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Dialysis Patient Citizens Inc

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Nonprofit Overview

Causes: Health, Kidney Diseases

Mission: Dpc is a nationwide organization

Programs: Hosted capitol hill patient advocacy days; organized state advocacy trainings; produced congressional testimony; submitted regulatory comment letters; participated in congressional staff briefings; mobilized grassroots support on key issues to dialysis patients trhough letter/email/phone campaigns; provided educational newsletters; produced educational brochures; and hosted monthly educational calls.

Community Stories

1 Story from Volunteers, Donors & Supporters

Harriet P.

Volunteer

Rating: 5

Dialysis Patient Citizens, Inc. is devoted to impact quality of life issues in Washington for dialysis patients. This organization is run by dialysis patients. I became a volunteer shortly after my kidneys failed in 2010 and I was put on dialysis to live. Finding DPC and volunteering as an Ambassador was the best decision I've made. DPC is active on Capitol Hill, keeping up with the laws that are being introduced that affect the dialysis community. They are really on top of everything going and introduce issues they would like to see addressed on Capitol Hill to make sure the dialysis community gets all the benefits possible through the laws that are passed. They have been very active in 2012 with all the cuts to Medicare, the right of dialysis patients to have the right to purchase insurance to serve as primary and making Medicare secondary which would save Medicare millions of dollars. Also I was invited to go to Washington for the Fall Fly In. We visited Representatives and Senators telling our own personal stories being on dialysis and addressing the issue of anti-rejection drugs being covered for the life of the transplant. Medicare currently only covers these drugs for 36 months. Most transplant recipients cannot afford these expensive drugs and have their new kidneys reject shortly after having to stop the medicines that keep their bodies from rejecting them. It was a wonderful learning experience for me to meet the board members and personnel who work for the organization and get involved on a national level with the organization. We volunteers are busy every month contacting our state's Representatives and Senators on vital issues affecting dialysis and transplant patients. We are encouraged to keep a running relationship with them and inviting them to visit our centers to see what dialysis really is. We contact our newspapers, speak at group meetings to educate people about kidney disease and the importance of early detection. I held a Kidney Awareness Day in Charlotte NC in March 2012 during WORLD KIDNEY MONTH. Being a volunteer for this wonderful organization has given me the opportunity to stay busy doing things that I feel led to do to advocate for dialysis patients. We have a monthly newsletter and a membership drive that goes on constantly to encourage people to get involved in this important work to educate the public and be involved in the lawmaking process of this country. DPC offers opportunities for dialysis patients to work and make a difference in how we are looked at and considered in Washington DC at the highest level--the laws that protect dialysis patients.