I was impressed with this camps ability to be very professional in relating to parents and the children who attended, the basic information of their illness from doctors, parents and the counselors who offered so much information to ease the burden to the children and parents in attendance. I left with a better understanding of what parents and their child's pain experience and family dynamics that arthritis brings to families. I was invited by my daughter to attend with my granddaughter who has arthritis. It was a weekend well spent.
Bringing experts and families together to share experiences and information is invaluable. Offering support for kids effected as well as their siblings is also helpful.
Children and Arthritis is amazing non-profit! They go above and beyond to take care of the families they help, and the children they represent. They make sure families who are affected by Arthritis or any Rheumatic disease get the information and knowledge help their children in their battles. Just an amazing nonprofit group!!
This program was totally unexpected!! It was over and above my expectations! The children had a blast and as a parent, I learned so much from the panel of doctors and met so many supportive people! Thank you for a wonderful weekend!
It's great I haven't had so much hope in a long time and they all helped as much as they could. We really appreciate it and hope to go for many years to come. Please Continue to have it. Thank you.
I really liked that I was able to meet many people that I already knew from other camps and met many more new family and made new friends.
We just left our 11th Jambalaya Jubilee weekend, having first attended shortly before my child turned three years old.
Words cannot adequately express our gratefulness to the founders, staff and volunteers who make this weekend possible year after year. This is an amazing organization with people who care tremendously about families who are just starting on the journey as well as those who have been on it for years.
There are online support groups for parents who want to connect, but there is something truly unique and wonderful about connecting in person -- having the opportunity to not only connect with other families, but also to talk with doctors and therapists. The kids also connect with each other and see they are not alone with all the doctor appointments, medications and other things that come along with their diagnoses. It also provides them with a fun break from it all.
My child looks forward to this weekend all year. It is nice for a change to have something to look forward to that is associated with this illness!
The Presslys have hearts of gold for starting this weekend and for continuing it for almost 30 years. We will be forever grateful to them!
This is our second year. It is something that my daughter looks forward to every year. Can't tell you what this means to our family. God bless the volunteers!!!
I can't think of any way that they could improve on the camp, because everything they had planned for us was well organized!!!!! And I loved getting to meet people that are going through what I'm going through!!!
Fantastic service for families that are afflicted with this disease. Great education for parents and children have a fantastic time. Only recommendation would be a separate breakout group for single parents
Jambalaya Jubilee is a great camp for my family. My 10 year old sister was diagnosed with Poly JRA in 2015. This camp is a great place for her to develop friendships with other children who understand what she is going through. It's a wonderful camp for parents to also build a strong support system with other parents who are experiencing financial and emotions burdens from their child's chronic illness. Parents are also able to get questions answered from professionals! Please help keep this camp going. We plan to attend every summer until my sister turns 18 and then we will volunteer!! #familystrong
Such an awesome and caring group of people! They help so many families know that they are not alone.
Jambalaya Jubilee has given our family a weekend with families with whom we can relate, laugh, cry, play, learn, and bond! We can't wait to return!!!
Jambalaya Jubilee is a great camp for my family. My 10 year old was diagnosed with Poly JRA in 2015. This camp is a great place for her to develop friendships with other children who understand what she is going through. It's a wonderful camp for parents to also build a strong support system with other parents who are experiencing financial and emotions burdens from their child's chronic illness. Parents are also able to get questions answered from professionals! Please help keep this camp going. We plan to attend every summer until my daughter turns 18 and then we will volunteer!! #familystrong
Fantastic opportunity to connect with other families going through similar situations. No where else can you meet with so many physicians and ask questions. Counselors always have great strategies to improve communication!
We have be truly blessed to have found this camp sponsored by children and arthritis. This our first time and with gods will it won't be our last. Thank you from the bottom of our hearts very informative and wonderful knowledgable staff and physicians. Thank you. Lillie luna
This is our third year and my daughter enjoys it every year. She wants to come back as a volunteer when she gets to old to attend as a camper! This event provides so much information, encouragement and support. We have great friends that we contact through social media and get to see each year. The kids pick up just like they never left each other and are so supportive of each other. The parents support each other. The staff provides rheumatology updates for parents, rheumatology panels, consults with volunteer doctors and family therapists. The whole atmosphere is just wonderful and we've become a very big extended family with one very specific need: a place our children can get support and encouragement and find friends who live with the same diseases they do.
I took my daughter to the Jambalaya Jubilee camp for the first time this year. At lunch time the second day, she was already making plans to attend next year's event! The doctors, family therapists, staff and volunteers all work together to make a very enjoyable retreat for children with arthritic and rheumatic conditions and their parents, siblings and extended families. They work really hard to maximize the experience on as little expense as possible, keeping the cost of attendance low. I really appreciate the vision and foresight of Dr. and Mrs. Tom Pressly in founding this charity and the outreach of the Jambalaya Jubilee retreat.
This is our first year to attend the Jambalaya Jubilee. My 9 year old daughter was diagnosed with Poly-JRA in July 2015. She found out about the camp last year when she was diagnosed. She counted down to camp this year. She was eager to spend time with other children that understood the pain she was experiencing. As a parent I looked forward to learning more about JRA and also meeting other parents that were experiencing the same issues; not just day-to-day issues, also the emotional issues from dealing with the diagnosis. The camp was everything we expected and more. We look forward to coming again next year to spend time with our new family.
Jambalaya Jubilee is an amazing weekend for families with children with arthritis! It's a time for the children to meet children who share their struggles. Parents get to share their experiences with other parents and gather an overwhelming amount of very helpful information. I thoroughly enjoy this camp and take home a lot of info every year. The staff is the greatest!