Cherubs The Assoc of Congenital Diaphragmatic Hernia Research
May 1, 2011
I have to say, that although my son is a survivor of CDH (almost 28 years now) I have been blessed to have been able to connect with Dawn Williamson and so many wonderful, caring,m giving people through CHERUBS. Back then, we were given very little details about CDH..we were only told it was life threatening and that my son would spend quite a while in the NICU. After all of these years, I have found out so much information about CDH, I feel more empowered to move forward and teach others about it, make them aware of it and do my best to try to get funds to bring research for CDH, so that, maybe, in my lifetime..it will no longer be a potential death sentence for babies. I am so grateful for this organization and for the people running it, the people who have joined it and for giving me a place to connect and learn. I hope someday to "pay it forward"..to help others the way they have helped me.
I've personally experienced the results of this organization in...
I have been given so much information, so that I may go forward, to educate my friends and family and hopefully, when my own child has a baby of his own, that he will know enough about the condition that almost took his life..that he too will become educated and aware.
Ways to make it better...
If I had to make changes to this organization, I would...
not change a thing..it has been a Godsend for so many
General Member of the Public & I have helped educate people about CDH, and promoted fund raising for research dollars through various contest.
Review from Guidestar