Brain Injury Association Of New York State Inc

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Nonprofit Overview

Causes: Unknown

Mission: To improve the quality of life for individuals with brain injury and their families and friends, and to prevent brain injury.

Community Stories

2 Stories from Volunteers, Donors & Supporters

1

AnneMarie_T General Member of the Public

Rating: 5

04/22/2016

Why I give & support the Brain Injury Association of N.Y.S (bianys.org) My name is AnneMarie Todd. I am a 4x TBI survivor. I've survived 4 nasty car crashes spanning the ages of 19-30. I'm cognitively disabled - considered high-functioning. It has been 15 years since my diagnosis. I am a 'graduate' of Sunnyview Rehab Hospital. This is where I was cognitively 'reschooled'. My main vocational & occupational love is photography/videography. I have been very involved in BIANYS for over 10 years. The BIANYS June conferences at the Marriot Hotel in Albany, N.Y (and the former October gatherings at the Egg in Albany) have been a lifeline to my new world of TBI. I have thoroughly enjoyed sharing the experiences by photographing many conferences & most recently the Walk over the Hudson fundraiser & last years' Journey of Hope Gala. This June, I was very humbly blessed to receive the Silent Angel Award. This was for my photography & advocacy efforts. I also have videoproduced fellow TBI survivor, Angela Leigh Tucker's speeches. She also has a inspiring story. (angelaleightucker.com)I am so thankful for the new friends that have been added to my life. I love documenting them at the conferences & other gatherings & sharing them on BIANYS' website & facebook & my own. I have a youtube channel - AdventuresOfLife- where my advocacy video work is. A short video called 'Save my Clothesline-revised' was inspired by a conversation with BIANYS president, Dr.Lois Tannenbaum=) I enjoyed the wondrous opportunity back in 2010, to co-present/host a workshop at the conference. A advocacy video that I co-produced with Patricia Fountain of Advanced Coaching & Training was presented. I was soo blessed at how well it was received! The amazing friends, information, support & encouragement from BIANYS has been pivotal in my continual pursual of vocal advocacy of BI awareness - especially the silent cognitive impairments.. I always learn something new at the conferences, meet new acquaintances & reunite with treasured friends. I love contributing to the BIANYS organization! =)

Review from #MyGivingStory

Lisa_C General Member of the Public

Rating: 5

04/22/2016

Brain Injury Awareness
http://bianys.org/
In May of 2014 when I was 23 years old, I had brain surgery to remove a tumor from my cerebellum. My entire life changed on that day. I went from living on my own, to outpatient therapy and even living at an inpatient rehabilitation hospital. I’ve struggled over the past year and a half. I relearned how to walk, see a world with double vision and I am just now back in graduate school getting my MFA. I’m teaching creative writing at a jail, working as a dishwasher and writing my memoir about my ABI. I attend walks to support my fellow survivors, fighters and new friends. In August I attended the BIANYS walk over the Hudson, which was an event close to home. I lead Team Walnut over the bridge, raised money and even had two little dogs in attendance. I met and made a new friend also named Lisa; we shared a tired moment on the end of the long bridge. Attending brain injury walks joins us all together and I just wanted to cry and hug every single person there. I know what it feels like to fight for life and the ability to do even the little things like pick up a carton of milk, or use a fork and knife. I give and support the organizations because I know the people who need assistance. I lived and I needed help, as do so many who suffer from ABI’s and TBI’s. I feel their pain everyday when I’m told I look fine, so I must be fine. A brain injury is often invisible and I will always support to raise awareness and help as others have helped me. It’s not enough to just survive, whether it is from a brain tumor, a fall, or a car accident. We want to live and have a fulfilling life. I will do everything I can to support and walk with others to help them become more then just a survivor.

Review from #MyGivingStory

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