I was impressed with this camps ability to be very professional in relating to parents and the children who attended, the basic information of their illness from doctors, parents and the counselors who offered so much information to ease the burden to the children and parents in attendance. I left with a better understanding of what parents and their child's pain experience and family dynamics that arthritis brings to families. I was invited by my daughter to attend with my granddaughter who has arthritis. It was a weekend well spent.
Bringing experts and families together to share experiences and information is invaluable. Offering support for kids effected as well as their siblings is also helpful.
Children and Arthritis is amazing non-profit! They go above and beyond to take care of the families they help, and the children they represent. They make sure families who are affected by Arthritis or any Rheumatic disease get the information and knowledge help their children in their battles. Just an amazing nonprofit group!!
This program was totally unexpected!! It was over and above my expectations! The children had a blast and as a parent, I learned so much from the panel of doctors and met so many supportive people! Thank you for a wonderful weekend!
I really liked that I was able to meet many people that I already knew from other camps and met many more new family and made new friends.
We just left our 11th Jambalaya Jubilee weekend, having first attended shortly before my child turned three years old.
Words cannot adequately express our gratefulness to the founders, staff and volunteers who make this weekend possible year after year. This is an amazing organization with people who care tremendously about families who are just starting on the journey as well as those who have been on it for years.
There are online support groups for parents who want to connect, but there is something truly unique and wonderful about connecting in person -- having the opportunity to not only connect with other families, but also to talk with doctors and therapists. The kids also connect with each other and see they are not alone with all the doctor appointments, medications and other things that come along with their diagnoses. It also provides them with a fun break from it all.
My child looks forward to this weekend all year. It is nice for a change to have something to look forward to that is associated with this illness!
The Presslys have hearts of gold for starting this weekend and for continuing it for almost 30 years. We will be forever grateful to them!
This is our second year. It is something that my daughter looks forward to every year. Can't tell you what this means to our family. God bless the volunteers!!!
I can't think of any way that they could improve on the camp, because everything they had planned for us was well organized!!!!! And I loved getting to meet people that are going through what I'm going through!!!