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- EIN 93-1045390
- 89 Break Dr Pittsburg CA 94565 USA
- http://www.turner-syndrome-us.org/
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Health, Specifically Named Diseases, Voluntary Health Associations & Medical Disciplines
Mission: The Society is a non-profit public service organization with a two-fold mission:To enable innovations in health for Turner syndrome women by: Working with health-care professionals to expand knowledge about the condition, its diagnosis, treatment, & prevention through research Promoting the successful rearing, affirmation, and support of individuals affected by the condition;To enable innovations in learning for Turner syndrome women by: Providing a public forum for communication of state-of-the-art information, exchange of ideas, and social support Increasing public awareness of Turner syndrome, its effects, & its possibilities.
Programs: Turner Syndrome Society holds 5 successful international annual conferences, with 400+ attendees for the 2000 Conference representing 20 countries; 13 successful U. S. conferences annually since the Society's inception; Unique outreach programs for teens since 1994, including special newsletter sections for Turner teens edited by Turner teens, summer athletic programs, camps, and art programs;Quarterly publication and national distribution of The Turner Syndrome Journal;Professionally designed Internet site with insightful medical information, including frequently asked questions and interactive Ask the Expert sessions;Effective implementation of annual giving campaigns, with 2000 receipts exceeding goal by 23%.
Donor & Volunteer Advisory
This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.