The AAFA team is truly wonderful to work with—they are passionate, kind, and deeply committed to making a meaningful impact for the asthma and allergy community. They provide an extensive array of high-quality resources for both patients and clinicians. These include continuing medical education and patient education, such as insightful webinars packed with excellent information on the diagnostic process and treatment options for asthma, allergies, and related immunological conditions. I would highly recommend AAFA to anyone seeking to learn more about asthma and allergies or looking for exceptional, impactful resources.
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AAFA is a mission-driven and passionate organization dedicated to reducing the burden of disease for people with asthma and allergies. They provide an extensive amount of resources, both for patients and clinicians. Their resources include continuing medical education and patient education, which are insightful webinars with wonderful information on the diagnostic process and treatment options for asthma, allergy, and related immunological conditions. I would highly recommend AAFA to anyone wanting to learn more about asthma and allergies or looking for high quality resources.
I am a parent and my oldest daughter was diagnosed with food allergies (egg and oat) when she was 9 months old. Not having any food allergies, we didn't know how to manage them or who to turn to for help. The services provided by AAFA helped us a lot. The recipe database helped us figure out how to still have birthday cake and homemade muffins and other foods that the entire family could enjoy. We are appreciative of the services that AAFA provides to families with kids who have food allergies.
As a pediatric allergist and medical advisor, I have had the privilege of collaborating with the Asthma and Allergy Foundation of America (AAFA) on many initiatives, and I cannot overstate the importance of their work in supporting both patients and their families. AAFA provides a wealth of resources that are not only evidence-based but also highly accessible for those navigating asthma and food allergy. Their commitment to education, advocacy, and research is commendable, and their collaborative efforts in advocacy and community education make a tangible difference in the lives of children and families dealing with these chronic conditions.
I am a student running an early-stage MedTech startup, and the AAFA has been incredibly helpful! They featured us in their newsletters and blogs, which allowed us to gather invaluable insights that we couldn’t find anywhere else. The team is easy to work with, extremely understanding, empathetic, and provides outstanding customer service. Unlike many other patient advocacy groups, the AAFA was willing to collaborate with us, and I am truly honored by their support.
AAFA is an incredible organization that supports the vital and pressing concerns of the allergy and asthma community. As a person with food allergies, I have looked to AAFA for guidance when it comes to allergen management. As a student and researcher, AAFA greatly aided me in my work on allergen labeling policies. AAFA serves as an excellent consultant and an important connector for researchers. The research team at AAFA is top tier and is dedicated to elevating work on allergy and asthma. Their expertise in the space serves the best interest of their constituents and raises awareness for allergy/asthma. AAFA consistently displays the utmost care and attention to detail in their work.
I am so grateful that I find AAFA! Prior to joining i want knowledgeable as I am in regards to my condition of having chronic rhinosinusitis with nasal polyps. AAFA has also allowed me to share my story on there platforms in assisting other CRWNP patients with understanding the condition, how to manage the condition and current effective treatment plans. I will continue to use AAFA platform to educate myself as well as share information about the platform with friends, family members and others within my community.
AAFA has helped me learn so much more about my allergies in the last few years since I started getting their newsletters! Very informative information written in such an accessible way. Thank you!
AAFA (especially the website) has been a source of helpful and valuable information for me. The moderators are warm, welcoming and very responsive, and the Forums offer a ton of insight, advice and updates on issues that affect the asthma and allergy community.
AAFA is an incredible organization for the allergy and asthma community to find bountiful amounts of resources and support in navigating through your own or a loved one’s journey!
AAFA has been a great resource for my asthma & allergy organization since 2018. They provide educational information that I can share with my community. I’ve learned so much from them.
Review from Guidestar
Asthma Approach, a student led non profit, has had a highly positive experience partnering with the Asthma & Allergy Foundation of America National (AAFA). As an organization dedicated to raising awareness and advocating for asthma patients, we have found the resources, research, and support provided by AAFA to be invaluable. Their commitment to advancing asthma care and allergy education aligns perfectly with our mission.
Through our collaboration, we’ve been able to participate in meaningful events, leverage AAFA’s educational materials, and connect with a wider network of advocates. Their dedication to community engagement and public health initiatives has not only elevated our efforts but also empowered us to make a greater impact. Whether it’s providing reliable health information, supporting policy changes, or connecting patient communities, AAFA truly stands out as a leader in the field.
Overall, working with AAFA has enhanced our capacity to drive change and provide better support for those impacted by asthma and allergies.
I lost my 19-year-old sister, Marisa Smock, on May 6th, 2015 to a fatal asthma attack. I wish I wasn't a part of the AAFA community after experiencing this loss, but this organization means the world to me for the support they've provided and for helping honor my sister. My only hope is that more people learn about AAFA while they are struggling with asthma and allergies so that they can be informed, supported, and heard before it is too late. Thank you to everyone at AAFA who knows and shares Marisa's story and is working so hard so that there are fewer deaths from asthma.
As a health educator in an asthma self-management education program at our county health department, I have relied on AAFA for data, information, instruction, and promotional materials to share with our participants and the public regarding asthma. AAFA is a great resource for us and the people we serve!
AAFA is an exceptional organization. We have been associated with the AAFA since 2021, after the tragic death of our daughter Alessandra, due to a severe attack, AAFA raised our awareness of the dangers of Asthma and we shared our story that was presented to an FDA Panel. This is why we started our charity , A Breath for Alessandra. Our goal is raise awareness of the dangers of asthma and to obtain the proper treatments.
AAFA was present at our annual Golf Outing in 2023, to provide information on asthma ,to raise awareness of our attendees. The attendees of the golf outing were impressed, especially those who suffer from asthma or have loved ones who suffer from asthma.
We are very proud to be associated with such a great organization
The Del Principe Family.
An amazing organization that is dedicated to the care of individuals with asthma and allergies. Not only are they looking to make things better for patients and families now, they are also committed to funding future research projects and make new discoveries. As a medical professional, I have worked with them both clinically and on research projects and am amazed at what they are able to accomplish.
I am an autoimmune CSU patient of 27 years now and 3+ years ago I found AAFA and can't say enough great things about this foundation! I originally thought I would join the AAFA community network to seek advise from others like myself dealing with CSU and explore treatments via recommendations of others. I ended up being the one telling my story and giving advise and support to others who were new to CSU and desperate for help. Having so many years of experience with the disease made my knowledge more helpful to others than I would have ever imagined. There is nothing more special than being part of a community where you can seek and also provide advice and guidance to people during a critical time of need. AAFA has been instrumental in my journey of support and education over the past few years and is an amazing source and outlet for so many others as well. Their community network of support is essential for so many and their work to further research and educate is top notch!
I have struggled with asthma and allergies all my life. I have found the Asthma and Allergy Foundation of America has the most extensive educational resources. I am also a teacher and must assist students with asthma and allergies. Through the resources AAFA offers I have been able to answer any questions I might have. I highly recommend AAFA!
I’ve come to find AAFA invaluable for resources on asthma and allergies. They are, in my opinion, the most comprehensive and supportive. One of the best resources are their online forums. Anyone in the community is welcome to participate and share their experiences. A lot of incredible information comes out of those conversations, and the sense of community is something I haven’t found anywhere else. The staff on the forums are always kind, knowledgeable, and patient whenever there are questions. Highly recommend!
I found AAFA probably five years ago, it is an amazing organization. They have helped me find products that are allergy friendly. AAFA also keeps me informed about new medications being tested and if they are approved or not. The best part of AAFA is the community, they have been able to answer any questions I have had and will lead me in the right direction to get help for different aliment.
When our son's pediatrician prescribed him albuterol for a cough and wheezing, I was a little nervous. I didn't know anything about asthma or what to do. I didn't know how to give him medication. I took to google to find information and that's where I found AAFA... and all my answers. Not only did I find videos on how to properly administer medication, but I also found a community of people going through the same thing as me. Thank you AAFA, we breathe a little easier every day because of you!
As an Asthmatic, I feel like the AAFA brings an authentic intent toward understanding the intricacies of my experience as a black man with this disease and finding ways to improve my experience. Furthermore, I am grateful for the organization's aim to amplify my experience thoughtfully to create a better future for others like me.
AAFA does an outstanding job of providing education and resources to people who have asthma and allergies. Given the general lack of knowledge and information about asthma in the US, exacerbated by many unfounded myths and harmful home remedies, AAFA's work is not only essential, but even life-saving. Its website, newsletters and informative podcasts offer excellent resources not only for people with asthma and allergies, but also for parents, teachers, medical professionals and community organizations. They are also the only nonprofit I know that advocates for better asthma care and policies at the national and local level, as well as encouraging policies and programs that address the structural inequities that place the burden of asthma disproportionately on poor and non-white communities.
I have worked with AAFA on and off for almost two decades and am proud to support and fundraise for them. Having been born with asthma, I am delighted to work with such a great organization that gives hope and help for those who suffer from this incurable disease.
AAFA's commitment to making a tangible difference in the realm of asthma care and awareness cannot be understated. Their announcement of the HEAL Initiative - aimed at building and supporting community-based interventions to address asthma-related inequities - stands testament to their proactive approach. The data doesn't lie: asthma, tragically, disproportionately affects low-income or racial and ethnic minority populations in the U.S. Such disparities in asthma prevalence, mortality, and healthcare utilization are stark and deeply concerning.
But in this challenging landscape, AAFA emerges as a ray of hope. The Health Equity Advancement and Leadership (HEAL) program is a significant stride toward reducing health disparities in the communities most affected by asthma. By investing in local partners and communities, they're working to create lasting change.
On a deeply personal note, AAFA's initiatives, particularly the HEAL program, resonate with me profoundly. I lost my daughter to asthma, a heart-wrenching experience that no parent should ever have to endure. Understanding the disparities and challenges many face in accessing adequate care, AAFA's work becomes even more pivotal.
Being a monthly donor to AAFA, I see where the heart of this organization lies. Their commitment to making a difference, their vision for a world where asthma doesn't dictate life outcomes based on socioeconomic or ethnic backgrounds, is commendable.
To anyone reading this review, I urge you to delve deeper into AAFA's work, especially their HEAL program. Support them, join their community, and be part of the change. I am immensely grateful for AAFA and their relentless efforts, and I believe that together, we can bring about a world where asthma disparities are a thing of the past. - Carla Smocks
I am at the parent of kids with food allergies, eczema and asthma. As I help manage their conditions, AAFA’s online community and Kids with Food Allergies has been very helpful to me. It’s a trusted source of information. I also appreciate the patient advocacy work that AAFA does for people who have these challenging chronic conditions. AAFA is doing important work get better access to medications at reasonable costs so it’s easier to manage asthma and allergies.
I live with chronic eczema and allergies, so AAFA's mission hits close to home for me. I've found their resources valuable, especially during COVID-19. I'm glad that they are spreading awareness about chronic conditions, so everyone - families, restaurants, food manufacturers - take allergies and asthma more seriously.
Aafa is a wonderful organization. About 5 years ago I had developed adult onset asthma almost overnight. I have Copd, but this was different and I was getting the runaround, or just plain dismissed since i already had a diagnosis of COPD. Because of Aafa, their educational materials, blog and community forum, i gained an understanding of what could be going on, and how to arm myself with information to be sure I was getting the proper testing and a targeted treatment plan for my individual needs. I have recieved so much support and information from this organization on understanding and how to control and live better with my asthma and allergies. The forum has been a godsend, sharing and supporting each other through good times and bad. Ive learned many tips and tricks managing my asthma and allergies and just plain having fun. The organization itself is well respected and full of top experts on asthma and allergies. There are many educational materials, virtual programs and webinars with top hospitals, researchers, and doctors, and opportunities for patient advocacy. Aafa works very hard to represent the asthma and allergy community, and big on representing kids with athsma and allergies. They introduce and advocate for new laws, regulations and guidelines on treatment. They have an extensive allergy and asthma product certification program, and have helped with advances in treatment and management of asthma and allergies. They have a lot of influence in govt. And research programs and conduct their own research studies and reports that benefit not only asthma and allergy patients and families, but the public at large, via clean air initiatives and addressing the needs and problems of those underserved in the asthma and allergy community.
I could go on about what a fantastic organization this is, but the bottom line is they save lives! Im sure that without aafa, i would have gone into an asthma crisis with a very bad outcome, and I'm positive they have improved my quality of life trying to manage this complex condition, and I am here today writing this review thanks to them!
Review from Guidestar
This foundation is very helpful with information that is useful for every day. The staff is very kind and easy to communicate with. I appreciated every encounter with them.
Since joining AAFA's fundraising team in 2018, my daughter was diagnosed with multiple food allergies, and I was diagnosed with asthma. AAFA's educational materials have helped me understand and manage our conditions. Now I'm comfortable talking to doctors and asking questions about our conditions and treatment options. AAFA's online community is a great place for support and practical tips from people who have been in your shoes. I'll always be grateful to the community members who supported me during the early days of our journey with food allergies. Thanks to the online community, I was able to make my daughter a first birthday cake, despite her restricted diet. The online community was there for us again as we prepared for our first oral food challenge. The support and tips I received alleviated a lot of my fears about the test. I am so grateful for the support and information that AAFA provides.
AAFA is a first-rate top notch non-profit that prioritizes the patient first! It is a pleasure partnering with them on their federal advocacy agenda.
AAFA's staff is top notch and a fantastic advocate for those with asthma and allergies. My child has some minor allergies and I go to the website often to look and use their resources. They are very effective in Washington DC with policy issues and then do a great job of translating all of their policy work to practical guidance for patients. I highly recommend this organization!!
I work with AAFA as a consultant and I'm also a family member of a child with food allergies. Professionally, AAFA is full of wonderful people who serve their mission with enthusiasm and commitment. Personally, I have found their materials to be incredibly helpful in navigating my child's food allergies. They're a wonderful organization!
Hello! I am a 59 year old woman who shares her life with severe uncontrolled eosinophilic asthma and COPD. This means that I am always on the lookout for new information about my health. The AAFA is a great place to read about so many topics, such as medications, weather, pollen, and other people's experiences.
I have found that being a member and being active in the AAFA community has helped me significantly. I am able to interact with other asthma and allergy patients. I learn how others cope from day to day. I have made some very good friends along the way.
I highly and strongly recommend the AAFA for all of your asthma and allergy needs. I'm sure you'll find an answer to your question. I'm sure you'll meet some very friendly people.
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My first child was diagnosed with multiple food allergies when he was 6 months old. It was so incredibly overwhelming and disheartening at first. AAFA, and specifically their forum Kids with Food Allergies, helped me navigate this difficult process. I am so grateful for AAFA and the work that they do in spreading awareness about food allergies.
My son has a hypopigmented nasal traverse crease from years of unchecked allergies, and the internet is very vague as to how it can be treated. While he sought out a dermatologist, he was told there wasn't much they could do. I reached out to the free online allergist and am so grateful for his response and he encouraged us to go for a second opinion and gave us hope. We have an appointment in two months. I am so grateful for this nonprofit and an actual doctor caring enough to answer our question as we just moved to NY and do not have new physicians yet. Thank you so so much.
I have been diagnosed with asthma and know nothing about how to clean up the quality of air in my condo in Denver,Colo. I spend 90% of my time at home. Home is where I tend to have all my flares. Zulema Uscanga called me and provided me with a wealth of info. I so appreciate it. I will be having my vents cleaned in my condo and will be steam cleaning my carpets and bedding. I will be making an appt this week with an allergist to see what my triggers are. I am looking forward to chatting with otherpeople who have asthma on the support line. Thank you for your prompt response and many thanks for the super helpful info! Deb English, Denver,Colo
Review from Guidestar
I enjoy Asthma Allergy Foundation of America because they have so much information on both asthma and allergy. I am a parent of two children dealing with asthma and I have asthma as well. This prompted me to pursue a career as an asthma educator so that I could help families better understand asthma.
I use AAFA materials to help keep me updated on the latest new and treatment as well as a way to help me advocate for families that are dealing with asthma.
AAFA has been so amazing to my daughter and I. My daughter has chronic lung disease and AAFA has been a vital organization to help get us connected to resource and have given us the platform to share our story to help other families. So thankful for this organization and the work they are doing. We love our AAFA Family.
AAFA has allowed me to share my story of asthma and allergies in a positive light in which I can beneficially give back to the health community! It is truly amazing seeing their members' hard work to accomplish improving conditions for those with asthma and allergies.
This foundation is phenomenon! They are doing the best that they can to help with families who suffers from asthma. They are my go to on any information relevant to asthma. My son Javan and I would like to thank you for allowing us to be advocates in this field. So many don't know how serious it is.
Thank you again.
The AAFA (Asthma and Allergy Foundation of America) is a wonderful organization working so hard to enhance life, raise awareness and support people and families living with asthma. I recently had a chance to serve on a live zoom panel to facilitate discussion during the virtual Pediatric Asthma Patient Focused Drug Development (PFDD) Meeting on September 20, 2021 and they gathered a great group of participants as well as moderators to have a great conversation. So much learning and sharing took place. I’m extremely grateful for their space in the asthma community. Thank you AAFA for allowing our voices to be heard, for listening and looking forward to more collaborating!
Our Students at Iona Preparatory school were able to stand in solidarity with the Asthma and Allergy Foundation by raising over $1,000 for their student peers with allergies. I appreciate the recognition given by the foundation to our students, with a personal letter and masks to support their work!
When my daughter was a baby we discovered she was allergic to many things, some transmitted through breastmilk. It was so hard to figure out how to deal with everything. I found the kids with food allergies website and was able to learn what to do and how to find foods we could eat. Everything from a nearly allergen-free first birthday cake to reading comments and experiences from other parents. Luckily, she has outgrown all her food allergies except peanut/tree nut. This foundation helped us navigate those early scary and new days.
Our overall experience with AAFA was fantastic. Mr. Cole Clementson is caring, proactive and super knowledgeable. He was efficiently in replying to every email. He did an amazing job following up.
Tremendous value add from KFA's education and advocacy work for families managing food allergy and asthma. For example, KFA made downloadable image resources available to the community for May Awareness month! Huge help to people trying to spread the word. Also circulate food recall info to help people avoid consuming unsafe foods.
I really really do like yalls Asthmatic and Allergies group because yall are so very important to me on the inside because I'm A Very important Asthmatic and Allergies Gal ok.
I absolutely love the AAFA! They have such good sources & are always there! I have become friends with a few people I met through AAFA & I will forever be grateful for them! THanks to the AAFA, I have went a far ways in life after them publishing articles about my journey. Thank you Asthma & Allergy Foundation of America!!!
Previous Stories
This is an amazing nonprofit organization. AAFA is dedicated to helping patients with asthma and allergies. The organization shows its dedication through its support of patients and its unwavering support of staff.
AAFA is a well run, mission driven organization with an exceptional staff. The organization works hard to meet the needs of all individuals and families with asthma and allergies. This year AAFA has supported its community with advocacy, critical information about COVID-19 to support the community and the publication of a report on disparities to raise awareness and improve treatment and management for racial minorities with these conditions.
The Asthma and Allergy Foundation of America (AAFA) provides outstanding educational and support services to individuals and families suffering from asthma and allergic diseases. They have a robust social media presence and online community. They have been at the forefront of providing unbiased and clear education on COVID-19, and were one of the first groups to provide clear advice on COVID-19 for people suffering from asthma. Their work has even been utilized by the CDC, amongst others. For someone looking for a non-profit that really supports the emotional needs of patients and families suffering from asthma and/or allergies, I would most strongly suggest looking at AAFA. They really are an exceptional organization in this space!
Focused on mission and advancing services to diverse asthma and allergy communities across the country. I have the honor and satisfaction of serving on the board and assessing the high standards and professionalism of the management team and volunteers.
Exceedingly effective and responsible in advancing its mission on behalf of people living with asthma and allergic disease. Always more impactful than expected.
An amazing organization! Working for our patients everyday! I am proud to be a member of it’s Board of Directors.
I have been a board member at AAFA for over 15 years. Former chair of the board and committee chair. The work this organization does on behalf of the patients, parents and caregivers is remarkable. With the addition of Kids With Food Allergies we have expanded our reach and impact tremendously.
Really helpful in directing me to basic information as a newly diagnosed person as an adult. Took education courses, read their materials, and used some of their patient support options.
They post reliable, evidence-based information and are kind and compassionate. I am comfortable directing people there for information.
The resources that AAFA provides are tremendously helpful in helping people live with their asthma. Their advocacy to raise awareness of living with Asthma and also make asthma medication affordable and accessible is a great charter for patients.
Passionate, dedicated, committed to serving the asthma and allergy patient. This is an organization that truly lives it's mission. The team at AAFA works relentlessly to improve lives through education, tools, and community.
AAFA is a trusted and leading patient organization for people with asthma and allergies. It's mission is to save lives and reduce asthma and allergy disease burden in the patient community through support, advocacy, education and research. Of particular note, it is invested in charting solutions with goals to remove disparities that disproportionately impact underserved patient groups afflicted by asthma and allergies. They also serve as a leading voice on behalf of patients/caregivers, raising awareness and securing commitment from legislators to enact policies that help to reduce the impact of asthma and allergies in the US.
Great organization! I appreciate that AAFA provides very helpful day-to-day tips about living with allergies, and also conducts solid advocacy for sensible policies at the national level.
AAFA is a really great organization with lots of efforts from tips & support for managing asthma & allergies in day to day as well as support and research into the overall field. They have a strong mission and leadership team and responsive and plugged into their communities
AAFA plays a unique role in the asthma and allergy community by bringing together a community where multiple conditions (asthma, allergic rhinitis, food allergies, eczema, etc.) exist. AAFA's efforts in advocacy have been especially notable in 2020, spearheading efforts across multiple nonprofits to drive key legislation, including food labeling and school-based management. AAFA always puts the interests of its constituents first.
This is a fantastic charity that provides medically vetted information to those with allergies and asthma and is working to close the gap in health disparities.
Thanks so much for the insight on air cleaning devices and really good resource information.
Great support system!
AAFA is a fantastic organization with wonderful resources to support and educate the community members and healthcare professionals. They are a great resource for advocacy of legislation to support the community as well!
I have severe animal dander allergies and have developed a serious chronic allergic disease over the years that has been disabling. AAFA has been so meaningful for me. I have been able to connect with others who suffer from allergic and asthmatic diseases and have responded to my posts with compassion and understanding, and shared the ups and downs of their experiences with me. It has given me strength, education, validation, and helped me to feel heard. Advocates and organizers of the group have helped advocate for myself and others to large organizations that never responded to me alone. For instance, they recently spoke to the airlines regarding those with animal dander allergies. I feel blessed to have a strong group like AAFA help with these issues when I have felt weak and small. It really helps. I have also found certified products, education, checklists, studies, news, blogs, etc. I personally was able to review a nebulizer from a company through AAFAs website and got a free travel nebulizer as a result. I have made friends in the internet community there. This is a non-profit group that works and has truly made a difference in my and others lives and connected me to the community when I felt very isolated and alone.
AAFA has been such a HUGE help with its resources for asthma patients. The support forum has been amazing and the opportunities that I have had through AAFA to speak or present at conferences or do interviews to help raise awareness has been phenomenal. I would not be where I am in my disease knowledge without them.
A nice source of reliable asthma education. Their free online program for adults is especially helpful if you live someplace where it is harder to get asthma education or need a refresher.
I found AAFA searching for support and people that truly understood what it is like to live like we have to. What I found was much much more. AAFA does an AMAZING job of providing education and resources to help us manage this disease. I've been very fortunate to have done several interviews for publication as well as speaking engagements on my life with asthma because AAFA reached out to me. The forums gave me the courage to step out and be an advocate for not only myself but others with asthma. Without the support and friendship that I've gained on the forum, I would never have done any of that. I can't say enough good about what AAFA is and what they do.
Asthma and Allergy Foundation of America is a great resource and has a great supportive forum. You are able to talk about anything and everything that affects your asthma and allergies!!!
The Asthma and Allergy Foundation of America and it's forums has helped me through some very challenging times with my severe asthma.
The other members on the forums are, to a person, supportive and generous with their asthma experiences and how they "live with asthma". It helps so very much to hear from others who have been down the same path and are willing to share how they cope.
The moderators are always supportive and point the way to good, solid, research-based information to answer many of our questions.
So grateful that I found the AAFA and it's forums!
I was recently diagnosed with severe uncontrolled asthma and AAFA has been a life saver. I came across this group by chance after a google search while trying to learn more about my disease. Not only does AAFA offer a wealth of information about asthma and allergy, such as free online courses about asthma and severe asthma, but they are also active in advocacy to promote inclusion and equality at the national level. Additionally AAFA sponsors an online community on its website where patients can connect to learn from and support others with this disease. This community has been instrumental in my recovery after a hospitalization this winter. Overall, the AAFA is an incredible organization that helps so many people live active, productive and happy lives despite being diagnosed with a terrible life altering disease.
Kids with Food Allergies helped me so much when my children were first diagnosed with life threatening food allergies. Our allergist simply gave us paperwork and sent us on our way, but KFA, they saved us. They helped me find foods that were safe (when we were avoiding upto 9 food allergens) and they helped me through our first scare. The community of volunteers is completely amazing, helping with recipes and food substitutes and phone contacts for companies. They help remind us that we are not alone when we are fighting the schools to meet minimum needs for our children. And their gatherings are the greatest, for once, my son didn't have to worry about what would be safe to eat, it all was safe. He had the opportunity to meet others like himself and to not be singled out for the trip, it was the most amazing life experience that he still talks about today (two years later). Without them, I'm not sure that we would have made it.
I ran across AAFA a while back when my son was diagnosed with Asthma - this has been such an asset to our family! Such a wealth of information! I'm so thrilled to know that organizations like this exist to advocate for the thousands of us! And, EDUCATION! - THANK YOU!!! Such a great resource for us!
AAFA is a wonderful foundation that provides a plethora of information and resources to those suffering with allergies and asthma. It is our family's "go to" website when we have questions or concerns
As an individual with severe peanut and treenut allergies as well as asthma, it is very important to me to make sure awareness for such conditions is recognized and improved, and that research for cures is advanced. The AAFA has goals that align exactly with these ideals of mine, aiming for education on the conditions, advocacy to ensure those that suffer from allergies or asthma are not disadvantaged (as I and many others have often experienced), and research to some day find a cure for the chronic conditions. I felt so happy that these goals for individuals with food allergies are being worked towards by this organization that I supported the AAFA through a benefit concert. When I donated the money raised to this non-profit, I felt incredibly happy to be supporting such a wonderful cause. The AAFA is an organization that helps a growing number of people across the nation whose conditions need a voice and I thank them for their efforts.
AAFA provides much-needed resources for those of us dealing with asthma and environmental allergies. Asthma is a complex condition, and AAFA's educational materials help the newly-diagnosed climb the steep learning curve.
I am a life-long severe asthma sufferer; nearly 48 years. Though I have learned and educated myself over the years, AAFA is by far the best resource I have found. I only wish they had been around when I was a kid. Their educational resources, events, health campaigns and many resources on how to live a full life as an asthma sufferer are far reaching. I absolutely support this organization and continue to use them as my own resource.
AAFA was a forerunner in advocating for people with allergies and asthma. I have relied on their authoritative voice to represent our concerns for years. AAFA is a great organization – expert, hardworking, and compassionate.
As a mom of a son with multiple food allergies, AAFA provides a wealth of support, resources, news and information that's relevant to our family and the realities of living with food allergies.
AAFA is a great organization. They provide my family with tips, resources, and other information on how to help manage our son's asthma. Everyone is friendly and personable.
I have been suffering from allergies and asthma related to Churg-strauss Syndrome for five years now, and about 2 months ago, while looking up information, I came across this forum, and began reading some posts related to asthma and allergy. I have had difficulty finding the type of support this group has been able to provide. What started off as just a brief sharing of experience quickly turned to a place I could go regularly with a steady group of people and some occasional drop-ins as well, always providing a variety of information. The people in this forum are respectful, empathetic, full of great information, and personable, and the level of support I have from something online--which I never thought I would be able to connect with people online-- it has been great. The forum topics are easy to start, the managers are very active and great at welcoming new members, asking questions, keeping up with long-time members, and posting new interesting information, so that the support page is always fresh and informative, while at the same time comforting and supportive. It has really been an amazing resource for me.
AAFA is a fabulous foundation that provides tremendous support and encouragement for those dealing with Asthma and Allergies. I am grateful for their continuous support to those suffering and those who are looking for information that is research based.
Hi,
Back in March I was hit by pollen that no one else knew existed and my allergies which I have always had took a new turn and went beyond my eyes and nose and affected my breathing. I was given an inhaler and sent for allergy testing. After many positive results and an asthma diagnosis I was sent home reeling, me, asthma? But I am healthy, I just have allergies. Little did I know the night time coughing I was dealing with the last year + was also a form of asthma. A bit more reading led me to realize those "tough" work outs I had were exercise induced asthma. Wow.
Part two, June I had my first "oh my, I am drowning, dying, suffocating" asthma attack experience. It was terrifying. I searched for answers and help. I can't tell you how much of a relief it was to find this community and it's members. NO WHERE else did I find people who were new and old to the dx but all unusual, refractory or complex in some way. My asthma is not typical and my response to medication has not been great. What has seen me through this journey of doctors, med changes and attack after attack is the people on here who coach me, encourage me and share experience. Down to what questions to ask my doctor, they care and share. Over the next few weeks and into July I became labeled as " difficult to manage" and then " moderate, persistent". Come September I had different, worse, terrifying attacks that ended up in calling 911 and ED visits. I am a veteran nurse and I met challenges that put me down in the bed wondering what to do and where to go for help. This illness has brought me down to what is really important, to just wanting to live, to work and to have more meaning to each day. The support I have had from AAFA has made me want to help others. I can't help but appreciate the people who dedicate themselves to this organization. The members have pulled me through some rough times. It helps to focus on others and when I am down I feel them focus on me, it helps. The AAFA online community is a part of my DAILY life. I don't know how I would cope without them. All I found online outside of the people in the AAFA Support Group is basic asthma information. We, my friends online here at AAFA don't fit into the mold of basic asthma 123. We are the hairy, scary asthmatics who may or may not wheeze, are allergic to nothing or EVERYTHING, we take meds almost hourly or get the latest shots or have Churg Strauss, we are the outliers, the hard cases and exceptions. Somehow we found each other and it is a glorious gathering of misdiagnosed, misunderstood and challenging patients who help each other navigate this illness and conquer what we can while never giving up hope or searching for answers. We appreciate every good day and lift each other up. I give it all the stars.......
Gigi
AAFA has been a great help to me and to my family since my DD was first diagnosed with food allergies several years ago. We both have asthma as well, and the resources and information on the AAFA website and their sister site Kids With Food Allergies are terrific.
I applied and was hired for a staff position a few months ago, and the reason I applied to begin with was that I was incredibly impressed with the organization as a whole. I've not been disappointed -- these folks really care about their main mission and want to help people of all ages manage asthma and allergies.