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Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP)

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Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Public Foundations

Mission: ACPMP is dedicated to (1) funding research to find a cure for Pseudomyxoma Peritonei (PMP), Appendix Cancer, and related Peritoneal Surface Malignancies (PSM), and (2) funding educational programs to educate physicians and patients about these diseases.

Results: The ACPMP Research Foundation has awarded $1,200,000 in the form of twenty five research grants since its founding in 2009. ACPMP has also funded over $50,000 in physician scholarships to applicable medical symposiums and conferences. ACPMP sponsors and plans educational symposiums for patients and physicians to learn more about appendix cancer and pseudomyxoma peritonei.

Target demographics: Those affected by appendix cancer/pseudomyxoma peritonei

Direct beneficiaries per year: Four medical researchers by funding $50,000, two-year grants.

Geographic areas served: Global

Programs: Awarded and funded over one million dollars for research grants into the understanding, diagnosis and treatment of appendix cancer and pseudomyxoma peritonei. participation/sponsorship - pmp/appendiceal cancer symposia at University of Massachusetts Hospital in Worcester, MA; PSOGI International in Amsterdam and Washington, DC,; Drexel University in Philadelphia, PA; Edward/Elmhurst Hospital in Naperville, IL and UCSD in San Diego, CA

Provide educational information on pmp to patients, families of patients and any other interested parties

Community Stories

22 Stories from Volunteers, Donors & Supporters

1

Volunteer

Rating: 5

ACPMP is an incredibly dedicated group of individuals, fighting to find a cure for a devastating disease that currently impacts one in a million people, and is severely underfunded because of how rare it is diagnosed. ACPMP helped us to organize a fundraiser in my dad's memory. I had never planned a fundraiser before, but we ended up having over 300 people participate in a bike ride around Lake Champlain in Vermont, and we raised over $65,000. We even got US Olympic Ski Team champions Lindsey Vonn and Mikaela Shriffin involved. I am so grateful to this organization and the people who make it possible--all of whom have been impacted by PMP.

1 Molly G.2

General Member of the Public

Rating: 5

The ACPMP Research Foundation is a wonderful charity dedicated to the important goal of researching a disease that can be a confusing diagnosis for its victims. ACPMP has done great work in raising awareness and knowledge around an under-researched form of cancer.

1

Client Served

Rating: 5

Fantastic job of keeping patients up to date with the most recent research and support!

1

General Member of the Public

Rating: 5

Integrity - this organization is run right! One of my family members was diagnosed and treated for very rare PMP cancer five years ago. Well, long story short: this group is passionate about doing the right thing for the right reason, with compassion and dedication. Grateful that they adhere to their mission re: appendix cancer and pseudomyxoma peritonei - to educate patients and physicians about these diseases. 5 stars!

1 Amy M.13

Client Served

Rating: 5

I am a PMP 10 year survivor. Not long after I was diagnosed I was introduced to Lisa Luciano who founded this charity. Sadly, unlike me she did not survive, However the legacy she left has saved so many people, including myself. This Non-profit has not only raised awareness so that this cancer is properly diagnosed, they raise funds so that doctors can research this rare disease and try to find therapies to cure it. It is remarkable the progress that has been made in 10 years.

1

General Member of the Public

Rating: 5

I am so thankful for the comprehensive, high quality information this charity provides on its website. I used their site to understand my diagnosis and figure out what I needed to ask at my initial appointments with doctors. There is no other place to find so much information on this uncommon cancer diagnosis.

2

Donor

Rating: 5

My husband was diagnosed with PMP in 2014. It was difficult to find information on this rare cancer until we found ACPMP Research Foundation. Run almost entirely by volunteers, this organization is critical to funding research for Appendix Cancer in its’ various forms.
They receive the majority if their funding from patients and payients families via donations and fundraisers.
Their staff are all friendly and knowledgeable and are quick to respond to inquiries.
They get an A+ from me!

1

General Member of the Public

Rating: 5

I was diagnosed with Appendix Cancer in 2017. While receiving my care at the Caner Treatment Center (CTCA),in Newnan, Georgia, I was told about the Website and what type of information is contained. The oncologist at CTCA haven’t seen anything new since the surgery. I have been doing well and I live my life, putting GOD first in everything I do. My name is Sharon McSwain and my age is 55. I live in Helena, Alabama.

1 Renee B.1

General Member of the Public

Rating: 5

I first became aware of the ACPMP research foundation in 2012 when my husband was diagnosed with appendix cancer. Upon scouring peer-reviewed literature for information it became quickly apparent that this foundation was a leading funder of research for this rare disease. Their grant program has led to improved disease understanding and is generating new avenues for treatment. Moreover, they raise awareness for appendix cancer through travel grants to medical professionals, they attend medical research symposia to stay up-to-date on research progress, and they serve as a conduit to provide this information to patients/caregivers. Their accounting practices are transparent. With having granted over 1 million dollars to ACPMP research programs the work of the ACPMP Research Foundation is an incredible testament to the power of skilled leadership. We the patient/caregiver community are so very grateful for this organization.

Previous Stories
7

General Member of the Public

Rating: 5

Since inception 10 years ago the ACPMP has raised and distributed over $1,000,000 in funds (with full fiscal transparency) to support appendix cancer research. Through their seed grant program, which supports up to three projects annually, frontiers in disease knowledge are being advanced and we are steps closer to developing new tools for disease treatment. Also important, publications associated with these research projects maintain visibility of appendix cancer disease within the medical/research community. We as a community are incredibly fortunate to have the ACPMP leadership to support disease research and awareness.

1

General Member of the Public

Rating: 5

I am an appendix cancer survivor and have referred multiple patients to the ACPMP Research Foundation for valuable, trusted information. Since appendix cancer is rare, there are not many resources available and there are many misconceptions about the diagnosis and treatment of this disease. I wish this site was available when I was diagnosed. it would have save me and my family a lot of extra heartache!

2

Donor

Rating: 5

I’ve personally been raising funds for ACPMP for several years when my Dad was diagnosed with the disease. ACPMP funds research, awareness, and promotes education. Their financial transparency proves that this is one foundation that people should stand behind.

2 Stacey Ketterer T.

General Member of the Public

Rating: 5

How did I end up with this rare appendix cancer? How did I, a mother of two girls both under the age of three end up fighting for my life? This I will never understand. What I do understand is that I am grateful for ACPMP! When I felt alone and scared for my life, they supported me in ways that I can not truly thank them enough for! My family and I give the ACPMP much gratitude for all their hard work and support! Please support appendix cancer research and help my new appendix cancer family members find answers linked to this horrible disease ❤️

1 Susan O.1

Board Member

Rating: 5

I was diagnosed with Appendix Cancer/PMP in 2009. After my recovery from CRS and HIPEC in 2010, I wanted to do something to help the AC/PMP community. I was excited to find The ACPMP Research Foundation (PMP Research Foundation back then), which had already awarded three $50,000 research grants after their first year.

After meeting the other volunteers, I knew this was the group I wanted to be part of. I am so proud of what we have accomplished, and honored to serve on the Board and volunteer my time for this amazing nonprofit.

3

Donor

Rating: 5

Best stewards of donor dollars that I’ve ever seen ...and I work in the nonprofit sector. They are making great strides funding transformative research for a rare cancer that gets overlooked in academia. Achieving so much more than providing hope to cancer patients with too few options, they are amplifying the need to understand a very complex and misunderstood disease, helping to find new treatment options that prolong life and preserve quality of life. This rare group of dedicated survivors, patients and caregivers are making a difference! As Giving Tuesday draws near, please keep this foundation at the top of your list.

5 Denise E.1

Client Served

Rating: 5


I am an appendix cancer patient. I recognize and appreciate the continued effort of ACPMP in funding important research for this rare disease. They advocate and offer medical conferences to further help patients like me.

6 Cheryl M.3

General Member of the Public

Rating: 5

Great fund raising events and designation of grant recipients.

6 Apis C.

Donor

Rating: 5

Indispensable support and research! So thankful that this exists now and when I was first diagnosed there was little awareness. So thankful for their tireless efforts!

6

Volunteer

Rating: 5

I am a volunteer for the Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP) and I am so proud of all this organization has accomplished. ACPMP raises funds for research to improve the diagnosis and treatment of appendix cancer and pseudomyxoma peritonei and to sponsor educational programs for patients and physicians. ACPMP has granted over one million dollars in the form of over 20 research grants over the past 10 years that have already led to exciting discoveries that will someday lead to a cure for these diseases. ACPMP sponsors and coordinates educational programs to help educate patients and raise awareness. I highly recommend this organization!

7 Myrna C U.

Client Served

Rating: 5

I Have learned so much so Much from this Research foundation since being diagnosed early in January of 2017 with Appendix Cancer.. To say I was literally "Scared to death" is is putting in Mildly'! I had my first surgery Mid January of 2017 and My life Saving Hipec Surgery on July 20, 2017 at the University of Wisconsin Medical Center, Madison in Wisconsin. In between surgeries I was able to go online and find a terrific Appendix Cancer Group and meet Therese and several Others who have had experience in dealing with this Disease.. I am forever grateful to Therese Surges and others who have inspired me to continue my journey and never give up,, This year strong enough to run 5 K Run and Walk for Paul Carbone Cancer Center.. enclosed is a photo of Myself and My daughter shortly after I had my second surgery and was at rehab center.. I hope to help others on thier journey just like this foundation and Therese has been there for me..

6

Donor

Rating: 5

This site has been a Godsend for many people. It provides resources, contacts and support to those not only afflicted with the disease, but the caregivers and family members as well. Thank goodness for this organization and the compassionate people behind it. I know they give all. Keep up the good work ACPMP!