This group does a great job providing families which have a child with this chronic illness with access to the latest medical information and with an increased support system.
Awesome organization, wonderful people. Their Jambalaya Jubilee camp has been something my child has looked forward to for 14 years. The Children and Arthritis team keeps it affordable for families -- many of whom are struggling with medical bills. We appreciate all they do for us.
This organization was the best thing that happened to our family. We gained so much knowledge about Arthritis as well as making lifelong friends from all over the South that continues to serve as a support to us.
This organization has helped our family for 22 years. We started attending the retreat when my daughter was 3 years old. She is now 25 and we are able to pay it forward now. Our family still attends the retreats and speak with families just beginning the journey. When my daughter was first diagnosed, there was no internet so by attending the retreat, I was able to learn so much about arthritis from all the doctors available at the retreat. I was also able to meet other parents dealing with the same kind of the problems. My daughter was able to meet other children just like her. Some of these families we met in the beginning have become very good friends even though we are separated by 100's of miles. As a parent, I will say the best thing about the retreat is the fact that it empowered me with knowledge. I always felt so helpless because I had no control over the disease but knowledge is power! As a parent, it also gave me the feeling that I was not alone. I knew I could call other parents at any time for help or just a sounding board when I was feeling hopeless.
I know that without this retreat every year, m daughter would not be the confident young woman she is today. Because of the retreat, she knew all things were possible. She met other kids going through the same thing and they boost each other up.
Great people! My daughter looks forward to Camp Jambalaya Jubilee every year. She has this group of friends that understand treatments and medications, even though they don't get to see each other but once a year. This camp has put patients, like my daughter, in contact with others in similar circumstances and, thanks to mobile technology and social media, offer them an expanded support group beyond their family and local friends.
They are doing well in teaching people about arthritis and letting them know how different their lives(people with it) are from a normal persons everyday life and experiences. They are also doing well in treating all their guests with care and respect and also making their experience there a great one.
My family loves going to jambalaya jubilee every year. It's our 3rd year and we learn from the doctors but we learn even more from the other parents. And we have a blast while we are there. We are so thankful to have this non-profit in our lives.
Brings families together with physicians and family counselors to support them. Connecting physicians with families for an entire weekend, educating children and parents about rheumatic diseases.
Children and Arthritis does an amazing job reaching families of children with rheumatic diseases. They are informative, caring, and just awesome! My family looks forward to this retreat every year!!
Children and Arthritis is amazing non-profit! They go above and beyond to take care of the families they help, and the children they represent. They make sure families who are affected by Arthritis or any Rheumatic disease get the information and knowledge help their children in their battles. Just an amazing nonprofit group!!
The organization does a wonderful job in providing resources to families at minimal costs while still maintaining world class programming.
When I first brought my daughter to the Juvenile Arthritis Camp, I was lost and confused. This was all new and I was overwhelmed! This foundation basically took me by the hand and walked me thru it a step at a time until I could breathe. Now, I’m a pro! That year at camp changed our lives! Thank you Dr. Preslee!!!!!
Our 1st year of camp we drove 12 hours to attend because our rheumatologist highly recommended Jambalaya Jubilee (hosted by Children and Arthritis). We found our "tribe." Unfortunately due to sickness my son only got to stay one night. After the drive home, he was hospitalized. Dr & Mrs Presley kept a check on him. Families we only spent a few hours with called, text, & sent gifts from the hospital gift shop for him. We were bombarded with love & support. We're so thankful for the resources, information, & true support this organization provides! It's not a club you want to be part of, but it's one you're incredibly thankful to have in your corner!
My family has participated in Jambalaya Jubilee for a few years, which is supported by Children and Arthritis, Inc. This camp has offered us a wonderful time to bond with other families who are also dealing with similar illnesses. We also are offered the most current medical information from many doctors and therapists. My children have made wonderful lifelong friendships at the camp. We consider the families and staff our Jambalaya Jubilee family!
Jambalaya Jubilee has been a blessing for my son and I for the last 2 years! The first year ~ my son was newly diagnosed so it was very emotional for me ~ as a parent. My son was 12 so he was a bit leary... But, on the (6 hour) bus ride home ~ he was asking if we were going back the next year! We did. The camp is truly a blessing. Getting to spend time a/ others that really have a true understanding of what we're going through! The children get to spend time a/ other kids experiencing the same things. Yr parents as well. Not to mention the teachings/counseling that is given to the parents/guardians. We are SO looking for to the 2019 Jubilee!!
My child was diagnosed with systemic jra when she was 4. She started going to Jambalaya Jubilee at 4 and she is now 15. She loves to go and anticipates going every year. She is around children she can relate to. She doesn’t feel alone with her disease when she’s there. This is the most wonderful thing that Dr Presley and his wife could ever give to these children. As a parent I get a lot out of it too. I learn a lot from the other parents, doctors, and therapists that are there. My child loves it so much she wants to volunteer when she gets too old to be a camper.
Jambalaya Jubilee is an amazing weekend for families with children with arthritis! It's a time for the children to meet children who share their struggles. Parents get to share their experiences with other parents and gather an overwhelming amount of very helpful information. I thoroughly enjoy this camp and take home a lot of info every year. The staff is the greatest!
They bring doctors and specialist directly to parents while allowing children with clinic diseases to bond and form special friendships. They are a wonderful organization bringing knowledge and hope to many families.
This is the friendliest and most helpful group of people at a conference that we ever have been to! This is truly a family affair and they pour their hearts into it each and every year to help families learn, speak, gain ideas and fellowship with other families going through the same trials as them.
The children make friends and get to see that they are not alone in their journey. This alone is worth more than any other experience combined!
I highly recommend this nonprofit especially because they know that the financial struggles for these families are real and they make this conference affordable for all!
Please help them help more families because childhood is to short for these children to suffer alone.
Jambalaya Jubilee was my family's first encounter with other families and children dealing with juvenile arthritis. The support and information received has been invaluable.
Providing children with arthritis and their families a fun weekend retreat mixed with multiple professional seminars by recognized medical experts and providing continuing medical support and advice year around
Children and Arthritis Jambalaya Jubilee has helped our RARE family & our kids so much. We are forever grateful. Thank you!
They go above and beyond for their families. Their fees are minimal, they provide FREE busses for those out of state, and do their best to plan fun activities.
They help so many kids find others in similar situations. With more funding they could serve even more kids!
It was truly an amazing experience for both my child and myself! VERY informative and yet not boring!! We thoroughly enjoyed it!
Children and Arthritis helps families of children with various rheumatology diagnoses get support and information about the most recenes, and medications from experts in the field. They also provide these families a unique opportunity to gather for a weekend retreat tlies make connections and become life long friends. None of this would be available without Children and arthritis.
They make it possible for children and their families to have a weekend of education and family fun without breaking the bank!
What a wonderful organization this is! We have attended the weekend Jambalaya Jubilee camp for twelve years and it is something my child looks forward to year after year.
I was impressed with this camps ability to be very professional in relating to parents and the children who attended, the basic information of their illness from doctors, parents and the counselors who offered so much information to ease the burden to the children and parents in attendance. I left with a better understanding of what parents and their child's pain experience and family dynamics that arthritis brings to families. I was invited by my daughter to attend with my granddaughter who has arthritis. It was a weekend well spent.
This program was totally unexpected!! It was over and above my expectations! The children had a blast and as a parent, I learned so much from the panel of doctors and met so many supportive people! Thank you for a wonderful weekend!
I really liked that I was able to meet many people that I already knew from other camps and met many more new family and made new friends.
We just left our 11th Jambalaya Jubilee weekend, having first attended shortly before my child turned three years old.
Words cannot adequately express our gratefulness to the founders, staff and volunteers who make this weekend possible year after year. This is an amazing organization with people who care tremendously about families who are just starting on the journey as well as those who have been on it for years.
There are online support groups for parents who want to connect, but there is something truly unique and wonderful about connecting in person -- having the opportunity to not only connect with other families, but also to talk with doctors and therapists. The kids also connect with each other and see they are not alone with all the doctor appointments, medications and other things that come along with their diagnoses. It also provides them with a fun break from it all.
My child looks forward to this weekend all year. It is nice for a change to have something to look forward to that is associated with this illness!
The Presslys have hearts of gold for starting this weekend and for continuing it for almost 30 years. We will be forever grateful to them!
This is our second year. It is something that my daughter looks forward to every year. Can't tell you what this means to our family. God bless the volunteers!!!