Over 1.8 million nonprofits and charities for donors, volunteers and funders

Averys Angels Gastroschisis Foundation

64 pageviews

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Nonprofit Overview

Causes: Health

Community Stories

3 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

"Gastroschisis is a birth defect that causes the intestines to protrude from a hole in the abdomen, typically to the right of the umbilical cord. Occasionally, other organs are involved as well. This must be repaired surgically after birth, although surgery is not always possible immediately and depends on many factors including the amount of bowel outside of the body. While approximately 90% of affected infants survive in industrialized nations with proper medical care, there is still a 10% mortality rate due to complications or related defects and infections ' even with the best medical care." -Averys Angels Gastroschisis Foundation.

Our gastroschisis journey began May 13, 2015. When Silas was born into my own arms, we had a complete surprise! He had his small and large intestines, stomach and liver born outside but still managed full closure at 7 hours old with no organ damage. He spent 22 days at the NICU. Silas had a second surgery at three months old for an umbilical hernia repair. We have been extremely blessed! I want to give the support I didn't know existed with AAGF and bring more research for families affected by gastroschisis!

Review from #MyGivingStory

General Member of the Public

Rating: 5

#mygivingstory is how my son was born with a birth defect called Gastroschisis in 2oo8. Gastroschisis affects 1 in 2229 babies, at the time i knew nothing about it. About a year or so later i found a group called averys angels Gastroschisis foundation and started following them. Through the years it grew and grew. In 2014 i decided to use my personal truck and personal funds to decorate my truck with decals to help riase and spread awarness about the growing birth defect. I dedicate my time and resources participating in parades throwing out candy and awarness cards, particpate in car shows and drive to other towns to meet other gastroschisis families. This year i travled from Missouri to Florida to participate in the Gastroschisis Awareness Day and to allow other families to see the truck. I plan to go to different awareness day events in other states to almost everyone can see the truck. I have names of survivors and angels on the hood of my truck. They are all belly button superheros. I donate to, buy books and clothes from the foundation to help raises money to continue to raise awarness, research, mail care packages, give scholarships and be support. None of us get paid, its all volunteer. I plan to start taking the truck to hospitals so other kids and families can see the truck and just be someone there to talk to.

Review from #MyGivingStory

General Member of the Public

Rating: 5

#MyGivingStory began over 4 years ago when I was pregnant with my daughter who was diagnosed with a rare birth defect called gastroschisis. We were brought into this #raredisease after an ultrasound which confirmed my daughter was going to start her journey in this world in a tough way. I was so scared and confused, until I found Meghan Hall and Avery's Angels. Meghan Hall is the definition of selflessness. She lost her son Avery to gastroschisis and began Avery's Angels Gastroschisis Foundation to provide support and answers to families all over the world who needed a glimmer of light in their dark journey. The long NICU days and nights with my daughter were lightened by the support Avery's Angels provided. My daughter's strength to overcome each obstacle in her own way showed me a strength I never knew existed. I reached out to Meghan and offered to become a volunteer for Avery's Angels to provide support for families all over the world who were shocked and scared when their baby received the same diagnosis my daughter did. For over 4 years now, I give my time, energy, and support to help others in our gastroschisis tribe in any way I can to make their journey a little easier, as Meghan and Avery's Angels did mine. We host events for families all over the world to come together to meet other families who better understand gastroschisis as it is also a part of their life. Avery's Angels provided care packages to newborns in the NICU with gastroschisis, emergency funds when able to angel families who lost their baby or child to gastroschisis complications, funds for research grants to find answers for our families on the causes of gastroschisis, and many more programs to help those affected by gastroschisis. Why do I give? I give because I am empowered by a woman and an organization of others who give selflessly to those who encounter a similar journey. I give back because of those who were there for me and my daughter on those late NICU nights when we were not sure what to do. I give because my daughter taught me strength in life and I thrive on that to help those I can with their own gastroschisis journey.

Review from #MyGivingStory