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- EIN 26-3223661
- 512-275-2600
- 3300 Duval Rd Ste 110 Austin TX 78759 USA
- www.beyondbatten.org
- BeyondBatten
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Nonprofit Overview
Causes: Education, Educational Services
Mission: Beyond Batten Disease Foundation was established to eradicate Batten disease. We seek to accomplish our mission in two ways: 1. Raise awareness and money to accelerate reserach to find a cure for Batten disease. 2. Develop an easy and inexpensive blood test to detect the gene mutations for Batten disease, and hundreds of other rare conditions like it, that claim the lives of thousands of children each year.
Programs: To accelerate the discovery and development of medicines to prevent, treat and cure juvenile batten disease. This is done through the granting of funds and contracting of services with academic institutions, biotechnology companies, and other organizations with the capacity to assist in achieving our goals. Bbdf also spearheads the development of think-tank conferences and unique partnerships to drive juvenile batten disease research.