An organization for the family with a cancer member and especially for the caregivers
I have been a volunteer at the Cancer Caregiver Educational Programs offered quarterly and I would like to share what these programs have meant to the participants and how they have explained how cancer changes their lives.
I learned I was stronger than I ever thought I could be.
Caregivers are the in-sung heroes; cancer component magnifies it.
I was trying to do everything for myself.
I needed this program. I traveled 2 hours from Prescott to be here. I can't continue to go to my husband's support groups.
I didn't want to ask for help; especially for a family member.
I prefer to be treated as a normal person - not always being asked about my cancer; prefer to talk about baseball.
It's been difficult to try to figure out how to help my friends with cancer.
Husband is doing well after a transplant; this forced me to live in the present moment.
These programs are offered at no charge to the public. The purpose of the programs are to provide cancer caregivers practical knowledge, skills and strategies necessary to effectively care for themselves as the care for a "cancer patient". Our patients' program evaluations tell us that the following are the most beneficial: able to share our experiences with everyone who is here today.
Finding resources and emotional support.
Learning from others and their stories.
The tips for caring for myself so I can better take care of my family.
I had no idea this information was available. I'm glad the program was focused on the caregiver.
Hearing from others in similar situations/not feeling alone during this journey.
Listening to everyone on how they deal with their feelings and the patients feelings.
There are a series of educational modules that can be presented as half day programs, lunch hour programs, 2 hours programs. The modules vary from Cancer in the Workplace, Navigating the System, Communication, Holiday Stress and many more.
Fund raisers and grants are used to help support the free programs. Collaboration with partners is also important to gain state wide impact. A caregiver module has been presented yearly at the Living with Myeloma Conference with an attendance of 300+.
A Women Leaders task force has been developed to assist with fund raisers, advocacy and awareness. These women are leaders in our state and have an interest in the cancer caregiver educational programs.
Golf events; 5 k race/walk events, have promoted caregiver education, awareness and advocacy. Newsletters are sent on a regular basis to continue program awareness.
Partnerships with key organizations strengthen the message about the importance of caregiving for cancer patients on a state wide level and national level: AARP, INSYS, Arizona Caregiver Coalition, Medicare RX, Multiple Myeloma Research Foundation, AzBIO and many more.
The CEO and Founder has been on several TV and radio spots sharing information about the cancer caregiver education programs. She has also been the speaker at several events sponsored by the community or other cancer organizations.
The arizona Myeloma network puts on necessary educational events open to the public. Drs appointments are getting shorter and shorter and there is less time for important questions to be answered. These events give patients the opportunity to ask questions to expert physicians that they otherwise might not get the chance.
These events also connect patients with patients where they can learn from each other's experiences and knowledge.
The founders of this organization demonstrate compassion & caring to individuals on a personal level.
I believe this organization is credible and true to their mission.
Arizona Myeloma Network has a huge impact on education and support for Myeloma Patients in Arizona. The founder, Barbara Kavanagh works tirelessly as an advocate for patients. She always takes time to personally talk to anyone that needs direction and recommendations. She organizes a wonderful conference every spring bringing the best experts in the field to educate Myeloma patients. It is her passion and her life work; no one could do it better. We feel very lucky to have her in Arizona. She is very supportive of the Phoenix Myeloma Support Group.
The Arizona Myeloma Network is a quality organization, locally founded by a very determined, resourceful woman who is passionate about getting help and information to Myeloma patients in my state. I myself am a Myeloma patient and help facilitate a Myeloma support group that she joined (her husband has Myeloma) and can tell you first hand that she gets things done for patients in our state like no one else. Her organization networks with all the other organizations that help Myeloma patients and she made it her job to get to know all the Myeloma specialists in our area. Her organization was instrumental in bring some of the best doctors in the field to speak to our support group and in so doing opened up a whole new level of care and information to patients in Arizona. The next best thing the organization did was start a yearly Myeloma conference that is free of charge and brings in top quality Myeloma experts as speakers. It is one of the best places to get information for the newly diagnosed patients as well as seasoned ones. People come from all over the state and it fills a very important function of providing a truly quality program close to home. This is a wonderful service, especially for those who aren’t well enough to travel great distances for help and information. This organization has been life enhancing on many levels for Myeloma patients. Thank you AZMN!
I have attended several seminars that were produced by AMN. Each one has given me information that I was not finding anywhere else. This information has helped me understand and cope with my myeloma journey, especially during my first year. My plan is to continue attending AMN seminars as long as they are available to me.
Having gone through the initial stresses and impacts of being a cancer caregiver. Not knowing what, how and where to go for resources and support that made sense for me to provide the support for my love one and for myself. The Arizona Myeloma Network open the door for me with the Cancer Caregiver Education Program. The Cancer Caregiver Education Program not only educates you on the key areas a cancer caregivers need to know, i.e., personal support, navigating the health care system, managing pain, financial resources, lifestyle and many other education seminars provided to the public. The Cancer Caregiver Education Program seminars are free to the public.
Participating in the seminars have made the difference in how I approach my cancer surviving love one, my family and my own personal health and wellness.
I highly recommend the Cancer Caregiver Education Program to all cancer patients and cancer caregivers.
Arizona Myeloma Network lives it's vision and helps people find hope at an uncertain and painful time. Great organization.
This organization is well run, organized and helps many people across the valley.
Arizona Myeloma Network is inclusive and collaborates well with other support organizations.
AZ Myeloma Network does excellent work! They help patients and care givers deal with cancer and staying healthy. They also provide meaningful information on the latest treatments.
Barbara and Jack are amazing people and give of all their time and talent to help in people dealing with these life threating diseases.
How lucky I am to have met Barbara Cavanaugh! When I was first diagnosed (and scared) with Multiple Myeloma, I attended an informational meeting with a friend. At this meeting, hosted by the Arizona Myeloma Network, I learned so much about Multiple Myeloma, and I met a wonderful woman, Barbara Cavanaugh. She calmed my nerves and fears.
The programs put on by the Arizona Myeloma Network are outstanding. A wide variety of topics for both patients and caregivers are presented. It is an active organization, and offers amazing programs. How lucky we are to have these programs in Arizona!
My husband has Multiple Myeloma. Arizona Myeloma Network hosts yearly conferences for patients and their caregivers to learn what new treatments are on the market. During these conferences you can speak with doctors who specialize in Multiple Myeloma. You can also speak with other patients and caregivers about their experiences.
Arizona Myeloma Network also hosts Caregiver Workshops. It is very helpful to hear other caregiver experiences and hear from experts on services for patients with cancer.
We look forward to the conference every year. I have gone to the Caregiver workshop and plan to go to another one.
My husband was diagnosed with multiple myeloma three years ago. We were told about the Arizona Myeloma Network by my father-in-law who saw an article about the yearly conference. We have attended the yearly conference three years in a row and each time we learn something new. I have also attended a seminar for care givers and found it to be very helpful. The experts they bring to their conferences and seminars are leaders in this type of cancer. The Arizona Myeloma Network has made a positive difference in our lives.
This is a truly great patient advocacy organization. They not only benefit those suffering from myeloma- an incurable blood cancer, but they also produce care giver seminars to support those who support loved ones suffering with any life threatening illness. They have reached out to the most underserved and socioeconomically disadvantaged people including those on the Navajo reservation.
Definitely an outstand organization doing very important work
I've worked with AZMN for over 10 years, serving on their Board of Directors, as a Scientific Advisor, and now, mostly as a volunteer. I've been steadfast because of Barbara and Jack's dedication and positive impact AZMN on those attending the organization's various functions, especially the cancer caregivers' seminars. I'm proud to be a long-term partner and believe AZMN should be recognized for their contribution to the community. Programs are typically free, so participants can attend many programs without worrying about cost. I hope AZMN continues to receive funding and outside support, which they so deserve.
Arizona Myeloma Network is a fantastic nonprofit organization. They have provided invaluable assistance to countless cancer patients as well as their families, friends, and loved ones. They assist in helping people locate good medical care and other supportive services that become necessary once a person receives a cancer diagnosis. They truly do welcome people into the "family" of cancer survivors. Their annual conference provides a wealth of the "latest and greatest" advancements in the treatment of multiple myeloma. The caregiver seminars they hold several times a year are invaluable and unequalled in the level of emotional support they provide to all involved in caring for a cancer survivor. Arizona Myeloma Network is definitely a top-notch non-profit organization.
I met Barbara and Jack after I was diagnosed with Multiple Myeloma 6 years ago. They have become like family to me and my family. We have attended the AzMN annual conference for the past 6 years. It is always excellent!!! Outstanding medical professionals present information in a manner that is easy to understand for those of us who are not in the medical field. What a wonderful opportunity it has been to personally meet and visit with doctors from various parts of the country who are top-notch in researching and treating those of us with this incurable form of cancer. I've also attended their excellent Roundtable a few times. Information presented at the Roundtable is of a more technical nature geared more toward medical professionals. It is a fantastic opportunity for medical professionals to earn continuing education units in a very positive environment. The Cancer Caregiver Seminars that AzMN began hosting about 3 years ago have been an amazing source of support for my family members who are my steadfast companions on this journey of cancer survivorship. They have found these seminars to be a great source of strength and a wonderful way to "recharge" themselves in their roles as cancer caregivers. One of the most special aspects of AzMN is the message of hope that is evident at every event. It is very encouraging for me and my family to know we are not alone in this journey with cancer. We now have a wonderful extended family which includes Barbara and Jack along with many wonderful volunteers and others who are also traveling the path of multiple myeloma themselves or with a loved one or friend. Congratulations, Jack, on being a 25-year multiple myeloma survivor! Congratulations, too, to you and Barbara as you celebrate 25 years of marriage! You are both a great source of inspiration to all of us. It is through the efforts of people like you and the collaboration AzMN is fostering among everyone involved in treating multiple myeloma that hopefully in the not-too-distant future, multiple myeloma will become a CURABLE form of cancer. Thank you for all you do to improve the quality of life for so many of us. For anyone considering making a donation, rest assured your contribution is going to a very worthwhile cause. I think you would be hard pressed to find any charity that makes better use of funds in providing a greatly-needed service to many people. When anyone is diagnosed with multiple myeloma, it obviously has a huge impact on family finances. The fact that all AzMN events are provided free of charge to cancer patients along with their family members and friends makes it possible for many people to benefit from these events when they might otherwise not be able to participate. Thank you, thank you, thank you, Barbara and Jack, for founding and energetically continuing this terrific organization!!!!!
I have Multiple Myeloma cancer ,,,discovered in 2013,,,I live in Prescott, AZ and cancer doctors are few and far between. I was fortunate enough to read an article in the Cave Creek News paper about Barbara and her organization.
I sent Barbara an e-mail describing my situation and Barbara replied immediately and then went to work getting me appts, with the cancer doctors at the Mayo Clinic in Phoenix. From that time on (2013) I've been totally indebted to Barbara and her organization for my well-being. My cancer has been in remission since 2013 and I lead an active life. I truly feel that Barbara & Co. have been a total life saver for me.
J. William Yanish Prescott, AZ
This has been such an amazing organization. Love their conferences they are so educational and it's wonderful to be around so many people going through the same Journey.
They offer a caregiver class that is amazing comfort and I'm thankful that there is these type of classes for caregivers.
I have known about the AZ Myeloma Network organization for several years. They are amazing offering support to those going through this cancer to the caregivers walking along side. The conferences are educational and well put on. They want to make sure those who were unable to attend due to their health or prior commandments have the information presented at their conference and the post the presentation on their website. They offer education and refer to resources to help you. Barbara and Jack give back to the community in a special way by helping people become educated and know they are not alone on this journey of cancer. I would give them an A+ and encourage people to donate to this great organization.
Im the caregiver for my mom and Arizona Myeloma Network has been a great resource for us both. We were invited to one of the seminars they have and we meet Barbara Kavanagh and many great people involved in caring for families.
I will be volunteering my free time to work and assist others.
I have attended several annual conferences where the attendees were presented with lectures on diagnosis, prognosis, testing, clinical information by experts in this field. Invaluable information was given to caregivers, and patients and healthcare professionals about Multiple Myeloma.
What a great and valuable organization!
This critically important nonprofit offers hope, support, options, and educational resources to multiple myeloma patients. I can attest that the unknown is the greatest fear for a MM patient and this nonprofit tackles the unknown.
The AZ Myeloma Network is the most caring, loving, giving organization I've ever come into contact with. They gave me and my family members an outing filled with happiness, joy, and peace that will never be forgotten. Without question, this organization is the epitome of a great nonprofit agency. The 'strive for excellence' is not only pursued but achieved by the members of the group. Their gifts of love will be remembered, cherished and heralded. AZ Myeloma Network is the consummate nonprofit and I only wish all nonprofits could be as great.
As a caregiver, the Myeloma network got us pointed in the right direction in the early days. The network continues to keep us informed.
This is an excellent resource for the myeloma community. Their seminars are very helpful to patients and caregivers dealing with this difficult disease.
Barbara Kavanagh and the people at AZMN have done so much to enrich the lives of cancer patients and the family and friends that care for them. It is amazing to volunteer at an AZMN seminar and talk with attendees and hear, "I drove up here to learn how to talk with my kids. They are afraid of me," he said as tears welled. "Now I know what to say and do!". He proceeded to show me booklets he picked up from various cancer resource exhibit tables. "I can share these with my daughters too", he said. The booklets were in Spanish. I nearly cried...but gave him a hug instead.
At every program I see the direct positive and immediate impact Barbara and her team has on the cancer patient, family and friends that care for them. Attendees come to learn something new that they can put into action now. I compile the program evaluations and it is statements like this that make me proud to support AzMN: "I now understand the difference between my oncologist and the Myeloma specialists here" and "as a cancer caregiver, I learned to care for myself first. It is like the flight safety announcement 'put your own mask on first, before helping others' I get it now!".
My mom has Multiple Myeloma and I am her primary caregiver. The AZ Myeloma Network provides programs, information and access to professional we would not have otherwise.
Thanks so much to this great team of people that make a difference in the lives of those who need it most!
I have volunteered and attended the Multiple Myeloma conference for many years and each year I learn about new advances in this field. Barbara and Jack are dedicated in helping and educating patients with Multiple Myeloma throughout the year .
AZMN is a marvelous organization, always trying to find new ways to support cancer patients. I am a multiple myeloma survivor who has greatly benefitted from the wealth of information gained at their yearly spring conference. Barbara always finds experts in the field who are willing to donate a day with us. Not only do they speak about the latest treatments, but they are available to patients for individual consults. I am so grateful Barbara and her staff for doing this every year!
I have known Jack and Barbara over 8 years. They work endlessly to help patients find doctors and provide top notch conferences so patients will know the latest treatments for Multiple Myeloma. They are the best
I have been associated with Arizona Myeloma Network for over 8 years. The organization cares about helping patients and educating them on resources available to them. Barbara and Jack work endlessly in providing the best programs and events possible. They are the best.
I recently attended the 10th Annual Arizona Myeloma Network - Scientific Research Roundtable. This was the 3rd such event I have attended since developing Multiple Myeloma. Every year has been better than the previous.
This year's two day event included presentations from Doctors and Researchers from top hospitals and Cancer Institutes across the country.
I came away with a solid knowledge of the history of research and drugs developed, and understanding that current direction of research and treatment is toward Immunotherapy.
My Oncologist is one of the top ranked in the State, but would never have the time to explain all the history and reasons for the different Chemo drugs I have tried over the years.
From information I learned from A.M.N., I feel most comfortable being part of an Immunotherapy drug trial.
Thank you Arizona Myeloma Network for your support.
I can't say enough about the Arizona Myeloma Network! They are always there with information on my illness. One of the most honest organizations I have had the pleasure to be associated with...
God bless Them!
I have jus recently joined the AZ Myeloma Network Board, both Barbara and Jack are examples of true “Heroes,” they “live it, breath it.” This organization is part of who they are, never turning any patient and or caregiver away. I am proud to be a part of their journey.
I live outside of Arizona, but have had the pleasure of following the programs and activities of the Arizona Myeloma Network in my role as a provider of Social Security Disability Insurance. I have been impressed by the quality of free educational programs and support networks this organization provides, as well as the commitment and passion of its founders.
The Arizona Myeloma Network means a great deal to me and my family. They provide a great deal of support to caregivers and valuable resources for patients. The connections that we have made through the Arizona Myeloma Network have made a huge difference in my Mom's battle with Multiple Myeloma. I cannot imagine Arizona Myeloma Network not being a part of my family!!!
AzMN is a small and amazing organization that brings educational programs, and the latest information to patients and caregivers. Contact them and become part of the AzMN family.
Arizona Myeloma Network does so much for such a grass roots organization!! I've been impressed with both their Living with Myeloma Conference with the Doctors coming from all of the country to discuss and be accessible to patients with both individual questions and the latest in the filed. Also, they take a team 7 hours North of the Valley with Doctors, specialist, and resources, to discuss all types of cancers for people living on the Navajo Reservation! The impact it's had up there is amazing!!! In addition to running two major conferences they also have seminars through out the year for the "Caregivers" of the cancer patients. This amazing organization is here to help not only Myeloma Patients but wants to educate anyone with Cancer and their loved ones.
The Arizona Myeloma Network (AZMN) plays a vital role in the community for patients, caregivers and the general public. Through education, support programs, and their work to raise public awareness, AZMN serves as a nexus connecting those in need to those who can help them on a journey that can be challenging and frightening. By providing expert information,connections, and shared experiences, AZMN helps patients, families and caregivers cope and through their example, fosters hope.
Working with Arizona Myeloma Network has opened my eyes to a disease that gets very little air time, but has a big impact on my life. The commitment, leadership and compassion the founder has for those who suffer with the disease is never ending.
AzMN developed critical programs right here in Arizona, with the vision to take them national and international.
Strong mission, strong leadership, strong board that's making a difference in many lives.
I met founders Jack and Barbara at a support group for multiple myeloma patients. I was inspired by the mission of Arizona Myeloma Network. Their leadership is always positive and extends not only in the major cities of AZ, but to the Native A,epicanthic reservations as well. I chose to volunteer so that other patients and caregivers like myself can attend conferences for free and bring hope in the battle against myeloma. The positive leadership permeates throughout the organization, and I plan to continue in the work of AZMN.
My association with this group is one of involvement through practicality and curiosity. I have this group to be hardworking and diligent in the pursuit of funds used to pursue a cure for myeloma. I wish them only the best. Dr. Z.
I have been associated with Arizona Myeloma Network (AzMN) for the past 3 years. It truly is a grassroots charity that has gone above and beyond in the advocacy and resources it provides to cancer patients and families. AzMN has an annual Myeloma conference that brings together cancer patients, caregivers, scientists, researchers, physicians, social workers, and other healthcare professionals. Patients get to interact directly with world class Myeloma researchers and have access to educational and support resources. Additionally, AzMN has added caregiver seminars that teach caregivers how to take care of themselves while caring for loved ones. AzMN also provides cancer support resources to under served populations like the Navajo with it's annual Navajo Cancer Conference for All Cancers. Barbara Kavanagh, the CEO and Founder, works tirelessly to provide programs and outreach services to cancer patients and families. This is truly a top-notch nonprofit organization!
I volunteered for one of the Caregiver Conferences last year ---- afterward; I was so energized by the commitment and enthusiasm of this phenomenal group !!! I am so greatful to be a part of such a caring team. The Arizona Myeloma Network provides education for the community ( patients and caregivers) - as well as educational support for the Navajo Nation - This organization inspires me to do more for my community on a daily basis. Thank you !!!!
AZ Multiple Myeloma Network is doing so much for the community. They act as connsummate professionals every time I interact with them. It is clear their hearts are in this 100% as they give so selflessly to organize each of their fundraisers, seminars, and conferences. They gather panels of top experts in their field to educate cancer caregivers and cancer patients, and they serve each patient and family member with individualized attention and care. I work for a well known and highly regarded not for profit healthcare agency, so believe me, I know what is involved with running a not for profit. Working for a not for profit takes great heart, great care, and great expertise to care for patients and their loved ones with compassion and excellence. AZMMN has all those qualities. It is evident to me AZMMN exists solely for the benefit of the community and the people it serves.
My mother passed away from Myeloma 20 years ago.
About 6 months ago I met Barbara the founder of AZMN and was instantly drawn to her passion and excitement helping people and families deal with Myeloma.
I was so excited that I starting working and volunteering with them and am now a member of the board.
The work that AZMN does is excellent and a huge benefit to our community.
Don't miss their golf event on November 8th 2014. http://azmngolf.com
I originally got involved with Arizona Myeloma Network because my father passed away from cancer and my mother is a cancer survivor. As a volunteer, I saw what amazing work they do and what a difference they make in the lives of cancer patients and caregivers by serving as their advocates. I have attended their annual conference for several years and it is an incredible event, free to everyone, something that I have never seen another charity do for those they serve, providing hope and resources. I attended the Navajo Nation conference this year and it was life-changing. By continuing to show up and be consistent for many years, AzMN has developed a relationship with the Navajo people, bringing this underserved and greatly effected population information about cancer to help them be advocates for their own health, to learn that they have options and that there is hope. They also have a wonderful Caregivers Program, helping the families and loved ones of those diagnosed and giving them resources and awareness that they are not alone. AzMN Founder, Barbara Kavanagh, works tirelessly in her efforts to make a difference for cancer patients and caregivers. She has loyal and dedicated volunteers and staff who are also committed to their work, year after year. Arizona Myeloma Network is an amazing organization that is making a huge difference in peoples' lives.
I attended a fundraiser dinner for this chartity and was impressed with the people who attended and their authentic passion to help. What was terrific to see is that I had an opportunity to meet people who received significant benefits from this organization. Nice to see that our money was really having an impact! I was shocked that our AZ native american community are not educated and not helped like the folks near cities. Yet, it was AZ Myeloma Network that took the time and resources to help educate, inpiire and help this group of people. We need more charities like them! They seem to put the resources into action in order to really help future generations.
Arizona Myloma Network does wonderful work educating both carers and those with the disease. Increasing awareness of the disease promotes early diagnosis and prompt treatment. The support system and outreach programs all help to spread the word about the disease and provide a better quality of life for the patients.
These are wonderful people devoted to bringing relief and hope to thousands of people. This is a difficult cause, and one which does not get the kind of attention and funding that it needs. I have CLL, a related disease, and I totally support the incredible work of the dedicated people at AZ Myeloma Network.
I recently attended the Cancer Caregivers seminar in Scottsdale. What an amazing & helpful seminar. the best of its kind.
The Arizona Myeloma Network takes a hands on approach to helping individuals, particularly those in underserved areas, understand and treat their myeloma diagnoses. The organization is led by its founder and chairman, Barbara Kavanaugh, who works tirelessly to help those afflicted by myeloma and other cancers. The organization has developed and implemented several excellent programs to assist myeloma sufferers and caregivers, including its annual Arizona Myeloma Conference and caregivers seminars. Due to the organization's great efforts, myeloma sufferers and their loved ones have a valued resource and advocate to assist them in their fight with this terrible disease.
It all started with "Do you need any help with that?" I was working at a Phoenix hospital in the area of tissue donation. As this was almost 10 years ago, before genetics and personalized medicine were well-known, I thought I could contribute something unique to AZMN. One thing let to another and I became a Board Member. I don't like to be spread thin, so I discern my volunteer time carefully. The characteristic that most drew me to AZMN was passion. If Barbara and Jack could, they would help every person in AZ with every type of cancer. The organization grew from just serving multiple myeloma patients to serving several types of cancer patients and to serving their care-givers. The services range from medical to nutritional to psychological, just to name a few. And, being on the Board for a number of years, every dollar is spent wisely. No frills here. It's all about the patients. I'm honored and blessed to call Barbara and Jack friends and to still be a part of this great organization.
Arizona Myeloma Network is a caring and compassionate advocate for the caregiver and patient of all cancers but myeloma in particular. I have been working with the charity for about 5 months and am so impressed with the enthusiasm and passion that this grass roots non-profit exhibits! I feel a great sense of accomplishment and deep gratitude when I volunteer knowing that lives in my neighborhood are touched by AzMN everyday.
I was asked by ARIZONA MYELOMA NETWORK to videotape their conference in Window Rock, AZ for the first time. Having spent 21 years in video productions I have filmed dozens of seminars and conferences for various corporate clients and non profit orgs and I can say that this group of people is highly motivated, very professional, and the conference they put on was information packed. While working I personally learned a great deal about Myeloma.
Their motivation to bring this topic and conference to the Navajo Nation is right on the mark and comes from the heart to help people understand and deal with this affliction. A great group of people to be associated with.
I first became aware of Arizona Myeloma Network through their nomination for the Hon Kachina Volunteer Award. It was of special interest to me since my father battled multiple myeloma for 10 years and I saw first hand how that illness is often overlooked by many of the larger cancer charities. I was also impressed by how they actively reached out to the caregivers of MM patients by providing conferences and support groups to help them address their needs and concerns. AZMN has done an excellent job of bringing educational conferences to Arizona with top researchers and professional in the MM field. They have also reached out to the Native American tribes in the Southwest teaching their members about cancer awareness and prevention through sponsored conferences in northern Arizona.
The Arizona Myeloma Network (AzMN) is a relatively young non-profit organization that is making a bigger difference in the community every year. Besides addressing the needs of myeloma patients, which is a relatively small segment of cancer patients in general, AzMN provides valuable assistance to caregivers and underserved populations in Arizona, particularly Native Americans. Essentially, AzMN helps those who are often looked over.
The annual Navajo Nation Cancer Awareness and Advocacy Conference at Ft. Defiance has helped this important community by bringing knowledge and care to a population that has not enjoyed the same access to resources found in the greater metropolitan areas of Arizona. There is a genuine sense of compassion shared by physicians, researchers, and caregivers at this growing conference presented by AzMN. As the scope of the Ft. Defiance conference encompasses all cancers, not just myeloma, the needs of patients in this community are more specifically addressed, and as a result, the effectiveness of this conference increases each year.
The flagship event of AzMN is the Annual Living With Myeloma Conference, typically held in the spring each year in Scottsdale, AZ. There is no other event like it in the region. Myeloma patients and caregivers get direct access to leading physicians and researchers from organizations such as Mayo Clinic, TGen, Cancer Treatment Centers of America, Arizona Cancer Center, and MD Anderson. This conference gives hope to those affected by myeloma, providing information on the latest treatments and methods for improving quality of life.
AzMN also presents a 5k “fun”-raising run in the spring, and an excellent, well-organized golf tournament in the fall. Both events have a good-natured feel to them and are enjoyed by people from all walks of life.
Kudos to the Arizona Myeloma Network, and especially Founder and President Barbara Kavanagh for being a tireless champion of the mission of AzMN!
AZMN has played a large role in educating Arizonans about myeloma and other forms of cancer. In particular, the organization has been instrumental in helping groups that lack access to medical care treat and understand the various forms of cancer.
My mom became active with AZMN after my dad was diagnosed. I have attended events as a participant in the past, and heard my mom recount her experiences as a volunteer. Dad passed about 2 months ago. I am so grateful for the friendship and support he and my mom had through AZMN. I decided to give my time, and have received so much in return.
My name is Kurt Riske and I have been serving on the board of the Arizona Myeloma Network for almost five years. I would like to let you know that is has been a pleasure working with Barbara and Jack over these years. Their dedication not only to this organization but helping others is remarkable. They are a couple of the most caring people that I know. They have built an organization into a reputable non-profit that continues to grow year after year. We can not do this without the help of the community and the grants that we recieve. Our race, golf tournament, and conferences are what keeps our orgainization going in the hope that people will learn more about myeloma. This organization works very hard to help others and I am proud to be a part it.
I have volunteered for Arizona Myeloma Network for a few years, but I joined as a board member in 2010. Arizona Myeloma Network provides much needed information to the community it serves, not only for myeloma patients and caregivers, but the community at large. As founder, Barbara Kavanagh discovered, it's hard to find information and help for myeloma patients. She wanted to do something to help others, so they wouldn't have to struggle the way she did. AzMN started out by developing a Living with Myeloma Conference which is now in it's 5th year. The conference brings researchers, patients and doctors together to increase myeloma knowledge. In it's third year, the Race for Hope for all Cancers is an uplifting event that brings hope to myeloma patients and families, but also those with other types of cancer. The Navajo Nation Cancer Awareness Conference brings cancer resources and information to the Navajo people, an underserved segment of the population. AzMN works tirelessly to help others and give back to their community and those with myeloma.
Arizona Myeloma Network was brought to my attention in January of 2008 when my husband was diagnosed with multiple myeloma, a blood cancer with which we were totally unfamiliar. We didn’t know where to turn locally for up to date information. Barbara and Jack Kavangh have been a blessing to us on so many levels. They have provided us with the resources that we required to make informed decisions about my husband’s care. We were so impressed with the organization that we soon became volunteers with AzMN. Their annual Living with Myeloma Conference brings to the Phoenix area top physicians and researchers who share the newest information available. Sadly, my husband passed away from the disease in April, 2011. I am so proud of the work that AzMN has done for us personally and in our community that I continue to give my time and efforts so that AzMN is able to make resources and advocacy available to others who will be walking the same path.
I have seen the drive of the founders of Arizona Myeloma Network. Through the trials and tribulations that Jack and Barbara went thru many years ago battling Jack's multiple Myeloma. They saw how difficult it is to find the correct information, doctors, treatment and what new discoveries are being made to cure this cancer. They realized that new patients need help to quickly locate these resorces. AzMn is now achieving that goal by providing conferences each year to bring patient and a world class staff fo Doctors and Researchs together.
My firm was retained by the Board to assist in several legal matters pertaining to the Network. In my dealings with its members I found them to be caring, compassionate individuals who have personally been impacted by myeloma (a form of cancer). As a result, they were dedicated to spreading awareness of myeloma and its treatments and offering support to those diagnosed with this disease. My business dealings with them reflected people of integrity who desire to do the right thing.
I've been volunteering with AZMN for almost a year now and have been continually impressed with the service they provide their beneficiaries and the passion they do it with. I'm looking forward to many more years of volunteering and seeing this great organization grow.
Arizona Myeloma Network (AzMN) has been a godsend for my husband and I. My husband has multiple myeloma. When he was diagnosed nearly 5 years ago, it was staggering. We started looking online to get information. He found information about AzMN and contacted them. We met with Barbara and heard about Jack's journey and it was very encouraging since he proved there was a chance of continuing to have a good quality of life. We quickly became involved with AzMN when we realized this was an organization that had ties to the top doctors and researchers in the field. We both have learned a tremendous amount and it has been the best source of information on a current basis with the annual Living with Myeloma Conference. We have been very actively involved in the promotion and activities that are a part of AzMN and believe our lives have become more positive with the knowledge we are gaining.