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- EIN 32-0241819
- (631) 751-3732
- Po Box 404 Stony Brook NY 11790-0404 USA
- www.apstype1.org
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Nonprofit Overview
Causes: Health, Specifically Named Diseases
Mission: Education and research related to aps type 1
Programs: The aps type 1 foundation organized and hosted the 2nd international symposium on aps type 1 with assistance from the journal of internal medicine, stony brook university children's hospital and shire pharmaceuticals. Researchers from around the world presented research and education on aps type 1 to approximately 125 attendees including physicians, families and patients with aps type 1 over three days at stony brook university.
applied for and awarded acceptance into the nord patient registry project. This project will benefit all aps 1 patient's in the usa (approximately 100 identified) by providing a data bank in the united states utilized by national researchers as well as researchers all over the world.
maintain an educational and support website for all involved in aps type 1 including patients, families, physicians and researchers. This website features presentations videotaped at the first and second international symposiums.