My son has suffered with clusterheadaches for 20 years. For a very long time we had no idea what was wrong. Until one day I was searching 'headache disorders' and he saw the picture on my screen. His response was 'THAT'S IT'. It was a picture on Clusterbuster's web page. From that moment on, we found hope. Thank you to thîs wonderful organization.

Does a fantastic job of advocacy, education, and furthering research for Cluster Headaches. Many lives have been saved through their work.

Clusterbusters.org has been a life saver for me and so many suffering with cluster headaches. After years of searching for a diagnosis, back in 2005 I finally got one. But very few resources, support groups were available EXCEPT for Clusterbusters.org! I found them and have been educated, updated, included, supported and loved by Bob Wald and hundreds of other relentlessly devoted people who truly CARE about this debilitating and sometimes lethal affliction. Clusterbusters.org isn't just a non-profit, it's a home, for all diagnosed. Without it, I would not have gotten the information and support needed to continue my battle.
With Sincerity - Jennifer Gregg Ramey

After 10 years dealing with the pharmaceutical merry go round , nothing of which worked ,my wife read an article of a group going to D.C. For headache on the hill. I was in high cycle at the time , 12-18 hits a day and knew nothing about 02.
I immediately refused , but of course she signed us up. On the 5 hr trip to D.C. , anxiety was high , I was terrified to discuss my condition with strangers.
As we walked to the hotel entrance a group of 8-10 people were outside. I walked over and was greeted with handshakes and hugs , WTF , these people don't even know us .
Little did I know then that the first people I met are the pillars of the cluster headache community , Bob Wold , Cindy Reynolds , Lee Markins and Bill Mingus .
That decision by my wife made saved my life ! After 34 years she is my rock and I love her dearly !
Clusterbusters saved my life , and is continuing to save lives and research treatments for this horrific condition.

Clusterbusters is a great advocate for cluster headaches. They fight in DC to help get better treatments for people that suffer from all types of headache conditions. They are here to help and they do help so many. They are the real deal ! Thanks Clusterbusters for all that you all do!

This organization goes above and beyond each day for the individuals suffering from Cluster Headaches. The support this organization offers is one of a kind and they have saved many lives, including my own. I cannot thank this organization enough. The conferences they hold each year are so informative. I’ve learned so much from attending from the doctors, researchers, and Bob Wold. This organization needs more recognition. I love Clusterbusters!

Clusternbusters is committed to finding an effective treatment for the worlds most painful condition. They have helped thousands of people who had no where to turn find relief. Clusterbusters is truly a life saving organization.

By the time I found Clusterbusters 5yrs ago I had ALMOST given up hope. The information and the help I received saved my life.

An amazing group of people who have worked tirelessly to help Cluster Headache sufferers. Their research, outreach, support and advocacy changed my life.

Clusterbusters is an unselfish, efficient, compact advocacy organization that goes the extra miles. This long standing, organization boldly makes an impact for everyone battling cluster headaches. Cluster headache is the most painful of headache conditions. It is a debilitating condition affecting a small portion of the population disrupting lives, creating immense disability and disproportionately leads to suicide. Treatment options are limited and often difficult to obtain secondary to lack of understanding and reimbursement issues. Clusterbusters uses its resources responsibly to support individuals with this poorly understood condition. Support is emotional, informational and via advocacy. Resources are also directed at research support seeking effective treatment options. The organization thrives with a network of dedicated volunteers making a real difference in peoples lives. Working with limited funding, Clusterbusters champions coverage for treatment and research while maintaining an informational clearinghouse and support group online. Working with government agency's and academic researchers Clusterbusters is at the forefront of understanding and researching treatment options for people managing cluster headaches. The limited resources they have are well used and responsibly disbursed with minimal overhead in the mission of serving the population afflicted by cluster headaches.

I was a refractory chronic clusterhead for over a decade. I was able to function albeit in agony several times a day. During that time I had been following the organization and participated in online community support but had not attended a conference. This organization saved my life truly giving further support that was needed along with information that helped bring me to a managed state.
For the past 3 years I have gone from 6-8 attacks daily during peak periods and 2-3 during low periods to averaging 1 bad attack per month. This wouldn’t have happened with out CB!! In addition my other headache types have been manageable. An amazing bonus!!
Their work in the community is astounding. Bringing forth not only citizen science but has opened the eyes to pharmaceutical companies the need for having treatments just for us and has done tremendous work advocating on Capitol Hill.
Our community of “sufferers” is truly blessed.

Bob Wold and Clusterbusters are tremendous advocates for Cluster Headaches (and other primary headaches). There are involved in political advocacy with Headaches on The Hill [Capitol Hill], research, and information sharing. This information includes both mainstream medical treatment, as well as alternative treatments as this is a stubborn and difficult problem. You can and should join me in support of this faithful and tireless organization that does so much good for patients like me.

Clusterbusters saved my life, gives me hope and a reason to keep fighting. The best thing to happen to me since diagnosis was getting involved with CB. Every ch patient should know of Cluster Busters!

They’ve help d me live my life again at least he most I can with Chronic Clusters

ClusterBusters is a blessing. Without the organization and it's dedicated leadership and members many sufferers, including us, probably wouldn't be around....THANK YOU!!

They are very helpful in getting information and using it to try to make the public and our federal government award of our plight. The group is well versed on how to get news out to everyone. Plus they advocate for all in chronic pain of some sort.

Misdiagnosed with migraines 30 years ago, then diagnosed correctly 25 years ago, I've relied on my neurologist (a globally recognized cluster headache specialist) for education and information. Sadly, for the past 25 years, I've been under-educated and poorly-informed. Joining Clusterbusters earlier this year and attending their recent conference have been life-changing, life-saving, transformative experiences. I've learned more in the past few months than I've learned cumulatively over the years about the condition, medications, treatment options, research studies, opportunities for advocacy; the list is boundless as is the generativity which is a cornerstone of the organization. Of particular note, is my gained awareness that there are countless others like me, ready and willing to connect, to share freely their experience and hope. Until recently, I had resigned myself to the dismal, stark reality that I'd likely forever be alone with my experience. In 30 years I'd not met another cluster headache survivor. With gratitude, I can say I have and because of Clusterbusters I'm confident I'll continue meeting others who've traversed similar trajectories, others who've experienced the abject despair, terror, hopelessness, helplessness, and wholly incapacitating pain associated with cluster headaches. Clusterbusters is a vital cluster headache community resource for survivors and supporters and interested others, a life-line onto which one can take hold of and no longer feel adrift, untethered. It has become my absolute first line resource for information I require regarding the condition and the whole of managing it. My only regret is that I didn't find it sooner because, now that I have, I can't imagine letting it go. In its absence, I'd be loathe to consider possible adverse consequences for some/many of those who've found a home in the organization and, perhaps especially for those who long to find and continue searching for a credible, singular, multi-dimensional resource available for providing them with the help they so desperately want and need.

Clusterbusters is a life changing organization and has helped many people find support, treatment, and a will to continue living.