The AFE Foundation is incredibly close to my heart, and it has been a part of my life as long as I can remember. My mind blowingly resilient Mom suffered an AFE in 2005, and it was an extremely alienating disaster. I saw the changes and devastation firsthand. However, after finding a community of people who went through the same disaster, there was a huge light at the end of the tunnel. This foundation has given my Mom a support system unlike any other -- one that only these amazing women could have created. She speaks to members of the foundation on a weekly basis, whether it be via Zoom or Facebook. It is an integral part of her new life. I am eternally grateful for the work they do, including fundraisers which I have taken part of over the years. The awareness they spread is paramount, as this issue is still so under researched and causes so much pain. I love this foundation, and it truly has made a difference in my life. Even if you or a loved one has not been affected by an AFE, it is still worth looking into as you are brightening the lives of so many families all over the world.
The AFE Foundation is a home away from home. I found this wonderful foundation when I felt completely alone (while being surrounded by my family). I couldn't quite grasp what happened to me, or how to move forward with my life. Miranda, and the AFE Community, have provided me with a true home. Somewhere I can turn when I need support, and love. I have seen first hand how the foundation can change lives after, and during, an AFE. They are truly paving the way to #endafe with the research and outreach around the clock.
The AFE Foundation helped me tremendously after the sudden loss of my best friend Molley Cartwright in February 2018. Miranda was a source of hope, comfort, and knowledge that I will always be grateful for. Their work is necessary and incredibly impactful! -Samantha
The AFE Foundation has served so many families affected by amniotic fluid embolism. They’ve done tremendous work when it comes to funding research and providing resources for patients AND clinicians. Proud to work closely with them!
When my sister, Amanda Kotrba, passed of an amniotic fluid embolism in January of 2016, I hadn’t heard of this foundation. My mother, Constance Holyfield, found a page for this foundation through Facebook. I took the time to do some research on the AFE Foundation and read through the many stories that people shared of their loved ones experiencing such tragedies. Every year since, I’ve held donation campaigns on my birthday for this foundation and knowing that an impactful group as this can truly change lives and reach across the world is so touching and inspirational. AFE Foundation is such an incredible organization and I’m so grateful to help make a difference. AFE Foundation has also helped pass legislative changes in Congress to ensure better care of the birth mother. I appreciate the time, effort and work that this organization has put forth to make this cause more visible and I undoubtedly will continue my support for this organization.
Amber Holyfield
This organization gives information and support to AFE survivors and their families and to families of those who did not survive. The work they do is crucial to finding a solution to AFE.
I survived an AFE during the delivery of my 3rd child. An emergency hysterectomy to stop the DIC saved my life, but I would go on to require more emergency surgeries. Our survival was nothing short of a miracle and the severity of my condition post AFE kept me in the ICU for a month. I suffered from kidney failure and heart failure and was terrified to return home to my other two children and husband. Once home and settled I began to try to understand what had happened and I found the AFE Foundation by searching my symptoms. I was not even on Facebook at the time, but opened an account to join one of the AFE Survivor Support groups. I don’t know what I would do without the AFE Foundation and the sisterhood of my fellow survivors. Miranda will not stop until a cure for this rare disease is found and no more families are affected by AFE. The support provided to grieving families, survivors, families of survivors, clinicians and all others who have been impacted is second to none. This is without a doubt a five star organization and the work being done is critical to the medical community.
The AFE Foundation was helpful to me in that it was founded only a year before I experienced a suspected AFE with the birth of my son in 2009. They were the only place I found that was doing any research or education in this area, and it has been amazing to see them grow over the years as they have really continued to step up in the areas of research and education. I have participated in several fundraisers for their cause, and they have been extremely upfront with their finances and what donations help with.
We are an “AFE grieving family”. Our beautiful daughter-in-law, Jacie Cochran, was lost to this condition during the birth of our miraculous grandson a little over three years ago. The Amniotic Fluid Embolism Foundation swooped in almost immediately to attempt to explain what had happened and to support our son through the shocking, unfamiliar, and incredibly difficult days that have followed. We are so very impressed by and appreciative of them. We will continue to call upon them when we have questions, comments, ideas, and/or issues as we continue to move forward and we have no doubt that the AFE Foundation will always be our most relied upon support system, the most trusted source of valuable needed information, and will someday #endAFE!
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This group’s online support has been very comforting to me. We lost our daughter in law to an AFE recently, in July of 2020. Before this, we hadn’t heard of this silent killer. This organization has been a provider of support and information to my son, myself and several others of us over the past few months and we are very appreciative of their work.
My mama passed of an AFE while giving birth to my younger brother sixteen years ago. Growing up, no one knew what an AFE was, and I have even had doctors tell me that I may have fertility issues because of their lack of understanding with the condition. As a child, it was incredibly difficult living with the idea that my mother passed away from a disease that no one seems to care about because of its rarity. I did not know about the AFE Foundation until recently, when volunteers reached out to me and offered me a community I never imagined could exist. For the first time, I felt that my mama's legacy was being honored through their community outreach, fundraising, and around-the-clock research. Miranda Klassen is the most dedicated executive director that any organization can hope for, and she is incredibly personable.
I suffered my AFE 9 years ago, I had cardio respiratory collapse, circulatory failure, DIC, blood oozing from every puncture site, torrential PPH over 6.5 litres, was helicoptered to a larger hospital and after being worked on and in theatre for 14hrs I was finally taken to ICU where I was kept intubated, sedated, paralysed and Ventilated for days receiving 46 units of blood, FFP etc. spending 3 weeks in hospital until I could go home.
I haven’t been able to read my medical reports as it scared me too much, that is until I found the AFE foundation and realised I wasn’t alone, they’ve supplied me with so much information and knowledge, reading other peoples story’s has been such a great help.
I’m now amazed I’m a survivor and not at all afraid, loving the fact I get to wake up every day and be with my beautiful boys.
I am an ob/gyn physician who experienced a patient having an AFE (amniotic fluid embolism/anaphalctoid reaction of pregnancy). At the time my wife was pregnant so I was more than a little “shell shocked” from being on the front lines battling this highly morbid condition. The AFE supported me personally when I had a bit of a “2nd victim” mentality. More importantly, my patient survived and I saw the support this organization provided to her and her husband and family. Finally, the patient and I together were able to provide blood samples and medical records to add to a registry to help us understand and treat this still somewhat rare and mysterious condition.
When I woke up in the ICU to learn I had AFE while delivering our baby, AFE Foundation had been there for my husband and family to answer questions while I was on life support. The Foundation was also there for me while going through recovery to answer questions and provide support.
When my sister-in-law lost her life to an Amniotic Fluid Embolism in 2021, the AFE Foundation was a huge help to our family. They have been an invaluable resource for my brother, his in-laws, and our entire family as we navigated the aftermath of her death. Also, the research that the foundation makes possible and their advocacy to spread awareness of AFE help to ensure that someday no families will experience what ours has. God bless the AFE Foundation.
I admire the work the AFE Foundation does to end amniotic fluid embolism and bring together those affected by it. I'm grateful to be part of such a supportive, caring and welcoming community.
Miranda and the whole AFE Foundation team helped my sister so much after her AFE, but what I wasn’t expecting was how much they helped me process that trauma as well! They understood the emotional toll on families there to celebrate a special day. The AFE Foundation’s commitment and compassion is truly awe-inspiring and I support anything they do!
I lost my daughter-in-law July 18th, 2021 from AFE. She left her husband(my son)and her 4 sons while giving birth to a surrogate baby. It was on her bucket list to help a family have a child and experience the same love that she was able to have with her family. We were all shocked and devastated and didn't know where to turn for information and support. My son found the AFE foundation and Miranda. We will always miss Lydia but it has helped to know that research is being done to prevent this horrible event from happening to anyone else. We are blessed to stay in contact with the surrogate family and the baby. The surrogate family is currently contributing support for AFE in many ways. I am very thankful for the AFE Foundation and for their work towards ending AFE.
The AFE Foundation helps raise awareness and research a birth complication that is currently unpredictable and unpreventable. They also support families who have both survived and lost loved ones to this unfortunate complication. I have found so much comfort in their support through the hardest time of my life.
After my wife had an AFE there was no one to turn to… UNTIL we came across this wonderful group! The AFE foundation has been very helpful in helping my wife find answers and mental support!
They have people to talk to that have similar experiences it’s nice to know people who can relate! Thank you AFE Foundation!
Amazing at spreading the word, raising awareness, and bringing together a wonderful group of people. The AFE Foundation has changed my life, giving me wonderful contacts and support after my AFE.
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The AFE foundation is an invaluable resource and community. We all need each other and and the AFE foundation brings us all together when we need it the most and I could not be more thankful for that.
I lost my 28 year old daughter May 2008. The AFE Foundation was just getting started, when I was searching for information. The friends I found there helped me though the saddest event of my life. I still feel a sister bound with many of these ladies back then.
Thank you for all you do every day.
I was recently referred to the AFE Foundation by my health provider. In a very short amount of time, Miranda and the AFE Foundation have turned things around for me in the best way possible. They helped equip me with knowledge, resources, and consultation I needed to get my health needs met. Most importantly, they gave me hope and peace of mind when I needed it most. The work they do is incredible, needed, and very much appreciated.
I lost my sister, Paula, to an AFE in 2012. I don’t think I would be who I am today without the Miranda and the AFE Foundation. Miranda helped our family through the grieving process while we learned our new path without Paula in it. I’ve met so many wonderful families - survivors and those that have lost like we did - throughout this journey and they all have helped me as well. I’m incredibly grateful for what the foundation is doing to help families but most importantly the research and education being done so no other family has to go through what we did.
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I lost my sister to an AFE in 2012. We somehow got connected to Miranda and the foundation during that time. We didn’t really speak until we decided to put on a fundraiser in memory of my sister with all proceeds going to the AFE Foundation. Miranda came to our small town fundraiser in 2013 and my life was forever changed. Since then, we have put on a fundraiser every year and I have attended conferences to spread my story on how AFE has forever impacted my life. We couldn’t have gotten our story out as much without the help of the foundation and the love and support we have received from survivors as well as family members who have lost as well has been nothing short of incredible. I miss my sister every day but I’m forever grateful for the AFE Foundation and Miranda.
Lost my daughter in 2012 to an AFE. We were in contact with the AFE Organization shortly after this happened. They were there for us. Miranda Klassen has been so supportive to our family. She has also helped us to be supportive to other families, whether an AFE Survivor or to families who have lost their daughter of an infant.
I cannot imagine dealing with the loss of my sister without the organization’s support, tools, and information. The work they do to support impacted families and doctors, help advance research, and raise awareness has been a godsend.
The AFE foundation created a sisterhood that gave me peace, understanding, and comfort after an unimaginable event that know else could give. They provide me with hope that someday no other family will have to suffer from this and the strength to go on when I felt loss.
I am so thankful to Miranda and all of the women that are part of this foundation!
I was unaware of this condition that took away my Beautiful Fiance and our Beautiful baby girl . I got on the internet after it all happened and found the AFE,had no clue what they did. So I shared my story with them and almost immediately I got a message from Miranda Klassen. She gave me her number in the message and asked me if I would call her. I immediately called and this soft caring voice answered the phone. We talked for a couple hours that day and several times after. Seems like when I'm having a hard time dealing with it she will call or message me out of the blue. This organization is all about trying to stop this horrible medical condition! They deserve to be at the top of the list every day!!! A very special Thank You to Miranda Klassen and her team for doing what they do!!!
I became aware of AFE Foundation two decades after experiencing this catastrophic medical condition. They were instrumental in connecting me to a network of others affected by this. I cannot articulate how deeply and positively affecting this was in processing all that had happened so long ago. The Foundation is the KEY organization in advocacy for research, education of medical professionals, and patient/family support for those dealing with the devastating aftermath of AFE. I’m forever grateful to Miranda and the organization for all they provide to anyone touched by this life-altering event.
Our daughter Brin had an AFE during childbirth on 1/31/21, she did not survive. Our first grandchild, a beautiful girl was born by emergency c-section. Our world has been turned upside down. This is so bittersweet. We have an amazing son-in-law and healthy grandbaby but will forever be missing a piece of our hearts. Miranda Klassen reached out to us and has provided much information and support to our entire family. She never seems to rest and is sensitive to all grieving families. I cannot imagine this journey without the loving and caring support of the foundation and it’s members. Please help this foundation, I believe the answers to this is within our lifetime’s reach if more recognition and honestly time and money will support it. 1:40,000 doesn’t seem like a lot but, meet and talk to the families that are devastate by these tragic losses. Thank you AFE!
When I was living in my darkest hour, the AFE Foundation and those who have been devastated by this condition, were there for me. They continue being there for me years later.
I lost my sister in July of 2020 due to AFE and my niece was born deceased. Thankfully, the doctors saved her, but my sister was gone. The AFE Foundation has helped show me the light during this difficult and dark time. I am grateful for all of the stories shared. Survival stories give me hope.
The AFE foundation is an incredible resource. I’ve seen first hand what a positive impact this foundation has had on my sister, who survived her AFE in July of 2018. Life after an AFE isn’t easy, but this foundation has given her so much hope and healing.
As a continued AFE supporter and AFE survivor, I have been able to see the dynamic and positive transformation it has taken not only on my life but on the lives of so many other families and survivors. It offers resources that strives to treat the entire person which includes their family and friends! I still cannot think of living without the AFE organization.
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The AFE foundation has given me so much strength. I have found my voice again. The support that this family gives me cannot be explained in words. I am just so blessed to have this foundation as a way to guide me through my medical condition and also to guide me mentally and physically through my healing process. I have also attended many of the online support groups and have utilized many of the resources posted on their feed. This nonprofit not only is helping people with their medical conditions but also helping people live and thrive. Thank you AFE foundation for your wonderful support. You touch every individual in ways that I cannot explain. I am so blessed for this foundation.
The AFE Foundation provides a place for women and families who are living through the unimaginable. I have found so much comfort and peace in this community following my nearly fatal AFE and eagerly look forward to the day when their research saves all future mothers and babies from losing their lives to an AFE.
In the hospital when the doctors could finally give a reason behind my near death experience after no warning when my water broke, the AFE Foundation was the first resource they found. Without being able to talk to me or get a lot of answers from the medical team, it was something they could search and gain knowledge from. When I was finally discharged from the hospital, it became a source for me in not only learning but support groups, a group of wonderful women who went through similar experiences, and a sense of healing. I could not be more grateful for this foundation and I would be lost without it.
Early this year my wife gave birth to our second child Alice, and lost her life doing so due to AFE (Amniotic Fluid embolism). I was in dispair, wanted to know more about what happened, and found this association. They helped me feeling not alone, giving me more info and creating contacts to people who experienced the same tragedy. I'm grateful to AFE, for what it does and it's mission.
This nonprofit has been a tremendous support system to not only me (lost my best friend to AFE) but to so many others. You can see the community need through the posts and reactions of family, friends and survivors.
On September 4th 2019, 1 year ago tomorrow, my beautiful daughter suffered the unpredictable unimaginable complication of giving birth an AFE. Our tragic loss is still unbelievable. The pain and grief is still so overwhelming. Thank GOD for Miranda Klassen and the AFE foundation. Miranda guided us through this sudden loss and helped us to honor our Dani by working with her doctors to send blood and tissue and all medical records pertaining to Dani’s AFE for their much needed research of this life ending complication. Miranda stays in touch with our family and provides the emotional support we all need. Don’t know where we would be without the AFE foundation.
The AFE Non-profit Support has been absolutely wonderful, by means of information regarding AFE, raising money towards research to end and prevent AFE, and emotional support for survivors and families of those who have suffered an AFE event. Their outreach to everyone who is apart of the group helps so many by making the members feel that they are not alone in the healing process emotionally, physically, or neurologically.
So very thankful for this Organization! They are bringing awareness & light to a topic that all pregnancy woman should be aware of, as if is a very dangerous but little known about birthing complication. Hopefully through their continued work they will be able to find a way to prevent AFE from happening to Moms & babies.
Hello! I’m an AFE widower. My wife succumbed to an AFE back in 2003 giving birth to our daughter. After the shock and daze subsided weeks or months after the AFE event I was researching for information about AFE in general I realized that very little is known about this rare medical event. I also realized that this is possibly something in the genetic make up of our family DNA so it became essential to try to do something to help bring about a resolve. I’m so grateful that the AFE Foundation was formed and has developed a National Registry of medical records for those willing to donate for research into this very complicated medical phenomenon. My wife’s records have been donated along with many others but still so much more needs to be discovered and the only why to reach resolve is by gather as much information as possible. Thank you to the AFEsupport.org Foundation for continuing to provide hope to the many many families who suffer from this rare phenomenon. They continue to be an exemplary non-profit organization that has the passion to resolve this complication at its core.
The AFE Foundation has been fantastic at supporting families and mothers who have been impacted from an AFE. They help keep the memory alive of those who have passed from AFE and celebrate the lives of those who have survived. They are also doing an amazing job at educating people.
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The AFE Foundation has been a great source of information and support for my family. My sister experienced an AFE during child birth, she was one of the lucky ones and lived. The AFE Foundation has provided her with support. I have gained knowledge about AFEs and and have been able to help spread the word. I am hopeful that with organizations like this one that more funding will become available and more information will become available as to why they happen and it will help spare families from going through this.
The AFE Foundation was there for our daughter and also a great source of information for us when our daughter had an AFE during the birth of her daughter. She survived the AFE but I think her healing began when she contacted the Foundation, thru them she has learned so much and has become involved with the organization to help others and to pursue research on this often fatal outcome to an AFE.
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My daughter had an AFE in January 2016, your organization had a great impact on her recovery,providing information, support and also allowing her to chat with other moms who had previously had AFE's. Keep helping these moms, their families and also continue the great work in trying to make AFE a thing of the past, Thank you for all your efforts!
The amniotic fluid embolism foundation is a great support system for my family. After my sister passed away from an amniotic fluid embolism, we were left with many questions, mainly “What is an amniotic fluid embolism and why did this happen? Their website was an instant resource for us to learn about the rare condition that took my sister’s life. We then learned they are working hard to research AFE’s and educate medical staff so they will know what to do when this happens to others. They even have an active Facebook group that is very supportive to families who have suffered AFE’s. This group has helped me in my time of grief to just know that other people are going through the same thing I have. I believe in this foundation so much that I make donations to them in memory of my sister. When I donated the first time, the founder of the AFE foundation even personally reached out to me to thank me and see if there was anything she could do to help me. This foundation has helped me so much in a difficult time of losing my loved one.
The AFE Foundation has given a voice to those who no longer have a say. The education, love and support of the Foundation reaches across the globe and beyond AFE. They’ve helped me find an outlet for my grief and they surrounded me like family.
When I survived AFE in 2014, they were 2 things I wanted to know - What is AFE(in more detailed) and Did other mothers experienced the same thing? I found the FB group and the website and I was very relieved and shocked at the same time to see how many mothers had experienced this complication. The organization has been very supportive and educational over the years and I will continue to support them and raise awareness for this cause. Thank you Miranda and your staff for your service and dedication.
When our daughter died due to an AFE we were devastated and didn't know who to turn to about this condition. It was wonderful to find this organisation and find other people who have suffered like us.
This organisation is doing amazing research to find out how to stop this devastating condition as it not only robs families of loved ones but also has ongoing disorders for those who have suffered it and lived.
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When our daughter died 8 years ago from an AFE I found this wonderful support network on Facebook. It has been wonderful connecting with families world-wide and receiving and giving support to them.
The work that is done through research will hopefully help other medical practitioners when a woman has an AFE during or after labour and other families will not have to go through the trauma and heartbreak we experienced.
I survived an AFE on Sept 22, 2019. I had never even heard of this life threatening, complication of birth. The entire ordeal was terrifying, the recovery hard, and I needed someone to help me through it. Experiencing a near death moment isn’t something just anyone can understand. The physical, emotional, and mental recovery I needed was specialized. This group and Miranda helped me get through it all. They provided research, a place to ask questions, they listened, and helped me heal. Thank you for creating something so many people are unaware even exists. I hope you bring awareness to everyone, including more healthcare providers so that they can be better prepared and better equipped to handle this unique and often unforeseen complication. No more mommies and babies should die. Thanks for all you do.
The Amniotic Fluid Embolism Foundation contacted me after I signed up for their support group. They spent an hour and a half talking to me and giving me so much needed information. It was the most helpful conversation I have had since losing my 26 y/o daughter to an AFE. This rare complication needs attention and financial support to help recognize and educate clinicians on risk factors, signs and symptoms. It is taking to many beautiful moms away from their babies and families. Her baby survived but now he is without his wonderful mom for the rest of his life. Please help them get the funds they need! Here is my beautiful daughter who left us her last most wonderful gift on her way to heaven. Lea Ann Stephens mother of Jacie Stephens-Cochran, grandmother to her son Jaxon Jay.
The AFE foundation has always been there for me and my family as we navigated the difficult time following my AFE. I could never say thank you enough
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My nephew Ben Federici lost his wife to any AFE and all the staff at the foundation helped him to work out anything that happened. They were always there for Ben and their three kids.
The AFE Foundation does an amazing job with their outreach and support of those touched by amniotic fluid embolism. They are guided by a true passion to help provide valuable resources and information regarding this devastating complication during childbirth. I connected with the AFE Foundation almost 7 years ago. My family turned to them when there was little to no information available. They are true champions for patient advocacy and are the leading organization for research regarding AFE. Impressed by their founder’s heart of gold and the amazing work she was doing; we were compelled to step up and volunteer to help find answers for AFE.
When my daughter in law had her AFE... we had never heard of it. Thru research online the ONLY information we found was on this website. Thru conversations - many tearful - with Miranda we learned of this life altering experience. Thanking God everyday for AFE Foundation. It helped with the loss of our beautiful daughter in law.
5 1/2 years ago my daughter and granddaughter experienced an AFE. Fortunately, thanks to God and an experienced battle wound team, they both survived and are doing well. Most other AFE victims are not as fortunate.
This wonderful group is doing what they can to increase awareness and create funds for research, so hopefully soon, no one else will have tragedy due to an AFE.
My daughter and granddaughter have since been honored by this group as survivors, and their story has been told to make other people aware of this rare, devastating experience.
Please, do what you can.
This organization is a literal lifesaver. They are there when the unthinkable happens. A family heads off to the hospital for one of the happiest moments of their lives, delivering a baby. The next thing you know, you are planning a funeral. I was affected so much after my amniotic fluid embolism. They were there to help work through not just the medical aspect of our trauma, but supporting our family emotionally and mentally through our time of great need. I value them so much, I asked to be involved with the organization to "Pay it forward." #endAFE
Genuine, caring, knowledgable people who are committed to educating the public and the medical community about AFE. My daughter almost died in 2017 during a procedure after her 16wk pregnancy ceased to have a heartbeat. I am forever grateful for the contact I had with this organization and all I learned and now pass on to everyone I meet. There should be a category for family member. I am the survivor’s Mom.
Just experienced an AFE in March, 2019 and this foundation has been instrumental in my healing and processing what happened to me.
Miranda puts her whole heart into this foundation.
I am so grateful for this community.
On March 15, 2012, my family lost my daughter, Megan, to an amniotic fluid embolism. We were absolutely devastated and paralyzed with grief. The support and resources provided by the AFE Foundation during this incredibly difficult time helped us understand and cope with our loss. My family will be forever grateful to Miranda Klassen and the AFE Foundation for the assistance they provide families affected by this devastating complication of pregnancy.
We were crushed and devastated after our older daughter passed away from an AFE. The AFE Foundation provided us the needed support (especially via the support group page) and let us know we were not alone on this journey. We will forever be thankful for Miranda Klassen and the AFE Foundation for giving us that needed support through an extremely difficult time in our lives.
This amazing foundation provides resources, support and community for survivors of AFE and to the families of those lost to it.
The AFE Foundation is an incredible organization that has shown exponential growth since I have been introduced to this group in 2016. I have spent 5 years working for a non-profit and understand the amount of work and passion it takes to just keep a non-profit afloat, let alone to grow. However, the AFE Foundation has blossomed and continues to thrive in the 3 short years I have followed, donated, and had to use for support during my AFE. The amount of progress and reach this organization offers is almost indescribable. When I suffered my AFE in 2016, my family, friends and even hospital staff had little to no knowledge what was happening to me. The AFE foundation provided unwavering support, specifically to my husband, during our crisis. We have become a part of this organization through all of the social media outlets, connecting and healing with other survivors new and old. It has provided a support system for me as well as reliable knowledge to share with others. I tried to find local support through groups and therapists in the Pittsburgh area, but it was next to impossible due to the specific nature of an AFE. However, through this foundation, I have found an incredible amount of people who can relate and connect, as well as share their healing journeys post-AFE. It is through the suggestions and experience through this foundation I pushed to have further medical examinations for a healthier after-care than I would have otherwise received.
Another striking feature of this foundation is how they contribute to the medical community. As I mentioned before, my original hospital had never seen a reaction like mine after childbirth. The AFE Foundation has partnered up with the Baylor College to collect information and medical data on each case. Their approach to gathering data is very very easy (from a patient perspective). This research has even excelled to the point where they are able to collect samples at the time of an AFE in order to gather more research! I feel passionately about doing whatever I can to prevent what happened to me to another woman. I actually feel like I have made an impact simply by sharing my story and educating people when they see or hear of an AFE. I am confident that this foundation will continue to grow and help others all while helping to reduce maternal deaths and incidences.
The AFE Foundation does incredible work with women and their families who have experienced an AFE. They further their cause through research and manage to make every individual feel special and loved through various approaches. The Foundation and those who work for it are passionate about their cause which is demonstrated by their ongoing support.
I found this nonprofit after my childhood best friend suffered an AFE and passed away during the birth of her first child. After an experience so shocking and devastating, it’s hard to know where to turn. I’m so grateful the AFE Foundation was there with answers and support. I have personally spoken on the phone with Miranda, the founder, and she is most impressive, professional, and compassionate. More families and communities than I had realized are affected by this terrible diagnosis and I’m grateful for the awareness, research, and legislation this foundation has produced.
This foundation has been a huge support for my family and I when my wife suffered her AFE. They were there from the first moment and have been there ever sense providing support in many forms. If it wasnt for the AFE foundation I don't know how I would have made it through this tragic event.
AFE is an amazing foundation! The support and community love is such a gift!! In 2003 I had to search for information on my own and there was very little. what was published was not current! Through Miranda's experience and efforts there is now a place for research, information, support and healing.
The AFE Foundation is passionate about spreading awareness and educating healthcare professionals and the general population about AFE’s. The hope for the future is that no family has to experience this traumatic event in what should be one of the best times of their lives.
Highly supportive and provides great information when we need it. They run a fantastic support group for survivors online and it’s a really great group of people on there and it has been so comforting to know we aren’t alone.
I am a 2019 AFE survivor and this foundation is wonderful! Put me in touch with several support systems and is extremely helpful with any questions I may have!
So grateful for the AFE Foundation and the work they do! Such a supportive coalition that anyone affected by AFE should be invested in.
The AFE Foundation has been the best thing ever to connect, encourage & educate survivors, as well as, supporting the many loved ones of those lost & survivor’s families alike!
I suffered an AFE or Amniotic Fluid Embolism while delivering my twin babies. I had no idea what it was and personally had never heard of it. I almost died. This foundation has given me support and more important it works hard every day to spread awareness and also help find a way to stop AFE or at least find a reason behind why it actually happens.
I had an AFE in 1975 and came very close to death. Afterwards I found that no one wanted to talk about what had happened. Everyone said "You survived ... be happy." I discovered the AFE Foundation online more than 35 years later. It was my first opportunity to share my experience and to communicate with fellow survivors. Such a relief ... to not feel alone. The Foundation has helped my husband and I to integrate the trauma of the AFE into who we are and to heal. Words cannot begin to express how meaningful that has been. Thank you Miranda for that gift.
When I experienced an AFE in 2014, the AFE foundation helped me to recover. Miranda is the sweetest, most personable woman. I had the joy to not only talk on the phone with her but to also meet her in person, and I have to say that there are not too many people like her in the world! The AFE foundation helps women and their families heal after AFEs. They also help to educate and advocate with medical personnel. This was a great need to help reduce maternal mortality, and this quest has only just begun.
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I suffered from an AFE in December 2016. After multiple surgeries, blood transfusions and days on life support; I had no idea what AFE was and no where to turn. My doctors and nurses were amazing but had never had a patient with AFE so the support was limited because their education was limited. With some research I found the AFE Foundation. I was able to find answers to my questions and support from other survivors. AFE foundation is creating awareness to everyone, educating medical staff and desperately trying to find a link to ensure no one has to ever go through this again. Amazing group!!!
As a AFE/DIC survivor of 26 years, it’s so wonderful to see this organization bring this unknown disease to the forefront. There was very little information available to me over a quarter of a century ago and this organization helps bring survivors and relatives of those not as fortunate, together.
Great resource to connect us with other AFE survivors. I don't know if I would've had the courage to try for additional children after my afe without this group.
when you are left trying to put the pieces together of what exactly an AFE is and why it took my sisters life, the AFE Foundation was the PERFECT place to be directed to. From direct one on one support, to research articles to support groups for ALL family and friends affected by the outcome, Miranda has truly created a place for individuals to go to be comforted, educated and involved!
I am an AFE survivor and the AFE Foundation has been an incredible source of support for me since they began their work. The foundation not only supports families in need during times of crisis, but they are raising money to fund much needed research. I am a 15 year survivor and this group has provided support for me at every stage in my journey.
This organization was and is a huge help navigating life after AFE. I don't know what I'd do without the information and support they've given me over the past 6 years!
The AFE Foundation provided me with support and information after I suffered an AFE. The foundation has allowed for more education and research into this rare and tragic event. It does so much for those who have suffered an AFE and the families affected by this rare catastrophic event.
They've helped bring together people who I can finally relate to. Dealing with the physical and emotional stress is somewhat eased when you have support behind you. It's also amazing that they travel and educate healthcare professionals, which is key to survival.
On August 27, 2012, my best friend, Paula suffered an AFE and was unable to recover and passed away. Devastation can not begin to describe how I felt. Through a friend, I was put in touch with the AFE Foundation. Miranda, the founder, personally reached out to me. I don't remember most of the conversation, but I remember knowing how nice it was to talk to someone who could understand my confusion and loss. Miranda called and texted often, sending me resources, recommending books and being a shoulder to cry on over the phone. I learned about the AFE Foundation and their goals and I knew I wanted to be part of it. Three of us decided to hold a 5K in Paula's hometown in her honor to raise awareness and money for the AFE Foundation. We have raised almost $40,000 in the 5 years we have held the 5K. The Foundation is doing incredible work to help end this horrible and often fatal complication of pregnancy. I miss Paula everyday, I miss that smile, but knowing that I am part of the solution offers some peace. I don't know where I would be without the support of the AFE Foundation.
I had an amniotic fluid embolism (AFE) 1.5 years ago. I had a placental abruption at 29 weeks and my son was born via c-section. Everything seemed to go well until a few hours later when I crashed. I was out into a medicated coma for 4 days whiile they tried to stop the bleeding. In all, I was given 58 units of blood.
About a month ago, I was really struggling with my upcoming tubal ligation and started researching AFE again. I had read about the foundation before but this time noticed they had a Facebook group for survivors. Between that group and speaking to the founder of the foundation, I have had a lot of healing through sharing my story and hearing the stories of others who understand how traumatic it was to go through an AFE. I also found their registry for women to share their medical information for further research. It was then that I realized the procedure that was done to save my life was likely written about by the doctor who are working closely with the foundation. And I'm so excited to submit my medical records and be a part of research that will hopefully help doctors save even more women's lives. At a 40% survival rate, I'm blessed to be alive and obviously want more women to survive as well. This foundation is doing great work!!
The AFE Foundation was really helpful generous and supportive since our family has suffered watching my sister in law who is still in a coma for almost a year and half. Me and my family didnt know what was going on and what was gonna to happen. My husband found this organization and contacted Miranda to get some information about AFE. She and this organization were so helpful emotionally and we never could have asked for everything they did for us. didnt expect them to support us. Our family is so appreciative of the AFE foundation and Miranda even my sister in law will be thankful for this organization's support for her son. I will pray until we can find a way to stop this terrible disease. I hope there will be no more moms who will suffer from an AFE. My family believes the AFE foundation's effort and care will make it happen.
I found AFE Foundation through my AFE experience. Glad to know we may have answers and solutions one day.
The AFE Foundation has helped me by communicating with other moms and we all have experienced the same medical emergency. When someone posts her story we understand because we have been through it. We can help others by sharing. I am not alone. Other moms are not alone. I appreciate the AFE Foundation!! My AFE happened in March 2008 in Jackson, Tennessee. We need research in AFE and studies. We need to understand AFE more!!
A wonderful organization promoting the health and well-being of mothers and children who have experienced AFE. They are also a great advocate for survivors, widowers, and children of AFE victims.
SISTER IN LAW HAS 5 CHILDREN, GIVING BIRTH FRIDAY IN MINOT ND 3/3/17 SUFFERES THIS. SHES FIGHTING FOR HER LIFE RIGHT NOW. PRAY EVERYDAY HER KIDS NEED HER
In a time when our culture is so knowledgeable about medicine, it is tragic that we are losing mothers and/or babies during childbirth. Before our own next door neighbor experienced her AFE, we had never heard of this, had never known anyone else who had suffered from it. We are so grateful she was surrounded by an excellent team of physicians, nurses, and technicians, and that she and her precious son survived. Though she has had years of dealing with the sequelae of her experience, she was greatly motivated to reach out to others who had similar experiences or who had lost a loved one due to AFE. To read the stories of these mothers or grieving family members is so heart wrenching. For fathers to be left alone to raise their children, to have the mother survive but suffer months or years of physical difficulties and neurological damage, or to lose your daughter or sister is life shattering. It is clear that this support network has already been of great help to so many; the fund-raising events; the forums that bring people together to share their experiences, to be comforted and grow in strength and knowledge; all of these efforts mean so much to the victims and their families. In addition, the organization is reaching out to the medical community to coordinate research and develop greater understanding as to why this happens and how to prevent it in the future, to save lives, save families. We are so grateful our neighbor and her son survived. We are hoping that the knowledge gained and discoveries revealed through the efforts of this organization will help to prevent this tragedy from happening and strengthen the families who have suffered.