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Benzodiazepine Information Coalition

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Nonprofit Overview

Causes: Health

Mission: Benzodiazepine Information Coalition is a non-profit organization that advocates for greater understanding of the potentially devastating effects of commonly prescribed benzodiazepines such as Xanax, Ativan, Valium, and Klonopin, as well as prevention of patient injury through medical recognition, informed consent, and education.

Target demographics: prescribers and compliant, benzodiazepine injured patients

Geographic areas served: United States

Programs: awareness campaigns, policy advising, education

Community Stories

39 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

Great organization. I have done interviews for them as they are providing an MUCH needed service in the world. So many have been damaged from these drugs and the world needs to know.

Linda Case O.

Client Served

Rating: 5

Benzo info Coalition is doing an outstanding job at providing information to benzo withdrawal sufferers and advocating for this highly underserved community.
I am suffering from Protracted benzo Withdrawals. Took my last Klonopin in July of 2012. 6 yrs later, I am still experiencing debilitating symptoms. Without the Coalition, I would have few resources for gaining current and accurate information on this condition.
Hat’s off to thie hard-working Coalition. With advocates working as hard as this team does, perhaps someday others will not have to suffer this iatrogenic illness.

Patty B.2

Client Served

Rating: 5

This is the best place to find information for benzodiazepines! It’s helped me more than I even imagined! It’s given me a wealth of information and opened my eyes

Wendy B.1

Client Served

Rating: 5

This is a wonderful organization working so hard to share the truth about benzodiazepines, instructing public and medical professionals about safe proscribing, and long term harm and disability caused by taking them as prescribed. You don't have to be abusing medications to be terribly harmed by them. BIC is giving the public the information that your doctor won't tell you because most of them don't even realize the harm they are causing. A much needed and incredibly hard working group.

Previous Stories
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Volunteer

Rating: 5

Wonderful organization fighting all the misinformation about benZodiazepine medications, instructing public and medical professionals about safe proscribing, and long term harm and disability caused by taking them as prescribed.

Client Served

Rating: 5

The Benzo Information coalition provides invaluable information for people suffering from benzodiazepine withdrawal. Without them, there would be little, viable information available. Doctors and other health professionals remain ill informed. As long as this remains typical, not-for-profit organizations need to be supported.

Client Served

Rating: 5

Excellent site with lots of great info.This was the first site I joined after benzo withdrawl.It has been a great source of info.

Janet K.2

General Member of the Public

Rating: 5

This organization provides invaluable information and resources for individuals whose lives have been impacted by doctor prescribed benzodiazepines. I wish this organization had been in existence when I was searching for help because any of the doctors I encountered offered nothing except more drugs and dangerous advice and my entire life was ruined because of it.

In 2002 I was prescribed a benzodiazepine when my blood pressure rose to a dangerously high level due to the stressors of caring for my husband who was paralyzed after falling off a roof. The dose I was prescribed pretty much insured I would become physically dependent within a few weeks, as well as extremely anxiety ridden - something the doctor attributed to trauma instead of the drug. This drug was responsible for not only making me an anxiety ridden mess, it changed my personality, decision making ability and caused me to become VERY suicidal. After 8 years I finally found a place that helped me get off the drug with a rapid detox but it took me another 3 years for my body to fully recover.

During the eight horror filled years I was on this drug I searched endlessly for answers but found very few. I believe if this organization had been in existence, my years of suffering would have been much shorter and I would have gotten help sooner. I am grateful for all the work the founders of this organization have put in to provide such a wonderful resource for people!

1

Volunteer

Rating: 5

Finding the link here to FDA Medwatch site made this the first time I felt I had found a way to bring some offical attention to this horrible recovery process that my wife has been suffering through for over a year. Before that all my attempts to reach out to the medical profession had fell on deaf ears or was dealt with by the ostrich method. My frustration in not understanding for 15 years that the drug that was supposed to be the cure for her anxiety was in fact the curse my wife suffered through and caused all the changes I believed were caused by her pain meds is in need of an outlet to correct that injustice. Any group that helps bring awareness to the public, hope to the victims, change and education to medical professionals whom sorely lack an understanding of what suffering they cause is one I will fully support. My goal is to get the word out about the FDA Mediwatch reporting site. The one I filled out with my wife will be lost alone but hundreds of thousands of people have been affected in someway by this over the years and if they all use their voice a difference can be made.

1 Lisa B.1

Client Served

Rating: 5

Benzodiazepine Information Coalition (BIC) has led the way in gathering and providing information about the dangers of benzos and how to taper off of them, along with so many other resources (for patients and their families, doctors and the general public). Thank you, BIC, for your dedication to this life saving cause!

Previous Stories
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Client Served

Rating: 5

Benzodiazepine Information Coalition has consistently presented extremely helpful information about the horrific dangers of benzodiazepines. As benzos, literally, almost cost me my life, I am SO very grateful for this reputable resource, and for its ongoing efforts toward awareness and change! Thank you, BIC!

General Member of the Public

Rating: 4

Emotional support groups are important for those of us in benzodiazepine withdrawal, and I am in one, but Benzodiazepine Information Coalition offers strictly fact based information that I would otherwise not have access to.
Seeking out accurate information about benzodiazepines is often a difficult and confusing and usually, ultimately futile effort. BIC does some of the research for me and I appreciate that.

1

Professional with expertise in this field

Rating: 5

Benzodiazepine Information Coalition has a long-overdue and much-needed mission. As the only nonprofit organization representing and advocating for the largely-underground community of prescribed benzodiazepine-dependent sufferers, they provide an invaluable service to the world through information, awareness, and education around this iatrogenic medical disaster where it is grossly lacking. I fully support this nonprofit and believe they are doing great work.

1

General Member of the Public

Rating: 5

Love this nonprofit and the information they provide. The people have more information than any medical providers. Keep it going!!

3 threadholder

General Member of the Public

Rating: 5

My video tells a lot of my story, that sadly, does not have an ending yet. What I would give to be able to write it at this moment!
In case there are any issues with the video I posted, I'm sure you can find it on YouTube, especially if you put in..."Surviving Benzo Withdrawal Hell". I have many.

I want to thank you again for giving us much needed validation and support. I'm am beyond grateful for the videos and stories that you share, and for all you're doing to advocate on behalf of so many of us who wish we were in the position to do more! I pray your efforts will not go in vain in the long run. I don't believe they will, as you are aiding in bringing change as we speak! There really are no words to truly espress the proper gratitude!
May God continue to bless you efforts as you are blessing so many around the world!!!

May peace and hope come daily to us all.

Shelly Johnson

(It does appear that the last part of my video was cut off here, but should be complete on YouTube. I did go on to thank your organization even more!!!)

2 Andrea N.1

General Member of the Public

Rating: 5

Benzodiazepine Information Coalition has helped me understand what I'm going through by consistently resarching and presenting facts. This organization helps thousands of us who are suffering from this class of medications. As well as being the voice for the thousands of us who are too ill to fight for ourselves. Superb organziation.

2

General Member of the Public

Rating: 5

Great group trying to bring awareness to problems with benzodiazepines. As a family member With a loved one who has been damaged by benzo's I am very happy to see a group trying to bring this to the forefront. They have lots of interesting articles and information about this under recognized problem.

2

General Member of the Public

Rating: 5

I discovered the Benzodiazepine Coalition while reading a self written obituary by a woman who suffered more in her final months from the withdrawals of a Benzodiazepine than from Ovarian Cancer. My 89 yr old father was prescribed Xanax more than 10 years ago. I strongly believe his quality of life has been destroyed because of this drug. At his age, I know he will never be able to tolerate withdrawing
from this medication

3

Volunteer

Rating: 5

Benzodiazepine Information Coalition is a much needed organization helping to raise awareness of the dangers of these drugs - even taken in low doses and exactly as prescribed. Dr's seem to be unaware and unwilling to learn about the damage these drugs can and do cause when taken long term (more than 2 - 4 weeks) - diagnosing side effects and withdrawal as new or underlying issues. Considering that these drugs are handed out like tic tacs and promised "safe and benign in low doses" - education is needed. If you don't believe me - just do a google search for "benzodiazepine withdrawal" and what you will find is compliant patients who took low doses and exactly as prescribed - going through hell trying to free themselves with little to no support from their Dr's. They are the only organization devoted only to benzodiazepines. They are neither anti-drug nor anti psychiatry . They are for educating physicians and patients on the many issues that can arise from this particular class of drug. And they are doing a bang up job!

3

Donor

Rating: 5

BIC is doing the groundbreaking work necessary to accomplish real change in how these meds are prescribed and how patients are cared for while on and getting off them. The leadership is relevant, solid, experienced, and individually outstanding and trusted in their fields. I have already seen great progress and important movement in the set goals which will change and save many lives.

2 Lori J.1

Volunteer

Rating: 5

Always truthful and informative. As a benzo survivor, this site is a godsend to the benzo community. It is my sincerest hope that medical professionals will utilize this site for information on benzodiazepines that they did not get in medical school so that prescribing practices can be more in line with what these drugs can and cannot do over the course of time. Benzo Information Coalition has life-saving information for anyone who may be prescribed a benzo by their doctor for any reason.

2

Board Member

Rating: 5

I am a physician, director at BIC, and benzo withdrawal sufferer. We are the only nonprofit in the US that is dedicated to raising awareness about the dangers of benzodiazepines. I became involved with this organization because I believe the general public and medical community needs better education about benzos such as Ativan, Xanax, Klonipin, and Valium. We are doing great work with a number of projects in the works and have the potential to help save countless patients from harm.