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American Parkinson Disease Association

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Nonprofit Overview

Causes: Health, Human Services, Nerve, Muscle & Bone Diseases

Mission: APDA was founded in 1961 to "Ease the Burden and Find the Cure" for Parkinson's through research, patient and family support and education.

Programs: Public and professional education - to educate the public and medical profession with programs for the benefit of parkinsonians and their families. Approximately 76,411 newsletters are mailed annually.

information and referral services - to promote awareness of and provide information to persons suffering from parkinson's disease. 32 information and referral centers funded.

research centers - to foster and promote research for the cure and alleviation of the condition of persons suffering from parkinson's disease. Seven advanced centers were funded. Two summer fellowships were funded.

Community Stories

13 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

Around age 60 I noticed that my handwriting was getting smaller and I was writing faster. I also noticed a small tremor in my right hand. The doctor went over my different symptoms and he suspected I’d either had a small stroke or the beginnings of Parkinson ‘s disease. After finding a neurologist and some testing I was diagnosed with the beginning stages of Parkinson’s disease. That was 4 years ago. I took Sinimet four times a day to control my symptoms, which include falling, imbalance, gait problems, swallowing difficulties, and slurring of speech, A year ago, I began to do a lot of research and came across Kycuyu Health Clinic (www. kycuyuhealthclinic. com) and their Parkinson’s HERBAL TREATMENT. After seeing positive reviews from other patients, I quickly started on the treatment, I experienced significant reduction/decline in major symptoms, including tremors, muscle weakness, speech problems, difficulty swallowing, balance problems, chronic fatigue and others, The truth is you can get off the drugs and help yourself by trying natural methods, i live symptoms free.

Advisor

Rating: 5

My husband was diagnosed of Parkinsons disease 2 years ago, when he was 59. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Siferol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge)  him on PD natural herbal formula we ordered from TREE OF LIFE HEALTH CLINIC, his symptoms totally declined over a 3 weeks use of the TREE OF LIFE HEALTH Parkinson's disease natural herbal formula. He is now  almost 61 and doing very well, the disease is totally reversed!  (w w w. treeoflifeherbalclinic .com)

Advisor

Rating: 5

I was diagnosed of Parkinson's Disease a couple of years ago, I had severe fatigue, difficulty with mobility and sleeping. I was given medications which helped but only for a short while. So i decided to try alternative measures and began on Parkinson's HERBAL TREATMENT from Kykuyu Health Clinic, It made a tremendous difference for me (Go to their website www. kykuyuhealthclinic. com ). I had improved walking balance, muscle strength and improved vision

Advisor

Rating: 3


I was suffering from Parkinson's since 2016 & life had become disastrous for me,72 % of my body was covered by Tremors.After taking product from www.ultimateherbalclinic.com under supervision of Dr Ernest Albrecht, I started getting results within 3 weeks of their dosage .One day I got extremely sick, could not keep anything down, difficulty standing, restless sleep,I Started taking this remedies 2 times daily Morning and Evening, I am writing this to inform others that nothing was really working to help my PD other than this product.I went off my previous medications (with the doctor's knowledge) and started on their Parkinson's disease herbal formula.Treatment went very well and tremors are gone.

Jose N.1

Donor

Rating: 1

the idea of the foundation is great.. HOWEVER THE CUSTOMER SERVICE STAFF ARE UNTRAINED AND DISCOURTEOUS.....GIVE CANNED ANSWERS AND UNWILLING TO RESEARCH INFO ON DONATIONS MADE.....IN OTHERWORDS IF IT IS CLOSE TO BREAK TIME OR REQUIRES EFFORT DON'T BOTHER THEM.....AND THEY HANG UP

Professional with expertise in this field

Rating: 3

http://www.parkinson.org/get-involved/my-pd-story/Jeanie

Review from Guidestar

4

General Member of the Public

Rating: 5

I was diagnosed with Parkinson Disease on September 11, 2008. I immediately was notified of APDA by my Neurologist, and I started right away to benefit by the organization. APDA provided me with more than enough literature educating me about the disease, and giving me suggestions on how I could cope with the disease. APDA has several local support groups in the St. Louis area, and I have attended a weekly exercise program offered free of charge by APDA. The support group also meets once a month, and when possible a medically trained professional will speak to us about Parkinson Disease and what we can do to live with the disease. Luncheons and banquets are provided free of charge at various times during the year, and once or twice during the year a PD specialist will speak to us at a forum.

Review from Guidestar

Volunteer

Rating: 5

We are support groups leaders for two support groups in MO. We could not do it without APDA St. Louis. We regularly refer members to the resource/information center for guidance and resources to deal with this destructive disease. The national nature of the organization gives us assurance that wherever we go we can count on help when we need it.

Patsy Dalton

Review from Guidestar

Professional with expertise in this field

Rating: 5

The APDA has been most helpful to myself and my family when my father was diagnosed with Parkinson's disease. They provide literature, programs and emotional support in dealing with a complicated illness. I was impressed enough with the organization to become a part of it and facilitate one of their support group, and have been for 13 years.

Review from Guidestar

Professional with expertise in this field

Rating: 5

I have seen first-hand the impact this organization has had on people living with Parkinson's. I've talked with patients who have directly benefitted from their exercise classes, support groups and referral services. The amount of literature and knowledge on the disease at the chapters is astounding. I would definitely encourage anyone who is diagnosed with Parkinson's to contact one of their local chapters and take advantage of their services. If you have the means, it's definitely worth giving to this cause.

Review from Guidestar

1

General Member of the Public

Rating: 5

APDA has amazing free educational publications. I have been very impressed with their Center for Advanced Research. The people are so caring and helpful. They will even help you find a physical therapist or caregiver. It is a fantastic organization!!

Review from Guidestar

1

Client Served

Rating: 4

I found APDA to be most helpful in answering my questions about my disease, in aiding me to find doctors and with the programs offered to aid me in keeping mobile, alert and functional. The personnel at the Center for Advanced Research at the University of Virginia has been especially knowledgeable, sympathetic and beneficial.

5

Professional with expertise in this field

Rating: 1

Poorly lead national leadership. Local chapters are independently run and are led by competent local leaders. Unfortunately, the local chapters are required to provide "tribute" of 80% of their fundraising donations to the national office. What do local chapters receive in return? A slowly degenerating nationally recognized name without leadership. The Board and national office requires a shake-up. (Comments reflect national organization based in Staten Island).

Review from CharityNavigator