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Childhood Leukemia Foundation Inc

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Nonprofit Overview

Causes: Cancer, Human Services

Mission: Childhood Leukemia Foundation''s (CLF) goal is to empower and improve the lives of young cancer patients and their families through its various program services. CLF programs include Hope Binders, Hugs U Wear and Wish Baskets. Each program is designed to educate, entertain, raise self-esteem and bring a sense of joy into their challenging lives.

Programs: The Hope Binder The Hope Binder program provides families with an organizational tool to help keep track and prioritizing medical information and costs associated with the treatment of their child. Hugs U Wear Hugs U Wear program provides 100% human hair, custom-made wigs to children suffering from a loss of self-esteem due to treatment induced hair loss. Wish Baskets Wish Baskets are delivered to hospitalized children almost every day. Each basket is filled with age appropriate gift items and a $75 Gift Card to purchase another wish item of their choice. Keeping Kids Connected Keeping Kids Connected program gifts iPads and bluetooth keyboards to children and hospitals to help young cancer patients to remain connected to family, friends and school while receiving treatment. In addition, the iPads and bluetooth keyboards are a very useful tool to help divert the child’s attention during stressful, lengthy or painful procedures

Community Stories

50 Stories from Volunteers, Donors & Supporters

4

Client Served

Rating: 5

My name is Mike. My 10 year old son, Boston, was diagnosed with Hodgkins lymphoma in early April. Since then, he (we) have been making 3 hour trips from our home to the hospital. The trips aren't too bad since Boston likes to pop in his ear buds and listen to whatever music he has on his ipod. The 4-6 day stays in the small (but spacious as they go) hospital room is what really wears on him emotionally. We tried calling and talking to mom the first few trips, then we progressed to a borrowed ipad to reliably skype. This kept him in touch and he felt a part of the family. But when he wasn't skyping, the ipad didn't get used and the music got old and the same Xbox game was worn out.

Then your group stepped in and gifted him with his very own laptop. His smile, a rarity these days, was enormous when he got to the hospital (after being told he had to endure more chemo when we thought we were done) I nearly cried. He has used it and cared for it a great deal since its arrival. Now he has more games at his disposal, better skype capabilities AND a device that he can use during the coming school year for lessons and corresponding with his teaching staff.

"Thank you" doesn't seem to do justice the gratitude my family feels. You make us feel blessed

Review from Guidestar

10

General Member of the Public

Rating: 1

I have had it. I was In bed with a very critical Lupus flare and the flu and the phone rang. I answered and it was a guy who started out with, "Well hi and said my name". I am wanting to know if you STILL want to donate 25$ again to Childhood Leukemia Foundation? I said, Um,I didn't donate 25$ before. OH he said,I read that wrong, it says 15$. Sorry. I said Sir,I am in bed with a Lupus flare and the flu and I am not interested. I already tithe and give to a group ,so my answer is no. He said, NO? I said yes it is no. He said well I see that you gave before and I would like to just send you a pledge for 15$. I said no and hung up. I brought up the call and called back. Guess what, it is a number that "magically"doesn't work.
After a lot of research today, there is NOT a Childhood Leukemia Foundation in Lansing, Mi. ,which is where the call was placed. Shame on frauds, do they not realize GOD see's every crooked thing they are doing?

1

General Member of the Public

Rating: 5

I am thankful for the Childhood Leukemia Foundation and for the effort they make to help make the lives of children with cancer better. Cancer runs in my family like water. It is no fun for an adult, let alone a child. Long hospital stays can be very boring, let alone the suffering from the disease. I am glad especially for the IPad program, and for the gift baskets. The son of a friend of mine suffered from leukemia for 3 years before he passed away. He died from the disease after his bone marrow transplant. He died with the toy bear in his arms that he received in his gift basket from Childhood Leukemia Foundation. Some donor who doesn't even know the name of this child made a world of difference in his life. Thank you for your support!

9

General Member of the Public

Rating: 1

A few months ago I contacted CLF via their website. I was inquiring about how my grandson who was diagnosed with ALL could receive a gift basket. Kate Booth replied that they would information to be able to contact a nurse or someone who works with him to be able to verify diagnosis. After providing the info and making several follow up attempts, they never got back to me!! So much for their mission! It's some kind of scam if you ask me. No sense in contacting them because you will never hear from those people again!

9

General Member of the Public

Rating: 1

I got a call from 'Rachel' soliciting funds for this organization. She called from a spoofed number that said it was a Private Caller. What kind of organization does that? There is some kind of scam going on- no legitimate charity would use a Private Caller telephone number. I asked to be taken off thier call list- let's see what happens.

Review from Guidestar

2

Client Served

Rating: 5

Hi, We are just writing in to thank you for our son's wish basket and gift card. It could have not came in at a better time for him, his hair began falling and was really sad asking if his hair would grow back any time soon.. Our son Gilbert(Jr) had asked us for a couple of Video Games as this is how he passes time while being home, since he cannot attend school like normal boys and girls do to his weakened immune system. We would like to thank you and all your supporters who support this cause of having a child dealing with a life threatening illness/disease. CLF, sure put a big smile and filled our son Gilbert's little heart with Joy. Thank You So Much!!!! Bless You all!!!!
Respectfully ,
Rocio & Gilbert

Client Served

Rating: 5

My son just received an IPAD from Childhood Leukemia Foundation. It could not have come at a better time. Since he started his treatment, we have not seen one smile...Ugh! When he opened the box and saw the IPAD his face just lit up! As a mother, I am so grateful that others do care about my son. Thank you from the bottom of my heart for all you have done for my family. Sincerely, Rose Garcia

Client Served

Rating: 5

Dear Ms. Barbara,

I just wanted to say thank you so much to you and the Childhood Leukemia Foundation for the Hugs U Wear wig, the Wish Basket, and the Visa gift card. I got my wig and wish basket with the help of Cindy, the social worker at CHOA. I have enjoyed wearing my wig and I always feel pretty when I wear it. It makes me feel like I have hair again. It was also special because I received my wig and wish basket a week after my birthday. I was diagnosed with Severe Aplastic Anemia in 2009 at the age of 7 and in April 2013, I received my bone marrow transplant. Thank you again for sending me these wonderful gifts.

Love, Meredith

Client Served

Rating: 5

I just wanted to say Thank You so much for the Wish Basket you have my son Mathias. This company has helped to put a smile on my sons face at a time when everything else was in a state of confusion.

My son Mathias is a 11 year old fighting ALL/Philadelphia Plus for the second time.
Mathias was diagnosed on May 2011 and did everything to prepare him for his first transplant (brother donor). He did amazing! 18 months later on February 1, 2013 he had a relapse and our journey started again. He should have been in transplant in April but a day before being admitted they found mass I'm his liver and lung. After two biopsies and waiting it came back as a fungal. Transplant had to be in hold cause to risky to go in with a fungal. We stayed in hospital for three months for treatment. We then were given a two week break to go home (home is 21/2 hours away) and get some family time before our next big journey. Transplant was on August the 15. So far he is doing great. Inclosed is a picture of Mathias at the zoo days before his second transplant, dr gave him permission to enjoy and no limitations!! Zoo is one of his favorite places.
God Bless you CLF!!!

Michelle (Mathias's Mom)

19

General Member of the Public

Rating: 1

Last year this firm used a telemarketing firm that paid the charity 40% of the monies received - this telemarketer was located on the West Coast. This year they have contracted with a NJ telemarketer (in their home state of NJ, who has a post office box for an address) and their contract is for only 15% of monies collected going to the cause.

The telemarketer will get 85% of all monies collected. This is UNACCEPTABLE!!!

I live in NC and received a call from this telemarketer on 8/12/13 - since I was on the computer I popped up our state's Charitable Solicitations site and looked to see if this was a legit deal, and they had been registered in our state, but their last license had expired in March, 2013 and so far it had not been renewed.

I HATE these "professional solicitators" since they drain SO MUCH MONEY AWAY from a good cause. This may be a great organization, but when you go from a 40% contract to a 15% contract - their board of directors needs to be FIRED and REPLACED with a group of people who still have gray matter between their ears instead of pudding (or possibly poop?)!

I am appalled by the percentages here - telemarketers from India can set up call centers and deluge our country with telemarketing calls made on a shoestring budget using CHEAP VoIP internet phone systems - and yet these "professional Solicitators" claim they can't do it?

Bull - other charities can. There are quite a few that can do it and turn numbers well above 50%.

I obtained these figures from the NC Secretary of State filings PUBLICLY posted on their website - figures provided by the Childhood Leukemia Foundation, Inc. themselves.

Find someone else to donate to until these people get their act together. There is NO reason why the telemarketer's portion should EVER be that high. The board needs to get its priorities straight and remember that they are NOT there to serve themselves and their friends, but to serve those that have cancer and their families - like their mission statement speaks of.

Vote NO CONFIDENCE with your money! Donate elsewhere until this appalling situation is corrected.

Review from Guidestar

1

Client Served

Rating: 5

The Child Life Team at Kaiser Permante, Los Angeles would like to express our gratitude for the kind donation of iPads and laptop we received from your wonderful foundation. We are so excited to utilize this technology with our oncology patients. It has helped us in our daily work with the children at Kaiser.

1

Client Served

Rating: 5

Jagger is an extraordinary little boy. He was diagnosed with b-type ALL leukemia this past November and is actively receiving treatment/chemo. He received his wish basket from you a few weeks ago but didn't feel quite up to going thru it. We both wanted to thank you so very much!! It was a nice thing to have when the last few weeks have rough for him. Thank you again!!

Review from Guidestar

2

Client Served

Rating: 5

Thank you so much for all of the wonderful services the Childhood Leukemia Foundation has provided to our families. Working with families in pediatric oncology presents many challenges to us and we have come to rely on CLF to assist us in meeting some of those challenges.

Our kids spend many hours in the hospital and clinic receiving lifesaving therapies; the time can seem endless. The iPad program has been a wonderful addition to our kids as the iPads are used for assisting in their continued education, providing a vehicle for them to stay connected to their peers, and not to be forgotten... providing a fabulous distraction through music, movies and games when appropriate.

The Wish Baskets have also been a wonderful addition to our support services. Our families have many additional expenses with the diagnosis of cancer, many times there is not enough extra financial means to cover those expenses that bring only one thing...comfort and joy. Each family has met the Wish Basket with a genuine smile and "Is this really for me? Wow!"

We cannot thank all of you enough for your dedication, caring and compassion to children and their families journeying through pediatric cancers. We look forward to working with The Childhood Leukemia Foundation for many years to come!

9

Donor

Rating: 1

Anyone donating to this charity should beware! One star rating only because I was required to enter a rating. According to Charity Navigator, CLF spends 60% of its revenues on fundraising. In addition, they immediately sell a donor's information to other groups. Within two weeks of committing to a donation, I received three phone calls from other "cancer" related charities. And I don't think it's over, as I'm getting lots of hangup robo calls since donating to CLF. This is a scam organization that only spends 30% of it's donations on its "programs".

Client Served

Rating: 5

The Childhood Leukemia Foundation donated 2 iPads in 2012 for hospitalized oncology patients at All Childrens Hospital in St. Petersburg, Florida. These iPads are in constant use by patients during their hospitalization. Both patients and parents "love" having the iPads available. The iPads provide a necessary distraction for the minds and spirits of children undergoing chemotherapy or suffering the painful side effects of their therapies.

As a social worker, who contacts numerous foundations on behalf of families, I am very appreciative of the support provided by Childhood Leukemia Foundation. From the Hope Binders to Hugs U Wear to Wish Baskets to iPads, Kim Wetmore is accessible and responsive to needs presented on behalf of our families. Her responsiveness has gone a long, long way in assuaging the anxieties families experience when coping with childhood cancer.

I wish I had more organization such as the Childhood Leukemia Foundation as a resource for the oncology families at All Children's Hospital. The need is great, resources limited. The Childhood Leukemia Foundation is in a category of its own!

Client Served

Rating: 5

On behalf of the pediatric patients of Good Shepherd Hospice, we would like to thank you for your generous donation of iPads and accessories! They will provide much needed distraction and comfort to the children and their families. We are looking forward to helping the children incorporate the iPads into legacy building activities. Thanks to your generous donation we are now able to offer the pediatric patients and their families the chance to create these memory making moments. We are grateful for the opportunity to partner with you. Your support has helped our child life program to grow in many new ways and it will ensure that the patients remain connected to their family members. May you continue to have great success in all of your projects and endeavors at the Childhood Leukemia Foundation!

Client Served

Rating: 5

We would like to thank the Childhood Leukemia Foundation for the donation of two iPads to the Kids Cancer Foundation. Thanks to the thoughtfulness and generosity of CLF, our young patients now have iPads to help distract them and utilize with visual imagery we do during our procedures. There are a wide variety of educational and therapeutic apps as well as entertaining apps that we can utilize on the iPads which have been very effective in assisting in relieving anxiety for our patients before and during many of the treatments and procedures they must undergo. The iPads have been instrumental in making visits to the hospital a little more entertaining and enjoyable for our young patients. The Kids Cancer Foundation is honored to have been chosen to receive this thoughtful gift that has brought hours of entertainment and laughter (which is something we truly value) to these brave "little warriors". Thanks to the support of organizations like Childhood Leukemia Foundation, we are able to provide hope and support to children and families battling childhood cancer. Little warriors need big heros like the Childhood Leukemia Foundation! We are so grateful for this gift!

Client Served

Rating: 5

We are so thankful for the gift card. Canyun was diagnosed with a Wilms tumor in both kidney six weeks ago and this was just what she needed. We took her to Target to use her gift card and she bought a puppy in a carry case, but she had to get her identical sister Cheyenne a puppy too. Thank you so much for the gift. It really touched us that you passed along love and with that same gift of love we watched our 3 year old share it with her sister. Keep up the amazing work that you do!

Review from Guidestar

Client Served

Rating: 5

My daughter Chelsea just received a new iPad from your foundation and I cannot say thank you enough!! I wish I could have captured her reaction on video, she was so excited!! Immediately we had to download every game she had ever played on one before, then she realized she could listen to her favorite music and watch movies… :) Later that evening she was able to "see" her brothers for the first time in over a week. They were all so excited as this was the first time they had ever used Skype, and her brothers being 2 & 4 weren't quite sure what to think, but they got used it real quick. They were making silly faces and poking each other, they were playing just as if they were in the room together.
Chelsea had spent the better part of last year in the hospital going through chemotherapy but we were closer to home and the risks weren't as high, so her brothers were able to visit. Now that she has had a bone marrow transplant I’ve decided it's too risky for them to visit, they were all really upset but it just isn't worth the risk. So this was a wonderful surprise to say the least. I just want to thank, you, Childhood Leukemia Foundation and all its donors again for the generous gift and for helping so many families during these difficult times.

Sincerely,

Cassi (Chelsea's Mom)

Review from Guidestar

8 Tom_17

Donor

Rating: 2

Please check into the financials of this organization before you decide to donate... they DO put a smile on kids' faces at times of need. BUT they could and SHOULD do it A LOT more/better with the amount of money they collect. The figures on this website are wrong. The organization's financial statements show much more in the expense/salary categories than this website shows. Most of the money goes to expenses/salaries/fundraising and NOT to the Programs that we donors intend it for... I have donated a few times over the past couple years, but am not going to anymore... look into it before YOU do.....