Our 1st year of camp we drove 12 hours to attend because our rheumatologist highly recommended Jambalaya Jubilee (hosted by Children and Arthritis). We found our "tribe." Unfortunately due to sickness my son only got to stay one night. After the drive home, he was hospitalized. Dr & Mrs Presley kept a check on him. Families we only spent a few hours with called, text, & sent gifts from the hospital gift shop for him. We were bombarded with love & support. We're so thankful for the resources, information, & true support this organization provides! It's not a club you want to be part of, but it's one you're incredibly thankful to have in your corner!
My family has participated in Jambalaya Jubilee for a few years, which is supported by Children and Arthritis, Inc. This camp has offered us a wonderful time to bond with other families who are also dealing with similar illnesses. We also are offered the most current medical information from many doctors and therapists. My children have made wonderful lifelong friendships at the camp. We consider the families and staff our Jambalaya Jubilee family!
Jambalaya Jubilee has been a blessing for my son and I for the last 2 years! The first year ~ my son was newly diagnosed so it was very emotional for me ~ as a parent. My son was 12 so he was a bit leary... But, on the (6 hour) bus ride home ~ he was asking if we were going back the next year! We did. The camp is truly a blessing. Getting to spend time a/ others that really have a true understanding of what we're going through! The children get to spend time a/ other kids experiencing the same things. Yr parents as well. Not to mention the teachings/counseling that is given to the parents/guardians. We are SO looking for to the 2019 Jubilee!!
My child was diagnosed with systemic jra when she was 4. She started going to Jambalaya Jubilee at 4 and she is now 15. She loves to go and anticipates going every year. She is around children she can relate to. She doesn’t feel alone with her disease when she’s there. This is the most wonderful thing that Dr Presley and his wife could ever give to these children. As a parent I get a lot out of it too. I learn a lot from the other parents, doctors, and therapists that are there. My child loves it so much she wants to volunteer when she gets too old to be a camper.
Jambalaya Jubilee is an amazing weekend for families with children with arthritis! It's a time for the children to meet children who share their struggles. Parents get to share their experiences with other parents and gather an overwhelming amount of very helpful information. I thoroughly enjoy this camp and take home a lot of info every year. The staff is the greatest!
They bring doctors and specialist directly to parents while allowing children with clinic diseases to bond and form special friendships. They are a wonderful organization bringing knowledge and hope to many families.
This is the friendliest and most helpful group of people at a conference that we ever have been to! This is truly a family affair and they pour their hearts into it each and every year to help families learn, speak, gain ideas and fellowship with other families going through the same trials as them.
The children make friends and get to see that they are not alone in their journey. This alone is worth more than any other experience combined!
I highly recommend this nonprofit especially because they know that the financial struggles for these families are real and they make this conference affordable for all!
Please help them help more families because childhood is to short for these children to suffer alone.
My daughter was diagnosed with juvenile arthritis before the age of 2. This non profit was amazing with support, information. The also got us connected with other families, doctors, educational material about this disease. Children and Arthritis is amazing.
Jambalaya Jubilee was my family's first encounter with other families and children dealing with juvenile arthritis. The support and information received has been invaluable.
Providing children with arthritis and their families a fun weekend retreat mixed with multiple professional seminars by recognized medical experts and providing continuing medical support and advice year around
Children and Arthritis Jambalaya Jubilee has helped our RARE family & our kids so much. We are forever grateful. Thank you!
They go above and beyond for their families. Their fees are minimal, they provide FREE busses for those out of state, and do their best to plan fun activities.
They help so many kids find others in similar situations. With more funding they could serve even more kids!
It was truly an amazing experience for both my child and myself! VERY informative and yet not boring!! We thoroughly enjoyed it!
Children and Arthritis helps families of children with various rheumatology diagnoses get support and information about the most recenes, and medications from experts in the field. They also provide these families a unique opportunity to gather for a weekend retreat tlies make connections and become life long friends. None of this would be available without Children and arthritis.
They make it possible for children and their families to have a weekend of education and family fun without breaking the bank!
What a wonderful organization this is! We have attended the weekend Jambalaya Jubilee camp for twelve years and it is something my child looks forward to year after year.
I was impressed with this camps ability to be very professional in relating to parents and the children who attended, the basic information of their illness from doctors, parents and the counselors who offered so much information to ease the burden to the children and parents in attendance. I left with a better understanding of what parents and their child's pain experience and family dynamics that arthritis brings to families. I was invited by my daughter to attend with my granddaughter who has arthritis. It was a weekend well spent.