Cure Sanfilippo Foundation

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Nonprofit Overview

Causes: Health, Specifically Named Diseases Research

Mission: To advocate for and fund research directed towards a cure and treatment options for patients with sanfilippo syndrome

Community Stories

13 Stories from Volunteers, Donors & Supporters

kimkimkim General Member of the Public

Rating: 5

07/05/2024



CSF is an outstanding organization filled with people who work tirelessly to advocate for all patients with Sanfilippo. They do whatever it takes to help children and families struggling with the day-to-day challenges of the disease as well as push forward new and innovative research for treatment options and a cure. 

kmc0202 General Member of the Public

Rating: 5

07/05/2024

Supporting a nonprofit foundation like CSF is easy. They are transparent, passionate, and wholly dedicated to advocating for a cure and treatments for all people with Sanfilippo Syndrome.

AndrewReynolds General Member of the Public

Rating: 5

07/05/2024

The Foundation’s passion and dedication to its community is unparalleled. From the top down, the CSF team is unmatched in their passion for the cause. Their reliability and drive make them easy to work with and continue to support.

kassidiecreynolds Volunteer

Rating: 5

07/05/2024

CSF is an outstanding organization filled with people who work tirelessly to advocate for all patients with Sanfilippo. They do whatever it takes to help children and families struggling with the day-to-day challenges of the disease as well as push forward new and innovative research for treatment options and a cure.

AnnLT General Member of the Public

Rating: 5

07/01/2024

Taking a 360-degree view, the Foundation funds extensive research into multiple avenues for a treatment/cure, as well as spearheads, supports, and funds initiatives that provide valuable, disease-specific and patient-preference information about Sanfilippo. This combination of approaches leads to better understanding of the disease, more effective treatments, and opportunities for earlier diagnosis.

Lindsey S.4 Volunteer

Rating: 5

07/01/2024

Cure Sanfilippo Foundation helps all patients diagnosed with Sanfilippo Syndrome - turning hope into action.

Previous Stories

General Member of the Public

Rating: 5

09/08/2021

Cure Sanfilippo Foundation works tirelessly to advocate for all patients diagnosed with Sanfilippo Syndrome.

TurnerShealy General Member of the Public

Rating: 5

07/01/2024

Cure Sanfilippo Foundation works tirelessly to advocate for and fund research directed towards treatment options for Sanfilippo Syndrome. Cure Sanfilippo is caring, professional, and demonstrates results, transparency, collaboration, and information-sharing.

ashaywitz Board Member

Rating: 5

06/13/2023

Cure Sanfilippo is an absolutely outstanding organization - an amazing combination of dedicated, passionate caregivers, sophisticated and thoughtful scientists, energetic and creative volunteers and workers all with a foundational desire to do whatever it takes to help children, families and caregivers struggling with this devastating disease.

vtbyers Board Member

Rating: 5

06/13/2023

The Cure Sanfilippo Foundation has dramatically improved my son's quality of life. Following his diagnosis with Sanfilippo Syndrome, CureSFF has helped us navigate this journey, providing support and knowledge. Because of their work, my son has been able to retain the full range of his therapy support services and had the opportunity to participate in a quality of life clinical trial funded by CureSFF.

sleonardi Board Member

Rating: 5

06/13/2023

CSF provides a tremendous service in the rare disease space by providing support to families whose children have been diagnosed and in raising funds to support research in a area that is overlooked by large pharmaceutical companies. The director, scientific director, and supporting employees are unmatched in their passion for the cause.

VonWong Board Member

Rating: 5

06/13/2023

Consistently blown away by the commitment and dedication of the entire team to the cause and the outsized impact they're able to have to helping save the lives of children.

shealyturner Volunteer

Rating: 5

06/01/2023

Cure Sanfilippo Foundation works tirelessly to advocate for all patients diagnosed with Sanfilippo Syndrome. Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.



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