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Dupuytren Research Group

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Nonprofit Overview

Causes: Health

Mission: Our goal is to do the type of research needed to develop a cure for Dupuytren disease and related conditions.

Results: The International Dupuytren Data Bank launched in 2015. The IDDB is designed to develop a biomarker blood test panel for Dupuytren disease and related conditions. A Dupuytren biomarker is crucial to be able to develop and test treatments to prevent disease progression and recurrence after corrective procedures. The IDDB currently has over 3000 enrollees. The Dupuytren Topography Project, a study of over 2000 Dupuytren patients to document the natural history of Dupuytren to develop a predictive model to guide treatment recommendations. The Dupuytren Library, the largest existing collection of full-text academic Dupuytren publications. The Dupuytren library has over 5000 Dupuytren-related publications. The Sixty Second Survey project. In this program, short focused-topic research surveys are conducted online to document patient concerns and experiences and close the gap between physician perception and the lived experience of Dupuytren disease.

Target demographics: Families affected by Dupuytren disease and related conditions

Direct beneficiaries per year: People all over the world suffering from Dupuytren and related diseases

Geographic areas served: South Florida and the entire world

Programs: International Dupuytren Data Bank: Research to develop a Dupuytren blood test, the missing link to a Dupuytren cure. Dupuytrens.TV: educational videos for patients and physicians Distribute educational brochures to hand surgeons, hand therapists and their patients. Organize international symposia on Dupuytren disease.

Community Stories

6 Stories from Volunteers, Donors & Supporters

1

Volunteer

Rating: 5

The British Dupuytren's Society has worked with the Dupuytren Research Group since 2011, we share literature and help each other with queries. The Dupuytren Research Group has been very good to work with, and I hope we will continue working together toward a cure for Dupuytren's as long as necessary!

1

Client Served

Rating: 5

The Dupuytren Research Group's mission is to find a cure for Dupuytren Disease as rapidly and efficiently as possible. They are the only organization on the planet focused entirely on a Dupuytren cure. I was diagnosed with Dupuytrens in September 2018 and if not for the wealth of information I received from this wonderful organization, I would still be in pain and in a "wait and see" mode, as that is what two physicians had told me, in other words, DO NOTHING until something major happens to your fingers. I took matters in my own hand ( pun IS intended,) did my own research, found doctors knowledegable with this disease and the treatment for it, all thanks to the Dupuytren Research Group. I just did a fundraiser for them in the month of May - to Donate your Birthday - and I raised $ 585 AND raised awareness of this little known, yet common crippling hand disease.

1 Stuart C.1

Client Served

Rating: 5

The Dupuytren Research Group has been a wonderful source of information and hope as I deal with Dupuytrens. Although there is no cure yet, the DRG is working towards a blood test that will help in the pursuit of finding a cure. The information on their site about all the current treatment options has been helpful. Specifically, the info on possible supplements that might help like magnesium and curcumin.

2 Karen Brink B.

Donor

Rating: 5

This is a disease more prevalent than most people know. We need all the help that can be had to find a cure or at least more improved treatments. This a needed group that deserves support

1

General Member of the Public

Rating: 5

Such a helpful group! Dupuytren is a debilitating hand disease, and Dr. Eaton is trying to find a cure! Please support this wonderful nonprofit!

2

Donor

Rating: 5

Excellent research group, Dr Eaton is the best, and is trying to find a cure for Dupuytren
Lets help him!