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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health

Mission: EDS Wellness, Inc. is a non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), other connective tissue diseases, and related comorbidities, through print and digital media resources and materials, seminars, webinars, conferences, health coaching, and patient advocacy, EDS Wellness provides education on various movement, nutrition, and mind-body therapies by collaborating with healthcare practitioners and like-minded organizations, to improve the quality of life and overall well-being of individuals living with chronic, complex, and multi-systemic illnesses. EDS Wellness collaborates with like-minded organizations and healthcare practitioners on various projects to provide information & resources for patients, caregivers, and the medical professionals who care for them. EDS Wellness focuses on helping patients live well, while living with a chronic medical condition(s).

Results: EDS Wellness is working on various projects and initiatives. A few of our big initiatives are listed below; however, a few smaller ones are: - EDS Integrative Healing Brochure - HelpLine that has three options - email, scheduled phone call appointment, and weekly open phone line hours. - EDS Educational Videos for the specialists within our community - Physician Learning Lunch and additional professional learning opportunities - Wellness Coaching & Patient Advocacy - Travel help for those traveling to Maryland 1. Integrative Health and Wellness conferences & retreats, such as Wellapalooza, are one of EDS Wellness' main initiatives. Integrative Wellness conferences blend the best of modern medicine with integrative therapies for those suffering with chronic illnesses. Wellapalooza - The coolest health & wellness conferences (& retreats!) ever! www.wellapalooza.com 2. Moving Naturally with Hypermobility - Seminars focused on natural movement, physical therapy, and restorative exercise for those with all types hypermobility syndromes, and the healthcare providers who care for them. Move More. Move Better. Moving Naturally with Hypermobility seminars are offered both locally and virtually through live broadcasts, podcasts and webinars. www.movingnaturallywithhypermobility.com 3. Just 5 Minutes - Motivation for life, and mission to heal, restore and empower the human spirit - one yoga mat at a time. #Just5Minutes at a time. Just 5 Minutes is probably the hallmark initiative and served as the foundation to grow EDS Wellness, Inc. Growing and expanding on the Just 5 Minutes mission and brand is one of main goals for EDS Wellness this year. The plan is to begin with live "Just 5 Minutes" broadcasts via Periscope. We will also record Just 5 Minutes video clips to uplaod to both You Tube and to strengthflexibilityhealtheds.com, while we build the Just 5 Minutes website. Most importantly, we are looking for the perfect yoga mat company to partner with - a company who also believes in the mission of Just 5 Minutes. By the end of the year, we hope to have special yoga mats that say "Just 5 Minutes." These yoga mats will be gifted to the people within the community(ies) that we serve through various classes, courses, conferences, retreats, and more. We will also sell these yoga mats through the EDS Wellness and Wellapalooa "swag" shop. www.just5minutes.co 4. EDS Ride for a Cause – Charity events on bikes or on indoor spinning bikes, benefitting non-profit organizations who serve those with various types of hypermobility syndromes, such as Ehlers-Danlos syndrome (I.e. - EDS Wellness!). EDS Ride for a Cause is a trademark of EDS Wellness, Inc. Information on how to set-up your own EDS Ride for a Cause is available to individuals, support groups, other charities and non-profit organizations, or companies, who would like to put together their own cycling fundraiser benefitting an EDS non-profit or support group.

Target demographics: Patients, caregivers, and the medical professionals who care for patients living with a chronic medical condition(s).

Geographic areas served: Globally

Programs: Print and digital media resources and educational materials, seminars, webinars, conferences, health coaching, and patient advocacy. Our programs and initiatives focus on Integrative movement, nutrition, and mind-body therapies by collaborating with healthcare practitioners and like-minded organizations, to improve the quality of life and overall well-being of individuals living with chronic, complex, and multi-systemic illnesses.

Community Stories

8 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 5

This is an amazing organization to help patients with chronic pain. They look at the person as a whole. The organization, under the guidance of Kendra, has a philosophy of not letting the medical condition define the person. The Wellaplooza (now in its third year) is truly wonderful experience for anyone, not just patients. The 3 days were about treating the mind and body all together. The speakers and hands on demonstrations were excellent. EDS Wellness brings a wonderful mix of medical science and holistic approach to treating not just the medical aspects of chronic pain but the body as a whole.

Melanie58

Donor

Rating: 5

Kendra started this foundation to help others with EDS and spread awareness. She puts her whole heart into every event, book, or project she is involved in. She is so knowledgeable on the subject and has made it her life's work to educate others.

Client Served

Rating: 5

Kendra, the founder of EDS Wellness is not only very knowledgable about EDS and related conditions but more of an alround talent that supports you in health, mental and personal issues. She lives her philosophy of an integrative treatment every day and is a role Model for everyone, sick or non sick people.

1

Professional with expertise in this field

Rating: 5

EDSwellness provides useful information on the condition, signs/symptoms, how to live with EDS and multiple other resources to help people navigate in the pool of information on the web. The web-site provides useful resources not only for people suffering from EDS, but also for caregivers, family members and anyone who is looking for additional information on the condition and its management. To make it even more useful, it's an interactive web-site with information on conferences, retreats for patients and providers and other events to join. Great resource for EDS community!

1 Brianna G.

Board Member

Rating: 5

EDS Wellness is an amazing organization! They have been very supportive of my Illness to wellness Journey for years, constantly suggesting new tools, therapy's, research etc to aid in continually becoming the strongest version of yourself. They are an outstanding resource for any newly diagnosed family to help navigate through the challenges of managing EDS bring about for families! I am grateful to be a new board member for this organization after all they have done to help me on my journey.

1

General Member of the Public

Rating: 5

Incredible service to the EDS community. Always up to date information and great events!

1

Client Served

Rating: 5

All 3 of My children suffer from EDS. As a parent its great to have such a fantastic resource with accurate information. Kendra and her team focus on every day activities and exercises that help with pain, fatigue, joint stability; even diet.

I cant thank you enough for the positive impact your organization has had on my family. Please keep up the fantastic and much needed work. I look forward to your next article.

1

Donor

Rating: 5

Knowledge, expertise, kindness.... when looking for help, frustration can lead to hopelessness. Thankfully, EDS Wellness is a resource that can make a difference. One person at a time.