Childrens Hemiplegia And Stroke Association

Programs: Direct support to families, children, and adults with hemiplegia 1. College and vocational school scholarships to 16 young adults with a diagnosis of hemiplegia 2. Athletic scholarships to 6 athletes with a diagnosis of hemiplegia 3. National family retreat scholarships to 21 families so they could attend retreat 4. Local and regional support groups including a mom's weekend and family activities allow families to meet and share support and information 5. 280 attendees at national family retreat that allows children and families to meet and share support and information 6. Orthotic (hand and foot brace) grants to 8 children with a diagnosis of hemiplegia or pediatric stroke 7. Kandu - stuffed animal sent to 250 children for encouragement 8. Educational information and support provided to over 8000 families through online discussion groups, 1 national and 30 regional social networking groups, 10 topic specific social networking groups, and three websites

pediatric and hemiplegia awareness and education 1. Educational website and fact sheets 2. Creator and sponsor of peditric stroke awareness day and month 3. Exhibits at disability conferences and fairs 4. Support for regional awareness exhibits and awareness days 5. Awareness products, images, and videos 6. Support for national, state, county, and city pediatric stroke awareness proclamations and declarations 7. Nationally recognized source for pediatric stroke information for news and print interviews and articles

research support 1. Team with multiple investigators at medical schools and universitites to recruit participants for research studies and surveys 2. Collaborate with researcher on research study design and direction of future research