It's a pleasure volunteering with everyone that wants to help others that have epilepsy. Everything is done whole heartedly.
Best association I ever been in always there for you when you are need to talk help people learn about epilepsy and people with epilepsy like me the association helped me learn about my epilepsy how effects so many people and children I love it
Question Of Thought: "What Is It Like To BE FREE?" *I Have NEVER Known. I hope it "Sinks Into The Reader's Brain Cells." Especially anyone who DOES Know About *Being Free. Just Hop In That Vehicle And Drive-Away. Must be nice. A person "Labeled" with Epilepsy Does NOT Get To Drive "after a certain age." One WITH Epilepsy *Must EARN The Right To Drive--like go a certain length of *TIME Without Having A Seizure--Regardless Of Which Type of Seizure. Taking ALL Kinds Of Pills. Feeling Like A Guinea Pig To Medical Science, *Who Makes MILLIONS Of Dollars Each Year Because Of "People Like Me."
And *How About That ALL-IMPORTANT *JOB? Must Be nice! Having a paycheck to bring home every 1, 2 or 4 weeks. However one is paid. :-) And *A Retirement Check! WHOOPE. "Forever Vacations!" Right? Must Be Nice. *MONEY! Transportation! And *FREEDOM!
Point Made: One WITHOUT Epilepsy Is Considered, "Important!" Don't EVER Forget That.
NOW. Try To Imagine Having Something HORRIBLE Happen To You When Only *6 Months Old. Something That Caused *You To Start Having Seizures. Taking Medications since 3-4 Years Old. Wanting To Be Accepted, Like Many Are. Only To Be REJECTED! Starting With *Family, For Some Of Us. This Would Be Me. NEVER Permitted To Go Anywhere! Reason Given: "You Might Have A 'Blackout!" That's Right. I Said, "Blackout." Not *Fainting--OR A Convulsion! JUST A "Blackout." Better known As A *Temporal Lobe Seizure, NOW Changed To: "Partial-Complex Seizure." It's Nothing Like Telling One's True Story, Only To Find Out After ALL These Years, One Has To Learn *A New Name For "Their Condition."
SO! Now, I Am 71 Years Old. Haven't Been Permitted To Do Much In ALL Those Years! So "Why Am I Here?" Maybe I Am To Attempt To *Open Another Person's Eyes And Heart About The SERIOUSNESS Of *Epilepsy. A LOT Of People *Who Had Epilepsy, Are No Longer Around To Tell Their True Story. They Can No Longer Share Information, Like I'm Doing. Many People Have Lost A Loved One To This Killer! THIS Is "WHY" *Finances Are MUCH-NEEDED. This Information CANNOT Be Sent Out Without *Finances! Something That Many People Have. Especially Those WITH A Job. People On This Site *Dedicate Their *Time In Making Some VERY NICE THINGS, To *GIVE To Others! Want MORE Information About ALL The Things We Do? By All Means, ASK! *EDUCATING Others Is A VERY EXPENSIVE *JOB---For Many. For Someone With "The 'E' Word?" It Is MUCH More Expensive! We Are Not Valued As, "Important."
I Live By FAITH. No Retirement Check For Me! Nobody Would Hire "Somebody Like Me." And *When I Married Back In December of 1988, *SOCIAL SECURITY STOPPED SENDING ME DISABILITY CHECKS! Imagine That--If You Can. ALL Because *I Got Married! That's Right! I Went Without ANY Income Of My Own For Over *30 YEARS--Until My Husband Retired! NOW, I Get A Monthly Check From *His Retirement. And I STILL GIVE.
Please Be So Kind As To Send Some Much-Needed Finances, Our Way. I Know For A FACT That Every Dollar Is Counted For And Used Wisely In *Helping And Educating Others About Epilepsy. And Just In Case You May Want To Buy A Gift, This Can Also Be Arranged. Your Participation Will Be Greatly Appreciated--And Never Forgotten. Thank You So Much.
EJ Parker
Before being invited to the EANC group I knew very little about epilepsy. After joining the group I had many questions I wanted to ask which members of the group was more than happy to answer knowledgeable The goal of this group is to educate the community about epilepsy I think they are doing a good job
Epilepsy of North Carolina association is a great organization that's helping the community learn about epilepsy also there are a nonprofit organization.
They work very hard for this community and the state to pass Sam's law. And first aid on how to react to somebody having epilepsy.
I love being a part of this organization the handout purple bears to children with epilepsy that makes them smile. This organization works very hard with school boards county commissioners House of Representatives .
I am so proud of this organization
They go above and beyond. Because of them my daughter doesn't feel alone. I can't say enough about how truly amazing this group is. They're always there to help. I'm always learning something new from these guys.