The Dragon Masters Foundation is a dynamic dedicated foundation tackling a critical need for cancer research, harnessing Big Data. They work tirelessly with experts, raising funds and awareness.
I found Dragon Master Foundation now Initiative through my participation in Run Disney. I have run all my races with them since 2020. They do a great job of making it a team event and all the money we raise is going to a good cause.
This organization was born out of personal experience with a family member suffering from pediatric brain cancer, and loving concern for others who are going through the same experience. Cancer is an insideous disease. It is complex with significant variations even for people with the same underlying cancers. Dragon Master has focused on using shared big data to help researchers take advantage of larger data sets which in turn help reveal underlying trends that would otherwise escape detection in small studies. The organization is passionate in their desire to work towards cures. The board is comprised of dedicated volunteers who do not draw a salary of any form from the organization.
Dragon Master not only helped us tremendously when my 4 year old son, Neev was fighting for his life due to a terminal upon diagnosis brain tumor, DIPG.
The team at Dragon Master helped get us access to big data, provided contacts that help with processing of his Genomic information into translation clinical information that helped our Dr. Sabine Mueller with treatment decisions.
Additionally, Dragon Master Foundation help us financially when we had to travel for a clinical trial across the country.
Dragon Master Foundation is so unique that in the last 10 years has advocated successful for more omics data in pediatric cancers and in fact, we saw that effort in fruitation in our son Neev's journey.
Thank you Dragon Master
This small but mighty group creates a huge impact in the world of cancer research. Amanda (the president) is incredibly knowledgeable and has a huge heart, and DMF serves as an impactful bridge and advocate for revolutionizing the way that data is shared and utilized, especially as it relates to the unique conditions of childhood cancer.
My dad died of grade 4 Glioblastoma. The same thing that killed Ted Kennedy and John McCain. It’s the same cancer that killed Amanda Haddock’s beloved son David. Prior to Amanda’s starting Dragon Master Foundation there was no help for families to look online for free of what to do if you hear those horrible words “your child has cancer”. Now, thanks to Dragon Master Foundation everyone has access to online help. What a blessing in this life
I am running Dopey as a charity runner for Dragon Master. Their cause is near and dear to me as I recently lost my niece to brain cancer. Every member that I’ve had contact with at Dragon Master has been amazing. They are friendly, encouraging and have made supporting their cause an easy and rewarding thing to do.
Stellar nonprofit with a strong focus on the mission of curing cancer. This local organization facilitates connection and collaboration with research and resources across the US. I’m a mom of a childhood cancer survivor and a donor with this organization.
I have never met an organization that is more concerned with making a difference and realizing it is not about them! They are looking for cures not credit and I find that heroic!
I became apart of the “brain cancer club” and was blessed to have met Amanda in the process! I love that she has taken something so devastating, the loss of her son David, and focused with all her heart on helping others on this journey. Having information available from many different sources is priceless. Prayerfully will one day lead to a cure! Thank you Amanda!
We never needed this organization's monetary help but we were directed to fill out an application if we were ever in need of any help. Amanda has helped us with emotional support and with advice several times and we have really appreciated it.
The Dragon Master Foundation has really helped out my family. When my daughter was diagnosed with brain cancer and our whole world was thrown upside down, Amanda, talked us through what we needed to do, who to see, who could help, etc… not sure what we would have done without this amazing foundation. They have also helped with some of our added expenses since we all know that medical issues can be expensive. I highly recommend (and actually have recommended) them to others who have to face this terrifying journey. Thank you so much! -the Newman’s
Dragon Master Foundation is doing unique work in the area of pediatric brain cancer research that is going to benefit all areas of medical research.
I have had the privilege of volunteering for Dragon Master for 3+ years at various events. Their focus on sharing vital research data is incredibly important and will impact future generations. I have enjoyed volunteering for Dragon Master as they have always been welcoming and highly appreciative of people's time and effort.
The Dragon Master Foundation is doing work that is not only meaningful to individual patients and their families but is also shaping the greater research community. It's an honor to get to participate in this work as a volunteer and know I am having an impact!
The idea of open data bases and shared information across all hospitals, doctors, and healthcare professionals can only increase knowledge and decrease the time to figure out proper treatments, and eventually cures, for all types of cancer. That's what Dragon Master is working towards.
My husband died of brain cancer 8 years ago. If this type of data access was available back then, I wonder if there would have been other treatments options that could have been offered? That's why I support Dragon Master.
Two years ago I decided to run in Disney’s First Order Challenge. I also wanted to raise money for one of then official charities. After review, I selected the Dragon Master Foundation. I chose them because of their innovative approach to data sharing to find a cure for pediatric brain cancer research. What they have been able to do with the data base, partner with top researchers and their drive for awareness for this disease is second to none! This organization is the real deal! I was able to meet the founder Amanda Haddock and her husband and they shared how it all started, how their personal tragedy inspired them to champion this organization! You won’t find two nicer people. And working with Shereen has been a joy!
Dragonmasters is a very hard working foundation & should get more recondition for the great work they do
The Dragon Master Foundation is an amazing group of people that truly care about the people they are working to help cure.
Everyone is dedicated to putting an end to Pediatric Brain Cancer. Amanda and Richard work no-stop. I belive exciting things are coming.
Dragon Master was one of the first foundations I became aware of when my son was going through treatment. Their approach to fighting pediatric cancer by enabling the sharing of information among researchers is absolutely crucial and unique in the industry. If we want to make progress in curing this disease, we need dragon master to be successful.
Amanda is a fierce advocate for Childhood Cancer! Dragon Master Foundation works tirelessly to promote collaborative data sharing for quicker cures of Childhood Cancer.
Amanda and Richard are transforming the world of kids brain tumor data management to find more effective, targeted and less toxic solutions through tirelessly working to encourage global collaboration between brain tumor researchers via the development and implementation of the CAVATICA data management program.
Dragon Master Foundation is one of the blue ribbon choices for everyone who is interested in solving the mysteries of pediatric and adult brain tumors.
Please support them as best you can either through a monetary contribution and/or sharing the news of their work with friends, family and co-workers.
I may be a little biased because I am one of the founders, but I know first hand the dedication that this volunteer organization has for people with cancer. The driving force for us is to find cures that are kinder and more effective than anything available today - especially for patients with rare cancers like brain cancer. Through innovation and collaboration, we believe a cure is possible in our lifetime.
Because of the Dragon Master Foundation, I am much more aware of dragons. My son was named after David who this foundation was started in honor of. I am sure David would be a role model for my son so one way to honor him is to like dragons. My son loves dragon books and has several dragon shirts. In a small way, by liking dragons I feel like I am supporting Dragon Master Foundation.
While I am a "General Member of the Public" I am also a mom who lost her 8 year old son to brain cancer. I am so thankful that this organization is taking the lead in bringing together such important information to help push research forward. It makes so much sense to do this so that time is not wasted on duplicating results. Time is of the essence... the more time it takes to find cures, the more lives that will be lost. Thank you Dragon Master Foundation for your incredible insight and determination.
The Dragon Master Foundation is one of the smartest ideas I have ever heard of and when the president of the Foundation informed me of the database, I was amazed at how perhaps looking at cancer in a different way would be an answer to our prayers. I volunteered with the Foundation at Curefest in 2013, and since then, the Foundation has grown and will continue to grow until it is one of the top cancer research facilities in America.
I have had the pleasure of meeting the President of Dragon Master Foundation, Amanda Haddock, personally. Her desire and vision for using Big Data to find a cancer cure is obvious. She has taken the personal heartbreak of losing a child to pediatric brain cancer, and turned it into a mission to save other children. Not only children, but in the grand scheme of things, save the lives of thousands living with cancer. I lost my husband to brain cancer, and during his battle to save his life, "Big Data" never was mentioned. Dragon Master Foundation is thinking above and beyond the confines of a box. Brain cancer was discovered in 1873 and now, in 2014, Amanda and her Foundation are beginning to make advances that are 141 years in the making. With people like Amanda and her Foundation in the corner for cancer, I don't see it taking another 141 years before there is a cure for brain cancer. Cure one, possibly cure all. Imagine a world where ALL cancer can be cured. It would be a wonderful thing. Thank you Amanda, and Dragon Master Foundation for all your tireless efforts to make this happen.
Dragon Master Foundation (DMF) is an excellent non profit. The founder tragically lost her young son to brain cancer. She and everyone at DMF share a passion for the mission of finding a cure for brain cancer in its many forms as well more effective treatments. DMF's approach to this mission is innovative and intelligent.
I have had the pleasure of communicating with Amanda about the foundation and keeping up with their endeavors. What a great organization. They above board, and making great great strides to knock out brain Tumors, making progress in an area which has remained stagnant for decades.
I lost my young daughter to brain cancer earlier this year. I now know how important collaborate research and databases are. This is a life or death situation. Dragon Master Foundation is getting the scientists the tools that they need to build the databases to cure these relentless diseases. I can think of nothing more important to the research community
I have had the pleasure of speaking with the President of Dragon Master Foundation (Amanda Haddock) at great length. I am so impressed and inspired by their big thinking, to undertake a genomic/clinical database project so huge that most would shy away. They have a vision for using Big Data to conquer cancer and other diseases, starting with pediatric brain tumors--and area for which advances have been lacking. They have the expertise and know-how to integrate medicine and technology. Therapeutic advances in cancer have been achieved by genomic database projects like this, but those projects have been limited in scope and time. Dragon Master Foundation is thinking bigger and broader and longer term. I believe in Dragon Master Foundation and their vision--that they can do exactly what they are setting out to do. Amanda and the Foundation are motivated by the desire to make a difference for other people, and from that motivation (and their unique technology expertise) good things will come.
After losing my son to brain cancer I was determined to carry on his legacy and seek out ways to help others. When I met other members of The Dragon Master Foundation I realized that theirs was truly an altruistic focus and determination to not only expand the treatment options for pediatric brain cancer but to cure pediatric brain cancer. By using innovative and modern techniques available due to the vast technology of our generation we can develop an open secure database that can truly change the face of cancer. As a new board member I was extremely excited to learn of the various hospitals and researchers that share our aspiration and want to be a part of this exciting leap into the future; a future in which we can cure cancer
What this group is doing is so important! With all the research that is being done across the nation and across the world, it is about time someone had the drive and insight to create a centralized database for all these researchers to share and compare their work. I am so proud and truly humbled to know that my amazing sister and her equally remarkable husband have identified this Herculean task and have chosen to tackle it head-on!
I have had the honor of working with the Dragon Master Foundation as a volunteer photographer for fund raising events. I also volunteer what I can to help with the funding as well since I believe that the at the core of the technologies that the Dragon Master Foundation is pioneering has the very real possibility of changing the very face of cancer research and human genetic research in general. I am not sure what else to put here since everyone one I have worked with at the Dragon Master Foundation are great people and are all fighting for the future with what could be accomplished.
I did not have a lot of free time on my hands, so when I was asked to become a founding board member of the Dragon Master Foundation I had to do some investigating. What my research uncovered was amazing and caused me to immediately join DMF in their journey. Dragon Master Foundation is not about fancy platitudes and fun events. Rather, they are all about working to help "find a cure" for pediatric brain cancer. DMF is focused on developing the world’s largest non-profit, open access, database of children’s genomic brain tumor information. The goal is to create high quality data and work with researchers to move and collate existing data to the open-access platform, which we feel will inevitably unlock the cures for cancers. We have entered into a very exciting partnership with the Children's Hospitals of Philadelphia (CHOP), Pittsburgh, Chicago and Seattle. The plans, spirit, and beliefs of the people in DMF makes me proud to be a part of what will likely be the beginning of the end of cancer.
I've been honored to be a founding board member of the Dragon Master Foundation. So many foundations out there, all doing great work. Many are in a support role, or an awareness role for their respective causes. DMF has chosen the "find a cure" role, focusing first on pediatric brain cancer, which we feel will inevitably unlock the cures for other cancers. With a mission of using big data to cure cancer, and having under a year under our belts as a Foundation, we've recently secured our 501c3 status and entered into a partnership with the Children's Hospitals of Philadelphia, Pittsburgh, Chicago and Seattle. We all are eager to take our efforts to the next level. Get involved NOW, and you can say you were there at the beginning of the end of cancer.