I attended a wonderful conference put on by the Epilepsy Foundation of AZ that helped me a great deal as the wife of a husband with epilepsy. The speakers were wonderful (several Dr.'s who specialize in epilepsy) and several people who gave moving stories of their struggles with epilepsy. I found out at this conference that Dilantin can cause osteoporos, and I am so thankful for that information and subsequently had my husband tested and he does have osteoporosis. He had numerous falls and fractured his pelvis in one fall. I was so glad to learn this about his medication, and so glad for the support I got at the confetemce! This is a great organization and I hope it gets the recognition and support it deserves for being an advocate for all those living with epilepsy. Thank-you.
I was initially acquainted with the Epilepsy Foundation in 2010, when I had my first seizure. Up to that point, I wasn't even sure what epilepsy was, and I had no idea how to deal with it. The Epilepsy Foundation was quite helpful, friendly, and encouraging in getting me back to normal and teaching me more about the condition, as well as how to go about my daily life with it. Since then, I've taken the opportunity to work as a counselor at their summer camp, "Camp Candlelight", as well as volunteer in their office a couple times a week. They are a small organization, yes, and have limited resources to work with in assisting all who need assistance, but they are quite focused on their goals, very willing to help you. If you are interested in volunteering with this organization, I would strongly suggest it; you will always feel as if you are contributing to something larger, and the extra hands are definitely needed here.
The Epilepsy Foundation of Arizona may be a small organization with a tiny office and a short employee list, however, they don't let that limit their reach or impact on the market they serve. If you have questions or need any information regarding epilepsy, they are the best source of information. The Foundation is always happy to help with any issue or project that is taken to them.
The EFAZ has a strong mission but unfortunately does not have the support it needs from the community. In over 20 years in the non-profit sector have I ever experienced a board that was disconnected from the organization. They did not participate in fundraising or assist in recruiting corporate partners or solicit new members. I fear that this organization may not have enough sustainability to make it through 2010.
Review from Guidestar