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Nonprofit Overview

Causes: Brain Disorders Research, Health, Medical Research, Neurology & Neuroscience Research

Mission: The mission of the Central Nervous System Vasculitis Foundation Inc is to bring to the forefront the need for Education and Research of the rare disease of CNSV, for the patient, as well as the Medical professional, researcher, family member and community at large.

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This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.

Community Stories

2 Stories from Volunteers, Donors & Supporters


General Member of the Public

Rating: 1

The are crooks. close them down close them down close them down close them down close them down close them down

Review from Guidestar


General Member of the Public

Rating: 1

The Foundation has in charge of the Q & A forum that has zero experience within the health field and is not listed in this organization. She goes by the name "Jill" and clearly should not represent such an important position within the organization. She provides personal stories about her pets. She blocks members access to the Q&A board at her own will. She is not listed on form 990 as required.

Comments ( 1 )


cheryl12 04/12/2010

It seems like you really have a grudge with the Foundation. If it is legitimize file a complaint instead of acting like a JR High school boy who wrote something bad about a girls on the boys bathroom wall because she wouldn't date him.

Review from Guidestar