Enduring Hearts touches so many lives directly and indirectly through their programs and critical research. I have the privilege of serving in a leadership role with the organization. It is amazing to see the accomplishments over the last decade in research due to their efforts. Over 69 research projects funded with the most prestigious institutions in the USA.
As a board member of Enduring Hearts, I'm happy to share my positive perspective on this organization.
Through the commitment to pediatric heart transplant research, Enduring Hearts has shown unwavering dedication to improving the lives of children and families facing the challenges of a heart transplant.
One of the major strengths of Enduring Hearts is the relentless pursuit of groundbreaking research. Collaborating with and funding this research has ultimately contributed to improving the outcomes of young patients.
They've established themselves as a reliable partner in the medical community and provided incredible support to families.
I'm very proud to be a part of their dream goal of making a heart transplant last a lifetime.
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I'm a member of the board. I joined years ago hoping to help make a difference. Heart transplants in children now last longer, and Enduring Hearts has been part of that difference. Connecting "heart families" together, helping people make it to appointments, funding the science that helps little ones live... The entire organization is filled with amazing people doing amazing things.
Enduring Hearts is one of our top priorities for time and money. They are working to solve a problem that few are interested in tackling yet 1 in 100 children are born with heart defects. Our son was born with hypoplastic left heart syndrome and was put on the transplant list his 2nd day alive. He received a new heart at 2 months of age and then we learned the average heart transplant doesn't last a lifetime.
Enduring Hearts is inspiring hope in families who's kids have heart transplants by funding research to extend the life of a heart. There is no other organization that does this and few organizations that are as focused on a problem and steward money as well as Enduring Hearts. They are truly life changing!
Enduring Hearts is the only, and leading non-profit focused on improving the lifespan of pediatric heart transplants. The dedication to outcomes and clinical research, makes them one of the best non-profits to work for and contribute to. I am proud to be a donor and a team member of Enduring Hearts.
I am a board member for Enduring Hearts. It is a tremendous organization, focused on leading research efforts in pediatric heart transplants. Enduring Hearts is well run, authentic and truly impact driven.
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Enduring Hearts is the only, and leading non-profit focused on improving the lifespan of pediatric heart transplants. The dedication to outcomes and clinical research, along with the personal motivation of so many team members makes them one of the best non-profits to work for and contribute to.
-Josh Weiner
Enduring Hearts is the exact model of how non-profits should be formed, grow, and operate to accomplish their mission. The cause of Pediatric Heart Transplant Research is a niche need that is often overlooked...except by the patients and families impacted by heart transplants. Being around the non-profit for several years, I can tell they are destined to impact millions of lives through their efforts.
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Enduring Hearts is doing great work and continuing the fight to improve the heart transplant success rate for children. As the organization continues to grow, they will clearly become a model for how the public can rally around 1) research centers doing great work, 2) give families an avenue for information and HOPE and 3) drive real change in the healthcare community.
Enduring Hearts is an amazing nonprofit dedicated to helping children who have had a heart transplant in their family.
Their mission is to improve the quantity and quality of child's life with a gifted heart.
As a mom of a child with a gifted heart, I was relieved to find an organization I could connect with and fundraise for. They fund research to help support our children live long lives.
I love the organization so much, I joined their Board of DIrectors.
Great organization - supporting a great cause to fund pediatric heart transplant research and support families nationwide with programs to help with their basic necessities of life. I'm happy to be part of this organization and make an impact for families nationwide.
Enduring Hearts does important work and fundraising to support/fund research in the pediatric heart transplant arena. There are approx. 500 pediatric heart transplants done annually! As technology, medical advancements, and medications become better and better, more kids will be transplanted and live longer lives. EH does great work in helping fund research to drive this innovation at the very beginning phases of research. The board and staff are enhancing the organization and we expect great things in the future.
Truly, I didn't know about this amazing organization, until my life was affected by CHD. Realistically, if our son wouldn't have been born with a complex heart condition and didn't require a heart transplant, I'm not entirely sure that I would have ever known about enduring hearts. I can tell you how blessed we are to have this nonprofit organization, without them, we wouldn't have hope for the future of these resilient little heart warriors. The funding for the research that they provide is a necessity for future medical advancements in this rare field of practice.
When I applied for their gas card program, I surprisingly found much more than that. I found a genuinely loving, compassionate, caring, strong, encouraging community that our family is so blessed to be a part of. They are located on the other side of the country compared to us and despite time zone differences, they have managed to have time for US. In this world today, I feel that it is hard to meet personable individuals and this organization is filled with them. Thanks for staying original, we love all of you ❤️!
Low admin rate. High value. Great people. Enduring Hearts is lean, focused and driven
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I’ve supported Enduring Hearts both with time and financially since 2014, and consider every minute and penny well spent in the pursuit of a solution for transplant rejection.
Enduring Hearts stands alone in its commitment to raise and dedicate research dollars to pediatric specific transplant challenges. This organization is imperative to secure a long and worry free future for kids living with heart transplants and their families.
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Enduring Hearts is constantly striving to advance the important mission to help kids live longer with their transplant hearts. In the last 6 years, this organization has evolved into a thought leader and change agent in the field of transplant longevity. Their focused efforts to find and fund research has made a significant change in post transplant outcomes for kids living with the plethora of challenges associated with a heart transplant and pediatric cardiac disease/CHD. They will always keep fighting to make transplant the cure.
Enduring Hearts is the only organizations that focuses research funds on pediatric heart issues. Please donate at Enduringhearts.org to ensure children with heart transplants can live a natural long life.
Great People on a great cause! Each member I've met truly believes in the importance of the cause and is moved to making a transplant last a lifetime!
EH’s focus is on creating long lasting change in making a transplant last a lifetime and has made tremendous improvements in this space over its existence. The life of heart transplants has grown from an avg of 10yrs to ~14yrs! That means that the transplants last longer, more children are able to get a chance at life, and overall longer lifespan for each recepient.
My son had a heart transplant at 3 years old and at that time we learned the scary truth that a heart transplant is not a cure, it's a chronic and serious condition and without advancements in therapies he will one day need another transplant to survive. Enduring Hearts is the only nonprofit dedicated to funding innovative, life-saving pediatric heart transplant research. This nonprofit gives us hope and courage to believe that our son can have a long, healthy, quality life living with a transplanted heart. Thank you Enduring Hearts for your committment and advocacy, for advancing science in the field of pediatric heart transplants, and for your support for transplant families.
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As the mother of a child who has had a heart transplant, I am so grateful to Enduring Hearts and their mission. My son's transplant saved his life and we are forever grateful, but the journey post transplant is filled with so many struggles and challenges for a child --- from the frequent doctor visits and labwork and procedures to manage his transplant to the complications of anti-rejection medications that protect his heart but suppress his immune system and make him vulnerable to so many illnesses and even cancer. The promising research that Enduring Hearts funds, that only Enduring Hearts is focused on, will change the lives and outcomes of children like our son for the better. Enduring Hearts gives us hope for a better future for our son.
Enduring Hearts is devoted to the children and families it serves. With a powerful mission to afford children impacted by congenital heart disease whom receive one of life's most precious gifts, organ donation, Enduring Hearts has made it their mission to invest in continued research that directly impacts their lives. There is no other non profit for pediatric heart transplantation like Enduring Hearts. I am honored to be a part of such a life changing organization.
As most children have healthy hearts, the special needs of the hundreds of children each year whose heart fails requiring a heart transplant are not widely appreciated. Enduring Hearts represents these kids and their families to ensure that they will live a full life. Enduring Hearts is solely dedicated to finding solutions to the threats these kids and their families face. There are two strengths of Enduring Hearts. The first is that the fund raising is driven by dedicated families of kids with a heart transplant. The second strength comes from selecting research that is highly focused by the expertise of its volunteer medical team. They guide the funding of research dollars to the life threatening problems of the very kids they care for each day. This partnership between families and health care providers has proven to be both efficient and highly effective in solving problems for the kids with this special need. I have seen this partnership in action and can assure all that many more of these special kids will be our next adult leaders in caring for future children whose lives will depend on receiving a heart transplantation.
Enduring Hearts has been an incredible steward of our donations. They are consistently finding great opportunities to invest and create solutions for such a big problem that is making sure kids with heart transplants live a long and happy life. We find a lot of joy in seeing children who have heart transplants experience the same great life as any other child.
Enduring Hearts is a wonderful organization! My son is a two-time heart transplant patient and is autistic, which means lots of trips to his doctors 2 hours away. The gas cards that Enduring Hearts has generously provided helps so much!!! As a large, one income family, those cards are definitely a “lifeline!”
Enduring Hearts has been wonderful in reaching out to our family after my 16 year old son received his heart transplant. They are actively working beghind the scenes by supporting research to help these transplant patients live longer and healthier lives AFTER they have received the transplant.
Organizational leadership deeply cares about the cause and provides many helpful tools for patient wellbeing, education and advocacy!
Enduring Hearts is a fantastic organization! They truly support our patients and families and have been an invaluable resource for advancing pediatric heart transplant research.
Finally a nonprofit seeking to further knowledge on pediatric heart transplants and assisting families with transplanted member! These guys sent us a gas card to help us get to my daughter's many appointments.
I love the work Enduring Hearts does because it actually generates research that solves problems. Many organizations have supported my family in difficult times to make life for my son brighter and more bearable (which is wonderful!), but Enduring Hearts is the one that gives me hope - hope that my son's heart transplant can last longer and that, through research, fewer kids will need transplants in the first place. My family is counting on a medical breakthrough in pediatric heart transplant and no one is working harder than Enduring Hearts to make one happen!
Enduring Hearts means the world to my family. As a mother of a child who has had a heart transplant, this amazing group of people, make me feel like we will never face this alone. Thank you for all you do!
More research helps give these transplant kids a fighting chance at a long life. Euduring hearts is leading this research. I support their efforts 100%
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Enduring Hearts is the only national nonprofit in the pediatric heart transplant space solely dedicated to funding research that helps kids with heart transplants live longer, healthier lives. Heart transplants are not a cure, but rather a bridge to life, and statistics show this to be true. One in four kids requires a new heart during the first five years. Then heart transplants on the average only last 12 years, so the need is urgent. I've had the incredible fortune of not only assisting and attending with multiple community events, but meeting several of the extraordinary pediatric heart transplant recipients directly connected to the urgent work of Enduring Hearts. What has stood out the most is their positive outlooks and tireless desire to make the most of life and live ordinary lives. It is through conversations with these patients that you see how Enduring Hearts is advancing the aforementioned research in a game-changing fashion, while also supporting heart families in their respective journeys by providing gas cards and road to recovery tote bag programs. The organization's footprint at medical institutions and children's hospitals continues to expand throughout North America at an impressive pace.Their leadership team, from the Founder/Treasurer to the Executive Director to the President Board of Directors are some of the smartest, creative, and most passionate and connected people I've ever met in the nonprofit sector, and their future is incredibly bright. This is without question a nonprofit to watch closely in the coming years. For more information and learn about some of the most inspiring stories you'll ever hear about pediatric heart transplant recipients, please visit enduringhearts.org
Enduring Hearts actively seeks out the most cutting edge research and is proactive in providing funding for research that will advance the field of pediatric heart failure and transplantation. They are creating opportunities for research that wouldn't otherwise exist.
Enduring Hearts is laser focused on transforming pediatric heart transplantation from a second chance at life to a second chance at a long life. The charity has clearly stated research priorities that it directly funds or seeks partners, other charities, that agree to align with these priorities. It's funding decisions are akin to Silicon Valley's , embracing innovative reach accepting risk. As a semi-retired Pediatric Cardiologist, I am serving the mission of Enduring Hearts in helping to identify research that would have the highest impact to our kids within 5 years.
The folks at Enduring Hearts are focused on their mission first and foremost. It's a challenging cross section of incredibly complex medical quandaries mixed with our most basic instinct, to protect and care for our children. They inspire me with the depth vision of how to influence medical research as well as their empathy of what a child and their family experience throughout the heart transplant journey.
Enduring hearts’ mission, to increase the longevity of transplant patients life & quality of life, stems from a families personal experience with pediatric heart transplant. They know the reality of the daily stress of managing & preventing rejection. They support other families who they can relate to & families who lost the battle against rejection. The money they raise is funding new & innovative research that is making a difference today. Enduring Hearts has HEART and they strive to support what is in the best interest of pediatric heart transplant patients and families. They work in honor of our daughter who lost her battle to rejection but puts a face & reality to the critically of their mission.
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Enduring Hearts is an amazing organization. The non-profit was started by a transplant family with the desire to improve the outcomes and longevity of pediatric heart transplant patients. They are now focused on eliminating rejection by funding critical research that will lead to significantly better approaches to managing preventing rejection or the need for additional transplants. The entire team at Enduring Hearts have huge hearts. They empathize with every family who faces the challenges and loss that comes with heart transplant. I trust that the money we donate is being used to find the best ways to support families.
We love this non profit! We love the gas program and that every penny goes to life saving heart transplant research.
Enduring Hearts is a crucially important organization to furthering knowledge and outcomes for pediatric heart transplant recipients like my daughter. Before Enduring Hearts embarked on this mission, there was no focused research funding related to expanding knowledge around the various challenges facing "heart kids" in the months and years post-transplant. I am thankful for Enduring Hearts, and support their mission wholeheartedly.
I, like most people, did not know that when a child receives a heart transplant it is not a lifetime cure. As a parent myself, it is hard to fathom the worry, stress, and anguish that parents of a child who needs a heart transplant endure leading up to the child's first heart transplant. To think that the child, and the parents, will most likely need to go through that experience again is unimaginable.
Enduring Hearts is the leading nonprofit dedicated to funding research to increase the longevity of pediatric heart transplants, improve the quality of life for kids with heart transplants, and eradicating pediatric heart diseases that may lead to a heart transplant. Enduring Hearts is doing critical work in this space and I am proud to support this very important cause.
As parents to a 12 year old son with a 3 year old heart transplant, we are depending on the much needed research to give him the opportunity to a long, happy, healthy life. Enduring Hearts is working hard, and including the families affected in their fight for this research. They stay in constant contact with us, using our input, and raising the awareness and much needed funds to battle such an enormous monster we call rejection.
This is a highly focused, extremely well managed non-profit benefiting pediatric heart transplant recipients. Their mission is to fund research that improves quality of life for transplant recipients. This organization rally’s around a wonderful, important cause; a child’s well-being. My experience working with Enduring Hearts has been extraordinary and they really are dedicated to their mission. I highly recommend this organization!
Enduring Hearts is a facilitator of vital research for children with end-stage heart failure that need a transplant for a chance of survival.
I was told that Enduring Hearts is the only organization solely dedicated to funding pediatric heart transplant research to help save lives of children who are struggling today.
There are various ways (e.g. donation from private donors, corporations; auctioning bourbon, organizing road race etc..) Enduring Heart raise money for this noble cause. Major portion of the funds raised go to universities/hospitals for funding R&D in the areas of transplanted pediatric heart rejection and its prevention.
I, personally, know two of the Enduring Heart’s executives, and I also know how dedicated they are and how hard they work for the cause of EH. I spoke to them many times about their dreams and progress towards the goal that resulted in pediatric heart transplant leading to a better life for children.
We knew very little about CHDs until our granddaughter was diagnosed with HLHS before her birth in 2008. Information and hope were scarce at that time. We are so grateful to Enduring Hearts for the research funding, the support to families, and the information they provide about pediatric heart transplants and rejection. We wholeheartedly support their efforts to improve long term survival rates for these patients. It’s personal for our family. Thank you so much,
Claudia and Jim Funkhouser
I attended their Bourbon Gala last year and it was incredible the amount of money that was raised for pediatric heart transplant research. The great work we are doing is incredible!!!
#makingadifference
We love Enduring Hearts - we have been involved from its early days in 2014-2015 timeframe and have watched the scope and impact of this organization grow so much in just a few short years. We were at the inaugural Bourbon Gala fundraiser in 2016 when it was still a small party and we were blown away at how much that event has grown and the impact it is making on raising funds for research. All through the growth of this charity, the board and leadership have kept true to their original mission to help save the lives of kids living with heart transplants. We're very impressed by Enduring Hearts.
Enduring Hearts is an exceptional organization which has been making great strides to advance the knowledge and science related to pediatric heart transplant longevity and outcomes.
Began working with this non profit recently and was so excited to hear about the innovative research that they are funding to save lives. They have an advisory team of scientific researchers that select cutting edge research so they can increase transplant longevity. Passionate group of volunteers who are dedicated to helping children live long happy lives!
Helps kids that have had the misfortune of needing a heart transplant to be able to live normal lives. Two thumbs up!
Amazing non-profit that carries minimal overhead and each dollar donated equals to more than a dollar going to the mission given unique, strategic partnerships and methodology in their approach!They always have engaging events that are fun and a great place to make new friends.
Medical technology has reached the point where the extraordinary is considered commonplace. For that reason most people don't realize that a heart transplant is not a cure. Eventually each recipient will require another transplant. Enduring Hearts is dedicated to funding heart transplant research with a view toward prolonging the time in which a second transplant is required or, ultimately, eliminating the need altogether. I've watched a young, sick child wait in the hospital for a donor heart. I know that through the efforts of Enduring Hearts there's a chance that another transplant won't be necessary.
It's not often that you find a charity where 100% of your donation goes to the cause, but Enduring Hearts is one! The modest staff is made up of volunteers, and they have almost no overhead, so they are able to ensure that every dollar I donate will go toward research to help heart transplants last longer for pediatric patients like sweet Mya, the inspiration for the charity. Enduring Hearts is an amazing organization with a small volunteer staff doing very big things!
There are times when people you meet touch your lives. Some of them touch your hearts. "Enduring Hearts" has touched OUR hearts.
They have a sincere passion for their mission that affects all with whom they interact. We have had the pleasure of attending a variety of events and fundraisers with their members, and they are outstanding. Focused and committed, they complete one event, and immediately move to their next endeavor, with the sole purpose of continuing the research that drives them forward.
One particular fundraising race was not only supported by runners who participated in the rain, which says a lot, but was also attended by quite a few children, who were included in passing out individual prizes to the top finishers. Everyone loved it. To involve children like that in the event ... most impressive!
It is our honor to know members of the Enduring Hearts organization, to donate to their cause, and see the results of their efforts in sweet children like Maya, who thrive from this wonderful non profit's love and dedication!
Well-organized, well-respected, and well-loved - that is "Enduring Hearts!"
My son is a single ventricle patient at Sibley. We pray he never needs a heart transplant, but are glad there are organizations that are researching how to help the transplant patients get more "life" from one donor. And....how awesome is it to see your son's cardiologist at a 5k!
We've had an opportunity to get to know the Enduring Hearts team and are impressed with their commitment to "stronger hearts, longer lives". Patrick and Madelyn's story about their little girl Mya's fight for her life is inspiring. Mya waited nearly six months to receive a heart transplant and is doing well. But, Patrick and Madelyn realized that life for a transplant recipient and the family will have many more anxious days ahead...
The gift of an organ transplant is so precious, but only recently did we become aware of the journey that follows. Every transplant recipient and their families must prepare for the strong possibility of having to undergo more than one transplant in a lifetime. Then, there are the countless medications and the fear of organ rejection that always looms.
Science is making strides and Enduring Hearts is committed to funding research initiatives exploring new, innovative techniques that can increase the lifespan of a donated organ and can improve the quality of life for a transplant recipient.
We love Enduring Hearts and are humbled to play a role in raising awareness about what their foundation is doing to make a difference.
Enduring Hearts is a charity whose mission will help sustain the efficiency and longevity of organ transplants. The research the charity backs will help open many doors for the medical community to help transplant recipients keep their organs longer. This will save lives and improve the quality of life of these patients. Can't think of a better way to give them a fighting chance!
I have participated in a 5k sponsored by Enduring Hearts. This is a great nonprofit organization with great people involved. Their mission is a well! They are funding research that extends the life of pediatric heart transplants and improves the lives of transplant recipients. I have my Enduring Hearts magnet on my car to help spread the word of this great nonprofit organization!
I worked with this nonprofit through one of their 5K runs by helping with their photography. I was delighted to learn more about their organization and what it is bringing to the world of transplants. Their heart and determination will draw you in. They have a personal stake in this adventure and their determination to make a difference will make you want to join forces with them to benefit the cause.
Endurin hearts is a fantastic organization that helps fund research to prolong the longjevity of heart and other organs transplant.
As a participant in one of the Enduring Hearts events, I was impressed by how well organized and well run the event was. There was attention to every detail, and it was evident that extensive planning went into the planning and execution of the event. Every interaction I have had with this organization has been top notch, with hard working, dedicated and well-informed support the entire way.
I have participated in several events that were sponsored by the nonprofit Enduring Hearts. The staff and volunteers were welcoming and professional throughout the event. I have been skeptical about certain nonprofits in the past. Enduring Hearts stands by their purpose to increase the longevity of organ transplants and improve the quality of life for transplant recipients. They have awarded several operating grants to established members of academic staff at universities, transplant centers and research institutes for research projects in organ transplantation. 100% of the money raised goes to funding this vital research. Take a moment to review the website for more information. It is informative and eye-opening. https://enduringhearts.org/
Great organization with a powerful mission. They are going to make the lives of our children better and advance the medical community with their passion.
Enduring Hearts is growing as a nonprofit, both in outreach to potential donors and helping the transplant community. Staff and volunteers have a lot of really exciting connections in the works, and they will continue to do great things! It's an exciting time to be connected to Enduring Hearts. Enduring Hearts strives to have every dollar make a difference, and the future is bright!
This organization is really doing something truly wonderful and unlike a lot of charitable organizations out there, Enduring Hearts puts every dollar donated towards their mission. The entire Scientific Advisory Committee of Doctors, the entire Board of Directors, and the entire day to day operating staff are 100% volunteer, so Enduring Hearts is not wasting money on Overhead salaries, etc.
Their mission is great too! They are funding research that extends the life of pediatric heart transplants and improves the lives of transplant recipients.