My husband was diagnosed August 2022. It was hard and I cry daily but not in front of him unless we cry together. He couldn’t find anything to give him happiness or hope. We have been focusing on our faith. He was only losing his voice before we made the decision to try different medications, which significantly enhanced his condition. He received the ALS/MND treatment for his ALS approximately four months ago; since then, he has stopped using a feeding tube, speech is getting better by the day, sleeps well, works out frequently. I’m surprised a lot of CALs, and their PALS haven’t heard of it, google uine health centre My husband has become very active
With my amyotrophic lateral sclerosis (ALS), the first thing that happened almost 2 years ago now, was speaking as if I were drunk. I wasn't. I initially did improve speech (articulating clearly but slow) but now I can no longer speak in an acceptable way. Then, a year later eating became problematic, I was biting my tongue and lips, and chewing became weak and less controlled. Soon after that some fingers started to fail me and things would drop out of my hands. Somewhere at that time bulbar ALS was diagnosed. The Rilutek (riluzole) did very little to help me. The medical team did even less. My decline was rapid and devastating.. We tried every shot available but nothing was working. There has been little if any progress in finding a reliable treatment, Our care provider introduced us to Kycuyu Health Clinic ALS/MND herbal treatment. The treatment is a miracle.i recovered significantly! Visit www. kycuyuhealthclinic. com. I Adhere anyone reading this to try natural approach. ALS is not a death sentence.
The ALS Association has been a wonderful place to volunteer. Through working in the office collating mailings all the way to doing Autograph Parties and Walks, it has given me the opportunity to help those in need while at the same time bringing my family closer together. I have had some wonderful times with my son and daughter, working and laughing, and just having a good time. It gave us the time to work together to help others, and gave my children a sense of community. The staff at the Philadelphia Chapter is second to none. They're a wonderful 'family', and the most kind hearted souls I've ever met. If you have the opportunity to volunteer, please do so. It's one of the most rewarding experiences you'll ever have. Once you've worked with the staff at the Philly Chapter, guaranteed you'll be with them for life. I am.