As both a medical professional studying fascia and as someone living with EDS hypermobility, EDS Wellness has worked very hard to put together many, many resources and information to help everyone gain a better understanding of how EDS affects the body and how to figure out what might help someone cope. As there is such a variety of symptoms and many levels of severity, assembling correct information on EDS is no simple task. Thank you for providing resources to help me better understand what my, body is going through, as well as information that I can share with my EDS patients and their families.
EDS Wellness goes above and beyond to help the community they serve. Despite being a younger organization, EDS Wellness consistently hold events, share important & relevant posts, interact with community members, and provide resources or referrals for additional help when needed. EDS Wellness' focus is on helping patients live well now, empowering self-efficacy & fostering self-efficacy - critical for learning how to function and thrive when living with hypermobility disorders, including EDS, and related conditions.
EDS Wellness is an extraordinary nonprofit. Not only is awareness and the latest research information spread via EDS Wellness, but Kendra and the speakers really seem to understand the multiple issues that those suffering with EDS are dealing with. The webinars are outstanding, interactive, and cover a wide variety of pertinent topics. Membership is really worth it because you get access to so much information and help.
Kendra11 05/22/2019
Thank you kieram for your review and words of support for the work EDS Wellness does!
My daughter has been suffering from POTS and hEDS for 10 years. Although we contacted and visited many doctors and tried a variety of therapies over the years, no one knew how to help my daughter. It doesn't even come close to say how frustrated I was. Fortunately, I met Kendra at her booth with information on EDS Wellness; this moment was a turning point where we found help and hope! I cannot write enough about how Kendra and EDS Wellness has transformed my life, my daughter's life, and the lives of so many others. EDS Wellness is about treating the whole person. In addition to maintaining a website that encompasses so much pertinent information as well as numerous links for help, Kendra has run several amazing conferences (like Wellapalooza) for both doctors and patients. Since there is such a variety of medical issues that patients need to deal with, these conferences focus on mind and body wellness, integrative medicine, and various approaches to deal with chronic pain and other issues. This is an exceptional organization that I highly recommend to everyone!
This is an amazing organization to help patients with chronic pain. They look at the person as a whole. The organization, under the guidance of Kendra, has a philosophy of not letting the medical condition define the person. The Wellaplooza (now in its third year) is truly wonderful experience for anyone, not just patients. The 3 days were about treating the mind and body all together. The speakers and hands on demonstrations were excellent. EDS Wellness brings a wonderful mix of medical science and holistic approach to treating not just the medical aspects of chronic pain but the body as a whole.
Kendra started this foundation to help others with EDS and spread awareness. She puts her whole heart into every event, book, or project she is involved in. She is so knowledgeable on the subject and has made it her life's work to educate others.
Kendra, the founder of EDS Wellness is not only very knowledgable about EDS and related conditions but more of an alround talent that supports you in health, mental and personal issues. She lives her philosophy of an integrative treatment every day and is a role Model for everyone, sick or non sick people.
Kendra11 05/22/2019
Thank you, Karina, for your kind words and review!
EDSwellness provides useful information on the condition, signs/symptoms, how to live with EDS and multiple other resources to help people navigate in the pool of information on the web. The web-site provides useful resources not only for people suffering from EDS, but also for caregivers, family members and anyone who is looking for additional information on the condition and its management. To make it even more useful, it's an interactive web-site with information on conferences, retreats for patients and providers and other events to join. Great resource for EDS community!
EDS Wellness is an amazing organization! They have been very supportive of my Illness to wellness Journey for years, constantly suggesting new tools, therapy's, research etc to aid in continually becoming the strongest version of yourself. They are an outstanding resource for any newly diagnosed family to help navigate through the challenges of managing EDS bring about for families! I am grateful to be a new board member for this organization after all they have done to help me on my journey.
All 3 of My children suffer from EDS. As a parent its great to have such a fantastic resource with accurate information. Kendra and her team focus on every day activities and exercises that help with pain, fatigue, joint stability; even diet.
I cant thank you enough for the positive impact your organization has had on my family. Please keep up the fantastic and much needed work. I look forward to your next article.