I understand that Mr. Milheiser has helped some people who are not only victims of this horrible disease, but also caregivers who care enough to give of their time, money, and energy to make sure they don't starve; that they can make sure they don't get dehydrated because they can't get their own water or juices; to make sure that they can get to the bathroom without having to resort to adult diapers. But all I can tell you is that I have sent him 3 Grant requests which have been completely ignored. He said he never got them. Really? The last one I sent onI talked to him the other night, and he said he would help, and that I could call him 24/7 if I just needed to talk. The next night he didn't take my call, nor did he call back. I've heard of non profit scams, but this is just the bottom of the barrel. is he just helping a few to get glowing reviews and blow off the rest? How much salary is he paying himself? Good question. The last one I sent on July 2nd. I made a copy of it to prove that I filled it out. This is either a computer glitch or a scam. But if it were a glitch, why didn't he talk to me about it as one human being to another. Why wasn't he alarmed that other needy people are not getting their Grant requests in. Wouldn't you want to know, if you were the head of an organisation that is supposed to be there for those who need financial help. Oliver Ross , the Care Services Coordinator of the ALS Association, Evergreen Chapter gave me his organisation's name, and told me that these people would help us. Well, all I say is, I'm not holding my breath. Not only am I going to tell Oliver, who's helped Damien from the beginning to longer support this group, but also all other ALS organisations who support them. And I'm also filing complaints with every Governing body that regulates non profits in this country.
Most often if a patient lives way beyond the expectation of 2-5 years @ the time of diagnosis, they have been misdiagnosed, and actually have some other auto immune disorder that initially presents itself similarly to ALS.
My husband was diagnosed with ALS in January 2007 and died in March 2011. Early in his diagnosis we were referred to Stu. He had a speech device and was willing to give it to us. He got in his car and drove to our house to deliver it. He didn't know us at all but he was willing to give us a $16,000 piece of equipment!!! Since then, I have met and heard from a multitude of people who have been helped by ALS Guardian Angels. This organization goes far beyond any insurance company or other ALS organization in meeting the often desperate needs of ALS patients and their families. I support them wholeheartedly. ALL money donated is used for patient care. All operating costs are absorbed by Stu Millheiser, the organization's founder. He donates all his time and much of his own personal resources to the organization ALS Guardian Angels has my 100% endorsement.
My Husband lived with Als for 10 years & He was 44 at the time of his Death sentence, In the last 5 years of his life I found the Als Guardian Angels on You Tube, And I was thinking there can't REALLY be anyone out there that Cares this Much About Als! But, Lordy I Was so wrong!!!!!! They helped us with so many things & Quite a few Christmases & Thanksgivings , And in the End of my Husbands Brave & Heroic Life They Purchased His Monument so He could have one, We had no insurance or ever thought we would need such things at our age's Thank you Als Guardian Angles For Giving "The Best Man Ever" Help through this BEAST called ALS!!!!!!!!!!!! God Bless you all that help & volunteer too Help Stu Keep this wonderful Charity UP! Amen You are all doing Gods work & God loves you All!
People living with ALS are told they will only live 2 to 5 years. ALS steals everything even friends, family, jobs, homes , many times a person with ALS is alone and has nothing and no one. ALS destroys the muscles of people so they can not move, talk sometimes not even a blink of their eye . Soon the breathing muscles get weak and breathing stops. ALS Loves you , ALS Loves everyone and will come visit you, your family and friends as ALS does not care how old you are who you are sometimes attacking whole family's, mom, dad, brother and sister, aunts and uncles. Someone new is told they will die from ALS every 90 seconds . There is no cure for ALS. It's a horrible way to live and die.
ALS Guardian Angel Foundation loves us living with ALS unconditional , helping us living with ALS wanting nothing in return . ALS Guardian Angels is the only agency you will find where 100 percent of the donations go to the people living ALS . Not one person gets paid. Not even a stamp is used with money from a donation. They help us with things insurance will not or when someone has no insurance.
Respite care, helping to remodel your bathroom so you can use it, shower chairs , wheel chairs , help with vans, food, maybe even Christmas gifts for your children while it may even be your last Christmas alive. I could never say enough about ALS Guardian Angels and the Gentleman who started it and works from his dinning room table helping people with ALS is a full time job that not only does most of the donations come from Stu alone he never would take a penny paycheck . No one gets paid. You will never find a foundation like this helping people living with ALS , loving us when no one else does, here for us when no one else does being here for us all when no one wants us. ALS is not pretty, it's scary , dark and ugly. People turn their backs on us but we always know we can count on ALS Guardian Angels to be here for all of us living with ALS. When Stu is not at his dinning table a full time job for him at ALS guardian Angles you can find him holding the hands of someone who is dining so they won't have to die alone , or helping someone not lose their homes , or he is at a nursing home where someone is not getting proper care .
I am not a good writer , I am asking from the bottom of my heart to please help ALS Guardian Angel Foundation love and care for all the people with ALS.
This is a great way ! Thank You so very much for helping.
Review from Guidestar
What a fantastic organization! Stu Milheiser provides emergency support to people with ALS so they can cover those necessary expenses. He helped our family in a time of need, and I personally know of many other families he has helped. He is a one-man charity, but he manages to get it done. Great organization to support!
Review from Guidestar