Kids with Food Allergies helped me so much when my children were first diagnosed with life threatening food allergies. Our allergist simply gave us paperwork and sent us on our way, but KFA, they saved us. They helped me find foods that were safe (when we were avoiding upto 9 food allergens) and they helped me through our first scare. The community of volunteers is completely amazing, helping with recipes and food substitutes and phone contacts for companies. They help remind us that we are not alone when we are fighting the schools to meet minimum needs for our children. And their gatherings are the greatest, for once, my son didn't have to worry about what would be safe to eat, it all was safe. He had the opportunity to meet others like himself and to not be singled out for the trip, it was the most amazing life experience that he still talks about today (two years later). Without them, I'm not sure that we would have made it.
I ran across AAFA a while back when my son was diagnosed with Asthma - this has been such an asset to our family! Such a wealth of information! I'm so thrilled to know that organizations like this exist to advocate for the thousands of us! And, EDUCATION! - THANK YOU!!! Such a great resource for us!
AAFA is a wonderful foundation that provides a plethora of information and resources to those suffering with allergies and asthma. It is our family's "go to" website when we have questions or concerns
As an individual with severe peanut and treenut allergies as well as asthma, it is very important to me to make sure awareness for such conditions is recognized and improved, and that research for cures is advanced. The AAFA has goals that align exactly with these ideals of mine, aiming for education on the conditions, advocacy to ensure those that suffer from allergies or asthma are not disadvantaged (as I and many others have often experienced), and research to some day find a cure for the chronic conditions. I felt so happy that these goals for individuals with food allergies are being worked towards by this organization that I supported the AAFA through a benefit concert. When I donated the money raised to this non-profit, I felt incredibly happy to be supporting such a wonderful cause. The AAFA is an organization that helps a growing number of people across the nation whose conditions need a voice and I thank them for their efforts.
AAFA provides much-needed resources for those of us dealing with asthma and environmental allergies. Asthma is a complex condition, and AAFA's educational materials help the newly-diagnosed climb the steep learning curve.
I am a life-long severe asthma sufferer; nearly 48 years. Though I have learned and educated myself over the years, AAFA is by far the best resource I have found. I only wish they had been around when I was a kid. Their educational resources, events, health campaigns and many resources on how to live a full life as an asthma sufferer are far reaching. I absolutely support this organization and continue to use them as my own resource.
As a mom of a son with multiple food allergies, AAFA provides a wealth of support, resources, news and information that's relevant to our family and the realities of living with food allergies.
AAFA is a great organization. They provide my family with tips, resources, and other information on how to help manage our son's asthma. Everyone is friendly and personable.
I have been suffering from allergies and asthma related to Churg-strauss Syndrome for five years now, and about 2 months ago, while looking up information, I came across this forum, and began reading some posts related to asthma and allergy. I have had difficulty finding the type of support this group has been able to provide. What started off as just a brief sharing of experience quickly turned to a place I could go regularly with a steady group of people and some occasional drop-ins as well, always providing a variety of information. The people in this forum are respectful, empathetic, full of great information, and personable, and the level of support I have from something online--which I never thought I would be able to connect with people online-- it has been great. The forum topics are easy to start, the managers are very active and great at welcoming new members, asking questions, keeping up with long-time members, and posting new interesting information, so that the support page is always fresh and informative, while at the same time comforting and supportive. It has really been an amazing resource for me.
AAFA is a fabulous foundation that provides tremendous support and encouragement for those dealing with Asthma and Allergies. I am grateful for their continuous support to those suffering and those who are looking for information that is research based.
Back in March I was hit by pollen that no one else knew existed and my allergies which I have always had took a new turn and went beyond my eyes and nose and affected my breathing. I was given an inhaler and sent for allergy testing. After many positive results and an asthma diagnosis I was sent home reeling, me, asthma? But I am healthy, I just have allergies. Little did I know the night time coughing I was dealing with the last year + was also a form of asthma. A bit more reading led me to realize those "tough" work outs I had were exercise induced asthma. Wow.
Part two, June I had my first "oh my, I am drowning, dying, suffocating" asthma attack experience. It was terrifying. I searched for answers and help. I can't tell you how much of a relief it was to find this community and it's members. NO WHERE else did I find people who were new and old to the dx but all unusual, refractory or complex in some way. My asthma is not typical and my response to medication has not been great. What has seen me through this journey of doctors, med changes and attack after attack is the people on here who coach me, encourage me and share experience. Down to what questions to ask my doctor, they care and share. Over the next few weeks and into July I became labeled as " difficult to manage" and then " moderate, persistent". Come September I had different, worse, terrifying attacks that ended up in calling 911 and ED visits. I am a veteran nurse and I met challenges that put me down in the bed wondering what to do and where to go for help. This illness has brought me down to what is really important, to just wanting to live, to work and to have more meaning to each day. The support I have had from AAFA has made me want to help others. I can't help but appreciate the people who dedicate themselves to this organization. The members have pulled me through some rough times. It helps to focus on others and when I am down I feel them focus on me, it helps. The AAFA online community is a part of my DAILY life. I don't know how I would cope without them. All I found online outside of the people in the AAFA Support Group is basic asthma information. We, my friends online here at AAFA don't fit into the mold of basic asthma 123. We are the hairy, scary asthmatics who may or may not wheeze, are allergic to nothing or EVERYTHING, we take meds almost hourly or get the latest shots or have Churg Strauss, we are the outliers, the hard cases and exceptions. Somehow we found each other and it is a glorious gathering of misdiagnosed, misunderstood and challenging patients who help each other navigate this illness and conquer what we can while never giving up hope or searching for answers. We appreciate every good day and lift each other up. I give it all the stars.......
AAFA has been a great help to me and to my family since my DD was first diagnosed with food allergies several years ago. We both have asthma as well, and the resources and information on the AAFA website and their sister site Kids With Food Allergies are terrific.
I applied and was hired for a staff position a few months ago, and the reason I applied to begin with was that I was incredibly impressed with the organization as a whole. I've not been disappointed -- these folks really care about their main mission and want to help people of all ages manage asthma and allergies.
Very reliable and ethical organization, and very much needed with the sad growth of asthma nationwide...so glad they are here for us