My video tells a lot of my story, that sadly, does not have an ending yet. What I would give to be able to write it at this moment!
In case there are any issues with the video I posted, I'm sure you can find it on YouTube, especially if you put in..."Surviving Benzo Withdrawal Hell". I have many.
I want to thank you again for giving us much needed validation and support. I'm am beyond grateful for the videos and stories that you share, and for all you're doing to advocate on behalf of so many of us who wish we were in the position to do more! I pray your efforts will not go in vain in the long run. I don't believe they will, as you are aiding in bringing change as we speak! There really are no words to truly espress the proper gratitude!
May God continue to bless you efforts as you are blessing so many around the world!!!
May peace and hope come daily to us all.
(It does appear that the last part of my video was cut off here, but should be complete on YouTube. I did go on to thank your organization even more!!!)
Benzodiazepine Information Coalition has helped me understand what I'm going through by consistently resarching and presenting facts. This organization helps thousands of us who are suffering from this class of medications. As well as being the voice for the thousands of us who are too ill to fight for ourselves. Superb organziation.
Wonderful organization fighting all the misinformation about benZodiazepine medications, instructing public and medical professionals about safe proscribing, and long term harm and disability caused by taking them as prescribed.
Great group trying to bring awareness to problems with benzodiazepines. As a family member With a loved one who has been damaged by benzo's I am very happy to see a group trying to bring this to the forefront. They have lots of interesting articles and information about this under recognized problem.
I discovered the Benzodiazepine Coalition while reading a self written obituary by a woman who suffered more in her final months from the withdrawals of a Benzodiazepine than from Ovarian Cancer. My 89 yr old father was prescribed Xanax more than 10 years ago. I strongly believe his quality of life has been destroyed because of this drug. At his age, I know he will never be able to tolerate withdrawing
from this medication
Benzodiazepine Information Coalition is a much needed organization helping to raise awareness of the dangers of these drugs - even taken in low doses and exactly as prescribed. Dr's seem to be unaware and unwilling to learn about the damage these drugs can and do cause when taken long term (more than 2 - 4 weeks) - diagnosing side effects and withdrawal as new or underlying issues. Considering that these drugs are handed out like tic tacs and promised "safe and benign in low doses" - education is needed. If you don't believe me - just do a google search for "benzodiazepine withdrawal" and what you will find is compliant patients who took low doses and exactly as prescribed - going through hell trying to free themselves with little to no support from their Dr's. They are the only organization devoted only to benzodiazepines. They are neither anti-drug nor anti psychiatry . They are for educating physicians and patients on the many issues that can arise from this particular class of drug. And they are doing a bang up job!
BIC is doing the groundbreaking work necessary to accomplish real change in how these meds are prescribed and how patients are cared for while on and getting off them. The leadership is relevant, solid, experienced, and individually outstanding and trusted in their fields. I have already seen great progress and important movement in the set goals which will change and save many lives.
Always truthful and informative. As a benzo survivor, this site is a godsend to the benzo community. It is my sincerest hope that medical professionals will utilize this site for information on benzodiazepines that they did not get in medical school so that prescribing practices can be more in line with what these drugs can and cannot do over the course of time. Benzo Information Coalition has life-saving information for anyone who may be prescribed a benzo by their doctor for any reason.
I am a physician, director at BIC, and benzo withdrawal sufferer. We are the only nonprofit in the US that is dedicated to raising awareness about the dangers of benzodiazepines. I became involved with this organization because I believe the general public and medical community needs better education about benzos such as Ativan, Xanax, Klonipin, and Valium. We are doing great work with a number of projects in the works and have the potential to help save countless patients from harm.
Provided information that has changed my life forever , for the better. Thank you!
Their information is good and needed. I have had some personal experience with some of
these drugs and I wouldn't advise people on there long term use'
They are the only people taking this issue seriously.
If it wasn't for Benzodiazepine Information Coalition, I would still be at the Doctor's office, trying to figure out what is going on with me. This site is extremely important for those who had the misfortune of Doctor's giving out this medication like candy, and for those who need information before getting on these highly potent drugs. The information provided by people who have been through withdrawals is so important to us that are experiencing something never imaginable.
This website has been invaluable to me, my friends and family, as a source of information on benzodiazepines. I have printed stories and information from this site for others, including doctors and shared links in order to help spread awareness about this class of drugs. I also use the Benzodiazepine Awareness Coalition address on the posters and stickers I put up around my city to help educate the general public about the dangers of these drugs. There are not many comprehensive sites like this around. I can count them on one hand. BIC is very important in my opinion, especially for the United States and Canada who lag behind the UK in terms of public education on benzodiazepines. There is just not enough being done to educate the public and the medical community, so BIC is a providing a great service!
This is a horrible place to be-having severe symptoms that started after beginning benzodiazepine (in my case for insomnia). I was on increasing doses for years and kept needing more to get the little bit of sleep I could. Then I tried to go off. Advice from doctors was to just cut dose in half each day. I went nuts. I started seeing things on the road that were not there-swerving on the highway and had to quit driving. I cried and had panic attacks constantly. (I never knew what that felt like before starting clonapin). Finally I asked the doctor to order the med in a compound. The compound pharmacist talked to me about SLOWLY reducing the dose-extremely slow and tiny cuts at a time, possible with compounded med. I have been off completely for 2 years and still have what I call flash backs. Sometime I am so afraid to drive that I just stay home. I since have found out that these drugs should not be taken more than 2 weeks. I remember constantly asking if I was addicted to the drug, but the sleep doctors said no, only if you took doses all day would there be dependency problems, but just taking at night to sleep I was not. How wrong they were. Every time I go to a doc in the box, when they read clonapin, they ask me about other drug abuse and if I am getting it on the street. Suddenly I am the criminal, not the doctors who wrote this prescription for over 10 years. The only supportive person in the system was the pharmacist. I went back to thank him when I had completed the taper and he told me I was the first person he had ever met who had managed to get off it. Then he said, good luck staying off. I am grateful to have found the benzodiazepine information Coalition. At least some people know this is real. I am lucky that I am older and could retire and not try this at work, though I think this is a disability and not an early retirement. My hope now is that I do not have too much brain damage and will not end up senile due to this abuse of my brain for so many years.
This organization works diligently to educate physicians and legislative bodies of the dangers of prescribing benzodiazepines. They work towards regulating dosing and put a name to the agony of withdrawal that many have endured. As a parent of a benzo sufferer I know the ravages this medication can cause and I strongly support Benzodiazepine Information Coalition 's work.
Information and online support from BIC helped my wife and I understand the problems my wife was facing. BIC filled a gap which the medical community has otherwise failed to address. We are very grateful for their much needed work.
This organization is crucial in informing the public of the dangers of benzos
My story is too large, to complicated and too traumatic to go into detail here and now. I will simply state that the Benzodiazepine Information Coalition is the one organisation that gives me the hope that I will find the answers to the appalling suffering and injustice I have been subjected to, at the hands of the U.K. Health Authorities with respect to the devastating consequences of longterm prescription of Benzodiazepines.
I lost 21 years and counting to a benzodiazepine, always taken as directed, and wish a outstanding organization like BIC had existed before I accepted taking this life destroying drug.