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Central Pain Syndrome Foundation

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Nonprofit Overview

Causes: Health, Specifically Named Diseases, Specifically Named Diseases Research

Mission: To increase understanding of Central Pain Syndrome, its symptoms, causes, and treatments; To help ensure quality medical care for those suffering from CPS; To energize science to find better treatments, and eventually a cure for the disease; To improve the lives of patients, their caregivers and families; To create a network of people dedicated to achieving these goals.

Results: The Central Pain Syndrome Foundation is managing a Facebook Support Group, a Facebook and Twitter page for information and updates, gathered a list of doctors around the United States that understand Central Pain Syndrome,

Target demographics: Central Pain Patients and their families

Geographic areas served: National and International

Programs: updated research information, clinical studies, names of doctors and facilities that understand Central Pain Syndrome, advocacy on their behalf to local and national legislation levels

Community Stories

3 Stories from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

I found this group by accident a few years back. I had been dealing with trying to recover from a broken neck of 2007. I didn't understand what was happening to me and believed I would go through the rest of my life with no one understanding what I was dealing with on a daily basis. My doctors didn't seem to understand or even believe what I was trying to tell them. My life was going downhill and people around me could not understand why my attitude and outlook on life was constantly bouncing off the scale on both ends. I thought I would never make it because I could not make people around me understand what I was going through. I could not understand it myself and didn't want to live like this. Then I stumbled into this group that understood and was there to help me realize that I was not alone. That I was not a freak of nature, That I was not alone, That was there to help live a life that was understandable, and that was okay. A wonderful group of people that I have come to care about like family. A wonderful group of people that help each other be. A group of people that are looking for the same thing, relief.

1

Client Served

Rating: 5

I found the foundation when I was first diagnosed with Central Pain Syndrome. They offered a wealth of knowledge and support in a very scary and uncertain time in my life. Thank you CPSF!

3 Michelle403

General Member of the Public

Rating: 5

I stumbled upon this site back in 2012, while desperately searching for answers for my pain. I read the description of symptoms and literally cried out loud because the words I read were exactly what I felt. I printed those pages out and took them to my surgeon and told him this is exactly how I feel, is this what I have?? His reply was "yes, I was trying to find a way to tell you but now I guess I don't have to." Since then I've come here many times, looking for and finding answers about this horrible pain. Sometime after my surgeries to try to help me, I stumbled upon the Central Pain Syndrome private support group and am an active participant to this day. The people I have met there have a special place in my heart as they've given me so much support and I feel wonderful being able to help others too.