I've worked with the Diabetes Hands Foundation since 2009. I've participated in their excellent Big Blue Test Event, participated in the TuAnalyze project and participted in 5681 discussions at TuDiabetes.org (acidrock23....). Diabetes is a unique disease in that people with diabetes are obligated to beceme their own doctors in order to treat the disease successfully. I have explored online research, both through diabetes and through fantasy baseball and I am certain that a message board, offering conversation as well as checks and balances, is the best way to find answers quickly. Diabetes Hands foundation is clearly an organization committed to being more than a message board by finding innovative and participatory methods to harness the vast amount of data accumulated by people with diabetes in informative events members are able to participate in. Please consider them strongly for your recognition. S
I have only been using the tudiabetes site for a few months now, but it is fabulous! As a diabetic for 11 years, sometimes there are frustrations that only other diabetics can understand. Having this site and their forums available to read, search, and share has made a difference in how I am able to manage my day-to-day health. The Diabetes Hands Foundation enables the help that we need, and I am grateful for them being there.
I've been a member of TuDiabetes over five years now, and it continues to be an important part of my life. We now have a chat room open 24/7, where we can have fun and talk, but if someone comes in with a problem, it can quickly turn on a dime into helping and supporting the one in need. We have regular live interviews and events (usually on Thursday afternoons) on a variety of topics, including the latest research, cooking demos, tips for dealing with the emotional side of diabetes, comedians, and medical providers. We strive for friendly, respectful interactions, and we value our wide diversity of our members from all over the world. Recently there was an orthodox Jewish member sharing how he deals with fasting to a Muslim member, recently diagnosed, who was experiencing his first Ramadan as a diabetic. We stood by with words of encouragement as a type2 member overcame his fear to take his very first insulin injection. We kept track of a type1 member, cycling the entire 1100 mile length of England, fundraising for JDRF. Just so many fascinating, helpful, friendly folks!
DHF has become the first place I go to for sound advice on diabetes, the latest news and product reviews, and a solid place for support and friendship. I'm very proud to be a volunteer there.
TuDiabetes literally saved my life, my health. The information I got on day-to-day management of T1 diabetes that's available here is priceless, and unique. Finding a place where I don't have to explain diabetes, explain the emotional ups and down, explain how tiring it can be to manage, is a gift.
I've had the privilege of watching people join the community who were in dire straits - and got the information and support they needed to gain control of their diabetes, rather than letting their diabetes control them. It's a pleasure and privilege to volunteer for an organization that provides so much for so many.
Diabetes Hands Foundation is a grassroots organization, run by diabetics, for diabetics. Their programs provide understanding and assistance to an international community with diverse needs. Their websites - TuDiabetes.org and estudiabetes.org - each have around 25,000 members, more a family than a community. It's a safe place to go to get help, give help, or just be with others who 'get' what it's like to live with diabetes 24/7/365. 25,000 people means a LOT of experience. I've learned more about diabetes from the TuDiabetes community than I have from any medical professional.
What a great organization. This is the most caring group of individuals I have ever encountered in relation to Diabetes. Upon entry volunteers greet you and direct you to the places most likely to be of interest. They let you ask questions and they care for you if you have an issue.
I find the Diabetes Hands Foundation to be an incredible resource for people with diabetes and their caregivers. It is a pleasure to be associated with the organization. For 33 years I was the only type 1 diabetic I interacted with daily. With DHF I am no longer an island facing the disease by my self. I am honored to be part of the organization.
TuDiabetes is a place where I feel normal and understood. The emotional support it provides is so vital. It's amazing to connect with other people who are walking the same path and motivates and encourages me to manage my health proactively. I've also learnt a HUGE amount about diabetes and feel far better qualified to make well-informed decisions about my health that will ensure that I have a happy future, free from diabetic complications.
TuDiabetes is the first place I've found that made me feel understood and normal as a diabetic. The empathy and camaraderie I've found is invaluable to me and encourages me daily in my management of diabetes. The collective wisdom and knowledge I've found is incredible. I'd recommend that any diabetic use it.
DHF is an excellent resource for diabetics old and new. The experience and support from the members is fantastic. The site is user friendly. The resources and links are excellent. And I just like the folks there. 5 stars for TuD :)
Encouraging, always helpful, I can rely on both staff and other community members to get dependable and accurate information.
Diabetes was a very solitary disease until I found TuDiabetes. I am a librarian who is very cautious about information on the internet. TuDiabetes.org, sponsored by the Diabetes Hands Foundation, has given me a new outlook. I am still very cautious, but TuDiabetes has served a population and personal patient needs that make a huge difference in the quality of life of the diabetic patient. I have found other T1 patients who have experienced the same misdiagnosis that I did. I have obtained information about research studies looking for patient volunteers and participated in 2012 and 2013. I found Insulin for Life, an organizaiton that accepts donations of diabetes supplies. I will be donating supplies this week. Simple problems ( ie Where do you put an insulin pump on a Mother of the Bride dress?) can be answered by experienced "pumpers" on TuDiabetes. Problem solved.
I have shared the TuDiabetes website with anyone who might be interested, such as an emergency room doctor in Alaska, a radiologist in Nebraska, a dentist and family members of other T1 patients. I have shared the Big Blue Test with a nurse educator who works in Haiti and college physical education teachers in NY. I have participated in the Big Blue Test for 2 years, read books recommended by the other TuDiabetes members, and participated in the webinars with diabetes experts. I am very encouraged to see diabetes patients on the website who have managed their blood glucose for decades. The TuBiabetes members and the staff of the Diabetes Hands Foundation have offered support in ways that my family and friends cannot. I have also made contributions to the Diabetes Hands Foundation.
I was diagnosed with T1 diabetes 16 years ago. Since then I've managed to control the situation ok but not enough for my standards. Also sometimes felt my diabetes was controlling my life and not the other way around.
This last period turned out GREAT! I've read many books and articles. Finally, while looking for some people struggling with the same condition I found this great community. Can't say how much this is helping me out!
It's like a group of soldiers preparing each day to face obstacles and difficulties, together.
Each and every person I've had the pleasure to meet was kind and open to discuss my issues.
Furthermore, I've got the possibility to give back the community and feel useful and share smiles with my Dmates!
I was diagnosed as a type 1 diabetic about 2 years ago. Found TuDiabetes and found a wealth of information in one place. The volunteers and community is top notch. Have been having much better control of type 1 since joining.
I have been a member of the TuDiabetes Website for many years. It is run by the Diabetes Hands Foundation. I have had Type 1 insulin dependent diabetes and several other chronic disorders for over 25 years. I happened upon the site and found an amazing group of people with diabetes. I learned up to date information on how to care for myself the absolute best way possible. There are so many people involved in the site of all nationalities and ages, people with type 1 and type 2, pump users, people on injections and people on pills.
The environment is fun, exciting, interesting and friendly. I am always learning new ways of caring for myself and the emotional support is really astounding. I have made lifelong friends there. People get so connected that they actually end up meeting face to face.
There are fun parts to the site too, a forum, blogs, and you get your own page, and email option. They have a design studio for decorating and personalizing your own page. There are meet ups, fundraisers and gatherings. There is a live 24 hour chat.
The best thing is that people that actually live day to day with diabetes have become experts at caring for the disease are happy to share their knowledge. I have never been more impressed with any group and to tell the truth, I have learned more about studies, insulin, dosing, diet and exercise and balancing all of these Online at this site than I have ever learned from a professional. It is an invaluable part of my life. It is a site that truly saves lives.
I've been a member of TuDiabetes (run by Diabetes Hands Foundation) since the early days. I've connected with others close to me that have diabetes, I've been able to get useful and useable advice from other members. It's had a huge positive impact in my life.
DHF organizes an annual event to emphasize the importance of exercise. I've taken part in this several times, it's a great reminder that frequent exercise isn't difficult and helps me control my blood sugars.
I am 85 years old. A Navy veteran of WW@. I was told I was a Type 2 diabetic. Not me. No man in my family ever had diabetes. I went on my merry way addicted to SWEETS in complete denial. I moved to Florida. Found a new endo. Shocked..My A1C was 9.5. Put right on insulin. Somehow I found DHF. I met people got serious got involved and got my A1C to 5.9. I am on the Care Team helping others. I say all the time THANK GOD for DHF it saved my life. I use it daily.
Being diagnosed as a type 1 diabetic is frightening. Once you are done at the doctors office or hospital you are left at home, with a ton of questions and very little answers. Sure you can search online, but interaction and support from actual people, those dealing with the same things you are, is what really helps. Thanks to the Diabetes Hands Foundation support like that exists 24/7. While there may be other resources, I have yet to find more comfort, welcome and information than I have from them.
I find their website TuDiabetes to be a place were all types of diabetics whether they have Type 1, Type2 LADA, MODY , or any other type are welcome. It's a great resource for diabetes related information or it can be a place to discuss problems and issues common to diabetics. Heck, sometimes it's a place just to vent the flustrations of living with diabetes. A place to find understanding voices. I found TuDiabetes when I became an insulin dependent Type 2 diabetic. Without this foundation I don't know how I would have managed the transition to using insulin.
Thanks so much for your kind words!! We rejoice in seeing that the work of many (staff, volunteers, board) translates into people touched by diabetes not feeling alone and learning more from their peers.
Their website, tudiabetes.org, is best resource I've found for crowdsourced wisdom/experience/commiseration regarding life with diabetes. Everything from diet to devices, and lots in between is covered here.
Diabetes Hands Foundation, through their online community TuDiabetes.org, provides a well thought out, moderated community for diabetics (and their families and caregivers) to exchange information, support, photos, stories and more. It is an online oasis for those for whom diabetes can be a challenge/burden/mystery (or all of the above). I spend more time there than any other online community (sorry facebook!)
Thanks a lot for your kind words, sisiay!
As a person living with a chronic condition, I've always looked for a way to foster a positive outlook and spread it as well. Diabetes Hands Foundation gave me the tools to do this as a volunteer and the impact in my personal life has been profound - I've been able to deepen and refocus my personal my relationship with type 1 diabetes and have been able to steer my career in a direction that aligns with my passions. The work that DHF does is crucial and relevant to everyone because almost everyone today is somehow touched by diabetes - whether it is personally living with diabetes, or seeing its impact on others and on our society. I'm proud to be able to help and grateful for everything I've learned from DHF and Big Blue Test!
I first discovered DHF when is started to look to social media as a place to connect with other people with diabetes. In addition to others with diabetes, I wanted to connect with a diabetes organizations to take advantage of their resources. There were many diabetes organizations, but dhf offered both things I was looking for - a place to meet others and an organization that offered many resources. The top brass of dhf don't sit behind a virtual desk all day; their execs and advisory board are made up of people who are in the diabetes online community every day and helping people in every way. You can talk to them one on one and they support you as an individual. Their BiG Blue Test event raises much needed money to buy supplies for people all over the world who have diabetes. IMHO they epitomize diabetes advocacy and everyone with diabetes benefits from their never ending efforts and important mission. Brad S. a person with Type 1 diabetes
Leaders and very active advocates for diabetes awareness. We participate in the Big Blue Test every year and I am inspired DAILY by what I read and learn at DHF. The strength of the diabetes community brought together by DHF is nothing short of AMAZING! Thank you for ALL that you do - I am honored to be a part of this community. Every day I read something innovative, interesting and important that I share on my personal social media connections - DHF is a vital resource!
Always at the forefront, always relevant, always timely and always effective. Whether advocating for change, raising awareness either of or for the diabetes community or striving for greater education and innovation in the treatment of diabetes, The Diabetes Hands Foundation has been a tour de force. I have had the good fortune to work with them over the past few years and I'm continually amazed at their tireless devotion to raise funds, develop lasting partnerships and make a real difference in the lives of those they truly serve.
Thanks so much for this truly beautiful review, Rob! I am Head of Communities with DHF, and so appreciate you taking time to let folks know you think we're achieving our mission to connect people with diabetes and make our community ever stronger. Thank you!
Diabetes Hands Foundation provides an invaluable service to those with diabetes, as well as their friends and families. When someone is feeling lost and alone in the sea of diabetes, Diabetes Hands Foundation is there to toss out a lifeline. Thanks to DHF, no one ever has to be alone with diabetes again.
Thanks so much for this very positive review, SStanton. I'm the Head of Communities for Diabetes Hands Foundation (which means I run the TuDiabetes and EsTuDiabetes websites) and it truly warms my heart to hear that we are successfully achieving our mission to connect people with diabetes.
I became a volunteer for the Diabetes Hands Foundation early this year and I am blown away by the amazing things that the DHF does not only for the diabetes community but also for its volunteers. They are a top notch non profit!!
Hi Katrina. I'm the Diabetes Hands Foundation Head of Communities. Thanks so much for this lovely review, and for helping us out at AADE!
This organization and its initiatives have truly changed my life. I've found the support I needed when I felt most alone as a person with diabetes, I achieved all of my health goals with the support and information I gleaned from the people I met through the organization, and I continue to offer my support to it! With their help, I've enjoyed two healthy pregnancies and made many lasting friendships. I believe in DHF's mission and am continually impressed by the way it upholds its values.
I am bothered by the activism of this site toward one fringe diet. It actively advocates ultra low-carbohydrate eating, in line with Atkins, Weston Price, Bernstein, etc. It is also, therefore, anti-American Diabetes Association. This activism extends beyond the many volunteer posts that are made - in fact some of the site administrators as well as the co-founder of this site join in the ultra low-carb, anti-ADA, activism. I would not raise my rating of this foundation until they learn that there is more than one diet that works for diabetics.
My name is Emily Coles, and I'm the Program Manager for Diabetes Hands Foundation. As such, I manage the TuDiabetes website, and oversee our volunteer administrators. Diabetes Hands Foundation is dedicated to the education, connection and empowerment of people touched by diabetes. We strive to support the members of our social networking site, TuDiabetes.org, in sharing the full range of information, experience and opinion that exists in our diverse community. Of their own volition, members have created a variety of groups specifically for people who find particular dietary guidelines, exercise regimens, treatments etc. to be helpful in their health management, and we are proud to provide members a place to connect around what works for them. While we do discourage the sharing of perspectives which are considered dangerous by the medical community--such as an opinion that people with type 1 diabetes do not need to take insulin--neither the staff of DHF nor our volunteer administrators espouse any specific diet or treatment regimen.
I am grateful for this organization for having TuDiabetes. It has helped me so much understand the many dynamics of T1 diabetes through open discussions and blogs from other diabetics. Before I joined I had 5 years of frustration and misdiagnoses from doctors. I have learner how to get a lower A1c, true side effects of Mersey and how to avoid lows while excercising. I don't feel alone anymore and I am grateful for that :)
Ten days before my 55th birthday I heard the doctor say "You have diabetes". The rest of that conversation is a blur. I hadn't been feeling well, but I never really get sick. Not even a cold. I ate well and was not over weight. How could this be? I knew next to nothing about diabetes. I needed desperately to learn what I needed to do. How do I eat? What did I have to do to bring my blood sugar down from the dangerous 436 that it was? I was overwhelmed. A trip to the CDE only frustrated me. All of this unknown was daunting. Where and how could I ever get the knowledge I needed to save my life? I knew I could not spend the kind of time it would require simply making Dr. appointments.TuDiabetes was the answer. Somehow in that early fog of uncertainty my wonderful wife came across a link. A community, a home with answers. Answers to questions I didn't even know to ask. I have spent countless hours over the last year reading and learning from the experience of other people with diabetes. The fog and the fear quickly melted away. I have a much better idea now of what to expect. And, I know I have a solid resource to lean on when I need to. A wonderful support team that spans the globe. I cringe to think where I might be today without TuDiabetes. That is no exaggeration. This is truly how I feel about DHF and TuD. They have become a critical member of my healthcare team. Knowledge is power and support is key.
Thank you for your kind words, Randy! We are honored to be able to serve you the way you describe...
I just came across this website and I have to say I am so happy to see that there are sites like this out there. My sister died at a young age due to complications of diabetes. There weren’t sites like this when she was alive. I believe it would’ve made such a difference in the quality of her life to be able to be part of a community that allowed her to comfortably be a diabetic. Now that I’ve found it I must volunteer!
Thanks so much for sharing the story about your sister (we are really sorry to hear she's no longer with us) and thanks for your thoughts about TuDiabetes! You can contact us through the Volunteer Form on the DHF web site: http://tud4.us/dl8p96
The Diabetes Hands Foundation operates an online community known as TuDiabetes which is an ever-growing community of people who are going through the same things in their day-to-day lives.
A place where someone who is Diabetic can be just that, a Diabetic, or a place where someone newly diagnosed can come to get advice on how to cope and handle with what life has thrown at them. TuDiabetes is a place to remind you that you are not alone.
I just joined a couple of weeks back, and already I'm diving into the community. I've even found myself in situations where I can't wait to see a reply, or what someone has posted next.
It's a great community for all of us that are in the same boat, and its refreshing to know that we're not in it alone. We have eachother.
When my son was first diagnosed with Type 1 diabetes at 18 months of age, I quickly found that the literature offered by my diabetes clinic addressed the larger issues of what was happening, but didn't help with day-to-day issues, particularly in a child so young. TuDiabetes gave me a place to learn the ins and outs of parenting a child -- an infant, really -- with diabetes. The community of members has really been an active partner in my son's care, and for that I'm eternally grateful.
TuDiabetes is a wonderful place to go when you just want to talk about diabetes. Whether you need information, or suggestions for a specific problem, or just someone to listen and understand what you're going through, this is the place.
I found TuDiabetes after suffering a diabetic coma, when I was really needing to talk in order to mentally process my experience. People there really understood what I was talking about, and responded thoughtfully.
I have also enjoyed the opportunity to test my own knowledge of diabetes -- people will correct you if you're wrong!
All in all, I think TuDiabetes is the best diabetes web page out there, because of its scope, large membership, and well-thought-out organization.
I have had a chance to see up close what Manny and the diabetes hands foundation does with diabetes awareness and diabetes social media advocacy and they are a top notch organization doing great works.
Review from Guidestar
The Diabetes Hands Foundation has done a fantastic job using the power of the online communities to help diabetics in need. From a donor perspective, the DHF provides a cost-effective way to reach tens of thousands of diabetics at a time. From a recipient's perspective, the online community of TuDiabetes provides an invaluable service of connecting diabetics, allowing for advice, support, and idea exchange which I believe can tangibly reduce the risk of complications for diabetics.
Review from Guidestar
The TuDiabetes Website sponsored by The Diabetes Hands Foundation is an important gathering place for diabetes sufferers to meet and greet each other while exchanging solutions to common issues with testing equipment, foods and life experiences all with good humor. This website is a source of comfort and insight that is very unique. Thank you Manny Hernandez for creating this venue.
Review from Guidestar