American Association of Kidney Patients, Inc.

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Nonprofit Overview

Mission: The American Association of Kidney Patients (AAKP) exists to serve the needs, interests and welfare of all kidney patients and their families. Its purpose is to help patients and their families cope with the emotional, physical and social impact of kidney failure, thereby enabling them to resume productive and satisfying lives. Founded in 1969, AAKP is the only national kidney patient organization directed by kidney patients for kidney patients and reaches over 1 million patients per year with needed information about kidney disease.

Community Stories

9 Stories from Volunteers, Donors & Supporters

tlitchfield Volunteer

Rating: 5

09/10/2018

My husband was one of the first members of this outstanding kidney patient organization. It was AAKP(then called NAPH National Association of Patients on Hemodialysis) who led the patient fight that successfully got Medicare coverage to all patients on dialysis! I have seen AAKP step up on behalf of kidney patients everywhere through their advocacy, education and public awareness programs. My husband has since died but our family still supports this group. Good steward of donated funds; AAKP is a real deal non profit for all kidney patients.

Review from Guidestar

swampgirl Volunteer

Rating: 3

06/24/2011

I have always received excellent service/help fron AAKP. No matter how silly or aggraveting I thought my question was, I always felt like the person on the other end was happy to help me. You could almost hear them smile.

1

Kuelinda General Member of the Public

Rating: 5

06/18/2011

My son has recently heard about the American Assoc of Kidney Patients from his cousin, Laura Chirichigno, whose business is Business Support Partners in the Tampa area. She and the executive director - Karen - got the information for my son. He's on dialysis 3 times a week because of Diabetes and we're trying to get him on the kidney transplant list at Tampa General. The AAKP is sharing information with us about the timeline and requirements for this.

awhess Client Served

Rating: 5

06/17/2011

Kidney disease is not rare. We all need a working kidney to live productively. AAKP is the organization that seeks to advise kidney patients--and their families--on how best to handle their disease at every stage of the process. AAKP educates and supports basic research. Both dialysis and kidney transplantation have improved remarkably over the close to 30 years since my diagnosis of polycystic kidney disease, a genetic disease.
Support groups,nutrition advice, and treatment options keep us aware. Progress is ongoing. I support AAKP.

Barbara F. Client Served

Rating: 5

06/16/2011

I had a kidney transplant in 1998 and have been a member of the American Associationi of Kidney Patients for most of these past 13 years. The stories and email updates I've been provided have been very beneficial to my overall treatment and success in maintaining a healthy transplant. I've often read articles that talk about innovative treatment plans or new medication options, and have brought these to my doctor's attention. (My doctor probably has the impression I'm so much smarter than I really am - but the AAKP website makes me look so good!) The diet and exercise suggestions, and human interest stories all provide great guidance and inspiration. The AAKP website is a great place to visit and pick up a lot of good information. I feel I'm not alone out there with my peaks and valleys of transplantation.

Bonnie Volunteer

Rating: 4

06/16/2011

I have presented at a pt. meeting
for AAKP and it was a great experience for me. The patients and family members were so appreciative and the AAKP personnel so good. This is a valuable part of the dialysis world - resources, literature and support for our patients and their families. Keep up the good work.

landladyusa Client Served

Rating: 5

06/16/2011

AAKP helps you understand your kidney disease and how to manage it. It helped me when I was diagnosed. There is very little information out there written in a way that the average individual understands. AAKP helped me to understand my chronic kidney disease, what it means and how to live with it. They produce magazines and all sorts of materials for people to read. They also have seminars to attend. Nephrologists (kidney doctors) do not have the time to educate. AAKP does a good job of that

Marsha F. Client Served

Rating: 5

06/16/2011

I received a kidney transplant on August 11,2010. The entire process was painless, professional, and successful.
Lifelink educated me as to what I should expect. They insisted on current testing so I would be ready when they called. Their doctors, nurses, and technicians were not only professional but also friendly and kind. I felt comfortable in their care.
My followup has also been easy. If I do have any complications, I can contact my nurse coordinator and she gets back to me quickly.
Visits for examinations and blood tests are very organized. I get instant feedback on how I'm progressing and any changes to my medication.
I have been so pleased with my experience with LifeLink and I would recommend the transplant center to anyone looking for excellent care.

I would recommend LifeLink to anyone

1

Doug C. Client Served

Rating: 1

06/16/2011

I tried to find out their position on illegal aliens receiving kidney transplants and dialysis services for FREE over Americans. To day, I have NOT received a response.

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