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- EIN 56-1609591
- info@alsnc.org
- (919) 755-9001
- 4 N Blount Street Suite 200 Raleigh NC 27601-1025 USA
- www.alsnc.org
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Nonprofit Overview
Causes: Alliances & Advocacy, Arts & Culture, Health, Nerve, Muscle & Bone Diseases, Voluntary Health Associations & Medical Disciplines
Mission: To support and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing advocacy, and providing comprehensive care to individuals and families affected by ALS.
Results: In 2023, ALS United North Carolina assisted more than 1,000 individuals with ALS and their caregivers, with ages spanning from 23 to 93, including 68 U.S. Veterans. Over $540,000 awarded in financial grants to ALS patients and clinics in North Carolina. Supported 254 newly diagnosed patients. Our Care Services Team collaborated with our 6 ALS clinics to oversee 1,500+ visits. 144 families assisted with transportation for ALS care through our Care Grant. 104 virtual support groups held with 270 attendees. 475 individual pieces of durable medical equipment (DME) picked up or delivered free of charge. Provided funding for over 2,700 hours of in-home respite care. 239 families received financial support from our ALS Care Grant. 334 families utilized our durable medical equipment (DME) loan closet. 326 pieces of durable medical equipment were added to our loan closet. Thanks for making it all possible!
Target demographics: Our ALS United North Carolina Staff, Board of Directors, Partners and Volunteers have been, and always will be, committed to connecting our local ALS community so that no one faces an ALS journey alone. We are privileged and proud to serve our community.
Direct beneficiaries per year: Our programs and services provided continuity of care to over 1,000 people with ALS through ongoing support, equipment loan programs, multidisciplinary treatment options, financial care grants, and support group meetings.
Geographic areas served: North Carolina
Programs: Research, ongoing support, equipment loan programs, multidisciplinary treatment options, financial care grants, support group meetings, caregivers conference, awareness and advocacy events.