My daughter has bilateral retinoblastoma and this organization is wonderful!!! When she was first diagnosed they made an awful situation that much better:) thank you!
This organization has been a tremendous help for my family in the months and year following my daughters diagnosis. I'm so great full for all the support and information this organization has lent to my family.
I became involved with this charity, like many people often do, after having a personal experience. My daughter was diagnosed with eye cancer shortly after being born in 2007. We were lucky in many ways and our precious child is wonderfully healthy and happy today. Still, the nightmare of those first few weeks were awful. My wife and I were terrified. Our fears were magnified by this exceedingly rare disease. I mean, cancer in your eye? I never even heard of that before. The anonymity of the disease exasperated the terror we were subjected to because there were so few people in our medical community that knew much about it or could answer the 52,000 questions we had. Somehow, in the midst of the haze of desperation and fear we were introduced to a woman who couldn't help our daughter but certainly saved us. This non medical person survived eye cancer as a child and has since dedicated herself to helping others dealing with the trauma of such a difficult circumstance. She had more knowledge than most doctors we spoke with. She was always there to speak with us. She was our angel. That woman started this charity and subsequently asked me to join the board. I was both humbled and honored. This is a great charity for many reasons. This great group of people work hard to raise funds not only to help affected children and their families cope with the devastation of this disease but they also spend so much time bringing awareness (and earlier diagnosis) to families and medical communities around the US and around the world. Many children are alive today and many more will be saved because of the dedication, commitment and hard work being done at DECF. I am extremely proud to be affiliated with such a wonderful nonprofit organization
This charity has a global impact on improving the chances of sight and life for children affected by retinoblastoma.
They work hard and continually strive to raise funds and awareness.
They have come along huge leaps since their beginnings and now help families all over the world.
I personally know people who's support from DECF was the only thing that got them through when their child was diagnosed with retinoblastoma. Their outreach is a vital support network for families who have been thrown into the scary world of childhood cancer.
Awareness is vital in the fight to save vision and lives and without DECF, in many countries across the world, more children would lose their sight to retinoblastoma and possibly life too.
As a survivor and a parent of a child with RB, I know too well the importance of information and support. Parents receiving a diagnosis need clear easy to understand information in order to make decisions impacting their child's life. From the physical to the emotional aspects that are associated with having cancer, losing an eye, side effects of treatment...DECF helps parents through the process always keeping the child as the first priority.
DECF assists adult survivors in staying educated about potential risks for secondary cancers, managing prosthetics and more.
This organization is making a positive impact on children with eye cancer, their families and adult survivors throughout the world. I'm proud to have the opportunity to work with and support this group.
Daisy's Eye Cancer Fund had helped my patients and their families in immeasurable ways. The story behind how this organization was invisioned and how it began is heart warming and commendable. The outreach of this program is immense and it's mission statement is lived out each and every day by its committed and incredibly dedicated members. They continue to do great work both here and abroad.
Amy Leverant M.D.
Such a wonderful organization! There is not enough awareness about retinoblastoma. Knowing Daisy is out there helping as many children that they can is amazing. Getting early detection information out to new parents is one of their goals that I am 100% in support of! If only we would have known about this dreadful cancer early, maybe our little granddaughter's eye could have been saved! Kudos to DECF for all you do!
WOW! Can't say enough about this non-profit! They have helped my family through an RB diagnosis, constant questions and have often eased my own fears when my daughter was diagnosed 7 years ago (she was 8 months old). We have made many donations to this amazing group and we are looking forward to many more years working w/DECF.