Over 1.8 million nonprofits and charities for donors, volunteers and funders

2020 Top-Rated Nonprofit

CDH International

10,494 pageviews

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Volunteering Oportunities

Nonprofit Overview

Causes: Birth Defects & Genetic Diseases Research, Health, Pediatrics Research

Mission: For a quarter of a century, CDH International (formerly known as CHERUBS) has fought Congenital Diaphragmatic Hernia. Our only mission at CDH International is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions, one patient, one hospital or one country. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 6300 CDH families.

Results: * Over $1,000,000 raised * World's largest natural history CDH Registry * Collaborations with research centers around the world * Patient Advocacy with the CDH Study Group * Collaboration with the World Health Organization * Collaborations with the Rare Disease Community * Proclamations from the US Senate and 50 Governors * Work with the NIH * Light Ups of major buildings around the world * Lobbying on Capitol Hill for CDH Awareness and Research Funding for hospitals * Founding member organization of the Alliance of Congenital Diaphragmatic Hernia Organizations * Mentored over a dozen new non-profits * NGOs in 3 countries * Providing free support and information to over 6300 patient families in 70 countries

Target demographics: families of babies born with Congenital Diaphragmatic Hernia

Direct beneficiaries per year: Over 6500 patients and families

Geographic areas served: International

Programs: Information on Congenital Diaphragmatic Hernia CDH Research Registry Care packages for CDH patients in the NICU International Conference CDH International App On-line and On App Support Local Get-Togethers Parent Reference Guide Research Grants Scholarships Financial Assistance CDH Awareness Day Events Landmarks Lit Up Proclamations and Legislation Patient Advocacy at NIH, the WHO and on Capitol Hill

Community Stories

260 Stories from Volunteers, Donors & Supporters

Shannon Burkoth

General Member of the Public

Rating: 5

Such an amazing organization! CDH is all about the babies and families, dedicated to making progress and save lives. The research and programs are patient centric, led by stellar volunteers and advocates. The passion is real!

Catherine G.5

General Member of the Public

Rating: 5

Dawn Ireland is a very dedicated advocate for CDH. Her selflessness and drive to create awareness for this childhood disease knows no time limit or distance. The many families that she has helped along the way it’s priceless.

Cheryl S.

Client Served

Rating: 5

CDH has been there for us since 2004 when my son Brandon was born with a congenital diaphragmatic hernia. We found out about his condition two days prior to his birth. Cherubs (CDH International) was the only resource we could find that explained to us his condition and what to expect (good or bad) moving forward. Fifteen years later we still are so grateful for all the support and Information they continue to provide to so many families.

Previous Stories
1

Client Served

Rating: 5

My son was born 13 years ago with CDH! We found out two days before he was born and they sent us to UNC immediately where we were told he most likely would never take his first breath! Well he did take his first breath and spent 4 months in the NICU as well as a year at home on oxygen. During this time we scoured the internet for information and found Cherubs! Dawn was amazing and it was like she was holding our hand every step of this journey we have been on. Even at 13 almost 14 it has been a long and arduous journey. Sometimes Brandon still gets very sick but he has defied many of the odds. He plays saxophone in the band and is a happy relatively healthy normal kid! It would have been extremely hard to do this on our own, but having an organization like Cherubs that understands and helps you to navigate the whole process has been a godsend! For that Dawn and Cherubs will always have a special place in my family’s heart!,,,

Read more

General Member of the Public

Rating: 5

CDHI has been there for my family since the day of my son's diagnosis. They are always reaching out and offering guidance and support. I absolutely love that they constantly share prayer requests and keep the public up to date on the current struggling families.

Client Served

Rating: 5

Very tight knit group. Founder still runs the charity and is very easy to reach. Not much is known about CDH, but we are learning more with every effort this charity makes to further our understanding of this condition. Truly a grassroots charity that continues growing 25 years after its founding.

As an adult with CDH, I have benefited from this charity by meeting others with the condition, having opportunities to participate in research that aims to further our understanding of CDH, and using my experiences to help others going through similar experiences.

If you are looking for a charity to support, this should be on your list. Your contributions will not go to waste. Maybe you will save a life!

Tricia M.

Client Served

Rating: 5

CDHi is hands down the most efficiently run non-profit in existence. Everything done, every decision made, every dollar spent is with the babies and families in mind.

Client Served

Rating: 5

This organization is there when you get news you never knew existed. Parents like me need this kind of support.

Volunteer

Rating: 5

CDHi has been helping families for over 25 years. They are the first and oldest organization solely devoted to CDH. CDHi not only supports families but they also fundraise monies for research. They serve 1,000's of members. They do this on a very low budget. They run CDHi on a fraction of what other rare disease/syndome associations receive from governmental agencies. They have only a few paid employees (can count on one hand) and the remainder are strictly volunteers. Dawn Ireland and Tracy Meats have done a great job of leading CDHi. They are both very dedicated to keeping CDHi going and have been for 25 years. They never give up on discovering ways and implementing them to help CDH families. They are tireless advocates whose hard work truly shows their determination to find the cause of CDH and how to prevent it while supporting families and giving them hope.

Previous Stories
1

Volunteer

Rating: 5

When Dawn's (Cherubs' CEO and founder) baby Shane was born with CDH over 20 years, there was no outside support and very little information available to her about this critical condition. She promised herself that she would do everything in her power to never allow any other CDH parent to be alone and without support. Unfortunately Shane passed away at age 6. Shane was and is Dawn's only child. Dawn has devoted her life to help CDH babies by offering support, information, monetary support (limited because of funding) and most of all doing everything in her power to raise funds and awareness for a cure/prevention of CDH through research. Most of these years Dawn operated on a shoestring budget and without pay. Because of her hard work and compassion, Cherubs has grown to several thousand members. Dawn is totally hands on ... tirelessly working in the trenches, lobbying congress for CDH research funding. I have been a member/volunteer for over 20 years, so I have seen Dawn's dedication and Cherubs' growth firsthand. Dawn has some very devoted volunteers that have done an amazing job. To name a few-- Josh, Tracy, Felicia, Ashley and Nicolle among many others.

Read more
Katie R.8

Client Served

Rating: 5

They were there to help support our family through the diagnosis and treatment of our youngest son. With out their support we would have been very lost!

Heidi F.

Volunteer

Rating: 5

I have never seen a non profit work harder to meet the needs of families and children, while also reaching out to medical professionals and researchers. When choosing where to spend our donations CDH International is one of the standards we use to decide where to send our hard earned funds, because they are one of the few that are able to do an amazing amount of work with the money donated actually going to the families and research rather than to office expenses and further fund raising accounts. Families helping families... for the babies. I am a volunteer for CDH International, as I don’t want other parents to ever feel like they don’t have someone they can talk to when they have a child born with such a complicated birth defect. That is one of the reasons many of us volunteer. Since 50% of our babies don’t even live much past birth, we want to do our part to help.

Previous Stories
1

Volunteer

Rating: 5

I am volunteering with CDHInternational currently, and in the past on multiple occasions and in various roles, to support families as they make their way through this path with congenital diaphragmatic hernia. My son was born with CDH 22 1/2 yrs ago, and I have been a part of this community of support almost since that first year he was born. The friends and family I have made through this group are in many ways closer than my own family, because we KNOW what we each are going through, and even though few of us live near enough to meet in person, we still support each other the best way we can. CDHinternational has done amazing things to help the CDH community, and I often think of it as the little charity that could... starting from a kitchen table, to an international organization helping families in 70 countries around the world.

Read more
Morgancdhph23

General Member of the Public

Rating: 5

Was born with severe left CDH back in July 1993, never was told by parents about my birth defect, I was aware of my 2 scars at a young age think ecmo one little more on neck, then few more issues had that are common for cdh kiddos. Final cdh repair was 13 years old, February 2007. I found CDH cherubs to now cdh international in 2016 at the age of 23, around 24th birthday. Used my baby book as the hints then family albums few I never seen before 5-6 month old me second cdh repair after pneumonia then RSV. This page community has helped me connect final pieces of CDH/ PH, over time I’ve helped fellow families and if there little ones get PH again like myself I help direct them to PH community not just cdh community ❤️

Previous Stories

Volunteer

Rating: 5

Found CDH international before it was even created, but they help so many families fellow patients like myself. To find a possible cure, while still helping hundreds of families around the world!! Grew up with CDH but didn’t have any connection as a kid with parents, found CDH groups after finding PH ( Pulmonary Hypertension Association) patients and pages, helped few cherubs families join PH side that still shows PH signs. One giant great community!!!

Read more

Donor

Rating: 3

We have a 4 year old CDH kiddo and we actually didn't learn about CHERUBS or CDH international until about one year after she was born. I had no idea we actually had an organization who cares so much about our kids battles. We have done a few fundraisers and donated to CHERUBS and continue to do so with a Facebook group we created called "Allie's Project Matters". We recently attended tje CDH conference in Nashville and learned alot in our short stay. We look forward to helping out CDH international more in the future!

CWeaver5485

Client Served

Rating: 5

Cherubs is more than a charity ..its a "family " ..made of people who know exactly how you feel because they have been or are currently on that same journey as you are ..always a shoulder to lean on and an ear to listen ..no better support you can find

Previous Stories
1

Volunteer

Rating: 5

CHERUBS IS NOT JUST A SUPPORT GROUP ~ ONCE A MEMBER YOU BECOME FAMILY ! They are there through the ups and downs of that CDH rollercoaster and always provide support, love and comfort. I dont know where my family would be without them . When my granddaughter was diagnosed at 17 weeks I didnt know where to turn when the doctors were telling my daughter it was best to just abort the pregnancy because the survival rate was not good. They couldnt answer the numerous questions we had so I went to the computer and researched it , there I found my new found "family" , people whom I could tell my fears and ask questions that the doctors couldnt answer , these members were there , and they could respond with HOPE , because they have been on this roller coaster ride themselves and know the journey were were about to take. CHERUBS has members all over the world , so there is always someone to talk to no matter what time of the day it is

Read more
1 Milinda Estes F.

Volunteer

Rating: 5

Almost 13 years ago my husband and I heard the words Congenital Diaphragmatic Hernia for the first time. Our son was not even an hour old and our world had been turned upside down. Thankfully I found CHERUBS and had hope. Dawn and all of the volunteers have been there for us from day one. You become family and you know there is always someone you can talk to and them listen because they know what you’re going through. I’m so grateful for Dawn and our CHERUBS family!!!!

1 Lindsey G.1

Client Served

Rating: 5

We were told to terminate our baby boy. That we needed to think of his quality of life or lack of. At 20 weeks pregnant those were the words a medical doctor sat at her desk and said to my husband and I. We walked out of her office and never looked back. She’d given up on our baby and we weren’t willing to. I immediately took to the Internet and found CHerubs. FINALLY people that got it, had lived it and a community of people that become family. The work that Dawn and all of the volunteers put in for the sake of our babies is truly amazing. This journey isn’t always easy however it’s a little easier knowing you always have someone in your corner that completely understands. My family, especially Aiden who is now 2 1/2 is eternally grateful for CDHi and CHerubs!

Client Served

Rating: 5

Dawn works tremendously to help raise awareness and finding for CDH research. She is also very active with numerous personal stories and families in our CDH community. Thank you for everything and also for remembering our sweet Brian Earl
Sincerely,
Carah Hicks

Mary Kate B.

Volunteer

Rating: 5

CDH International has been my saving grace. When my world came crashing down they were right there to pick me back up. The community that they have provided is unprecedented. I cannot thank Dawn and ever other member of the CDH International team for everything they have done for the CDH community!

Client Served

Rating: 5

CDH International was my saving grace when I learned my first grandchild had CDH. We live in a small town and there was literally no hope! The doctors knew that the baby had CDH but they all said it was a death sentence. A quick google search landed me with this amazing charity. I picked up the phone and made a call to CDHi. Dawn Ireland answered the phone and not only talked this stranger off the ledge but after just a few minutes I had HOPE! She gave me the contact info for doctors that specialized in CDH. I hung up the phone and was able to celebrate the fact that I was going to be a grandmother! My granddaughter will be 7 in September and if it wasn’t for Dawn and CDHi there is no doubt in my mind she wouldn’t be here with us. It takes someone very special to provide HOPE during such a dark time. Dawn does that without giving any false expectations. CDHi and the Cherubs community is very near and dear to my heart!

Wendy B.4

Volunteer

Rating: 5

20 years ago we were faced with trying to learn as much as we could about CDH as we brought our son home after surgery and with a feeding tube. Had it not been for the Cherubs/CDHI charity, I dont know where we would have turned. We felt as though our Doctors were learning about CDH as we were. 20 years later we attended our first CDH conference and feel so grateful to be a part this incredible charity full of families that have faced such difficult challenges and loss.

Volunteer

Rating: 5

They are amazing when we found out that our son had CDH they sent us all the information about CDH we needed to know.

Volunteer

Rating: 5

Full of information pertaining to all aspects of CDH as well as forums and groups for parents to meet other parents in the same situation. Active, concerned, and available pretty much 24/7 so no one ever feels out there by themself if they have a question or issue or need a prayer chain started or want to share a first day of school or graduation photo.

Sara O.

Client Served

Rating: 5

CDHi has been amazing for not only myself, but so many families! After I came home from having my CDHer, we recieved a care package from CDHi filled with so many goodies... it was so nice to have a community supporting us as we went through such a difficult time in our lives!! This organization is also my go to for any and all info I need regarding CDH, because I know all things on their site are facts and comes with data.

McKayla Chaylyn A.

Client Served

Rating: 5

My daughter was born with CDH 8 years ago. She was diagnosed at my 20 week ultra sound and without having these non profit groups to give us the correct info on her diagnosis and the support we have received from them and other families we would have been so lost. We are all so appreciative & grateful to have them!

Previous Stories
1

Client Served

Rating: 5

My daughter was born with left sided CDH, she is now 7 years old & since the time of her diagnosis, my 5 month ultrasound, we have been involved with this non profit, more so over the years as it has grown. It is so nice to be able to connect with other families & know we are not alone. Having their support has made a world of difference to our daughter & us!

Tracy M.3

Board Member

Rating: 5

Our son was born back in 2004 and from the moment we found CHERUBS, now CDH International, it has been a great source for support, a source to learn about CDH research and help contribute to, a source for amazing CDH awareness and overall an amazing charity that a family can turn to and not walk the CDH journey alone. I help run the CHERUBS support division now and I know that we put every penny to good use and that we are making a difference in the CDH community. I couldn't have walked this journey with my son's CDH without this amazing support community and what they are doing in the research field is so much needed. #savethecherubs #cdhi

Amanda Colleen G.

Client Served

Rating: 5

Dawn Ireland, the founder and president of CHERUBS, is amazing. Everything she does, she does for those affected with CDH and their families. She turned the loss of her son into something that has helped countless CDH families whether it was emotionally or financially. Her organization can back up where every penny goes and has some of the most impressively low overheads compared to better known charities. With CDHi and CHERUBS, you know where your money is going. Dawn has always been a wonderful support system and has provided me with more than one opportunity to share my son’s journey with CDH. I can not say enough positive things about this organization and it’s staff. #savethecherubs

1 Mandy A.1

Volunteer

Rating: 5

Our daughter was diagnosed with CDH at Birth. Cherubs gave us a community and support to understand her diagnosis. They have given us a place to ask questions, to meet other families, and a chance to meet survivors and give us hope. After the cherubs conference in 2017 I decided I wanted to help and volunteer. I just wanted people to know that there is a community out there who understands what they are going through, and to help give those families hope.

1 Melanie Jensen H.

Volunteer

Rating: 5

We have been involved with Cherubs since after our second daughter died from CDH. Our first 2 children, both girls, past away from this deadly birth defect. We didn’t know about Cherubs until after our second passed away. We are incredibly grateful for them. It was so helpful knowing that others have gone through the same trial. Cherubs has introduced us to many families around the world. My husband and I have been have very involved in Cherubs and adore meeting new family’s. We try not to let our missfourtine destroy our lives. We try to uplift others and cheer them on through the tough times. Cherubs has helped us so much that we want to inspire others to be Cherubs members to support and lift them up.

2 Renci S.

General Member of the Public

Rating: 5

My Lcdh baby girl, Lyric Reign, will be 2 years old in Nov. She spent 5 months in the Nicu, a year and a half on oxygen support even at home, and going from 10+ specialist down to maybe 1! She is truly a miracle and if it wasn't for CHERUBS I would've never been educated on CDH and receiving their support helped me fight this journey with my baby girl. ❤

1 Bobbi T.

General Member of the Public

Rating: 5

The emotional support and world wide family that’s been created has been the utmost importance to our family. To know that we’re not doing this journey alone. To be brought together with others. To know that there’s research being done to support families. To try and save the babies.

1

Client Served

Rating: 5

When we learned that our son was going to be born with CDH, this was the only helpful resource available. In the years since, we've become helpers and supporters. They've been awesome!

1 kingmomof3

Client Served

Rating: 5

CDHi has been there for us through the years. The support is fantastic, and you always know that there is someone who has been in your shoes.

Previous Stories
2

Client Served

Rating: 5

My daughter was born with CDH 13 years ago. We are blessed to have a survivor! CHERUBS has always been a great support. Our local rep is always ready with a word of encouragement and we've even met with her a few times. My daughter did a service project for CHERUBS and went to meet Dawn. There has been nothing but help and gratitude from CHERUBS! I am so glad that I found this wonderful non-profit, and volunteers. We have met many wonderful families through CHERUBS. Thank you CHERUBS for all that you do!!!

1 Lauren122

Client Served

Rating: 5

Both my daughter and I were born with CDH. CDHi is so important to our family because more funding for research is greatly needed. I don’t want a 3rd generation of our family to be effected with this devastating birth defect.

Previous Stories
1

General Member of the Public

Rating: 5

CHERUBS has been a wonderful support for my family after my daughter received her CDH diagnosis. They provide opportunities to connect with other families, provide information and resources and prayers.

1 Brenda121

Client Served

Rating: 5

One of the neonatologists told us about Cherubs after our son was diagnosed in utero. It was been a great resource not only with information but community. It is wonderful to meet other people whose children have had a similar diagnosis.

Previous Stories
2

Client Served

Rating: 5

I first heard about Cherubs when my son was diagnosed in utero with CDH 14 years ago. I was so glad to learn that I wasn't alone on this journey. I have received wonderful support and made friendships through this group.

1 Shayla Marie A.

General Member of the Public

Rating: 5

My son was born with lcdh, thanks to organizations like this, my son is here and not terminated inutero like originally encouraged! ❤️

1 Josh N Taylor M.

Client Served

Rating: 5

Our LCDH survivor is 3 now. Cherubs helped so much after finding out that our son would be born with CDH. There is so much compassion and understanding from them, they made me feel not so lonely and that there was hope.

1

General Member of the Public

Rating: 5

I am in a relationship with Morgan Nuchols who is a CDH long term survivor. I also encourage and sympathize with patients and their families online. I am a PH patient and understand from a patient view. The Association of Congenital Diaphragmatic Hernia Research is a very helpful and needed nonprofit to the CDH community.

1 AmandaP

Volunteer

Rating: 5

Thanks to Cherubs my daughter has met other CDH children and we have made many new friends. Cherubs has helped us find families with similar experiences for support. Most importantly Cherubs has given me hope that my daughter will always have a place to turn as she navigates CDH as an adult.

Previous Stories
1

Volunteer

Rating: 5

Cherubs has been a great support for my family since I joined 6 years ago. We had support through 3 surgeries my Cherub had and lots of ups and downs. We have been fortunate enough to meet 15 other CDH families because of Cherubs!!! I now volunteer because Cherubs is such an important organization to me.

Read more
1 Heidi30

Client Served

Rating: 5

Tanina was born during an ice storm in 1995. With 22 years now behind us, there are still so many questions to be asked and answered about CDH. CHERUBS was the first to help parents, those children and their doctors find answers. Giving support to both grieving and survivor parents, holding conferences at low costs and just being there when no one else could be.....thank you for your honest, warm approach, your never ending work, your kindness, your friendship. You amaze me and I am forever grateful.

Previous Stories
3

Client Served

Rating: 5

My daughter, Tanina, was born in 1995 with CDH. She was given a 5% chance of life with multiple issues. At this time, I turned to books or research. I could find nothing on CDH. Nothing is scary.... not knowing what you are dealing with is worse than the CDH itself. Finally, Jay Wilson, Tanina's surgeon, mentioned that a group was starting up to better understand and advocate for families who have dealt with this birth defect. I became a life long member of CHERUBS. They have worked with thousands of families and worked with conferences and medical staff...all in the name of find out what CDH is. While we still may not have an answer, wwe have a core base of people dedicated to finding an answer, helping those afflicted and giving hope to all. Tanina graduated from St. Paul's School in Concord, NH. She is a softball pitcher and plays a concert flute as well as sings as the head of her section in the choir. She will attend Lafayette College this fall as a neuroscience major. Well done, my child. Thank you for your support, CHERUBS!

2 Paula102

General Member of the Public

Rating: 5

Dawn is amazing. After losing my son I did not really even want to be here. This group along with supporters and still living for my son are the only reasons I am here. They are my angel and a blessing for all of our CDH babies and their families. Dawn works with a vengeance to raise awareness and pass new bills for our babies. Dawn knows no boundaries when it comes to compassion and love.


JEREMYS SONG

On St. Patricks day of 2003 a precious little gift was born at 1 am on a Monday morning. No one knew that Jeremy had Congenital Diaphragmatic Hernia. When Jeremy was in the first few seconds of of life he suffered a heart attack, stroke, and his lungs collapsed. They flew him straight to ACH. Once there on ECMO(Life Support) Jeremy had a chance Most CDH is on the left so they do not make it, it smothers the heart. Jeremy’s was central so his liver blocked a lot of it. All of his organs were inverted (Backwards).By the second day he had four major operations. Jeremy had chest tubes, tubes in his little nose, mouth, wrist, feet, naval, and groin for one month. Once in NICU and Jeremy had to have his last five surgeries. Then we were on our way home. I believe I died 10 times while we were in there, But God gave me such a precious . We went home on four machines, three blood pressure meds, seizure meds, potassium. Jeremy thrived……………………… He loved to hear his siblings play. Jeremy loved going to Sea world with NawNaw and PawPaw and dancing with the count. Jeremy loved going to Dallas Aquarium with Mom and Mr. Ray and meeting spongebob. Jeremy loved every moment with his therapist Ms. Donna, Mrs. Virginia, Mrs. Gretchen. He loved all of his ladies, especially Mrs. Linda Walker, Jeremy was her “Bubbagump”. Jeremy adored his little brother CJ, there was never a more loyal love. He loved his sister playing the guitar everyday! There was never just a Dr. appt with Jeremy, it was an adventure! He never knew a stranger, he genuinely loved anyone he cam e in contact with. And for a brief moment in time he would change their life forever. There was no purer soul. He touched their mind with his inspirational soul and made every trip a wondrous joy. He loved his friends and teachers at school and adored his brothers and sisters. Kingsland elementary help make a structured loving environment for my son. They loved him for the Angel he was and is. Jeremy was everybodys buddy. His cousin Vicki was his very best friend. The love between the two was beyond our time. And his best buddy Shawn, who will always be a part of his heart and family forever. Form his PT/OT/ST to the Superintendant Mr. Johnson. However, Jenkins was our 2nd home. From the age of three months on they were my savior. The things pushing they challenged him with really got Jeremy to where he could go to kingsland, they and God got him to me and his family. Is so thankful for the love this town showed to my precious gift. We had done so much for this preceious little man and had so many more plans. Before every procedure Jeremy always gave a thumbs up to lot me know he would be fiend. This last ambulance ride he gave me thumbs up. There are no known causes for CDH. CDC is still researching. That is why Cherubs is so critical. They can do so much so other families so they don’t go through what my family and I went through. The Lord took his highest Angel on high that night. And left his shell of a Mom, empty. I am empty unless I am still doing for my son,Jeremy Tristan-Lee Tribble. 03/07/03/-03/13/16. His plaque will go up at Jenkins in Pine Bluff and he will have a plaque up at kingsland elementary. In his eternal loving memory. This little man is a legend. Faced his own war’s with a smile. Always a thumbs up, thumbs up. Faced over 15 surgeries in his little lifetime, a true legend.

2 Gail H.

General Member of the Public

Rating: 5

I am the Mother of a CDH survivor who will be 34 this year. I have been fortunate enough to know CHERUBS through Face Book. I have met some amazing people, shared stories, tears, support and prayers with those who have been touched by CDH. I wish CHERUBS would have been in existence when my son was born. We were given very little information about CDH back in 1983, and as a new Mom, I felt very alone. Dawn Williamson has been a God send to each and every member of this group. She, with the help of her volunteers works tirelessly to aid families touched by CDH, provide a safe place to share worries, give families the information needed as they travel this journey and allow people to access information and awareness where CDH is concerned. I feel blessed and honored to be a part of this wonderful CDH family.

Previous Stories
3

General Member of the Public

Rating: 5

I have to say, that although my son is a survivor of CDH (almost 28 years now) I have been blessed to have been able to connect with Dawn Williamson and so many wonderful, caring,m giving people through CHERUBS. Back then, we were given very little details about CDH..we were only told it was life threatening and that my son would spend quite a while in the NICU. After all of these years, I have found out so much information about CDH, I feel more empowered to move forward and teach others about it, make them aware of it and do my best to try to get funds to bring research for CDH, so that, maybe, in my lifetime..it will no longer be a potential death sentence for babies. I am so grateful for this organization and for the people running it, the people who have joined it and for giving me a place to connect and learn. I hope someday to "pay it forward"..to help others the way they have helped me.

Review from Guidestar

2 Denise170

Professional with expertise in this field

Rating: 5

I am a NICU nurse and I go to the SDU for deliveries of CDH, I also follow them thru out their hospital stay, because I am on the Surgical team. To see a organization that help parents have support beyond the hospital and that understandi life after having CHD enter into their lives. Priceless memories about courageous people ❤

3 Rhonda47

Client Served

Rating: 5

December 29, 1992 my son Preston was born with CDH. Jan 1993 I met a couple in the waiting room with their son, Shane, also a CDH newborn. We shared many triumphs and disappointments together. We also shared the inability to research or find any answers of our own. Just a paragraph or two in a very large book written in a way very hard to understand. When my son Preston passed, I had no answers or understanding or support from others. Because of Dawn and her heart for others to be informed, supported and not be alone, Cherubs came to be. I have been there since the birth of this charity. I have seen the heart behind its growth and love. The ups and downs, the fighting for each and every cdh family. Cherubs is what true charities are and should be about. Dawn Ireland has displayed the most incredible dedication I have ever seen in anyone. Cherubs, our sons lives, will live on past our own. Helping others to live their's.

1 Lizz L.

Volunteer

Rating: 5

As a CDH survivor, I went the first 36 years of my life thinking I was an anomaly. Then I found CHERUBS. Now, eight years later I have met other survivors and grieving families who have become like family to me. Some of my best friends now are ones I met through CHERUBS. Now, at a volunteer, I have the chance to give back and give hope.

Previous Stories
2

Volunteer

Rating: 5

As an adult CDH survivor, I had never in my life known anyone else who had heard of the condition, much less had experienced it. As far as I knew, I stood alone. When I found CHERUBS, I immediately became connected to thousands of families who had been through the nightmare of CDH and gave me insight into what my own parents went through.
As a parent myself, I have had to face the possibility that my own children may also be victims of CDH. Thankfully, they were all born perfectly healthy. This also enables me to give hope to other survivors that they will be able to become parents themselves and lead "normal" lives.
Through CHERUBS I have made some of the best friends a person could ask for and I cherish that.

Read more
1 Jamie R.

Client Served

Rating: 5

I found CHERUBS shortly after my son passed away from CDH. The love, compassion, understanding, and honest desire to help is apparent from the get go.

Previous Stories
2

Volunteer

Rating: 5

After losing my son to CDH, CHERUBS had been there in every way possible to love, support and educate me.

Read more
1

Client Served

Rating: 5

My daughter was diagnosed with a left-sided hernia while I was still pregnant with her. I had 15 weeks to research and find out everything I needed to know. CHERUBS had the most easy to understand information and support group. 7 years later and I am still in awe of this group of people and their commitment to CHERUBS!

1 Stephanie100

Client Served

Rating: 5

This charity has helped me understand more of what I go through and let me feel like part of a family that will support you through anything. I was born with cdh 28 years ago and never knew what was wrong with me or how to take care of my health.

Previous Stories
2

Volunteer

Rating: 5

When I found out about CHERUBS a year ago I thought it was so amazing that people are helping families know what they are about to go through and give support! This meant a lot since my family didn't have anyone when I was born with it 24 years ago. Everyone at the CHERUBS is amazing and helpful and reall knows what you are going through so you know you are not alone.

1

Client Served

Rating: 5

My son was born in 2004 with a left sided CDH! Cherubs was the only place we could find any information regarding our situation! The support during that time and even for years after helped us through the toughest time of our lives.

Shereen K.

Client Served

Rating: 5

My CDH survivor Micaela is 19 years old now. We didn't find Cherubs until about 5 years ago. Back then, we weren't given the information from the hospital about it. I felt alone in the CDH journey. It would have made all the difference in the world to have the support we receive now from Cherubs back then as a young family. We will forever be dedicated to lending a hand in any way we can to help the new families beginning their journeys with the CDH monster.

Volunteer

Rating: 5

I am a CDH mom and I volunteer for CHERUBS. I am proud of the work being done at CHERUBS and the transparency of the charity. I know that I am helping people through their journey because others helped me through ours. Thank you CHERUBS for being such a great charity.

Donor

Rating: 5

My son is a 22 yr old RCDH survivor, ECMO x 2 and we were like Dawn in the very beginning not having a place to go for information. I have supported Dawn's efforts since she began.
Please keep up the good work! She is amazing!!!

Client Served

Rating: 5

Wonderful nonprofit charity. They were extremely helpful in supporting affected family and creating awareness!!

Sara Y.

Volunteer

Rating: 5

We love the cherubs!! They have help my family out in so many ways when I found out my daughter would be born with CDH

Debbie197

Client Served

Rating: 5

Our LCDH survivor is 2 now. Cherubs helped so much. Finding support and information in a time of fear was such a blessing.

1 Sara140

Volunteer

Rating: 5

Love them and the work they do fro CDH families! I have been blessed to see a local family helped with the CDH journey of their angel, who was here for 12 days.

1 Bethany P.

Volunteer

Rating: 5

I have a RCDH survivor who is 3 years old. Cherubs has been a awesome support for myself and my family so glad I have them!!

1

Client Served

Rating: 5

Cherubs has been an amazing support for us since getting our son's diagnosis of CDH!❤

1

General Member of the Public

Rating: 5

CHERUBS has been a blessing to our 19 month old LCDH and ECMO survivor!

1

General Member of the Public

Rating: 5

My daughter was born with LCDH. This organization helped us in many ways before she was born, and when she passed. Thank you all for what you do. Your hard word doesn't go unseen!

1

Client Served

Rating: 5

My son was born with CDH and this charity welcomed us and made us feel like we had answers, support and someone we could go to just to listen in a very tough time. They sent us a care kit with a handmade hat and adjusted baby's first book to explain the time he had in the nicu. It's thoughtful things like that that make this charity above all others!

Lisa540

General Member of the Public

Rating: 5

When our son was first diagnosed with CDH in 2002 the Cherubs organization provided us with support and education. We are grateful for all that they do to spread the word about CDH. Providing a way to connect families has also been a blessing.

1

Volunteer

Rating: 5

This charity supported my family and I through the loss of my son. It is filled with amazing supportive people. They have given us opportunities to raise awareness about a horrible birth defect that many do not know about as well as allow us to participate and be a part of the family.

1 Holly82

General Member of the Public

Rating: 5

I've not had a personal experience but I have a friend who's had to go through this. It's mentally exhausting and so scary for them. I believe this needs to be better known.

Katerina M.

Client Served

Rating: 5

Without Cherubs this journey would be so much harder. I learned most of it I know today about CDH because of Cherubs.

General Member of the Public

Rating: 5

CHERUBS has helped our family find out more about CDH when there was hardly any information online about it. Our son was born 10 years ago with CDH. We continue to support CHERUBS and network with other CDH families through them.