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2018 Top-Rated Nonprofit

Epilepsy Association of Central Florida Inc

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Nonprofit Overview

Causes: Epilepsy, Health

Mission: "Dedicated to improving the quality of life for persons affected by epilepsy."

Results: We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics: Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year: EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served: With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs: Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

Community Stories

88 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

The Epilepsy Assoc dedication to our children and adults with seizures is outstanding! They help with medications, EEG‘s, MRI and lab work, and with the emotional aspects of a chronic illness as well!

Previous Stories

Professional with expertise in this field

Rating: 5

When you are working with children with epilepsy, it is heart breaking. It is at times overwhelming for the parents and the children. The Epilepsy Association of Central Florida has always been the number one resource for these families. With support groups, fun events galore, walks and medical help, it is a God send! Thanks to Chuck and all the staff for being there - always!
Kay ARNP

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Nicole Freda H.

Client Served

Rating: 5

Great organization, they came to my daughters school after she had a seizure at school and gave an educational talk about seizure safety. Thank you!!

Surumya B.

Volunteer

Rating: 5

EACF sponsors social support group Teen Epilepsy Orlando and has been supportive of this group from the start. Given TEO is a very one-of-a-kind group that you can’t find many places, all of us that benefit from TEO are very grateful for their support.

Professional with expertise in this field

Rating: 5

Working with children who have epilepsy is heartbreaking. Life is hard and you never know when a seizure will occur. The help they get from the Epilepsy Association of Central Florida is so valuable. They feel normal again, feel that someone cares and feel that they can go on in life. The association is the best!
Thanks!!

Mandi V. M.

Volunteer

Rating: 5

They do trendemous work, on and off the field when it comes to the cause and solution of Epilepsy and how we as the community can be aware of the disorder and help those who needed especially those who have been diagnosed newly. As someone who has been living with epilepsy for twenty fours, I must say they never see to amaze me. All colleagues are amazing ! even their events

Nichole B.

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida is a great resource for families that have a new diagnosis in the Central Florida area.

Board Member

Rating: 5

My nine year old son suffers seizures as a result of his severe neurodegenerative disorder. The Epilepsy Association has been a great resource for education, contacts, and information. The website is great and easy to navigate.

Professional with expertise in this field

Rating: 5

The association has been instrumental in helping our children with their epilepsy needs with EEG's. medications, fund raising, talking to the schools and support groups. their web site is excellent with educational seminars, information for parents and children and a wonderful epilepsy store to "shop".
Thanks Chuck and your great team!!

Michelle D.

Volunteer

Rating: 5

I've been a volunteer with the organization and have known Chuck from EACF for over 10 years. He works tirelessly to make sure that patients receive the care they need. He has a true mission of helping others. Thanks, Chuck.

Previous Stories

Volunteer

Rating: 5

The EACF organization is such a wonderful place to volunteer. Their team is dedicated to the mission of EACF and thoughful of the patients they serve. I've enjoyed volunteering on the Golf Tournament for the last 8 years. Even though we have a job to do, we always have fun. But the real joy comes from knowing how many families we helped. I'm grateful that EACF is there to serve the community. Without them, I can't imagine where these families would receive the assistance they need. But I've also learned that is not just the doctor visits or the medicine that the patients must take, it's also the support the staff provides to the patients and their families that make a difference. Chuck Carmen has done a great job of matching talent with resources. His team is AWESOME!

Marie H.1

Client Served

Rating: 5

This is such a Great organization they have helped me with my daughter when I needed information on Dr and treatments. I know that I can always count on them to be there for anything that we need.

Rebecca L.2

Donor

Rating: 5

The best non profit organization in Central Florida...loved attending the Solar Bears game this year...will continue to support...

Rebecca D.1

Board Member

Rating: 5

It's foundations like these that connect families and patients in need. The need for education and need for treatment. So very proud to be a part.

buzzette

Professional with expertise in this field

Rating: 5

A devastating diagnosis of epilepsy can tear at the fiber of a family and create challenges more than difficult to manage. Finding support is one of those challenges. The Epilepsy Association of Central Florida takes the lead in supporting persons with epilepsy and their families in the state. They are the go-to organization in Florida and we are proud to work with them.

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1

Professional with expertise in this field

Rating: 5

The Epilepsy Association of Central Florida is there every day for persons with epilepsy and their families. They, and the wonderful work they do, are so greatly appreciated!

Client Served

Rating: 5

EACF is always finding ways to do activities for those with epilepsy,as well as their families. They offer many resources and are willing to help in ANY way they can.Also make dreams come true. while they did not arrange this personal meeting(The superstar chose my son on his own),my son got to meet former World champion of the WWE and IMPACT WRESTLING talent ALBERTO EL PATRON(DEL RIO),because of a special event they did have for epilepsy children.My daughter,as well. Not many organizations make sure families are involved.

Writer

Professional with expertise in this field

Rating: 5

The EACF is a wonderful, and necessary program in the central Florida area. Please keep up the wonderful job you all do!!!

Previous Stories

General Member of the Public

Rating: 5

EACF has helped patients all over Florida receive access to epilepsy treatment & evaluation by local Neurologists, there is no other group doing as much for the epilepsy population as the EACF!!!

Tanzi Webb T.

Client Served

Rating: 5

Wow...the Epilepsy Association ofCentral Florida is truly a gift for many. They have aided me in several ways. Definitely a gift for our area!

Board Member

Rating: 5

Always happy to serve this excellent organization as a board member!

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Board Member

Rating: 5

I am a board member for the Epilepsy Association of Central Florida and also have a family member with epilepsy. The association does a tremendous job at connecting those afflicted with epilepsy with resources and information they might not have access to otherwise. Some of the best resources are Epilepsy U, case management services, and the association's connections with some of the best neurologists around; all of which benefit clients. The Epilepsy Association of Central Florida also provides clients with a support system. This support is critical for what is still a highly stigmatized condition. Ultimately the support and resources provided make for a very special organization that I am honored to be a part of.

1 Saundra

Volunteer

Rating: 5

The Epilepsy Association of Central Florida has been an exemplary organization for over 50 years. It has serviced clients and supported families, disbursed information and always been above reproach. The organization has had only two executive directors, the founder, Merle Evanchyck now has a scholarship named in her honor for students who have been impacted by epilepsy. Chuck Carmen, the present executive director is as dedicated as Ms. Evanchyck was and carries on. The needs have expanded and the support is challenging but the dedication is strong and the Epilepsy Association of Central Florida continues the good work. Epilepsy U is a reliable source on the web for all who need information. Sincerely, Saundra Gray


Previous Stories
1

Board Member

Rating: 5

The Epilepsy Association of Central Florida has been helping families impacted by epilepsy for over 50 years. The association has only had two executive directors, founder Merle Evanchyck and current director, Charles (Chuck) Carmen. The dedication of the directors and the loyalty of board members and supporters, demonstrates the confidence people have in the Epilepsy Association of Central Florida. The mission has gone world wide through Epilepsy U, an online information source available to anyone needing information. This organization addresses needs at the source, the patients and families that need help and support. Saundra Gray

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Professional with expertise in this field

Rating: 5

EACF is a wonderful agency with hands on help for children and adults with epilepsy. They provide support with medications, appointments, EEG's as well as support groups and counseling. They provide education to the schools and organizations interested in learning more about seizure disorders. They raise money to help the children and have activities free for the kids. They have a scholarship fund for the kids and a foundation for special needs. Great people!!!

Professional with expertise in this field

Rating: 5

I've known of this non-profit for a few years now and also the people who work there. I've seen them in action and am very impressed with their skill set and interpersonal skills. I support the epilepsy association of Central Florida.