Over 1.8 million nonprofits and charities for donors, volunteers and funders

2018 Top-Rated Nonprofit

Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP)

408 pageviews

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Volunteering Oportunities

Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Public Foundations

Mission: ACPMP is dedicated to (1) funding research to find a cure for Pseudomyxoma Peritonei (PMP), Appendix Cancer, and related Peritoneal Surface Malignancies (PSM), and (2) funding educational programs to educate physicians and patients about these diseases.

Results: The ACPMP Research Foundation has awarded $1,100,000 in the form of twenty three research grants over the past nine years. ACPMP has also funded over $50,000 in physician scholarships to applicable medical symposiums and conferences. ACPMP sponsors and plans educational symposiums for patients and physicians to learn more about appendix cancer and pseudomyxoma peritonei.

Target demographics: Those affected by appendix cancer/pseudomyxoma peritonei

Direct beneficiaries per year: Four medical researchers by funding $50,000, two-year grants.

Geographic areas served: Global

Programs: Awarded and funded over one million dollars for research grants into the understanding, diagnosis and treatment of appendix cancer and pseudomyxoma peritonei. participation/sponsorship - pmp/appendiceal cancer symposia at University of Massachusetts Hospital in Worcester, MA; PSOGI International in Amsterdam and Washington, DC,; Drexel University in Philadelphia, PA; Edward/Elmhurst Hospital in Naperville, IL and UCSD in San Diego, CA

Provide educational information on pmp to patients, families of patients and any other interested parties

Community Stories

12 Stories from Volunteers, Donors & Supporters

2

Donor

Rating: 5

I’ve personally been raising funds for ACPMP for several years when my Dad was diagnosed with the disease. ACPMP funds research, awareness, and promotes education. Their financial transparency proves that this is one foundation that people should stand behind.

2 Stacey Ketterer T.

General Member of the Public

Rating: 5

How did I end up with this rare appendix cancer? How did I, a mother of two girls both under the age of three end up fighting for my life? This I will never understand. What I do understand is that I am grateful for ACPMP! When I felt alone and scared for my life, they supported me in ways that I can not truly thank them enough for! My family and I give the ACPMP much gratitude for all their hard work and support! Please support appendix cancer research and help my new appendix cancer family members find answers linked to this horrible disease ❤️

1 Susan O.1

Board Member

Rating: 5

I was diagnosed with Appendix Cancer/PMP in 2009. After my recovery from CRS and HIPEC in 2010, I wanted to do something to help the AC/PMP community. I was excited to find The ACPMP Research Foundation (PMP Research Foundation back then), which had already awarded three $50,000 research grants after their first year.

After meeting the other volunteers, I knew this was the group I wanted to be part of. I am so proud of what we have accomplished, and honored to serve on the Board and volunteer my time for this amazing nonprofit.

3

Donor

Rating: 5

Best stewards of donor dollars that I’ve ever seen ...and I work in the nonprofit sector. They are making great strides funding transformative research for a rare cancer that gets overlooked in academia. Achieving so much more than providing hope to cancer patients with too few options, they are amplifying the need to understand a very complex and misunderstood disease, helping to find new treatment options that prolong life and preserve quality of life. This rare group of dedicated survivors, patients and caregivers are making a difference! As Giving Tuesday draws near, please keep this foundation at the top of your list.

5 Denise E.1

Client Served

Rating: 5


I am an appendix cancer patient. I recognize and appreciate the continued effort of ACPMP in funding important research for this rare disease. They advocate and offer medical conferences to further help patients like me.

6 Cheryl M.3

General Member of the Public

Rating: 5

Great fund raising events and designation of grant recipients.

6 Apis C.

Donor

Rating: 5

Indispensable support and research! So thankful that this exists now and when I was first diagnosed there was little awareness. So thankful for their tireless efforts!

6

Volunteer

Rating: 5

I am a volunteer for the Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP) and I am so proud of all this organization has accomplished. ACPMP raises funds for research to improve the diagnosis and treatment of appendix cancer and pseudomyxoma peritonei and to sponsor educational programs for patients and physicians. ACPMP has granted over one million dollars in the form of over 20 research grants over the past 10 years that have already led to exciting discoveries that will someday lead to a cure for these diseases. ACPMP sponsors and coordinates educational programs to help educate patients and raise awareness. I highly recommend this organization!

7 Myrna C U.

Client Served

Rating: 5

I Have learned so much so Much from this Research foundation since being diagnosed early in January of 2017 with Appendix Cancer.. To say I was literally "Scared to death" is is putting in Mildly'! I had my first surgery Mid January of 2017 and My life Saving Hipec Surgery on July 20, 2017 at the University of Wisconsin Medical Center, Madison in Wisconsin. In between surgeries I was able to go online and find a terrific Appendix Cancer Group and meet Therese and several Others who have had experience in dealing with this Disease.. I am forever grateful to Therese Surges and others who have inspired me to continue my journey and never give up,, This year strong enough to run 5 K Run and Walk for Paul Carbone Cancer Center.. enclosed is a photo of Myself and My daughter shortly after I had my second surgery and was at rehab center.. I hope to help others on thier journey just like this foundation and Therese has been there for me..

6

Donor

Rating: 5

This site has been a Godsend for many people. It provides resources, contacts and support to those not only afflicted with the disease, but the caregivers and family members as well. Thank goodness for this organization and the compassionate people behind it. I know they give all. Keep up the good work ACPMP!

6 Renee B.1

General Member of the Public

Rating: 5

Since inception 10 years ago the ACPMP has raised and distributed over $1,000,000 in funds (with full fiscal transparency) to support appendix cancer research. Through their seed grant program, which supports up to three projects annually, frontiers in disease knowledge are being advanced and we are steps closer to developing new tools for disease treatment. Also important, publications associated with these research projects maintain visibility of appendix cancer disease within the medical/research community. We as a community are incredibly fortunate to have the ACPMP leadership to support disease research and awareness.

5

Volunteer

Rating: 5

In 2010, my husband was diagnosed with an orphan cancer called appendix cancer/pseudomyxoma peritonei. The ACPMP Research Foundation (ACPMP) is the only non-profit organization raising funds for research to improve the treatment for this rare cancer, by offering research grants administered through the National Organization of Rare Disorders (NORD). To date, ACPMP has funded nearly one million dollars in promising research grants to improve the lives of patients diagnosed with these diseases.

ACPMP is often the first contact a patient or patient advocate will make when diagnosed with this rare disease. They provide current, relevant information to those seeking advice. ACPMP points patients in the direction of specialists who treat the disease, clinical trials, support networks and a number of other clinical/social avenues for them to pursue.

My husband lost his life to this cancer, and this organization gave me a home in which to honor and keep the hope alive for others who, by all accounts, are being diagnosed more frequently in part due to awareness campaigns and education which are a part of ACPMP’s core mission.