Coastal Bringing Up Down Syndrome has helped many parents of children with Down syndrome. I personally witnessed a parent receive help and support when their child was to receive open heart surgery. The appreciation and relief on the parent's face was priceless. She said how much it meant to her family and that was one less thing they needed to worry about. Thank you to Coastal BUDS and their High Hopes Heart Fund!
Coastal BUDS has been such a great support to our family. We love the community they have formed. Great resources and I love the new High Hopes: Emerson High Heart Fund!
Coastal BUDS was there for our family during a very difficult time. My grandson had a heart defect noted on his anatomy scan midway my daughter’s pregnancy. Because of the heart defect, further testing showed the possibility of Down Syndrome. My daughter reached out to Coastal BUDS to help her and the family prepare to give her baby the best of care.
They were a strong support system for all of us, through calls, texts, encouragement , and even monetary means.
Our baby did not survive. He passed away at 7 1/2 weeks due to complications. That was December 14,2017. Even today, almost a year after his death; Coastal BUDS is still a support system for our family.
Amazing community that helps families navigate the waters. Loving, caring group of folks that strive for the most positive interactions and outcomes for the Down Syndrome community.