Over 1.8 million nonprofits and charities for donors, volunteers and funders

2019 Top-Rated Nonprofit

Epilepsy Association of Central Florida Inc

5,236 pageviews

Nonprofit Overview

Causes: Epilepsy, Health

Mission: "Dedicated to improving the quality of life for persons affected by epilepsy."

Results: We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics: Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year: EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served: With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs: Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

Community Stories

109 Stories from Volunteers, Donors & Supporters

Sharon T.4

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida, Inc. is a great asset for the community of Orlo Vista, FL. As an Association they are proactive in their community by involvement with other nonprofit groups and outreaches. Their facility is maintained in a clean and attractive manor at all times. The are great neighbors and provide a much needed service to the Central Florida area.

Volunteer

Rating: 5

I have worked with this Association for over 38 years as a volunteer and have seem them grow in services, programs, education, and outreach to community and beyond. I personally have two family members with Epilepsy … one locally and one out of state that have relied on their services. Their staff is highly knowledgeable and professional. I firmly believe that the Epilepsy Association of Central Florida is one of the leading Epilepsy associations in the United States.

Saundra

General Member of the Public

Rating: 5

It is heartening to know that for all the years that the Epilepsy Association of Central Florida has been in existence its reputation for delivering service to patients and their families, their handling of funds and their position as an upstanding non-profit agencies has been without blemish. This agency is truly one for which we can all be thankful. For fifty years the community has benefitted from the dedication and work of the Epilepsy Association of Central Florida, when you contribute to EACF be assured your money is used wisely and well.

Previous Stories
1

Volunteer

Rating: 5

The Epilepsy Association of Central Florida has been an exemplary organization for over 50 years. It has serviced clients and supported families, disbursed information and always been above reproach. The organization has had only two executive directors, the founder, Merle Evanchyck now has a scholarship named in her honor for students who have been impacted by epilepsy. Chuck Carmen, the present executive director is as dedicated as Ms. Evanchyck was and carries on. The needs have expanded and the support is challenging but the dedication is strong and the Epilepsy Association of Central Florida continues the good work. Epilepsy U is a reliable source on the web for all who need information. Sincerely, Saundra Gray


Read more
buzzette

Professional with expertise in this field

Rating: 5

We are The Anita Kaufmann Foundation (AKF), global sponsor of Purple Day for epilepsy awareness. AKF has worked with The Epilepsy Association of Central Florida for many years, collaborating with them on events and referring people with epilepsy who reach out to us for support in their back yard. In each instance we have found this outstanding organization to be dedicated, hard-working, professional and all-caring of those struggling with epilepsy and seizures. Anyone needing specialized care and support, or current information about epilepsy, should know that they are to be trusted and feel assured help is on the way. This is the quintessential epilepsy organization.

Previous Stories

Professional with expertise in this field

Rating: 5

A devastating diagnosis of epilepsy can tear at the fiber of a family and create challenges more than difficult to manage. Finding support is one of those challenges. The Epilepsy Association of Central Florida takes the lead in supporting persons with epilepsy and their families in the state. They are the go-to organization in Florida and we are proud to work with them.

Read more

Client Served

Rating: 5

Mike Sheehan and The Epilepsy Foundation was and still is a life saver! If it were not for them I would NOT have received the proper care, diagnosis and more importantly the proper medication. Also I would NEVER be able to afford the medicine which cost an outrageous cost of $40.00 per pill. I can't stress my enormous gratitude to this Foundation and Mike Sheehan who is very compassionate and helpful!

Client Served

Rating: 5

I so love Dr. Commiter and his staff ! Especially Mike always looking out for me :) Iv had seizures since age 16 and could no way pay for medication doing part time jobs . No one gives benefits and insurance to peeps like me . Mike Thank you and your saving my life . Iv had over a thousand seizures over many years . Head injury’s produced me with 8 different types . Now I’m on Depikote . Iv been told I’m getting older and this may work . I fell on my face last year to lose my front teeth :( Social Security says I’m not eligible :( Here’s what it looks like working my ass off just to make ends meet working 12 an hour many hours just to eat and live :(

Jaye Godsbabygirl L.

Client Served

Rating: 5

They have been a blessing to me I love them And what they do

Client Served

Rating: 5

mike sheehan guided me every step of the way and gave me valuable advice and free resources the whole staff is awesome so glad they were there in my time of need

Client Served

Rating: 5

The Epilepsy Association of Central FL (EACF) has been taking care of me for over 10 years. EACF provides free neurological care to epileptics (like me) who wouldn't have any at all if not for them.
Case managers are so helpful and supportive! Just one way they help patients - guiding us through patient assistance programs to help us get the medicine we need but could never afford.
My seizures are now controlled-- and I have the people at EACF to thank for that.

1

Client Served

Rating: 5

The Epilepsy Association of Central Florida have accepted me as a transfer client with open arms. Any issues I have I can call my social worker Michael and he returns my call that same day.

I am very comfortable with this Association and wouldn't transfer again for the world. I really feel loved.

1

Client Served

Rating: 5

Best place ever!!! Mike is really wonderful and caring!

1

Client Served

Rating: 5

The Epilepsy Assosciation has helped me find a medicine that works for me without side effects.

1 Kelly S.10

Client Served

Rating: 5

I'm a former client. They helped me get a doctor and helped me get my seizure medicine, when I didn't have insurance. I'm not sure where I would've gotten any help, until I was told about them. Everyone there is very friendly and helpful. I'm so grateful for them and the organization. I personally send out my thanks to Mike, Pachi, Kathy, and Dr. Comitter. They are great people!!

1

Client Served

Rating: 5

The caring staff is knowledgeable and ensures each person with epilepsy is getting the help that is needed to maintain a healthy wellbeing.

1

Client Served

Rating: 5

This is a great place, they are very helpful and knowledgeable. Mike is great!

1 Julie H.9

Client Served

Rating: 5

Incredible organization that has helped our family in ways that can not be measured.

1 Milly K.

Client Served

Rating: 5

This is a great place if you’re new to the area or if you’ve just been diagnosed with epilepsy. I had no idea what I was in for when I started having seizures last year, but everyone here made me feel so welcomed and gave me the right medication to control my illness.

1

Client Served

Rating: 5

This one of the most outstanding nonprofit organizations that I had the experience first hand. They were there for me to walk me through one the most challenging moments of my life. Pachi ,Mike and the physician extremely knowledgeable and caring. They made feel like family. Thank you all you are dynamic.

1

Board Member

Rating: 5

As a practicing Neurologist in the Orlando area for many years, I have seen first hand the incredible service the Epilepsy Association of Central Florida provides to those children and adults with epilepsy who are indigent and/or uninsured or otherwise unable to afford diagnostic evaluation and anticonvulsant medications, which can be quite expensive. These patients are oftentimes unable to drive or to acquire work due to stringent but necessary legal restrictions. the lifting of which is dependent on control of seizure activity which is in turn dependent on having appropriate medication and proper medical followup, as is provided
by the Epilepsy clinic.

1

General Member of the Public

Rating: 5

As founder and executive director of the Courtney Project inc. 501c3 have had the honor and privilege to partner with Epilepsy Association chuck carmen and ceil layfield on several of their amazingly incredible events! Without a doubt the Epilepsy Association of central Florida is high on the list of proactive life changing not for profit organizations in the country if not world!

1

Professional with expertise in this field

Rating: 5

The Best Epilepsy Service Provider in the State of Florida!

1

Professional with expertise in this field

Rating: 5

The Epilepsy Assoc dedication to our children and adults with seizures is outstanding! They help with medications, EEG‘s, MRI and lab work, and with the emotional aspects of a chronic illness as well!

Previous Stories

Professional with expertise in this field

Rating: 5

When you are working with children with epilepsy, it is heart breaking. It is at times overwhelming for the parents and the children. The Epilepsy Association of Central Florida has always been the number one resource for these families. With support groups, fun events galore, walks and medical help, it is a God send! Thanks to Chuck and all the staff for being there - always!
Kay ARNP

Read more
Nicole Freda H.

Client Served

Rating: 5

Great organization, they came to my daughters school after she had a seizure at school and gave an educational talk about seizure safety. Thank you!!

Surumya B.

Volunteer

Rating: 5

EACF sponsors social support group Teen Epilepsy Orlando and has been supportive of this group from the start. Given TEO is a very one-of-a-kind group that you can’t find many places, all of us that benefit from TEO are very grateful for their support.

Professional with expertise in this field

Rating: 5

Working with children who have epilepsy is heartbreaking. Life is hard and you never know when a seizure will occur. The help they get from the Epilepsy Association of Central Florida is so valuable. They feel normal again, feel that someone cares and feel that they can go on in life. The association is the best!
Thanks!!

Mandi V. M.

Volunteer

Rating: 5

They do trendemous work, on and off the field when it comes to the cause and solution of Epilepsy and how we as the community can be aware of the disorder and help those who needed especially those who have been diagnosed newly. As someone who has been living with epilepsy for twenty fours, I must say they never see to amaze me. All colleagues are amazing ! even their events

Nichole B.

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida is a great resource for families that have a new diagnosis in the Central Florida area.

Board Member

Rating: 5

My nine year old son suffers seizures as a result of his severe neurodegenerative disorder. The Epilepsy Association has been a great resource for education, contacts, and information. The website is great and easy to navigate.

Professional with expertise in this field

Rating: 5

The association has been instrumental in helping our children with their epilepsy needs with EEG's. medications, fund raising, talking to the schools and support groups. their web site is excellent with educational seminars, information for parents and children and a wonderful epilepsy store to "shop".
Thanks Chuck and your great team!!

Michelle D.

Volunteer

Rating: 5

I've been a volunteer with the organization and have known Chuck from EACF for over 10 years. He works tirelessly to make sure that patients receive the care they need. He has a true mission of helping others. Thanks, Chuck.

Previous Stories

Volunteer

Rating: 5

The EACF organization is such a wonderful place to volunteer. Their team is dedicated to the mission of EACF and thoughful of the patients they serve. I've enjoyed volunteering on the Golf Tournament for the last 8 years. Even though we have a job to do, we always have fun. But the real joy comes from knowing how many families we helped. I'm grateful that EACF is there to serve the community. Without them, I can't imagine where these families would receive the assistance they need. But I've also learned that is not just the doctor visits or the medicine that the patients must take, it's also the support the staff provides to the patients and their families that make a difference. Chuck Carmen has done a great job of matching talent with resources. His team is AWESOME!

Marie H.1

Client Served

Rating: 5

This is such a Great organization they have helped me with my daughter when I needed information on Dr and treatments. I know that I can always count on them to be there for anything that we need.

Rebecca L.2

Donor

Rating: 5

The best non profit organization in Central Florida...loved attending the Solar Bears game this year...will continue to support...

Rebecca D.1

Board Member

Rating: 5

It's foundations like these that connect families and patients in need. The need for education and need for treatment. So very proud to be a part.

Client Served

Rating: 5

EACF is always finding ways to do activities for those with epilepsy,as well as their families. They offer many resources and are willing to help in ANY way they can.Also make dreams come true. while they did not arrange this personal meeting(The superstar chose my son on his own),my son got to meet former World champion of the WWE and IMPACT WRESTLING talent ALBERTO EL PATRON(DEL RIO),because of a special event they did have for epilepsy children.My daughter,as well. Not many organizations make sure families are involved.

Writer

Professional with expertise in this field

Rating: 5

The EACF is a wonderful, and necessary program in the central Florida area. Please keep up the wonderful job you all do!!!

Previous Stories

General Member of the Public

Rating: 5

EACF has helped patients all over Florida receive access to epilepsy treatment & evaluation by local Neurologists, there is no other group doing as much for the epilepsy population as the EACF!!!

Tanzi Webb T.

Client Served

Rating: 5

Wow...the Epilepsy Association ofCentral Florida is truly a gift for many. They have aided me in several ways. Definitely a gift for our area!

Board Member

Rating: 5

Always happy to serve this excellent organization as a board member!

Previous Stories

Board Member

Rating: 5

I am a board member for the Epilepsy Association of Central Florida and also have a family member with epilepsy. The association does a tremendous job at connecting those afflicted with epilepsy with resources and information they might not have access to otherwise. Some of the best resources are Epilepsy U, case management services, and the association's connections with some of the best neurologists around; all of which benefit clients. The Epilepsy Association of Central Florida also provides clients with a support system. This support is critical for what is still a highly stigmatized condition. Ultimately the support and resources provided make for a very special organization that I am honored to be a part of.

Professional with expertise in this field

Rating: 5

EACF is a wonderful agency with hands on help for children and adults with epilepsy. They provide support with medications, appointments, EEG's as well as support groups and counseling. They provide education to the schools and organizations interested in learning more about seizure disorders. They raise money to help the children and have activities free for the kids. They have a scholarship fund for the kids and a foundation for special needs. Great people!!!

Professional with expertise in this field

Rating: 5

I've known of this non-profit for a few years now and also the people who work there. I've seen them in action and am very impressed with their skill set and interpersonal skills. I support the epilepsy association of Central Florida.

General Member of the Public

Rating: 5

The EACF provides excellent, much needed services to fortunate clients all across the Central Florida area. My wife and I always look forward to their Brevard County epilepsy walk each Halloween! The costumes are always the best! After getting to know several of the board members, staff, and volunteers, I can confidently confirm that EACF is a great organization, with a stellar crew!!!! Keep up the great work team!

1

Volunteer

Rating: 5

Being someone who suffers from Epilepsy. I understand the fear of not knowing what is going on with your health and not knowing how to solve these issues. Having an organization that helps support those who are suffering is truly inspirational. Whether it is raising money to help in research or just supporting diagnosed patients and their families through this uncertain time the Epilepsy Association of Central Florida Inc. stands as a pillar of strength in our community.

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida does a great job putting together events for those impacted by epilepsy. These events are an opportunity for those to meet others who share the same experiences in a fun and relaxed environment (away from doctors and nurses). The relationship we have formed with the Epilepsy Association would not be possible if it wasn't for the great people there.

Donor

Rating: 5

The Epilepsy Association of Central Florida is a prime example of what you would hope to find with all nonprofits, they understand and are committed to their core objective of supporting Floridians living with epilepsy and advocating for epilepsy patients in both the community and public policy arenas. The organization is very fortunate to have a top notch Executive Director who capably juggles the many hats he is asked to wear! One where I have the opportunity to collaborate with him is in the public policy arena advocating for patient access to care related issues. Chuck is always the first to lean in and provide leadership and focus to what can be a chaotic process working with the Florida legislature. We admire and appreciate his passion and commitment to the Association!

Professional with expertise in this field

Rating: 5

Long running charity with a significant community outreach(sports arenas, e.g. Solar Bears hockey at the Amway Center, cooperating with other groups, e.g BSA) who has stood the test of time and continues to thrive

Previous Stories

Professional with expertise in this field

Rating: 5

Outstanding service to an underserved, needy population in Central Florida. Have a long history of helping the community

Read more

Professional with expertise in this field

Rating: 5

I have worked with numerous nonprofit organizations and Executive Director, Chuck Carmen, does a phenomenal job. He is extremely caring and dedicated to providing the much needed services to the community. This organization is top notch and wish nothing but the best for them.

Client Served

Rating: 5

I think everyone needs to know how terrific Epilepsy Association of Central Florida is. I have been working with them for almost 3 years now, and the people there are just terrific. Their executive Director, Chuck Carmen is amazing and will do anything in his power to help find a cure for Epilepsy. I have been working directly with Chuck, and he has helped us help people with Epilepsy. Chuck found my company, QR LifeSupport, a few years ago, when we had just launched, and all he thought was how great would we be to help people with Epilepsy give them peace of mind and a better quality of life. Chuck and everyone at EACF, always put the Epilepsy community first with everything they do, and it shows. I am thankful that I not only work with EACF on a daily basis, but I have learned lot just from working with them. I support them 100% with everything they do, and wish them the best everyday that they find a cure for Epilepsy.

Donor

Rating: 5

I could only imagine what could be done by most nonprofits if they were fortunate enough to be run by someone as skilled as Chuck Carmen. After 15 years of personal experience with this organization it still amazes me how to see how caring and dedicated Chuck is to provided much needed services to the Central Florida community.

Professional with expertise in this field

Rating: 5

The EACF is a first-rate organization. Following the skilled leadership of it's executive director, Chuck Carmen, EACF is a light of hope to epilepsy patients all over Central Florida. More than that, it's innovative website, www.EpilepsyU.com is a valuable resource to other Epilepsy Associations and epilepsy patients across the United States, providing information, education, and assistance at the touch of a button. As the father of an epilepsy patient, and as an epilepsy service provider, I have seen with my own eyes the care and compassion that resides within all who work for and with the Epilepsy Association of Central Florida.

Advisor

Rating: 5

I have had the good fortune of working with the team from Epilepsy Association of Central Florida for more than two years, and can't say enough good things about them! They are a group of caring, kind, and compassionate people, who are focused on doing well AND doing good to help improve the lives of those who suffer from Epilepsy. With strong leadership, staff, board, volunteers, donors, supporters, and numerous other stakeholders, this organization has accomplished so much, not the least of which is creating their online marketplace, EpilepsyStore.com, to sell unique merchandise branded with a proprietary "purple "e" ribbon" that helps raise epilepsy awareness and supports the mission of Epilepsy Association of Central Florida. Hats off to this AMAZING organization!

Previous Stories

Advisor

Rating: 5

The Epilepsy Association of Central Florida is an amazing organization that truly makes its mission the focal point of everything it does. I have had the good fortune of getting to know the leadership, board, staff, and volunteers from this nonprofit, and all of them have been passionate about doing whatever they can to help improve the quality of life for people who suffer from epilepsy. I have been most impressed with the "can do" culture of this organization that leverages its smart thinking and sound planning to take quick action that makes a difference in the lives of others. I have worked with many nonprofit organizations throughout Florida over the course of many years, and I can honestly say that Epilepsy Association of Central Florida is one of my favorites!

Professional with expertise in this field

Rating: 5

The Epilepsy Association of Central Florida is consistently providing the highest quality of service for the Community. They are innovative, creative, and understand the needs of people with epilepsy and the families and caregivers that serve them. Their Leadership Team is outstanding and they are not afraid to take calculated risk. The organization goes above and beyond for those they serve. They have a local, regional, national, and international presence.

1 Amy_266

Volunteer

Rating: 5

I volunteer for this organization doing EEGs for them. I do this because it allows optimal treatment for patients who would not receive this care. It helps to decrease hospital visits. It also helps to lead more productive lives for the clients because they can receive the proper medical care for Epilepsy.

ENovak

Client Served

Rating: 5

The EACF has been so much more than just a place to gain knowledge about Epilepsy. They are caring, compassionate, really listen and work towards getting answers and easing fears. They make a very scary time, a little easier to handle. As a parent of a little one with Epilepsy, they have brought us so much knowledge, comfort and help over the years, they are really one of the family. I feel we would still be lost if it were not for the wonderful staff at the EACF.

Previous Stories
1

Donor

Rating: 5

EACF has been a wonderful support structure for myself and my family as our son has gone through his Epilpesy journey. They have given support and advise and calmed us in our hardest moments. I have seen the work they do with other families and it is amazing the difference that they make. We proudly support this organization adn promote their excellence everywhere we go.

Donor

Rating: 5

The Epilepsy Association of Central Florida is a leading voice at the State Capitol for persons with epilepsy, their families, and their caregivers.

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida has helped so many families in our community . I have personally witnessed how they have helped a family I know as they discovered their youngest boy of 9 was diagnosed with Epilepsy. It was an emotional roller coaster as they struggled to find a sense of normalcy for the older two children. They reached out to EACF and found the resources and guidance they needed to help their son and family deal with the challenges that faced them. We often don't recognize the importance of such a wonderful organization until it affects someone you know. Chuck Carmen, Executive Director, is a wonderful man with a heart of gold. His willingness to reach out and help this family was a testimony to his mission and heart for the organization!

1

Donor

Rating: 5

As a person with Epilepsy, I wanted to get involved with a cause for awhile that helps people with Epilepsy. In March, one of the bands I play in threw a fundraiser party to benefit the Epilepsy Association of Central Florida (we try to do at least one per quarter, but this is the closest to my heart). Chuck attended and while we were able to raise some awareness, a few hundred dollars, I learned that EACF is one of the oldest and largest Epilepsy Organizations in the country. They provide medical help like doctors visits and medication to those who can't afford it. They do what I want to do, which is educate and inform the public about epilepsy.

Pamela104

General Member of the Public

Rating: 5

Since our daughter was diagnosed with epilepsy we reached out to find others going through what we were. The Epilepsy Association of Central Florida welcomed us and introduced us to families with children living with epilepsy. We love participating in their fundraisers and helping spread awareness. The EACF is commited to providing services, care, assistance with medications for people living in Central Florida with Epilepsy. We consider them our family.

Cathy96

Former staff

Rating: 5

Dedicated folks here to help those who have no other means of obtaining neurological care and assistaning those with this sometimes misunderstood affliction. Assistance in obtaining extremely costly medication to controll this disorder. First and foremost in educating people and helping them have a better understanding of this illnesse.


General Member of the Public

Rating: 5

Amazing non-profit. As an executive with the Orlando Magic, I've been fortunate to partner with Chuck on many great awareness nights here at the Amway Center. A tremendous organization support a ruly great cause, whom really appreciate their dedicated volunteers.

Volunteer

Rating: 5

Chuck Carmen has taken the Epilepsy Association of Central Florida to new heights as he is a very active community figure making sure that this non-profit is on the radar! The countless stories of families that this organization has helped is growing. He is constantly doing outreach and bringing the community leaders together of business and government to know more about the Epilepsy Association of Central Florida.

Hats off to this organization and all that it does to help those struggling with Epilepsy!

Board Member

Rating: 5

The Epilepsy Association of Central Florida has been helping persons affected by epilepsy and their families for decades. It is truly an exceptional organization with great staff lead by a visionary Executive Director that has a passion for helping families in need. Hands down it is one of the best ran organizations in Central Florida .

Donor

Rating: 5

EACF is doing great work in the community - keep up the work!

Craig34

General Member of the Public

Rating: 5

This organization is dedicated to helping those in need. Please provide them with the support they need.

Professional with expertise in this field

Rating: 5

From my personal knowledge Chuck Carmen and the folks at the Epilepsy Association of Central Florida do an outstanding job in our community and have the respect of everyone that has ever had any involvement with them.

There can never be enough charitable organizations like the Epilepsy Association.

John

Aaron T.

Board Member

Rating: 5

The epilepsy association is a top-tier organization. I have served as a director for the past five years and it is a model for small and medium sized nonprofits. The executive director consistently exceeds my high expectations. The staff follow his lead and do a superb job with everything from providing services to fundraising.

Previous Stories

Board Member

Rating: 5

An excellent organization with caring employees providing necessary and unique services throughout Central Florida. Epilepsy is widespread but relatively unknown. The EACF fights the stigma and supports the sufferers of epilepsy.

Review from Guidestar