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Children's Leukemia Foundation of Michigan

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Nonprofit Overview

Causes: Cancer, Health, Patient & Family Support

Mission: Children's Leukemia Foundation of Michigan, serving children and adults, provides information, support, financial assistance to Michigan families affected by leukemia and related disorders. CLF also funds medical research conducted exclusively at Michigan's two NCI-designated cancer centers, Barbara Ann Karmanos Cancer Institute and the University of Michigan Cancer Center. Finally, CLF provides small grants to fund professional development or special projects that enhance the practice of health professionals who provide care or treatment to people in Michigan with leukemia, lymphoma or a related diagnosis.

Results: Actively serving over 4,100 patients and families in the state of Michigan through information, emotional support and financial assistance.

Target demographics: Children or adults in the state of Michigan diagnosed with leukemia, lymphoma or any other blood related disorder

Direct beneficiaries per year: over 13,000 patients and family members directly affect by blood cancer in the state of Michigan

Geographic areas served: State of Michigan

Programs: The Social workers at Children’s Leukemia Foundation of Michigan (CLF) listen to their patients and caregivers, determining needs and providing a steady hand through tough times. CLF provides casework and information and referral services in order to guide families to the resources they need. CLF offers a Resource Room that provides print, audio, video and electronic information to help families learn more about cancer and surrounding issues. The Resource Room is available on either a walk-in or mail-out basis. All newly registered families receive Stepping Stones, a 150-page binder filled with facts, interactive exercises and referrals that empower families with the information they need to gain answers to their questions.

Community Stories

15 Stories from Volunteers, Donors & Supporters

Professional with expertise in this field

Rating: 1

The majority of the funds raised go to salaries for individuals/social workers who do not leave the office. Christmas gifts are a huge issue they like to boast that they provide however individuals that have the means to purchase gifts get the same amount that someone who doesn't have any. Also special need and emergency funds are extremely limited. Individuals who fundraiser qualify for bonuses while social workers do not get any. I also can't get a real concrete answer on how many patients they actually serve

1

Professional with expertise in this field

Rating: 5

As a social worker for the Children's Leukemia Foundation of Michigan, it is amazing to support children, adults and families faced with Leukemia, Lymphoma, and other blood related disorders. We provide financial and emotional support to all CLF patients and families.

1

Professional with expertise in this field

Rating: 5

As a social worker I know how incredibly important the work that Children's Leukemia Foundation of Michigan is doing. They provide valuable services for adults and children in need. No matter the need...big or small CLF is there to provide a helping hand through each and every situation.

1

Professional with expertise in this field

Rating: 5

I have been working in this field and this charity proves its point

1

Volunteer

Rating: 5

I am doing a school report and this charity has been amazing.

2 Teddy5

Volunteer

Rating: 5

I have been involved with Children's Leukemia Foundation of Michigan for several years and I look forward to continuing my support for an excellent organization. From my experience, CLF has a strong board of directors and it invests in the youth to one day carry the organization's torch. CLF also has a great mix of patient events so you can see the non-profit at work and the genuine gratitude of the families CLF helps.

2

Board Member

Rating: 5

CLF does an amazing job dealing with patients and their families during difficult times. They offer a tremendous amount of support and guidance. CLF is a wonderful organization!

1

General Member of the Public

Rating: 5

Have tremendously enjoyed being a part of the CLF community. Comprised of truly inspiring patient families, gracious volunteers, dedicated corporate sponsors and motivating staff, it has been a true pleasure coming together throughout the state to provide much needed services to the patients CLF serves. If you're looking to join a dedicated cause and make a true difference in the lives of others, I highly recommend joining forces with CLF.

1

Professional with expertise in this field

Rating: 5

This organization goes above and beyond for their patient families! The social workers work tirelessly and no patient is ever turned away! 82 cents of every dollar raised goes directly to the foundations mission !

2

Professional with expertise in this field

Rating: 4

I have been extremely involved in the giving community for many years and have been a follower of CLF of Michigan - through attending various fundraising events and even volunteering. I have gained tremendous insight to this statewide organization and understand the Foundation currently serves over 4,500 families statewide, which is an extraordinary accomplishment. Transparency can always be an opportunity for development with charity foundations, and I hope to see CLF take these reviews into consideration. Overall, I highly recommend attending some fundraising events and watch for this Foundation to continuously grow

Review from Guidestar

2

Donor

Rating: 5

I've given to CLF multiple times over the past few years and feel good about what this organization does to help others. The staff are committed and passionate, and it's also reassuring to know that .82 of every dollar goes right back to the patients they serve.

Review from Guidestar

1

Professional with expertise in this field

Rating: 5

This organization has been so helpful to our community. I am honored and thrilled to be a part of such a wonderful cause. A full .82 of every dollar raised is put directly into programs helping children adults afflicted by leukemia, lymphoma and other blood disorders. Through disease and treatment education, case management, emotional support and financial aid, more than 4,300 people will receive services this year alone.

Review from Guidestar

3

Donor

Rating: 1

Had a prior interest in this charity so I check in with it now and then via Guide Star to see how its doing. I note that it now has a "Guide Star Exchange Seal, demonstrating its commitment to transparency" yet its most recent 990 is dated 19 months ago (6/30/2011). Furthermore, it does not publish an annual report or have an audit on Guide Star and the needs assessment it has on its website to keep abreast with the needs of families it serves has not been updated since 2004. How is that transparency? Rather, it seems high on fundraising but low on disclosure as to how funds are used.

Review from Guidestar

Previous Stories
1

General Member of the Public

Rating: 1

I used to support this organization but have noticed that CLF no longer publishes a newsletter or annual report and hasn't updated its needs assessment since 2004. And while IRS 990's for CLF show losses in 2008 and 2009 - no surprise given the poor economy - the CEO's salary increased both years as well as in 2010 when CLF barely broke even. During that period, research contributions ceased and patient aid all but disappeared. However, fundraising activity is up and its website is pretty slick. In my estimation, this once reputable charity is now all smoke and mirrors.

Review from Guidestar

1

Donor

Rating: 1

CLF has yet to post their 990's for 2008. Calls and letters to the CFO and the Board Chairman regardging the status of the Sylvia Brown Endowment have never been responded to.