. My two children have had epilepsy since they were 1 years old. They also have autism, however with my family & their fathers have a strong history of epilepsy in our families this is an issue dear to my heart. I moved to tampa and looked for a support group of some sort and I found ESF. I can't begin to tell you how this amazing organization saved me, my life, and my kids. I volunteer and do all I can to help raise awareness. They have been an asset to me to help others, raise awareness, give support. I am proud to be part of this organization. I am at home with both my kids, the go to school at home so life is not what I ever thought it would be & I would not change a thing. This organization has helped me in finding ways for my kids to be a part of something bigger and not feel strange. Tom Orth, Executive Director, is amazing. He even just sits and has coffee to provide 30 minutes for me to gather myself. I love being part of this organization, the information, support, and dedication have fulfilled a part of me in a way that can never be replaced.

I have been volunteering and a board member for two years. This has been a awesome experience. When I needed help and direction for my young daughter they were their to help me. We are greatful for all there support.

I have participated in fundraising walks with ESF for many years and from the very beginning was extremely impressed with how the executive director, Tom Orth, reached out personally to participants to thank them for their support. Over the years I became a regular volunteer in the Purple Day Walk for Epilepsy held annually to raise funds to send kids with epilepsy to summer camp, and in January had the honor of being elected to the Board of Directors. We are a very small non-profit in the traditional sense in that we only have ONE paid employee and are almost completely volunteer driven, yet we have so many programs and events that we help children and adults affected by epilepsy in Hillsborough, Polk, and Pinellas counties (Florida) - which for those not familiar is the Tampa / St. Pete area. I am so privileged and honored to volunteer with this organization and plan to continue to associate myself with them for a very long time!

I have been volunteering for ESF with the organization of the HARE Racing Experience since 2009. This event has been very successful in helping children with epilepsy attend Camp Boggy Creek. Tom Orth (Executive Director for Epilepsy Services Foundation) works extremely hard and is dedicated to making this event successful for the children. It is a pleasure to work with Tom who is dedicated to raising funds needed to serve the people with epilepsy.

I've been involved with the Epilepsy Services Foundation for around 20 years, with their annual golf tournament, Ribs for Kids, etc. They always do an AWESOME job of organizing things, and more importantly, reflecting their genuine heart and concern for others, not just those whom they directly serve, but those whom they work with. Volunteers walk away being valued and knowing that they made a difference. As as professional with limited time to volunteer, I consider my work with ESF to be well worth my time.

When we moved to Tampa in 2008 we were advised to hook up with ESF and Tom Orth. We quickly learned about Tom's passion and his dedication for helping children with epilepsy and their families. Tom has given our family and our son, who has epilepsy, some very good connections over the years. We felt so good about what ESF has done and continues to do that my wife has been volunteering for the past four years, and I have helped some over the past three years. We are fortunate to have such a great organization like ESF and it's director Tom Orth

As a professional in the Tampa Bay area, I have countless of opportunities to get involved and give back to the community. I am fortunate enough to have met many fund raisers and Executive Directors with numerous organizations. In all my years, however, I have never met a more dedicated, involved, caring and hard working man as Tom Orth (executive Director for Epilepsy Services Foundation). Not having any family members directly impacted by Epilepsy, I am often asked why I devote so much of my time to this organization. The answer is Tom Orth. His enthusiasm and passion is contagious. If you are looking for answers about how to deal with Epilepsy (because it affects the entire family, not just the individual), please call Tom. His compassion will come through during your first conversation.

Thank You Epilepsy Services Foundation, Inc. for providing the grant for my son and other children with epilepsy to go to Camp Boggy Creek. This was Jason's second year going there and I can tell you that it positively changed his life. He was diagnosed with epilepsy about 3 years ago without any known cause. At age 12, he just had a drop-attack on a school field trip and then he started to have more frequent seizures. The medication finally got most of his seizures under control but one of the hardest things to deal with was his feelings of isolation or depression and feeling that others didn't understand. Camp Boggy Creek changed all that and he had such a fun time that he forgot all about his epilepsy. It is such a positive environment. The staff is outstanding. For a kid with epilepsy to go horseback riding, climbing a tower and zip-lining down, swimming, playing sports, going to wood-shop and his favorite - archery- is such an amazing accomplishment. We appreciate all the support that Epilepsy Services Foundation, Inc. has given our family. We see first-hand on how the money raised is used to support children with epilepsy. My son could not have attended without the grant from the Epilepsy Services Foundation, Inc. I would rate this a top nonprofit organization. Thank You so much, The Patella Family.

I have had the honor of volunteering for ESF for several years under the leadership of Tom Orth and his very dedicated staff. Tom and his team exude a passion for this foundation that goes beyond a commitment to raising funds for resources needed for persons suffering with seizure disorders. They provide a caring, personal and meaningful methodology for each candidate and their families. My husband and I happily volunteer for this great cause. We are blessed with good health and continue to hope for continued progressive research for all in need.

Thanks to the wonderful program, the Epilepsy Services Foundation my son has been able to attend a great camp, Boggy Creek Camp. My son was diagnosed with epilepsy one week after his first birthday. He then over the years increased the different types of seizures and added additional medical issues. He is a wonderful teenager with a heart of gold. With the issues my son has without the support of the foundation my son would not be able to participate in a camp like other normal children. This is such a fantastic program supporting all individuals with epilepsy. I really appreciate everything Tom Orth and the foundation have done for my son.

My husband and I have legal custody of our 14-year old niece who has epilepsy. When her seizures started to increase, I called Epilepsy Services Foundation for advice. The executive director, Tom Orth, was such a help to us. He put us in touch with a wonderful support group for parents and kids in Sarasota (JoshProvides.org) and also told us about the support group in Tampa. Tom gave us the names of pediatric neurologists in the area who could help us. We went on an epilepsy walk with Tom last fall and met more people with epilepsy and their parents. Our niece got to participate in a USF baseball game as a "bat girl" because of ESF. She loved it! Most recently, our niece attended Camp Boggy Creek, and her fee was paid for by ESF. She had a week with other kids who have epilepsy, and it was the best week in her life. Our lives have been so enriched by all of the positive changes we've been able to make since we contacted ESF. Thank you thank you!

ESF has been helping people with seizure disorders and their families for decades. It has a committed group of volunteers, but more important are the staff who commit themselves every day to improving the lives of their clients. A good portion of ESF's funding comes through private fundraising events, organized and staffed by the Executive Director and lots of volunteers, so a very high percentage of every dollar raised goes directly to benefit the clients. Can't say enough good things about this organization.

As a volunteer I have the opportunity to help plan, collect donations, get volunteers and golf in a great outing with some of my fellow colleagues. It's a thrill to see how the community comes together on behalf of the children with epilepsy giving donations, funds, time, raffle prizes, and food! I didn't know much about eplilepsy before volunteering to help make the golf outing a success. It's stunning to hear how many precautions that people with epilepsy have to take to keep from having a seizure. Without this organization there are many children who would never get to experience a camp because the cost is prohibited with the 24/7 medical assistance needed. I was looking for something to give back to the community and even though this is only a once a year event, I am thrilled to participate. This organization is great. Tom Orth who is in charge is the most kind and sincere person you will ever meet. It's not about him. It's about the kids! When the community gives so much it's great just to watch Tom, he's like a kid himself. He gets so excited and never loses gratitude. If you are looking for a solid organization to volunteer or support, I highly recommend this one. Donna B, Tampa FL

The Epilepsy Services Foundaiton, Inc. is a unique foundation that supports the need to spread awareness of a very important cause that impacts children of all ages. The executive director, Tom is wonderful and truly cares for the foundation and is very dedicated. I feel honored to be a part of a wonderful team.

Once I had received an initial diagnosis of Epilepsy from the USF Department of Neurology, I was lost. I had attempted on several occasions to find support on my own, but unfortunately without success. There were several reasons for this, inclusive of an inability to connect with patients like myself: adults who were suffering from epilepsy. Many of the epilepsy patients I originally met were children, under the age of 18, many suffering from Grand Mal seizures and in the care of parents. I, unfortunately, could not connect with them, their problems relating to the type of seizure I suffer from, as well as the social issues attached to it. The Epilepsy Services Foundation offered a viewpoint I had not seen before. It took a one on one approach to me, asking questions, both about my medical problems and issues as well as my personal life and social struggles. They proceeded to connect me with several doctors who took me in, and directed a "fix it" approach to my illness. In addition, Epilepsy Services Foundation also connected me with several support groups, and proceeded to keep me informed on a regular basis in regards to informative seminars and events throughout the Tampa Bay area. It has now been 8 years, and several surgeries later. I am unfortunately still a seizure patient. However, I am also still being kept up to date on changes in the area regarding informational events, seminars and socials that allow me to learn, grow and connect with professionals as well as patients like myself. Epilepsy Services Foundation is an excellent program from my perspective: that of a seizure patient. I am glad for, and appreciative of, the opportunities they continue to present to me.

The Epilepsy Services Foundation has given me the opportunity to get involved with the community and help other individuals with seizure disorders - like myself - by allowing me to be a part Project Access. As a volunteer, I have witnessed first had the hard work board members put in to assure individuals with seizure disorders receive proper care, put together events that intend to educate others about epilepsy, fund raise, and most importantly provide a loving environment in which a person can feel welcomed and accepted for who they are. The foundation has also granted me a scholarship that will help me further my education in hopes that one day I will be able to create programs to improve the quality of life of persons with seizure disorders through the public health sector. The foundation deserves this award and much more!

I became involved with this foundation through my wife who has epilepsy. Like most people I didn't know much about epilepsy and had very stereo-typical ideas about people with epilepsy. i.e. they look different, they act different, they are constantly having an "episode", they cannot lead a normal life, they are "slow", etc. I know it sounds awful but it's what many people believe. My wife is the very opposite of the above description; she is one of the most physically fit, motivated, disciplined, and intelligent persons I have ever met. She did not tell me about her epilepsy until months after dating and even after getting married I sometimes learn of old adversities that she has had to face due to others prejudices. This foundation has taught me so much about this condition and has encouraged me to give back in both my professional life and personal life. I am a chiropractor and have dedicated a significant portion of my practice to helping those that have epilepsy through spinal and cervical adjustments. It's no cure but the research shows there are benefits. Without this foundation, my wife would still be the incredible person she is today, she's a fighter, but I'm not sure I would be the husband that I am today. Thank-you Epilepsy Services Foundation.

This charity is amazing! As the mother of a teenager recently diagnosed wiith Epilepsy, which was the result of a head injury sustained while wrestling around with friends, I decided that I wanted to become involved with anything to help raise awareness and funding for Epilespy. I volunteered for an event, an Epilepsy fundraising race, and instantly felt like one of the family. Everyone was very welcoming, and each had their own stories of how Epilespy has touched their lives. Epilepsy Services Foundation has opened my family's eyes to resources available to us in the community and support groups that we were previously unaware of. They even told us about a camp specifically for children with Epilepsy, Camp Boggy Creek, which my daughter attended in July, and she had a blast!!! For the first time since her head injury, she was able to relax and not be afraid of her seizures. Epilepsy Services Foundation has really helped my daughter to see that she is not alone, that there is help for her, and that people really do care and want to help find a cure for her and others dealing with Epilepsy.

I just wanted to let you all know how wonderful you the foundation was to provide my son the opportunity to go to the Boggy Creek Camp. My son attended the camp for the first time this year because the Epilepsy Foundation sponsored him to go. He had the most amazing week at a beautiful camp that gives children that would not normally be able to participate in camp the opportunity to do so. The Foundation is a wonderful group that makes the dreams of children like my son a reality. They provided a normal week of camp participating in activities that would not have been possible for them without all the medical support and volunteers that were all truly amazing. The Epilepsy Foundation is a wonderful group to provide the support to the children that have this condition. My son has had five different kinds of Epilepsy and has had other learning disabilities and health conditions, but what the Foundation did for him is something I will never forget and will always be grateful. There are really are not enough words that could say how appreciative we are for the life changing experience my son had a the camp.

Tom Orth does an amazing job as an administrator and this is the only group I commit personal time to. I have lived with my seizure disorder for almost 40 years and the quality of the relationships I have is why I am so committed to the Epilepsy Services Foundation.

A great non-profit starts with a great leader and Tom Orth, Executive Director is one of the best. Within the short time that I've been on the Board, ESF has jumped leaps and bounds in fundraising and awareness. This could not be done without the dedication of our volunteers, Board members and Tom Orth. The future of ESF is bright and I am grateful to be a part of it!

I have been involved with ESF over the years and helped in several ways, one of which is the Golfing for Kids Classic. I also served on the committee and have volunteered at the Classic and the Hare Racing Experience. While working on these wonderful events, I have grown to love this organization and have seen 1st hand the difference it has made in so many peoples lives. The money helped raise scholarships for Boggy Creek and future educational goals. Our Tampa Bay organization has been a blessing for those effected by Epilepsy.

To keep this short and sweet I see the work that Tom and Epilepsy Services Foundation accomplish on a daily basis. His passion to help the epilepsy community is infectious and we are lucky to have such a supportive group as Epilepsy Services Foundation right here in the Tampa Bay area. While at an event I was able to see first hand the help that Tom and his group brings to the community - a mother of a newly diagnosed epilepsy patient was nervous and lost with their new challenge. Tom was able to bring together some other families who had already learned to deal with Epilepsy and help this scared mother. She left the meeting feeling empowered and confident that they would be able to meet this challenge head on. It still puts a smile on my face. Good work Tom.

I have worked with Tom Orth for the past three years helping out at their annual golf tournament. It's heartwarming to know that the money we raise will allow children with epilepsy to attend a summer camp, Camp Boggy Creek, just like other children. We just had our 24th Annual Golfing for Kids tournament and I believe we raised enough to help send 22 kids to camp this summer. We changed our venue this year and I believe we will be bigger and better again next year.

What a wonderful organization! For over 10 years I have had the pleasure of seeing this Foundations volunteer efforts go to work. My family (3 generations) have been involved in the NAIFA Tampa Golf Classic, Hare Racing Experience and the Ribs for Kid's Fundraising events for many years now. Although none of our immediate family or friends are challanged with this illness, we have nevertheless felt the impact of the work ESF does as expressed in the Boggy Creek camp we have been able to help send kids to every year.

Epilepsy services is the best. I have worked with my professional association, the National Association of Insurance and Financial Advisors for more than 10 years to promote Epilepsy Services. We sponsor a golf tournament to send children with epilepsy to camp. We have raised over $400,000 in our 23 year partnership. I have seen a video of the children at camp and what an experience they have. Over the years we are always aware of the need for them and work to fill in the gap of monies needed.

As both a volunteer and a mother of a child with epilepsy, I cannot begin to explain the impact that Epilepsy Services Foundation (ESF) has had on my life. When my husband and I first found out that our daughter was diagnosed with epilepsy at the age of 7 we did not know how to handle the news. Would she be normal and would the seizures have long term effects on her growth, learning process and ability to make friends and interact with other children? I work for a company that donates and volunteers their time to ESF and attended the Hare Racing Experience three years ago. Since that event, I have gained knowledge and information that has helped not only my husband and I but my daughter in understanding and dealing with her epilepsy in a positive and healthy way. I have met various healthcare professionals, counselors and parents through this wonderful organization who have touched my life in ways that some people would not even imagine. My daughter who is now 10 years old has such a positive outlook on her epilepsy and understands that it cannot and will not stop her in her every day life. She has been seizure free for a year and a half now and thanks to the tools and information provided to our family through ESF we are looking forward to the years to come. Please endorse Epilepsy Services Foundation so that other families, like mine, dealing with epilepsy can benefit from the wonderful services that they provide on a daily basis.

Karly A. Thompson

I am a mother of a child with epilepsy and a nurse. I became a board member this year as a way of giving back. My son and our family have personally benefitted from the foundation - he has been able to attend Camp Boggy Creek for the last 8 years. To watch him grow through camp has been the most wonderful thing. This is his last year to attend and he looks forward to going back as a volunteer. I was awarded a scholarship through the foundation to continue my schooling as I work toward my ARNP specializing in pediatric neurology. I am also a member of the HOPE mentoring team - helping the community through teaching and mentoring those in need. I could go on and on about the wonderful things the foundation provides. Let there never be a question that this organization is a vital one in this community. Thank you ESF!

I recently got involved with the Epilepsy Services Foundation to help fight for those living with this condition. My best friend's sweet little boy, Jake from Texas, was diagnosed with Epilepsy when he was 3. From that moment on I set out to find a way for me to be involved and to learn more. I knew the moment I met Tom Orth it was calling my name. The genuine passion, care and concern for the Epilepsy community is apparent in every little thing the foundation does. Sending kids to camp, spreading awareness, providing scholarships to those entering the neurological field, doctor referrals, mentoring programs, a wealth of knowledge, and so much more...It's quite eye-opening as to what it truly means to give passionately. I am so fortunate to volunteer and be a part of such a great foundation.

In my years as both a volunteer and board member at the Epilepsy Services Foundation, I have learned so much! I have learned about epilespy, how it affects the person affected with it, and the channels these persons go through to receive treatment. The Epilepsy Services Foundation provides invaluable services to the epileptic community. They send kids to Camp Boggy Creek, provide scholarships, and offer guidance to the community they serve. There is not another non-profit that i have been associated with as either a volunteer or board member that is so communited to their cause.

As a business leader in our community, I am often approached to donate time, money and energy to many different charitable organizations. While all are deserving, I have a special place in my heart for Epilepsy Services Foundation. Every year, thanks to the efforts of Tom Orth, Executive Director, ESF is able to send children affected by Epilepsy to a Summer Camp where for 1 week during the entire year, they feel normal. Notice I did not say special, they feel normal. To see the look on a kid’s face that ordinarily has to be treated special being treated as a normal kid, it really is worth every bit of energy and time.

In addition to the camp, ESF also provides scholarships to people affected by Epilepsy to allow them to further their academic progress. They also provide scholarships to those entering into fields that will help those affected by Epilepsy.

While other organizations are truly deserving, I am especially proud to be on the board of ESF. I see first hand the difference a few people can make in the lives of so many.

I have been involved with The Epilepsy Foundation for a period of 5 years. I am always amazed at the level of concern always about clients, their care and their families. All decisions in the organization are based on service to people affected with Epilepsy and their families and care takers.
In this day and age when bottom line is always the concern, it never superceeds concerns first for the clients.
The Epilepsy Foundation is an example for all organizations to run by

I first got involved with Epilepsy Services Foundation after I moved to central FL and began looking for a local epilepsy organization. ESF was taking part in their "Be a Cupcake! Buy a Cupcake!" fund raising and awareness campaign and I thought I can do that! When I contacted ESF I also got information on an upcoming local awareness walk and joined the planning committee. Since my son was diagnosed with epilepsy in 2007 I've wanted to be a part of something to spread awareness and to be able to share experiences with others who understand firsthand. I consider myself so lucky to have found ESF and am proud and excited to become more involved.

My employer is a large law firm who has sponsored ESF for years with their various fundraisers. I became involved in volunteering with ESF five or six years ago for their annual Hyde Park Music Series event as well as their Hare Race Experience in Tampa. At each event I would always meet someone who shared their story of having epilepsy and the significant help they received from ESF and how it change their lives. I do not suffer from the disease but felt compelled to continue volunteering and helping with this great cause. As fate would have it my husband and I changed churches four years ago and we began attending Sunday service at the James A. Haley Veteran Hospital and there was Tom (ESF Executive Director) and his wife, Carole. We see Tom on a weekly basis and speak about the ongoing good results that occur for this foundation. Tom's demeanor and personality shines in his perseverance and dedication to this cause. I can only hope that he will continue to receive the resources needed to help so many who suffer from this dreaded illness. I recently attended a scholarship reception for several ESF students who will continue to work in the health field looking for a cure for Epilepsy. One particular family touched my heart where both brother and sister were diagnosed with epilepsy in their teen years and are now faced with the loss of privileges most teens take for granted, i.e., a driver's license, etc. I am blessed with good health . . . . they should be too. Any assistance for ESF is always greatly appreciated.

It is going on six years that I have been involved with this fine organization. The dedication and determination of its volunteers and board members are second to none. I have seen firsthand what a difference a group of caring people, working on behalf of a caring organization, can make in the community. As a parent of a child with epilepsy, I just want to thank Tom Orth and all the volunteers for their incredible perseverance and encourage anyone looking for education, assistance, or just someone to lean on, to consider ESF.

Epilepsy Services Foundation is an organization committed to funding valuable services to all those affected by Epilepsy. The organization raises funds through golf tournaments, an annual "Hare Race", Live Music Series, BBQ ribs for kids and more. Through the funds raised by ESF, people are given the opportunity to continue their education; both those directly impacted by Epilepsy and those looking for ways to help those affected with Epilepsy. Every year through grants given by ESF, kids are given the opportunity to attend Camp Boggy Creek. At this camp, kids with Epilepsy are allowed to be around other kids with Epilepsy and are given the chance to feel "normal". I ask you to visit their website and see for yourself the great experience this offers. For years, Epilepsy Services Foundation has proven to be a strong member of the Tampa Bay area. With the guidance and direction of the Executive Directo, Tom Orth, ESF remains at the forefront of reputable and honorable organizations.

This is one of the finest groups of people that I have worked with...the passion to help others is paralleled by none. By treating patients with epilepsy, I came to see more activity and assistance for those in need than any other support agency I know. The grass-roots approach of caring, and the cost-effectiveness with the case-management program should be a model applied on a large-scale to PWE to help advance our current outcomes based goals. It is a pleasure and privilege to have worked with this great team of dedicated professionals.

I am a proud parent of a young adult who has lived with the daily challenges of refractory epilepsy since early childhood. In addition, I have had the honor and privilege to work as an active board member, both local and state wide, with the executive director of Epilepsy Services Foundation, Inc. I have witnessed the good work this organization does. This is a grassroots Foundation created, run, and governed by persons affected by epilepsy; a caring and dedicated organization that has the commitment to improve the lives of all persons served through a variety of quality programs. As a donor and accountable board member,I can state with confidence that the gifts this Foundation receives are returned to the community so that persons affected by epilepsy can receive services that may not otherwise be possible. Linda Landreth-Harris Niceville, Florida