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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: To develop and implement tools & technology to empower brain cancer researchers to collaborate more effectively. We are developing the world’s only non-profit, open access, database of children’s genomic brain tumor information. Our goal is to create high quality data and work with researchers to move and collate existing data to the open-access platform, thereby creating the largest and most current pediatric cancer genomic data bank in the world. We are collaborating to find a path to the cure.

Results: We have formed a collaboration with the Children's Brain Tumor Tissue Consortium, which is comprised of top pediatric hospitals in the US and around the world. Through funding and advocacy, we have helped establish Cavatica.org, an open access database of children’s genomic brain tumor information. The website opened to everyone in late 2016 for pediatric brain cancer research. The goal for 2017 is to increase researcher usage and add more complete data sets to empower their research, with a focus on patients who have DIPG and high grade gliomas.

Target demographics: cancer researchers

Direct beneficiaries per year: fund the alpha test for the Cavatica.org website that allows cancer researchers to work on open access data in the cloud.

Geographic areas served: the United States and beyond

Programs: a sustainable, ongoing database and research platform for researchers across disciplines to analyze genomic tumor information, as well as ongoing clinical data, in hopes of accelerating scientific advances for cancer and other diseases.

Community Stories

14 Stories from Volunteers, Donors & Supporters

4

Professional with expertise in this field

Rating: 5

The Dragon Masters Foundation is a dynamic dedicated foundation tackling a critical need for cancer research, harnessing Big Data. They work tirelessly with experts, raising funds and awareness.

1 Kimberley M.

General Member of the Public

Rating: 5

Because of the Dragon Master Foundation, I am much more aware of dragons. My son was named after David who this foundation was started in honor of. I am sure David would be a role model for my son so one way to honor him is to like dragons. My son loves dragon books and has several dragon shirts. In a small way, by liking dragons I feel like I am supporting Dragon Master Foundation.

2 StaceyGravina

General Member of the Public

Rating: 5

While I am a "General Member of the Public" I am also a mom who lost her 8 year old son to brain cancer. I am so thankful that this organization is taking the lead in bringing together such important information to help push research forward. It makes so much sense to do this so that time is not wasted on duplicating results. Time is of the essence... the more time it takes to find cures, the more lives that will be lost. Thank you Dragon Master Foundation for your incredible insight and determination.

2 John296

Volunteer

Rating: 5

The Dragon Master Foundation is one of the smartest ideas I have ever heard of and when the president of the Foundation informed me of the database, I was amazed at how perhaps looking at cancer in a different way would be an answer to our prayers. I volunteered with the Foundation at Curefest in 2013, and since then, the Foundation has grown and will continue to grow until it is one of the top cancer research facilities in America.

2 Kelli10

Volunteer

Rating: 5

I have had the pleasure of meeting the President of Dragon Master Foundation, Amanda Haddock, personally. Her desire and vision for using Big Data to find a cancer cure is obvious. She has taken the personal heartbreak of losing a child to pediatric brain cancer, and turned it into a mission to save other children. Not only children, but in the grand scheme of things, save the lives of thousands living with cancer. I lost my husband to brain cancer, and during his battle to save his life, "Big Data" never was mentioned. Dragon Master Foundation is thinking above and beyond the confines of a box. Brain cancer was discovered in 1873 and now, in 2014, Amanda and her Foundation are beginning to make advances that are 141 years in the making. With people like Amanda and her Foundation in the corner for cancer, I don't see it taking another 141 years before there is a cure for brain cancer. Cure one, possibly cure all. Imagine a world where ALL cancer can be cured. It would be a wonderful thing. Thank you Amanda, and Dragon Master Foundation for all your tireless efforts to make this happen.

2 Mary310

General Member of the Public

Rating: 5

Dragon Master Foundation (DMF) is an excellent non profit. The founder tragically lost her young son to brain cancer. She and everyone at DMF share a passion for the mission of finding a cure for brain cancer in its many forms as well more effective treatments. DMF's approach to this mission is innovative and intelligent.

2

Donor

Rating: 5

I have had the pleasure of communicating with Amanda about the foundation and keeping up with their endeavors. What a great organization. They above board, and making great great strides to knock out brain Tumors, making progress in an area which has remained stagnant for decades.

2 Vashni N.

General Member of the Public

Rating: 5

I lost my young daughter to brain cancer earlier this year. I now know how important collaborate research and databases are. This is a life or death situation. Dragon Master Foundation is getting the scientists the tools that they need to build the databases to cure these relentless diseases. I can think of nothing more important to the research community

2 Laurie_Orloski

Professional with expertise in this field

Rating: 5

I have had the pleasure of speaking with the President of Dragon Master Foundation (Amanda Haddock) at great length. I am so impressed and inspired by their big thinking, to undertake a genomic/clinical database project so huge that most would shy away. They have a vision for using Big Data to conquer cancer and other diseases, starting with pediatric brain tumors--and area for which advances have been lacking. They have the expertise and know-how to integrate medicine and technology. Therapeutic advances in cancer have been achieved by genomic database projects like this, but those projects have been limited in scope and time. Dragon Master Foundation is thinking bigger and broader and longer term. I believe in Dragon Master Foundation and their vision--that they can do exactly what they are setting out to do. Amanda and the Foundation are motivated by the desire to make a difference for other people, and from that motivation (and their unique technology expertise) good things will come.

4 Shawn20

Board Member

Rating: 5

After losing my son to brain cancer I was determined to carry on his legacy and seek out ways to help others. When I met other members of The Dragon Master Foundation I realized that theirs was truly an altruistic focus and determination to not only expand the treatment options for pediatric brain cancer but to cure pediatric brain cancer. By using innovative and modern techniques available due to the vast technology of our generation we can develop an open secure database that can truly change the face of cancer. As a new board member I was extremely excited to learn of the various hospitals and researchers that share our aspiration and want to be a part of this exciting leap into the future; a future in which we can cure cancer