This organization is absolutely incredible, I was welcomed with open arms and have felt I have been able to be a valuable member since joining. The community is comprised of amazing individuals who are all so kind and supportive.
I have been with Aiarthritis, before we were an official non profit. Being a person that has 2 Autoimmune Arthritis 's. My best way to stay "healthy " is to learn all I can about my body and conditions. Being a patient and volunteer, I have learned more than I could have any other way. We teach, support, learn and are involved with many other non-profits .Advocating on every level. Knowledge is power!! We are educated in our conditions and medications, we know how to jump through Insurance hoops. We teach and support internationally !! And have for 14 years!! Bravo Aiarthritis, you are truly making a difference!
This organization fills a void for so many of us with auto-immune arthritis. Auto-immune arthritis is different because the disease is systemic and not solely “wear and tear” of joint tissue.
This not-for-profit is well run and everyone I have met is a dedicated professional who also is living with an auto-immune arthritic condition.
When I was newly diagnosed with a rare autoinflammatory disease, AiArthritis was literally one of only two places on the internet that had meaningful information about my new condition and its treatment. When I reached out to them regarding World AiArthritis Day, I was blown away by the kindness and warmth of the staff and volunteers. Their patient advocacy and involvement in research is par excellence. I’m proud to now be volunteering alongside this wonderful group.
Always groundbreaking work! Never a blueprint to create projects. Listen to patients to identify the gaps and create unique projects to solve those gaps. Award winning!
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AiArthritis is an amazing family of volunteers who have been part of my life for almost 10 years. I love the passion of our founders, and our CEO Tiffany who puts every ounce of herself into this organization. I believe 100% in the mission which focuses on Education Advocacy and Research! I have truely found my home w them and give everything I have into making us who we are! I am proud of our growth and give of my time and money to this organization! It is by our donations and time we accomplished what we start. We learn what gaps are missing in our patient journey n we strive to change that gap by listening to others. We don’t do it the typical way either we do it differently… innovative ways is always our way. Try us out and see if you want to stick around. I know you will!! Volunteer with us.. we will never overwhelm you or ask too much. It’s ALWAYS based on the time you can give…. NEVER crossing that line! We are definitely worth your donations as it’s always used in the most effective ways. I love everything about AiArthritis!!!
AiArthritis was the very first website that popped up when I was browsing definitions for Stills Disease, after coming home from the hospital. After getting diagnosed, I had never heard of Stills Disease and so I looked it up on google. The Stills Disease pamphlet was the very first resource i came across on and i signed up for the newsletters. I soon joined my first EULAR Go with Us and decided to volunteer from then on. The staff are the friendliest and most helpful. The foundation is very professional as well. Overall, I am grateful for this group of wonderful people.
AiArthritis is a godsent. Volunteering with this organization has given me the opportunity to do something positive with my disease. I am surrounded by other patients who know what I am going through and are always there to lend a hand. I never feel judged only empowered. I cannot thank AiArthritis enough for the inner peace it has given me and opportunity to give back.
This is an amazing organization. I have learned a lot just in a short amount of time that I have been volunteering with them. The leadership team is wonderful and they love to help in any way they can. The other volunteers and leadership staff are very knowledgeable in many different areas which I love. I'm very thankful to be able to volunteer with an organization that is patient-led. It's awesome to work alongside other people who have either the same disease as me or they have a similar disease and they get how it is every day.
When I was first diagnosed with the rare autoinflammatory disease Adult Onset Still’s Disease, I was desperate for information. I was so grateful to find this organization. The first thing I did upon finding there website was print out disease information cards for healthcare providers for my husband’s wallet and my purse. Due to the rare nature of some of these conditions, already overwhelmed ER providers may not be familiar with your condition and time is of the essence to avoid complications. Their ongoing advocacy and patient education is amazing. I’m so glad I found this group.
Unique nonprofit led by patients who understand! Resources and programs like "going with them" to conferences have improved my life living with RA. It's like they just know what I need and then are available to make sure I get the resource to help me.
AiArthritis is a fantastic organization and resource filled with a fantastic community of fellow patient advocates.
I have volunteered with AiArthritis for close to ten years. I’ve watched it grow into a foundation that provides its volunteers many ways to participate, learn and advocate. Its starting premise is that it’s entirely made up of individuals who have autoimmune Autoinflamatory Arthritis. They understand when my disease makes it hard to participate. Most of the volunteering can be done from the comfort of our homes. Not only is this helpful when you have a disease that can limit mobility but if you live in a tiny little town and still easily participate in anything you want. I like that it is for anyone anywhere in the world.
I have been a long time Representative of AiArthritis since 2014 I have seen the growth of programs such as ACT(A Community Team),Patients,Researchers,
Collaborators all coming together working together to workout problems and solutions all on on one platform called AiArthritis voices. I am part of an Administration Team on the AiArthritisVoices Website and and also part of the Podcast Team and Ebook Volunteer Committee. AiArthritis are a great group of problem solvers all are Patients with Business backgrounds and all have a level of patient understanding we get it we live it and we share our experiences aswell.
This organization has taught me so much with regards to patient involvement, precision medicine, and shared decision making. Since joining in 2019, I have been a part of the many committees here, as well as being a guest and host of several podcasts. Every time I asked to be involved in a project, I was always included. This organization has helped me grow as a patient, patient researcher, and advocate.
This organization is patient led and they really want to hear from the patients. They want the patient to be involved with ideas for projects and to help make changes to policies which I love. I started volunteering with this organization last year and I am loving it! The staff is very helpful and the other volunteers are amazing as well. Please go check out their website.
AiArthritis is an amazing non-profit that puts the patient first. They concentrate on autoimmune and autoinflammatory arthritis and they have become experts in research, treatments, advocacy, legislation and the patient experience, more so than other rheumatoid organizations, which is very important to someone like me that suffers from psoriatic arthritis. They have a great team approach that incorporates input from their staff, volunteers, patients, doctors, nurses, caregivers, insurance companies and more to get a comprehensive understanding of patients and what they need and want to improve their quality of life. I joined them as a volunteer/advocate last year and it has been a great experience! Check out their website and you will be as amazed as I am and see why they are an organization worthy of your donations.
I have watched this organization grow from nothing to being a great resource for people with Autoimmune illnesses. The staff is wonderful and advocate for patients and doctors and pharmaceutical companies to work together to benefit the patient.
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I FAA is a wonderful organization, ran by people who have become experts and advocates, because they are patients too. Their website has lots of great information and links. They are always working on cool projects, and trying to make life better for those who suffer with an autoimmune arthritis. I am a volunteer representative and a patient. The IFAA helps me explain, understand, and deal with my illness. They give me strength and hope.
I have been working with IFAA for almost 5 years now. I have seen so much growth and beautiful fruit coming from generous hearts working together to bring truth about Autoimmune diseases and dispell some of the falsehoods of these horrible diseases. I want to say thank you for all you do.
I am proud to be a part of such an amazing team of people! We are all patients working together to help other patients as well as doctors, nurses, caregivers and even insurance companies figure out autoimmune disease, treatments and remedies. I can't wait to see what we are able to accomplish in the years to come!
I get to watch IFAA behind the scenes because my wife runs the organization partly from home and partly from their office in downtown St. Louis. The passion she and her team has for making a difference is like nothing I've ever seen. They use their experience as patients to find problems no one else can see, then they work so hard to find funding so they can create a team to fix what is wrong. I'm so proud of them!
IFAA has been an invaluable resource for awareness and information relating to inflammatory autoimmune diseases. The are amazing advocates for patients around the world.
It is wonderful to be involved with this amazing organization and I am honored to be a representative since 2012. It was created and is run by patients, like myself, (I am a disabled- retired Registered Nurse) and others who are current/former educators and business professionals as well, all who have been diagnosed with an autoimmune/inflammatory arthritis disease(s). We volunteer our time to help raise not only global awareness and advocacy of these diseases but promote wellness education, and involvement in patient-centered research. IFAA continues making a difference everyday and continues being the "patients" voice! I look forward to continuing the journey with them, making a huge difference for all patients diagnosed with an autoimmune/inflammatory disease.
Excellent non-profit organization helping auto-immune arthritis patients through online support and voluminous resources . IFFA also hosts a major event annually, WAAD, that attracts global non-profits dealing with similar diseases, again with the goal of patient education and support. Additionally, their ongoing Patient Cantered Research Projects are fundamental to their charter and are phenomenally beneficial for patients.
IFAA is non profit made up uniquely by patients who suffer from some form of autoimmune disease. I am a representative of IFAA and love every moment.. It's a second family who understands.
IFAA is a 501(c)3 nonprofit that takes on the issues that really matter to patients. Their focus is patient-centered and they strive to stay on top of what matters to the autoimmune arthritis and autoimmune inflammatory community, and work to solve the problems these patients deal with on a daily basis. It is patient run, so they know exactly what the needs and issues are, and the organizations founders and volunteers have backgrounds in business and leadership which allows them to excel at accomplishing their mission. The organization is also global, and they have done (and continue to do) an amazing job of bringing together organizations from around the globe to work together on these issues to ensure patients will have access to awareness, advocacy, wellness education, patient-centered research, and hope for the best possible care.
As a volunteer(IFAA Representative) with the International Foundation for Autoimmune Arthritis I have found them very valuable for my journey I am a patient with Rheumatoid Arthritis and it really empowers me to feel part of a fantastic non profit organization. Patients from all over the world are able to volunteer and be part of a great team working together making a difference. IFAA is part of many projects and works with other organizations aswell to bring fantastic resources to patients with Autoimmune/Autoinflammatory Arthritis Diseases. The World Autoimmune Arthritis Day held Annually is held online so anyone in the world can participate and is definitely one of my Favourite times of year because together we are also raising awareness of these Diseases and something I am very passionate about. Thx Team IFAA you really have given me a sense of belonging we are TEAM AWESOME :)
IFAA is a 501c3 non-profit that is run by patients for patients. They take on issues that matter to the patients living with autoimmune arthritis today and establish change to better the lives of patients tomorrow. They are a global network committed to patient centered research, advocacy, wellness education, and disease awareness. IFAA's founders and volunteers consistently excel at uniting non-profits, businesses, and patients for the betterment of the autoimmune arthritis community.