Mission: To improve the lives of people with Down syndrome, by promoting equity, opportunities, inclusion, and by empowering them and their families in all aspects of life.
Target demographics: Individuals with Down syndrome; families, medical, educational, therapeutic and other support professionals
Direct beneficiaries per year: Over 500 individuals and families with Down syndrome across the state.
Geographic areas served: All areas within the state of Connecticut
Programs: Our Down Syndrome Literacy Education Center which is based on the unique Down syndrome learning profile; our Advocacy Avengers, a self named Self Advocate group for individuals 16 and older with Down syndrome; our First Call outreach for new and expectant parents; a siblings First Call mentor program; an IEP mentoring program; and an annual conference, seminars and other events featuring nationally known speakers on best practices in education, medicine and social issues to inform and educate the public, families and the educators.
We were shocked by our daughter’s diagnosis at birth and our Google searches only made us more scared. DSACT immediately welcomed us, made sure we were set up with Birth to Three, offered support and connected us with other families. The group has been instrumental in our journey so far! I've become a confident advocate for Hannah thanks to the resources, educational events, and advice provided by DSACT and its members.
Our Sami, now 4, was diagnosed with Down syndrome at birth. We had done no research and knew very little about Down syndrome and nothing about DS ACT and the community in Connecticut. The First Call program was helpful beyond words, the volunteer reasured us, listened, and helped us truly celebrate Sami's birth! We continue to be grateful to DS ACT for all the programs they offer to families and individuals in CT!