The Autoimmune Registry brings attention to a number of ailments that are largely ignored by more mainstream organizations. My wife's Sjogrens Disease went undiagnosed for over ten years, and even today there are extremenly few medical organizations that provide some relef for this often debilitating condition. Our own hospital system, Lahey-Beth Isreal has no one familiar with Sjogrens. Fortunetely we have access to Tufts Dental School which does have a very small Sjogrens-kwowledge staff.
Thr ARI,I hope, will become a significant advocate for this and other ignored diseases that the more popular non-profits ignore
The Autoimmune Registry featured my Sjogren's patient diagnosis story allowing me to share my personal story as a way to spead awareness about Sjogren's disease, a complex and serious systemic rheumatic autoimmune disease. The Registry is dedicated to advocacy and research on behalf of autoimmune patients.
This organization has been so valuable as someone with a newly developed chronic disease/disability. I’ve learned so much about my conditions, research and treatments. The best thing is it’s accessible and not behind a paywall which means I can access much needed information to help me navigate and I can share with others suffering.
The passion and focus they bring to finding a cure to otherwise underfunded or under researched diseases and disorders is amazing!
This is a trusted, informative, and extremely helpful organization! This website has science-based information about treatment for diseases.
This is a fantastic organization and source of so much valuable data and insight. Having this trusted information available is so important and the optimism it provides is invaluable. Thank you!
The work you are doing is so very helpful to those struggling to find credible information. I wish you continued success.
A wonderful organization that offers very important research and information for patients and their families.
As someone deeply concerned about the impact of autoimmune diseases on individuals and families, I wholeheartedly support this non-profit's mission to advance research and support for these conditions, which have far-reaching consequences on the lives of many.
An exceptional organization that assists patients in discovering the resources and reliable information required to find a cure for their autoimmune conditions.
THE trusted source for patients with autoimmune diseases. Great to find credible, scientifically supported information available through this organization
This is a trusted resource with many clear ways to find answers about autoimmune diseases. I am grateful for this resource.
As an autoimmune disease patient, I am very supportive and appreciative of this organization's mission.
Really important organization whose underlying mission is to highlight autoimmune diseases as a disease class. ARI is also very focused on connecting patients with valuable resources related to specific autoimmune diseases.
The organization also provides a valuable database that’s critical in connecting patients with clinical research.
The registry focus on the patient is what I genuinely enjoy. The information is vital. The blend of Patient, researcher, and advocacy makes it a one-stop source that has helped me on my medical journey. I believe in raising awareness and advocating for autoimmune disease research and support. The prevalence of these conditions touches so many lives.
The Autoimmune Registry actively engages with its registrants, advocacy groups, and healthcare professionals in order to amplify their impact. Through this collaborative approach, ARI ensures that the voices of patients are heard and that the necessary resources are allocated to address the needs of those affected by autoimmune diseases. The ability to bring together diverse perspectives and expertise is ARI's strong suit which is also a testament to its dedication to making a difference.