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Congenital Adrenal Hyperplasia Research Education & Support Fdtn

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Nonprofit Overview

Causes: Health, Public Health

Mission: Cares foundation is a nonprofit organization committed to improving the lives of families and individuals affected by congenital adrenal hyperplasia (cah) through proactively advancing research for a better understanding of cah, better treatments and a cure; educating the public and healthcare professionals about all forms of cah; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as support services and resources vital to the cah community worldwide.

Programs: Family support & education provides educational materials and information for living with the daily challenges of congenital adrenal hyperplasia (cah). Our tools help those affected by cah to better care and advocate for themselves and their families. Our conferences enable our community to have direct access to the top experts in the country and provide opportunites for connecting with others.

cah awareness-educating the public and physicians about all forms of congenital adrenal hyperplasia, its symptoms, portocols, treatments, genetic frequency and the necessity of early intervention and benefits of newborn screening.

warmline support provides individuals and parents of children with cah a one-on-one source of information and support, which includes physician and resource referrals, via telephone, email and mail.

Community Stories

1 Story from Volunteers, Donors & Supporters

Donor

Rating: 5

JUNE IS CAH AWARENESS MONTH! The goal of CARES Foundation, Inc, the only non-profit dedicated solely to those with congenital adrenal hyperplasia, CAH, is to spread awareness of this rare, often life-threatening disorder of the adrenal glands. They offer support, education and support research for a cure and for better medicines, and advocate for inclusive EMS protocols.