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2017 Top-Rated Nonprofit

Epilepsy Association of Central Florida Inc

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Nonprofit Overview

Causes: Epilepsy, Health

Mission: "Dedicated to improving the quality of life for persons affected by epilepsy."

Results: We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics: Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year: EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served: With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs: Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

Community Stories

72 Stories from Volunteers, Donors & Supporters

Board Member

Rating: 5

Always happy to serve this excellent organization as a board member!

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Board Member

Rating: 5

I am a board member for the Epilepsy Association of Central Florida and also have a family member with epilepsy. The association does a tremendous job at connecting those afflicted with epilepsy with resources and information they might not have access to otherwise. Some of the best resources are Epilepsy U, case management services, and the association's connections with some of the best neurologists around; all of which benefit clients. The Epilepsy Association of Central Florida also provides clients with a support system. This support is critical for what is still a highly stigmatized condition. Ultimately the support and resources provided make for a very special organization that I am honored to be a part of.

1 Saundra

Volunteer

Rating: 5

The Epilepsy Association of Central Florida has been an exemplary organization for over 50 years. It has serviced clients and supported families, disbursed information and always been above reproach. The organization has had only two executive directors, the founder, Merle Evanchyck now has a scholarship named in her honor for students who have been impacted by epilepsy. Chuck Carmen, the present executive director is as dedicated as Ms. Evanchyck was and carries on. The needs have expanded and the support is challenging but the dedication is strong and the Epilepsy Association of Central Florida continues the good work. Epilepsy U is a reliable source on the web for all who need information. Sincerely, Saundra Gray


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1

Board Member

Rating: 5

The Epilepsy Association of Central Florida has been helping families impacted by epilepsy for over 50 years. The association has only had two executive directors, founder Merle Evanchyck and current director, Charles (Chuck) Carmen. The dedication of the directors and the loyalty of board members and supporters, demonstrates the confidence people have in the Epilepsy Association of Central Florida. The mission has gone world wide through Epilepsy U, an online information source available to anyone needing information. This organization addresses needs at the source, the patients and families that need help and support. Saundra Gray

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Professional with expertise in this field

Rating: 5

EACF is a wonderful agency with hands on help for children and adults with epilepsy. They provide support with medications, appointments, EEG's as well as support groups and counseling. They provide education to the schools and organizations interested in learning more about seizure disorders. They raise money to help the children and have activities free for the kids. They have a scholarship fund for the kids and a foundation for special needs. Great people!!!

Professional with expertise in this field

Rating: 5

I've known of this non-profit for a few years now and also the people who work there. I've seen them in action and am very impressed with their skill set and interpersonal skills. I support the epilepsy association of Central Florida.

General Member of the Public

Rating: 5

The EACF provides excellent, much needed services to fortunate clients all across the Central Florida area. My wife and I always look forward to their Brevard County epilepsy walk each Halloween! The costumes are always the best! After getting to know several of the board members, staff, and volunteers, I can confidently confirm that EACF is a great organization, with a stellar crew!!!! Keep up the great work team!

1

Volunteer

Rating: 5

Being someone who suffers from Epilepsy. I understand the fear of not knowing what is going on with your health and not knowing how to solve these issues. Having an organization that helps support those who are suffering is truly inspirational. Whether it is raising money to help in research or just supporting diagnosed patients and their families through this uncertain time the Epilepsy Association of Central Florida Inc. stands as a pillar of strength in our community.

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida does a great job putting together events for those impacted by epilepsy. These events are an opportunity for those to meet others who share the same experiences in a fun and relaxed environment (away from doctors and nurses). The relationship we have formed with the Epilepsy Association would not be possible if it wasn't for the great people there.

1

Professional with expertise in this field

Rating: 5

The Epilepsy Association of Central Florida is there every day for persons with epilepsy and their families. They, and the wonderful work they do, are so greatly appreciated!

Donor

Rating: 5

The Epilepsy Association of Central Florida is a prime example of what you would hope to find with all nonprofits, they understand and are committed to their core objective of supporting Floridians living with epilepsy and advocating for epilepsy patients in both the community and public policy arenas. The organization is very fortunate to have a top notch Executive Director who capably juggles the many hats he is asked to wear! One where I have the opportunity to collaborate with him is in the public policy arena advocating for patient access to care related issues. Chuck is always the first to lean in and provide leadership and focus to what can be a chaotic process working with the Florida legislature. We admire and appreciate his passion and commitment to the Association!

Professional with expertise in this field

Rating: 5

Long running charity with a significant community outreach(sports arenas, e.g. Solar Bears hockey at the Amway Center, cooperating with other groups, e.g BSA) who has stood the test of time and continues to thrive

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Professional with expertise in this field

Rating: 5

Outstanding service to an underserved, needy population in Central Florida. Have a long history of helping the community

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Professional with expertise in this field

Rating: 5

When you are working with children with epilepsy, it is heart breaking. It is at times overwhelming for the parents and the children. The Epilepsy Association of Central Florida has always been the number one resource for these families. With support groups, fun events galore, walks and medical help, it is a God send! Thanks to Chuck and all the staff for being there - always!
Kay ARNP

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Professional with expertise in this field

Rating: 5

This organization is truly dedicated to epilepsy patients and their families. Over the years, they have helped with medications, office visits, EEG's and blood tests. Their fund raisers are outstanding and the proceeds go directly to assisting these patients. Thanks for all your dedication!!

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Professional with expertise in this field

Rating: 5

I have worked with numerous nonprofit organizations and Executive Director, Chuck Carmen, does a phenomenal job. He is extremely caring and dedicated to providing the much needed services to the community. This organization is top notch and wish nothing but the best for them.

Client Served

Rating: 5

I think everyone needs to know how terrific Epilepsy Association of Central Florida is. I have been working with them for almost 3 years now, and the people there are just terrific. Their executive Director, Chuck Carmen is amazing and will do anything in his power to help find a cure for Epilepsy. I have been working directly with Chuck, and he has helped us help people with Epilepsy. Chuck found my company, QR LifeSupport, a few years ago, when we had just launched, and all he thought was how great would we be to help people with Epilepsy give them peace of mind and a better quality of life. Chuck and everyone at EACF, always put the Epilepsy community first with everything they do, and it shows. I am thankful that I not only work with EACF on a daily basis, but I have learned lot just from working with them. I support them 100% with everything they do, and wish them the best everyday that they find a cure for Epilepsy.

Donor

Rating: 5

I could only imagine what could be done by most nonprofits if they were fortunate enough to be run by someone as skilled as Chuck Carmen. After 15 years of personal experience with this organization it still amazes me how to see how caring and dedicated Chuck is to provided much needed services to the Central Florida community.

Professional with expertise in this field

Rating: 5

The EACF is a first-rate organization. Following the skilled leadership of it's executive director, Chuck Carmen, EACF is a light of hope to epilepsy patients all over Central Florida. More than that, it's innovative website, www.EpilepsyU.com is a valuable resource to other Epilepsy Associations and epilepsy patients across the United States, providing information, education, and assistance at the touch of a button. As the father of an epilepsy patient, and as an epilepsy service provider, I have seen with my own eyes the care and compassion that resides within all who work for and with the Epilepsy Association of Central Florida.

Advisor

Rating: 5

I have had the good fortune of working with the team from Epilepsy Association of Central Florida for more than two years, and can't say enough good things about them! They are a group of caring, kind, and compassionate people, who are focused on doing well AND doing good to help improve the lives of those who suffer from Epilepsy. With strong leadership, staff, board, volunteers, donors, supporters, and numerous other stakeholders, this organization has accomplished so much, not the least of which is creating their online marketplace, EpilepsyStore.com, to sell unique merchandise branded with a proprietary "purple "e" ribbon" that helps raise epilepsy awareness and supports the mission of Epilepsy Association of Central Florida. Hats off to this AMAZING organization!

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Advisor

Rating: 5

The Epilepsy Association of Central Florida is an amazing organization that truly makes its mission the focal point of everything it does. I have had the good fortune of getting to know the leadership, board, staff, and volunteers from this nonprofit, and all of them have been passionate about doing whatever they can to help improve the quality of life for people who suffer from epilepsy. I have been most impressed with the "can do" culture of this organization that leverages its smart thinking and sound planning to take quick action that makes a difference in the lives of others. I have worked with many nonprofit organizations throughout Florida over the course of many years, and I can honestly say that Epilepsy Association of Central Florida is one of my favorites!

Professional with expertise in this field

Rating: 5

The Epilepsy Association of Central Florida is consistently providing the highest quality of service for the Community. They are innovative, creative, and understand the needs of people with epilepsy and the families and caregivers that serve them. Their Leadership Team is outstanding and they are not afraid to take calculated risk. The organization goes above and beyond for those they serve. They have a local, regional, national, and international presence.

1 Amy_266

Volunteer

Rating: 5

I volunteer for this organization doing EEGs for them. I do this because it allows optimal treatment for patients who would not receive this care. It helps to decrease hospital visits. It also helps to lead more productive lives for the clients because they can receive the proper medical care for Epilepsy.

ENovak

Client Served

Rating: 5

The EACF has been so much more than just a place to gain knowledge about Epilepsy. They are caring, compassionate, really listen and work towards getting answers and easing fears. They make a very scary time, a little easier to handle. As a parent of a little one with Epilepsy, they have brought us so much knowledge, comfort and help over the years, they are really one of the family. I feel we would still be lost if it were not for the wonderful staff at the EACF.

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1

Donor

Rating: 5

EACF has been a wonderful support structure for myself and my family as our son has gone through his Epilpesy journey. They have given support and advise and calmed us in our hardest moments. I have seen the work they do with other families and it is amazing the difference that they make. We proudly support this organization adn promote their excellence everywhere we go.

Donor

Rating: 5

The Epilepsy Association of Central Florida is a leading voice at the State Capitol for persons with epilepsy, their families, and their caregivers.